- my nerve signals are not sycronised at times which means I tear knee muscles or back muscles which then have to be strapped or rested or both
- —Guest Yvette Klarenbeck
- My pain is usually worst when I am first getting up after a nights sleep or a nap. Most of the pain I have relates to my injuries from work and from a car accidendent. which radiates from the top of my neck down through my shoulders , down my whole back with radiating pain that shoot down my butt, thigh, and through my feet making it very hard to walk as it also makes my feet go numb! My hands hurt so bad that I can't make a fist let alone try to move them! I am tired and feel fatigued constantly most of the time, but then I really have a hard time staying asleep for long lenghth of time as I can not move to get out of bed without help! and then most of the time I am criing because of the pain I endure.
- —Guest Neumannkimberly@yahoo.com
- Many of the symptoms ppl have described here fit me to a T though I have suffered for almost 10 years now with no diagnosis. The voodoo pain in the URQ and numbness and tingling are my biggest symptoms along with many others. I was put on amyltriptaline for "depression"..because I broke down in tears of frustration that after 10 years of complaining the most I'd been tested for was lyme disease and gallbladder issues. I've had several injuries that could have triggered the onset including fractured tailbone, car accident, etc. The problem was the med didn't work in low doses, in higher doses it made me lose all feeling in my legs and in any dose I would wake up feeling like I wanted to ring my sweet husband's neck just for breathing near me. So I stopped taking it. I have since lost my health insurance and now fear I will have to suffer in silence with no DX. Especially since I live in a small town with old-time docs who don't seem to beleive in the condition.
- —Guest Cat
I'm so glad I found all you !
- I've had FMS or (The Creeping Crud) for about 15yrs. I have not worked in 11 years, I couldn't do it. My morning was a cup of coffee and oxycontin, just to get up. I can relate to everyone's story of pain. FSM pain-WE are not normal pain people.My family & friends don't understand me when I tell them my hair hurts.They don't understand me when I tell them I see neon flashes of lights.They know CeCe has alot of pain, but they don't know the other parts.I blow my mind on the nerv misfires (do i call it pain?)NO. I've become numb with a trippy light show when i blink. My eyes throb when I wake up in the am.I am a Fibromite that tried everything. 1 thing I did have(that I just past on to a friend)was FSM survival workbook.I cannot remember the doctors that wrote it cuz of (FIBRO-FOG) but,any Borders would have the new series. It helped me greatly! When there were NO answers to my freaky (make believe) Pain. At my time,being crowned w/FMS only some doctors believed in it.Happy Im not alone!
- —Guest CeCe
- It has been 15 years since Ihave been diagnosed with FMS. Up until last year I had been able to monitor the pain with being alert to symptoms like stress, fatigue etc. Most of my vacation time was taken in Feb when I would be at my worse. In 2009 I underwent a lot of unavoidable stress and since then I have been off work. My pain level is daily 8+/10. I was happy to read today the different discrptions of pain, I can relate to all of them. I have reached a plateau that nothing seems to work, and so I suffer from the back of my all the way down to my toes. Often many things are going at the same time, burning, tingling, chill like sensations, stabbing, constant dull pain, tingling, and numbness and fatigue. I try no to nap during the day, and to stretch, and walk everyday - this doe not always happen. I am wokken up every night despite taking Elvil and added Melatonin, from pain and numb forearms hands and fingers. To get through the day is difficult. It is progressive.
- —Guest DeeDee
Pain & Excercise with Severe Fibro
- Thanks to the article on types of pain, I feel less like a voice crying in the wilderness. My skin hurts from head to toe ...and not just to touch. It hurts all the time. All my muscles, and now due to additional disorders, joints and long bones hurt. I have no place in my body that is not in pain...most of the time. Opoids help, but my level rarely drops below a 6. I read that only a small percent of people with fibro have my type. Every dr I have seen says it is the worst case they have treated. I am disabled. I cannot excercise very much...certainly not the standard aerobic. I stretch daily (was martial arts enthusiast, so know how.) so that all my muscles get a change to loosen up. A study indicates that fibro patients muscles keep firing for as much as 15 min after use...so it is very imp to rest between exercises. I also do my own version of weight/isometric when well enough...I rest at least 5 min between each exercise...not each set. It takes a long time but helps me.
- —Guest Sharon
- I have been trying to explain this type of pain to my doctor who sent me to a neurologist who didn't understand and said maybe I should see a psychologist. I explained the pain is like a bolt of lighting or being stabbed with a screwdriver because it wasn't like the pain you would have with something thin - it was thick. I left feeling like I had wasted the specialist time. I'm now p/o with myself for paying the almost $400.00 for the consultation where nothing was done or suggested. Take care Mary-Anne
4Years and 40 Specialists later..
- For years I saw Specialists of almost every nature. Underwent many different tests. All to no avail. Then I saw an Immunologist, he asked me to list my problems. When I finished he told me to stand up, and he doen the pressure test, my reaction was to pull away from the pain. He then told me I have FM. He had to explain what it was, as I had never heard of it. My symptoms were pain in over 11/18 points on my body, IBS, Gynea, Migrains, sore stiff legs and feet, swelling in legs, pains of voodoo doll, sparkler, aches, burns and throbs in limbs, cognitive, memory loss, irritablility, sleeping probs, still awake at 3am, up at 6am for work. Many more symptoms too. All of what others have said I have had or got, I had to give up work and go onto a Disability Pension, am having problems dealing with my new life, hating it too. I take Lyrica, Dothep, Indocid. Still cant sleep, still in pain. It's hard and I feel for us all. I hope they find the cause, and th ability to fix it vry soo
Don't know what is wrong with me!
- Reading your articles as I'm in so much pain I feel like I'm going mad. Thought I needed a hip replacement went to the doc and was told hip is fine. Pain is unbelievable. Now have pain in knees and feet. Down the front of my thighs thought I had bone cancer. Feel like I'm going mad so having read your symptoms I have made yet another apt with doc in the hope that I don't get dismissed again as a nuisance. MM x
- —Guest MCM
the invisible illness
- i started feeling unwell at the age of 27. i had just had my second child. and didnt know what hit me.. i am now 38 and have struggled to accept that i am ill and to change my eating habits etc. to which i used to have horrific days.. now i have a chore chart and i do a little bit every day instead of all of it in one go.. i have learnt to accept that i will never be who i used to be and when i went to the specialist who diagnosed me and said i could get better he chuckled.. so i guess the chances of that then are slim. i get all the stabbing pains, numbness, tingling fuzzy feelings, headaches etc. i have tried different meds with no benefit from them. but one thing is for sure.. i might have had to adjust my life for this damning illness but i will never let it beat me !!
- —Guest pankypaxo
Suffering & Living w/FMS
- Hello, I was diagnosed with FMS maybe 7 years ago now. My pain is severe and constant as well as sporadic. I can't even use a wash cloth on my body or sleep between regular cotton sheets. And I could no long continue working becoming completely unreliable – having to call in all the time. I was so glad when my doctor told me that Social Security finally recognizes FMS as a disability. It isn't much, only $700 mo. But it may be more for others. I also have arthritis and bone spurs in/on my spine and hands. Unfortunately I was one of the 1% who have adverse reaction to Lyrica, a great medication for FMS pain. It helped but seriously impaired my mental functions. So now the only thing that helps are opiates. You need a good pain management doctor... I found that out. Not all of them are good and GP's are often unwilling to prescribe such drugs... the whole old school mindset is not helpful to those like us suffering so severely. I wish everyone here relief of your suffering..
- —Guest Versewild
- I hate the skin sensitivity the most. My finger tips are especially affected. I cannot touch certain textiles or other parts of my body beacuse it hurts so much. I also have the heavy legs. I try to climb stairs and it burns so much. Iam only using Cymbalta and 800 mg of Ibuprophen three times a day and Flexeril at night to help. I also have sleep apnea,IBS,TMJ, Restless leg syndrome,HTN, Benign Esential Tremors. I am a year into filling for SSD because Ican no longer work as a nurse. I have lost my way of living as I have known it:(I also have no health ins because I can't work. And they tell me to try and keep my stress down. I also had the worst toothe ache one night. I thought I was going to die.I had 3 root canals on that side so I knew I shouldn't be having a toothe ache in that area. So, I guess it was the FB.Everytime you have a pain you never know if it is the FM or something else. One night I could have sworn I was having an apendicitis attache.
- —Guest KAREN
I relate 100 %
- Wow... I have never been able to describe what I feel or if its related to Fibro. You got it perfectly... I was thinking as I read " that's what that is" I was laughing so loud. It's the first time I hear someone describe how I feel to the T.
- —Guest Swan
The wierd skin tingle and the voodo doll
- And I've got a good one, sometimes when I bend just the right way, my sternum feels as if it is breaking in two. That pain lasts for 2-5 days then all of a sudden its gone. That pain is what got me into the doctor who diagnosed me. I hate the skin sensitivity the most. My finger tips are especially affected. I cannot touch certain textiles or other parts of my body beacuse it hurts so much. I cannot belive other people feel this. I am 28 and just got diagnosed with FM yesterday. I have felt this pain my whole life, suffered from migraine since i was 5 and suffered from IBS since i was a baby. Thank God I am not alone in my bizzar, unexsplanable pain. OH! the "bubble pops" happen in my intestines. Thats gotta be a new one....
- —Guest Ahsley
Alot of the above and now a" New One"
- I've been disgnoised with Fibromyalgia years ago and had it for years before I went to a rheumatologist. I've had severial of the aches and pain memtioned from the other people but now I have a new, very aggravating, painful symptom. Never really thought it could be a symptom of fibro but I really think it is after reading some of the other peoples pain locations. Mine starts like a feeling of a sizure, you can feel it coming on before it starts in the spine; antsy, pain, got to move feeling; got to tighten your musles as tight as you can;get up and walk; exercise; It goes down your back, down your legs, your arms, up your neck. Pain meds; muscle relaxers; anything to get relieve because it does NOT STOP. I get the headaches, earringing, aches and pain all over, to the touch. I learn to live with most of it. Tring to get a hold on the newest one with the back; going to try a sizure med. Now I only take 5mg.lor. once a day. I exericise for one hour and stay on the go!Sitting is not good.
- —Guest Littlewilley