From the article: Understanding Fibromyalgia Pain
Which types of pain do you get? Is it a relief to know that you're not the only one? Do you have other kinds of pain? Leave a comment here to help others learn from your experience!
Share Your Experiences!
new chest pain
- I have started to get severe chest pain on my left side. I took Bayer aspirin because I thought it was a heart attack. It is usually when I am in the car traveling for more than an hour. Not driving, but in the passenger seat. This last time, we were traveling from Indiana back down to Virginia and were in Kentucky. I almost went to the ER in Lexington. The pain was the worst when I needed to reach into the back seat because of one of my kids. I would often have to put my 2 year old back in her seatbelt and this reaching and twisting behind me (especially when the seat pressed up against me) would make the sharp pain turn into shooting pain all down my chest and left side and left shoulder. It was horrible. I can't say that the Bayer helped any. But, the pain did go away by the time we were 2 more hours down the road. If it had not been a terrible storm outside and if I did not have FM, I would have went to the ER. But, I figured it was the FM and not a heart attack.
- —logomasterpiece
fibro pain
- I got the flu shot for the first time 2 months ago. Since then the fibro pain has been the worst ever. Some days I feel like I have the flu only the only symptom is full body pain. I am still trying to go to my job but it is becoming harder and harder.
- —Guest jos57
Thanks to all
- Sitting here in agony rubbing my right arm and shoulder while trying to find new information. It feels like someone is trying to rip my muscle off the bone near the elbow and shoulder. The descriptions of the various pains are perfect! Before I was diagnosed my hubby wanted me to quit work and "get better". We got a puppy to keep me company. Ended up having voodoo attacks in my chest for 2 weeks. We thought that maybe the puppy was too much work for me and had to send it back to the breeder. Now it has been 3 years, got diagnosed about a year ago and the pain is worse. I still miss that little pup BUT I know that I have to pace myself and take care of the important things in life. It is too cold outside for a walk and sitting by the fire with the pc has helped. I like it when we are able to use humour to get through the day!
- —Guest dismom9
you nailed it girl!
- I could not have explained it better. The voodoo doll pain is the worst, I have gotten it for years, it is in the area of right upper abdo. under diaphram, around flank (kidney area) for me. takes my breath and last for many minutes, sometimes over and over again in waves for hours. I have been to er 4 times for this and each time they have thought kidney stones, none ever found. I have had fibro for as long as I can remember, diagnosed in 2008 so, 40 years. All I ever got was "stress, hormones,all in your head" until 2007 when I had a "heart event" and then found I was type II diabetic, had neuropathy,then trigeminal neuralgia etc. etc. This thing is tearing my body down so bad that it just seems like its saying STOP! I can't go one more step. I fought through the pain for years but something changed and there were no more remissions, just one long daily grinding illness. I'm 49, you younger people, don't give in, find a doctor who will listen, and help you. I am housebound now.
- —byoung6
tired of pain...
- had a tumour removed frm the T4 area of the spine after 5 yrs of pain that the doctors said was in my head to emerg. surgery after an mri finally done. since then i developed Fibro i figure. i have nerve damage from the operation with allodynia pain in my hands big time. sensitive to light brush of cloth on hands, or any amount of heat or cold. back and shoulders cannot take the lightest tap without cringing in pain. cannot lift arms above head without pain. skin all over body sensitive so bad even putting on lotion is painful! friend wanted to treat me to a spa massage....no way, that is a scary scary thought of the pain that would be involved! it is every day, no one 'REALLY' understands except my husband. God bless him. most people live by the 'if i can't see you bleeding to death you must not be in pain attitude'. if they only knew. i live with it, have no choice, life goes on. live life to the fullest and ignore the ignorant. Peace be with you all. Salam Alaikum. :)
- —Guest ibtihale
Fibro pain
- I have been having pain for quite a few years now..It feels like I have been hit by a diesel. How i explain it. My whole body feels it. My arms legs,joints, back...etc. Sometimes when I wake up light and movement make me have a very wierd feeling..I also get shaky. I just wonder what the best thing is that will help. I go on and read about everything and it scares me.
- —Guest amy
Gut, too
- I have pains in one spot in my gut that are there almost all of the time and I can't figure out what triggers it. It wavers in intensity but is almost always there. In fact, if it's gone one morning, it will be there like a tiger later, guaranteed. It feels like a pinching and a burning, and it radiates up my right side and down into my hip. I had my right ovary out 4 months ago and that helped the pain a lot for a couple of months, but the pain has since creeped back. I wonder if there's a hormonal component to it. Wondering if Yaz might help, or getting my uterus out?
- —Guest Sue
pain
- cannot tolerate cold,, hands hurt just touching anything remotely cold,, temperature range has gotten a lot smaller
- —Guest navydad
what types of pain do you get
- some dayz my hair hurts...i have degenerative disc disorder so my back is unbareable most days...my muscles and tissues are badly affected...i also have osteoarthritis throughout my whole body as is my fibromyalgia...my skin, well, here is how i describe it...take a hairy mans leg pour corn syrup on it then rub round and round then let it dry and try to pull it off...some days its like a bad sun burn...two days are rarely the same...its hard to keep ur cup half full but as a single mum i have no choice...gotta be better dayz ahead...good luck everyone and god bless...may u all have better days!!!
- —gottabebetterdayz
Fibromyalgia for me too
- I was in a head on motor vehicle accident in 2006, and suffered severe soft tissue injuries. My doctor has told me that I MIGHT have fibromyalgia now. He said there is no specific test for it though. I feel buzzing in my muscles here and there, crawleys on my scalp and shocks in the bottom of my feet when I walk. Pain in my toes and hands. Extreme soreness when I wake in the morning. Very achy muscles in my arms and shoulders. Pain just above my shoulder blades. Severe muscle cramps in my feet, legs, back, hands and sometime in my neck even.
- —Guest Diana
Firbro Pain
- I've been reading your blogs and wishing it wasn't happeing to anyone. No one should have to suffer this kind of pain continually. To hanging in there. Keep on trucking hon. I had both breasts removed due to cancer 17 years ago. I'm still here and wasn't suppssed to make it a year. The one thing I am lucky about is not having to wear a bra. I get pain so severe right where my bra would connect that I can't move my arms and feel as the bone will break. I've gone so far when the pain is so intense of hitting myself on the back with a hammer. Beleive me this is not a reccomendation. Just shows how far we can go to relieve the pain. Sometimes I feel like I have to create more to feel less. Does that make sense to any one?
- —Guest Judy M.
Finally..others who can relate!
- I am so glad I ran into this site. Now I know that I'm NOT crazy. I've had this pain for some time but it intensified in 2005 when my mom died. my legs were aching so much I could hardly walk.I was diagnosed with Fibro. I have pain in my knees, calf of my legs, arms, shoulders, hands and fingers, and headaches. I also have LOADS of fatigue!I push my body many times to get things done, but I end up in bed for the next two days because of.I've also just faced breast cancer and lost a breast, so that was NO fun ride.I feel that stress most definitely contributes to the pain. In the morning, I'm SO sore and stiff all over; I wake up in pain several times during the night...my hips, knees, arms...head/shoulders. It's so unbearable at times and no one seems to believe me. Thus I'm SO glad I ran into this site, and I've read a lot of you wonderful women and your sharing. Thank you so much! I live alone as my hubby of 36 yrs left me 3 yrs ago for a much younger woman so that didn't help eithe
- —Guest Hanging In There
Fibro Pain
- I to suffer extensivly from fibro pain. I also have chronic pain symdrom diabetis that is no longer under contrl and aam a 17 cancer remission survivor. My pain is constant. If I over do it like I did yesterday I pay for it for days. When I got hme from a wildlife benefit that was held outdoors in the cold (which I didn't feel) a lot of heavy lifting over several days and being on my feet for hours. I was able to conceal the pain because no one understands it and it seems to make them uncomvortable. Even my own family doesn't understand it and I have had fibro for over 25 yrs. When I got home after the event I could barely walk, The pain was so severe over my entire body I couldn't even cry. I was hunched overe and each step was pure agony. Sharp pains, aches that never go away. Sometimes it seems as if my shoulders and bones are so tight they will break. I once had a very deep tissue massage that made me feel so good for 30 minutes but then it came crashing back worse.
- —Guest Judy M.
Voodoo and other auto-immune diseases
- Now I have to look for a voodoo doll I guess. I know what you're talking about. Mines always hits in the same spot on the lower left side of my back; right about where my kidney is, but no kidney problems, and leaves me almost paralyized for a few seconds. I have the normal moving aches and pains, and skin sensitivity as well. I am not hyper sensitive to pain, and that really helps. In fact I have a pretty high pain threshold. One of the things that cause me to go undiagnoised for 10 yrs. That, and the fact that I was told basically it was all in my head. Those with fibromyagia should also be on the look out for other auto immune diseases. I had Hasimoto's disease as well, which eventually became thyroid cancer. When I first saw a doctor for the Hasimoto's, I was told I was having panic attacks, and that went on for 10 years before I was sent to an endocrinologist. Never listent to what one doctor tells you if you have a gut feeling he doesn't know what is going on.
- —kayaking4fun
Like the flu
- So many sufferers say that their fibro pain is like having a severe case of the flu that never goes away. Recently I had a severe respiratory flu and I compared it to one of the worst fibro flareups..Ever! Luckily it only lasted for 4 days.
- —deemarie88
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