The whole &%%$#@ thing!!!
- I'm a 61 yr. old female who has it ALL! I get the pins & needles pain. The Voo-doo doll stuff. Panic attacks! Can't wear bras anymore. They hurt too much. Can only lay a certain way when I TRY to sleep. (Ha!) I hurt in one form or other 24/7. Bad news sends me into a tail-spin. So, just found out my hubby will have to travel one week out of the month til God knows when & he's my ONLY link to the outside world & my care-giver. So, I panic. I should be happy he has any job at all, I know. Then, because of the stress the pain gets worse.
- —Guest eaglehaslanded
Fibro Pain, etc.
- I have all listed types of pain. At times, i can't bear to be touched. The most disturbing issues fall under sensory. I get overstimulated so easily, I often need to take medication before I go anywhere, including family functions. I don't like to "lose it", but walk a very fine line. My daughter gets very angry w/me and thinks I'm a hypochondriac. I have been on LOA from work as RN, because employer refused to accomodate restrictions from my MD on the grounds that it would be too burdensome for my coworkers. I've been working on coping skills and stress reduction, but when fatigued plus in pain, it is very hard.
- —esmeeliz1
THE CREEPY CRAWLYS
- I feel better knowing i am not going crazy. recently i have had the feeling like something is constantly crawling on me and then terrible burning pain my face feels like it has a bad sunburn on it. the only way i feil better is a cold shower then it returns some days worse then others. I was told by my rheumatologist to take a baby aspirin once a day but it bothers my stomach. I did find it helped with the burning. I was diagnosed with fibro 6 years ago but believe i had it much longer and thought all my pain was from stress until the pain got so severe in my neck and was having severe migraines headaches all the time . so i finally got help to see what was wrong.
- —Guest pam G
Sparkler Pain and others
- I almost had to laugh at the sparkler pain description, because that is one I have used myself....even in the doctor's office. I get it in my left sacral/hip area, and it really does feel like someone got a sparkler too close to your skin. I have also described it as how the sound of crinkling cellophane would feel, but the sparkler analogy gets a lot less weird looks! Another thing that we all understand is how very painful a little shirt tag can be...felt like sandpaper being rubbed on my skin! I have cut them out in the past, but truly love all of those brilliant people who have gone tagless in their shirts. I know they most likely weren't thinking of us in particular, but bless them anyway!
- —Guest Nettazig
TINA
- THE THROAT SPASMS JUST STARTED A MONTH AGO...FRIGHTENING. I ALSO GOT TMJ ON THE LEFT SIDE. THAT SHOOTS UP INTO MY HEAD AND IS ALSO VERY FRIGHTENING. I AM 67, FEMALE, AND TRY TO KEEP MOVING AS MUCH AS I CAN. I HAVE HAD EVERY SYMPTOM THAT ALL WHO WROTE HAVE, BUT THEY GO AWAY AFTER A MONTH OR SO, AND ANOTHER TAKES IT PLACE; EACH ONE WORSE THAN THE PREVIOUS. THE WORSE ONE IS A LUMP ON MY LEFT SHOULDER BLADE THAT SENDS SHOOTING PAINS TO MY HEART,CHEST, AND RIBS. I CANNOT SLEEP ON MY BACK NOR MY RIGHT SIDE. I SLEEP ON A CHAISE LOUNGE AND STUFF PILLOWS SO THAT MY LEFT BACK DOES NOT GET ANY PRESSURE ON IT. THAT IS THE MOST RECURRING PAIN AND IT IS SCARY; IT CAUSES NAUSEA, HEART "GURGLING" AND STERNUM PAIN SO BAD THAT I CANNOT TOUCH IT. I DO GO TO A CARDIOLOGIST AND TAKE CARDIZEM AND IT DOES HELP A LITTLE. I FORCE MYSELF TO MOVE AROUND BECAUSE I AM SO AFRAID WHEN THIS CHEST PAIN HITS. I DO TAKE OXYCONTIN AND HAVE FOR 12 YEARS.IT HELPS A BIT. I AM GOING ON AN ANTIDEPRESSANT. HOPE IT HELPS.
- —Guest MICKIE
Pain I get
- Burning shoulders weakness in the hips that make them feel like they are about to go out from under me, pains in my elbows and knees. Some times in my neck and jaw creating numbness and pins and needles, Oh musten forget the FOG totally unable to concerntrate at times. Oh ribs have fun with me to!!!!
- —lesmac
YOU NOT ALONE with FB
- this is not an easy journey,few or almost no one knows how we suffer. been suffering almost all of my since 9 no i'm 37.nothing rally help me. i forgot too much i can't cope on studies. unfortunately not even medical doctors who seem to help me. i get almost every pain you taking about. two weeks before my periods i get so much pains my vigina,anus itch and accompany by constipation. only one week that i'm free from period pains. to my suprise i'm gain weight with my 24/7 pains. my clothes seem to hurt sometimes and that frustrste me.i cant have long hair,my scalp is flaky all the time. with all of this i' coping cause God promise that he will never leave of forsake me. Guys just read Roman5:1-5, this is the way i cope. Me from South Africa,GUGULETU
- —Guest BAFANA BAFANA
The Pain Of Hell
- All the above and now I have the worse pain of all. The nerve endings in the vagina area and all I do is urinate. This is horrible !!!!
- —Guest Maria Gregov
So I'm not crazy.
- I am always swatting at places on my body. The sensations I have are like bee stings all over my arms and legs. I also have crawling sensations up and down both legs. My family says that I am just getting lazy. I tire very easily. I am 35, going on 90. My knees and hips hurt so bad, sometimes I think I'm ready for a rolling walker. Although I feel for all of US, I am glad that I'm not alone.
- —Lavlee
muscle aches
- Most of the time, my pain is just a dull ache all over, but mostly in my legs and hips. I can relate to all of the types of pain especially the voodoo pain. I guess I am one of the lucky ones, because I dont usually have pain when touched, except when pressing on those trigger points on my back. I am waiting for an appointment with a neurologist, who I hope can help more than my gp. He diagnosed me about a year ago and has been treating me with vicodin. I went through all the tests for RA and the meds, which do not react well with me. I had bad side effects with every single one. I hoping that the neurologist can find something that I can take less of the vicodin. I think the worst part of it is the fact that I cant do even half of the things I used to be able to do without paying for it. Oh and another thing that I have never seen anywhere is my pain seems to react with the weather. Low pressure rolls in and I am in bed all day.
- —wolftheef
My living nightmare
- I,m 34 and had fibro for 4 yrs. I'm a mom I feel encouraged that I'm not alone even thought I wouldn't wish upon my worst enemy. It's hard to put what I feel into words. The pain in my Knees, Shins, Feet are so intense I put off going to the restroom as long as I can. I'm so sensitive to temps. When it's 50 degrees outside it feels 20 to me. I hate taking showers because I get so chilled and then I hurt and shiver so bad. Of course everyone has to shower so I force myself in but not as much as I should. My hair hurts...who would imagine...my friends don't understand. I've stopped being able to wear a ponytail or barrett in my hair. Even a loose head band will cause me to end up with painful scalp soreness. I do suffer from Schizoeffective Disorder and I don't always know what is the depression and which is the Fibro. When my depression gets better I only get depressed again because of the pain. It hurts to lay, sit or stand. My muscles are getting weak and stiff. I feel 80.
- —Guest Sarageneva
Pressure Cooker Pain
- Hi, I have all of the pains described but I have an additional one that I was wondering if anyone has experienced and has any releif ideas except for ER room shoots. My arms and sometimes legs feel like they are in a pressure cooker and are about to burst open. Like a helium ballon that is going to explode. My base line daily pain is usuallly between 5-6 on all my meds. This type of pain when it happends, usually at the worst of my pain cycles last 24/7 with no relief. There is no sleeping or resting sas pillows feel like concrete and there is no releif. Anybody else? This last week after 4 days of 24/7 level 10 pain I went to the ER with chest pain and preasure in the chest and arms. The ER doc could only give me two shots of morphine to bring my pain back to my base pain level.
- —Guest opentalife
all the above
- i totally understand all these symptoms but am experiencing something else which i find worrying my mussles in my throat spasm closing my airways causing me to choke violently has any body else experienced this as nobody seems to mention it i was diagnosed four or five years ago and i feel iv took control of the fms as i know what life patterns trigger my flare ups and i deal with the pain as i tell myself its not real theres nothing wrong it works for me but the thing with the throat worrys me as i have no control over it has anybody else delt with this before the cold triggers pain and stiffness stress triggers the face ache as i call it or the pains in my legs driving causes swelling and pain in my back neck sholders and legs sounds so negitive lol i do feel im understanding the fms but its got me on this one does anybody have any ideas on this one From Your Guide: FMS can cause that, but bring it up to your doctor as it can also be a symptom of other conditions. ~Adrienne
- —Guest tina
all of them
- Hi, I was diagnosed with FMS 10years ago. I suffer all of the pains you listed but what I liked about the list is the names you gave the pain....especially the roving pain , voodoo doll and rattled nerves.....sometimes it feels like my whole body is being shaken at one time.....I'm 42 now and also suffer from bipolar disorder since childhood....the first five years were the hardest...but with therapy I've learned coping strategies and ways to stay positive and healthy in some way....I am grateful for your page and information...it seems sometimes that we suffer this disease all by our selves....thank you for allowing me to express my thought....
- —Guest Janet Trotman
fibro and parasthesia
- I have this so bad at this point the parasthesia is over ruling the fibro pain i basically cant move.
- —Guest ann marie
