From the article: Understanding Fibromyalgia Pain
Which types of pain do you get? Is it a relief to know that you're not the only one? Do you have other kinds of pain? Leave a comment here to help others learn from your experience!
Share Your Experiences!
Two things I've found helpful
- Two things I've found helpful: 1. yoga stretching and movement every 1-2 hours, during the day; 2. consuming fresh ginger--amazed by the difference! (one study I saw showed this good for muscular pain, as well as arthritis pain). http://www.whfoods.com/genpage.php?tname=foodspice&dbid=72#healthbenefits Seems to have dramatically reduced my IBS, jaw, tooth & gum pain, spider veins, and hemorrhoids & reduced mouth & nose dryness as well. Also read connection between blood thinners and reduced FM pain (something about FM people having thicker than normal capillaries, reducing blood flow to body) and ginger is a natural blood thinner. Anyhow, just some food for thought. Bon appetit! :)
- —Guest Rhapsode
Omg vodoo stab!!!
- I get the vodoo stab in my pelvic area my collar bones my lower back and neck! I have only recently been diagnosed but have been suffering with depression ibs and period pains numbness and tingling since I was 11 I'm now 21 and the numbness and tingling is now physical pain and the stabbing pains have been getting worse over the last 2-3 years. The hardest thing I find to cope with is the constant tiredness im so glad I can finally get treatment and help the symptoms :)
- —Guest CharleyQuk
P.S. I FORGOT...
- How could I have forgotten to add to my long list, the restless leg syndrome. The horrible tingling in my feet, which I take Mirapex. I finally found a Pain Management dr. who treats my pain. First one in 20 years. He gives me 16mg of Hydrocodone every 24 hours and Percoset 10/325 for "breakthru pain" Of course I take muscle relaxers and use lidocaine cream. Yrs ago I had terrible cracking of my jaw,and now(right now) I have excruciating muscle spams in my buttocks aggravating the sciatic nerve on both sides. I think that pretty much sums it up. I feel so depressed sometimes .That has been a companion since I'm 15 (now I am 54) Which came first? I do know that having Fibro causes great depression and severe feelings of loss. And last but, not least, the agony of overwhelming fatigue. It's nice to know I'm not alone. Unfortunately, I fear my 18 yr old has been suffering for yrs. She has a seizure disorder and is autistic. All the medical tests come back normal. Why are drs so blind?
- —Guest JERI
Tendonitis...Only the Beginning!
- Tendonitis in my shoulders, abdominal muscle cramp, "hot spots" feel like intense bruises all over my body, skin hurts, burning tongue, lower back with radiating , excruciating muscle pain in buttocks, bottom of feet pain, painful muscle in left forearm, at one time, TMJ, IBS, headaches(migraines), stiffness all the time,t. I was diagnosed after years of pain back in 1993. I have left foot swelling and right arm swelling. I have hip pain that makes it impossible to walk some days. I get vertigo, light-headedness, balance problems, short term memory loss and confusion, can't find the right word, aching, sore, sharp, stabbing unrelentless. Every minute of every hour of every day of every week, month, year for over 20 years. Suffered whiplash twice in two car accidents as a teenager. Shortly after, the migraines started. I am grateful to have found this group. I am engaged to a wonderful man, fourteen years younger and in perfect physical condition. I thank G-d every day for him.
- —Guest JERI
hot times
- im new to fm but im hating it more each day the pain never stays the same and the temp/hot flushes are unreal.my skin is so sensitive to touch,clothes,water from a wash or shower and the sunshine makes the skin feel like its on fire.the winter months when you should be cold have felt like ive been in a oven.
- —Guest andy p
Forever pain
- Have got never ending back pain! It feels hard as a steel. Dull and most of the time's sharp pain that I cud hardly move. Massage is just an instant relief- be it acupressure, thai massage, or traditional, not even to mention reflexology.
- —Guest Joanne
Mystery
- I never know where it will hurt, what I will be able to do. I sweat so much sometimes, my cloths and hair get soaked. People around me must think I am very I'll. Well, I am. Have been struggling with fm for 30 years. I concur with all the pains written about, even the lafy with the sore big toe. I use Voltaren gel on feet and hands, when I can get it. It is not available at this time. Really helps. I can't make plans, never knowing how I will feel. Lost most of my friends. Still have my husband, and he is a great support. I live on many meds: oxycodone, Xyrem for sleep, (it makes a big difference in pain levels)! Now, my hands shake, and I must travel to see my son and grandchildren. It is so hard to travel, and it takes me days to recuperate once I return home. Since taking Xyrem, I can exercise, and do Pilates, Feldenkrais and yoga. Must keep moving when I am able. I rest in bed every afternoon. Never go out at night, and lead half a life. Grateful for it. I am with y
- —Guest Abot Bensussen
Beating FB Symptoms
- The moment I was diagnosed with FB I started to work out w. I started to build my strength up in my legs, lower back and hips. I would be in so much pain before, I couldn't walk/stand or sit. I didn't know how to handle it. It was insane. The pain working out was bothersome too, but nothing beat the feeling of relief in my legs doing a squat. Working my bum and lower back felt more of a stretch and circulation technique that actually was hard to do because of the pain! 6 months down the road....my leg pain subsided. 1 year down the road during the holidays I realized I was sleeping without pain and sleeping BETTER! BUT the BEST part was being able to work on my feet without pain! No aches in my lower back again! My digestion a TON better (cleaned up my eating and increased my nutrition) My quality of life is soooo much better! I still get tired and I still get "FB days" as I call them and I'm bed ridden, but I will never stop working out. It has helped me deal with this insanity! :)
- —vucetic
Re: Pin in the Voodoo Doll Pain
- OMG! ROFLAMO I was diagnosed with fibro in 2000, after having it since 1977, I have never heard it described this way. The image I got in my head was so funny I laughed until I literally hurt! Don't worry abt the doll--=find the person who made it!
- —Guest Lakewolf
ME TOO!!
- VERTIGO, YES! AND BURNING TONGUE SYNDROME. THOUGHT I WAS THE ONLY ONE! THANK YOU ALL FOR VALIDATING MY SYMPTOMS.
- —Guest JERI
20 YEARS--SOOO DEPRESSED
- EVERY SECOND OF EVERY MINUTE OF EVERY DAY. FIBRO COUPLED WITH ARTHRITIS IS THE WORST ALL OVER PAIN. SOMETIMES I FEEL NERVES GOING WILD IN MY BACK.HIPS, LEGS, ARMS, SHOULDERS, NECK, FEET. I NEARLY DIED WHEN I ATTRIBUTED HEART ATTACK SYMPTOMS AS FIBRO. ALSO CANNOT WEAR A HEAD BAND. "HOT SPOTS" FEEL LIKE SOMEONE POKED ME VERY HARD. SOMEDAYS ALL I WANT TO DO IS SLEEP. I CAN'T SIT FOR TOO LONG BECAUSE I START GETTING MUSCLE CRAMPS AND STIFFEN UP SO BADLY. WHEN I STAND I HAVE TO WAIT FOR THE PAIN TO EASE BEFORE I CAN MOVE. 20 YEARS OF THIS. AND YES, IT DOES GET WORSE. MY CHILDREN GET ANGRY BECAUSE I AM INCAPACITATED AND TIRED. THANK G-D FOR MY WONDERFUL FIANCE'. SOMETIMES I TELL HIM "RUN! RUN AS FAST AS YOU CAN!" I FEEL LIKE A BURDEN TO HIM. HE IS 14 YEARS YOUNGER THAN ME AND IN GOOD SHAPE. DUE TO DEPRESSION AND PAIN, I HAVE GAINED ALOT OF WEIGHT. REGARDLESS, HIS LOVE IS UNCONDITIONAL AND HE WILL NEVER LEAVE. HE AND MY GRANDCHILDREN, A FEW CLOSE FRIENDS, KEEP ME GOING.
- —Guest Jeri
Screaming Body
- The best way to describe it is "my body is screaming".
- —Guest bean
bang on with that old voodoo stab
- ive just read your list of little pain problems ( that's what my dad likes to call them)you are so right with all of them.i have recently been told i have the fms curse after three years of pain following a car crash.do doctors in the UK get any training on this subject or on chronic fatigue syndrome?? I have found little belief in these syndromes and less help in general. Im glad ive found support in a group of fellow sufferers .they have pointed me to pain clinics out of my area that do try to help.only time will tell if the rest of the NHS are going to play catch up.also in the wisdom of the (a government group called nice) new rules in the uk say if its not a permanent cure ie steroid injections they will be stopped at the end of 2012...maybe a voodoo doll for these folk is the next move!
- —Guest andy p
Pressing on
- Finally, I have read symptoms that are so close to mine, which I have endured for over 5 years. I am still waiting for a diagnosis. 1 dr said it would get better in time, another 2 that it MAY be Fibro. but still no diagnosis after many many tests. I am tired of wondering where to turn next as you all are I am sure. It's nice to know after reading the responses that I am not alone in this battle.
- —Guest Bessie
Voodoo Doll Pain
- Yes! I know that pain! It strikes out of nowhere, and is usually in the rib cage, and with me it's usually on the left side. I was once driving near my Dr's office, had a long lasting pain right at the heart area, and raced in thinking it might be a heart attack. He diagnosed it as Tse Tse syndrome- FMS pain that specifically targets intercostal muscles. I had a chiropractor tell me it's often brought on by dehydration. As long as I drink half my body wt in oz of H2O daily, and take a potassium supplement, I can ward off the Voodoo Doll pain 95% of the time.
- —Guest Fairladywejo
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