From the article: Understanding Fibromyalgia Pain
Which types of pain do you get? Is it a relief to know that you're not the only one? Do you have other kinds of pain? Leave a comment here to help others learn from your experience!
Share Your Experiences!
Firbro Pain
- I've been reading your blogs and wishing it wasn't happeing to anyone. No one should have to suffer this kind of pain continually. To hanging in there. Keep on trucking hon. I had both breasts removed due to cancer 17 years ago. I'm still here and wasn't suppssed to make it a year. The one thing I am lucky about is not having to wear a bra. I get pain so severe right where my bra would connect that I can't move my arms and feel as the bone will break. I've gone so far when the pain is so intense of hitting myself on the back with a hammer. Beleive me this is not a reccomendation. Just shows how far we can go to relieve the pain. Sometimes I feel like I have to create more to feel less. Does that make sense to any one?
- —Guest Judy M.
Finally..others who can relate!
- I am so glad I ran into this site. Now I know that I'm NOT crazy. I've had this pain for some time but it intensified in 2005 when my mom died. my legs were aching so much I could hardly walk.I was diagnosed with Fibro. I have pain in my knees, calf of my legs, arms, shoulders, hands and fingers, and headaches. I also have LOADS of fatigue!I push my body many times to get things done, but I end up in bed for the next two days because of.I've also just faced breast cancer and lost a breast, so that was NO fun ride.I feel that stress most definitely contributes to the pain. In the morning, I'm SO sore and stiff all over; I wake up in pain several times during the night...my hips, knees, arms...head/shoulders. It's so unbearable at times and no one seems to believe me. Thus I'm SO glad I ran into this site, and I've read a lot of you wonderful women and your sharing. Thank you so much! I live alone as my hubby of 36 yrs left me 3 yrs ago for a much younger woman so that didn't help eithe
- —Guest Hanging In There
Fibro Pain
- I to suffer extensivly from fibro pain. I also have chronic pain symdrom diabetis that is no longer under contrl and aam a 17 cancer remission survivor. My pain is constant. If I over do it like I did yesterday I pay for it for days. When I got hme from a wildlife benefit that was held outdoors in the cold (which I didn't feel) a lot of heavy lifting over several days and being on my feet for hours. I was able to conceal the pain because no one understands it and it seems to make them uncomvortable. Even my own family doesn't understand it and I have had fibro for over 25 yrs. When I got home after the event I could barely walk, The pain was so severe over my entire body I couldn't even cry. I was hunched overe and each step was pure agony. Sharp pains, aches that never go away. Sometimes it seems as if my shoulders and bones are so tight they will break. I once had a very deep tissue massage that made me feel so good for 30 minutes but then it came crashing back worse.
- —Guest Judy M.
Voodoo and other auto-immune diseases
- Now I have to look for a voodoo doll I guess. I know what you're talking about. Mines always hits in the same spot on the lower left side of my back; right about where my kidney is, but no kidney problems, and leaves me almost paralyized for a few seconds. I have the normal moving aches and pains, and skin sensitivity as well. I am not hyper sensitive to pain, and that really helps. In fact I have a pretty high pain threshold. One of the things that cause me to go undiagnoised for 10 yrs. That, and the fact that I was told basically it was all in my head. Those with fibromyagia should also be on the look out for other auto immune diseases. I had Hasimoto's disease as well, which eventually became thyroid cancer. When I first saw a doctor for the Hasimoto's, I was told I was having panic attacks, and that went on for 10 years before I was sent to an endocrinologist. Never listent to what one doctor tells you if you have a gut feeling he doesn't know what is going on.
- —kayaking4fun
Like the flu
- So many sufferers say that their fibro pain is like having a severe case of the flu that never goes away. Recently I had a severe respiratory flu and I compared it to one of the worst fibro flareups..Ever! Luckily it only lasted for 4 days.
- —deemarie88
gamom23
- Everything you have described fit to a tee. I could not have described it better myself. I also get what I call "vice grip" pain. My body reacts to high barometric pressure and there are 2 muscles that feel like someone has them in a vice grip. One is the fascia muscle above the left eye and the other are the thigh muscles. Loud perfumes or cleaning products will also trigger this. Vertigo, while not a pain, is also a reocurring symptom that is extremely troublesome. But sadly, when I tell the doctors about the symptoms that you have described, I get the "should I call the people in the white coats?" look from them or the "oh no, here's another one trying to get on disability" look. Both are equally frustrating and humiliating. I know my symptoms are real and thanks to your blogs, I know that I am not the only one who feels them. Especially the chaos symptom. Thank you. 41yo Female, lifetime FMS suffer.
- —Guest gamom23
Brings me to tears
- Reading all of the responses and hearing what all of you have been through brings me to tears because although I do not share all of the symptoms I do share many. I have a doctor who contiually tries to put me on antidepressant, I am on Zoloft right now but have tried many others, she refuses to prescribe me more than 1 Vicodin a day. For fear of addiction. The Vicodin works well but I end up takin 2 twice a day and that does help, but I am out long before my refill date and have to suffer. I suffer from tennis elbow so severe that I cant lift anything with the affected arm. It rotates. God forbid I sould be stricken in both elbows. I couldnt function alone. I get muscle spasms so severe between my shoulder blades that I literally, come to tears in absolute pain. I also have sever knee pain. Sometimes both knees but mostly the left. I now goes from the back of my knee to about the middle of my calf. I also get the voodoo pain. It's horrible.
- —Guest TerriLynne43
fibromyalgia
- the worst thing of ll is the mental confusion on bad days. being 71 i am afraid that others will think i am getting alzeheimers.
- —Guest guestsharon71
Mrs. Gray
- My husband has been complaining about severe pain in the forearm and extreme sensitivity to touch for almost a year now. It does not hurt to lift something but when "jarred" or touched ,makes him cringe, or call out in pain, and he's a tough guy. Went to the Doctor ,and Orthopedic specialist, they told him it is tondonitis. We highly doubt it, and basically he was told it would eventually start feeling better. His last Dr. visit was in June concerning this. It has NOT gone away. Oct 10.
- —Guest BCG
Thankful for this site
- I am also glad to find this site. For years I have been attacked with a voodoo doll also and my husband thinks I am just nuts. My dr just put me on Savella, Ive never heard od it but if it works for me Ill let you know.
- —Guest BjinKY
old injury, fibro and pain
- After a lower back injury at work 23 years ago, the doctor was puzzled why I was still having pain. Soon after I was diagnosed with "fibromyositis" and started on an antidepressant, Imipramine. Because of family and work obligations, I could only take a small dose at night. My major pain was in both sides of my lower back and trigger points in my upper back, neck and points at the base of my skull. I was having terrible headaches, the worst pain I have every had. Fast forward 15 years when a friend gave me info on "fibromyalgia". It has taken 8 years to find a great rheumatologist, who has done more for my pain than the previous 6 combined. I take Nortriptyline, Flexeril, Vicodin and Ambien CR for sleep. Stress causes the worst flare ups. My upper back & neck get stiff & I can't take the pressure of a bra some days. The tender points in my calves, forearms and chest throb. Cold weather is also a stimulus. Some days I wrap myself in a electric blanket and bake until done.
- —margaroo
Fibromyalgia Pain
- When I get stressed at work or Iam having problems with employees, I get unbarable pains down both my legs. It feels like shin splints. This last for several days at a time.I find it hard to walk. I'm almost dragging my feet.When I get home all I lay on the couch in a fetal position and rock in pain.
- —Guest Karen
tears to my eyes
- reading all of your accounts of your suffering with this dreadful illness brought tears to my eyes, not only because I feel compassion for your suffering, but that I have the same condition. also, it makes me sad, that people that don't know what this awful fibro is like do not understand what we go trough, and they expect more of us than we can do, then I feel guilty and like a failure, when I was once vital and energetic. I am starting to become resentful of doctors, who either make you feel like they really dread having a fibro patient, because they don't know what to do, or that it's all in your head, or I moved from calif. to oregon and I went to a new doctor to talk about my fibro and get a prescription filled for colesterol, and when I first said to him "I have fibro, he interupted me and said"I don't deal with fibro patients". so he was telling me he didn't even want to discuss it.that was really degrading and I felt like a leper!
- —Guest Diane
All of the above
- I get all of the pains of fibro. Of course, some are from my spinal damage, which is extensive.
- —AnnieG123
types of fibropain
- I relate to all of the voodoo dolls,impaled burning spikes impaled in my back,GI burning,horrendous constipation from the opiates,painful neck-shoulder contractions. I've come up with a description that greatly puzzles all of my Doctors and frankly leaves them speechless. I call it the "bee stings" on my face,lips, tongue and a multitude of altoids up my nose plus add "ice cream brain freeze"in my head. On a bad day it is a bee's nest not a bee sting. Actually 4 specialists and almost $5,000.00 later the diagnosis is atypical fibromyalgia of the face, burning mouth syndrome and severe TMJ. Savella has successfully decreased my body allodynia and pain.Clonezapam (a central nervous system depressant) has calmed down the "bee's nest "and burning tongue syndrome. I also am wearing a TMJ appliance to allow my jaw to rest instead of grind and clench.
- —Guest shelley from Glendale,AZ
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