From the article: Chronic Fatigue Syndrome Symptoms
Which of the main chronic fatigue syndrome symptoms bothers you the most: fatigue, brain fog, pain or post-exertional malaise? What has helped you cope better with your symptoms? Share Your Coping Tips
Cant find anything wrong
- Been to 2 doctors and they ran all the regular tests and they cant find anything wrong. I have severe fatigue, head spins, these siezure type symptoms that come and go. severe weakness. easy bruising, adema, yellow stools with diahrea, joint pain. muscle weakness. pitted finger nails, and absolutely no appetite.sometimes pain in my kidney area, and this has been going on for many months but all my tests are clean. I am running out of options but at least for the no appetite im going to takle things into my own hands and try marijuajna so i can eat least eat. 1 meal a day is not cutting it. and im sure its contributing to my CFS
- —Guest Dizzy
cfs , fibro and stomach flue like sympt
- hello: i have cfs and fibro,with the pain , tirdness do not sleep right etc but i get the stomach flue symptoms so often? what ican do about it,this time its lasted 3 weeks so far, not hungry, nasua, pit of stomach trapped gas also have ibs
- —Guest sandra
symptoms we all share
- Recently I have found that the hair loss, once attributing it to the meds I was on, is a symptom, though distressing to me, I was glad to find out why. I have been diagnosed with FMS/myofascial pain and parasthesias in both legs, which cause me to scream out in pain and not walk, the upper body aches and pains, the tmj, IBS, the knitting needle stabbing in the ear canal, at one time trigger hands, which would make me wake up crying was so painful; thankfully that symptom was transient. Cankre sores which seem to repeat only on one side, out of the mouth on corner of lips, painful, recent clenching of the jaw, and the MOST painful headaches from clenching I have ever had. Didn't used to get headaches, ever. Numb hands and feet, inability to control body temp, and sleeplessness, a biggy. Transient RLS, Fibro Fog, loss of words when I know what I want to say. Does any of this sound familiar? I wish someone could come up with a magic pill for this syndrome!
- —Guest louisa1958
trapped gas [wind] & CFS/Candida
- This is often due to what we eat [strange :] and foods like beans, cruciferous veggies are bad causes.As we age acid production goes down and this can actually cause a rebound when eating. Taking antacids for this can be counterproductive long term. In a book on Thyroid problems CFS is chaptered on its own. In this, candida is mentioned as a culprit and must be dealt with. This little devil can change its form in the gut to an invasive variant which can cause stomach upsets. try live yoghurt,giving the stomach a rest when not really hungry and avoid fluoride if possible [water/tea/toothpaste]. Try to get 20 mins walking exercise a day, no matter how slow and use counting ONE/And- on 'in and out breaths' to get back to sleep at night.Rest is very important when needed -so DON'T feel guilty [or overdo it, if possible- as will affect night rest]. I find 10 mins helps a lot- but sometimes do an hour. medics are very hard to convince [UK] but a recent nurse said ME is now accepted as vald
- —Guest trev
Guest BJ5810 Must be my twin
- I think I developed CF in2007 after a month of lung infection. I had to leave in 2008 an go to a shelter and have been getting some help and have some good days. Im on SSDI I also participate in IPR (intensive Pshyciatric Rehab) thru Meggelann Medicaid this and a weekly couselor and reg psyh Dr. have helped me to keep going each day. I strongly recommed IPR I know this past year has change my outlook and I know this has improved my quality of live. I have hope now. I can't do much about the bouts of CF, and Bain fog but It is what it is and I will keep searching. I am also taking Addderal xr for ADD, Prozac 40mg, xanax xr 1mg (5pm) and prilocec, vitamins melatonin and Inetrex for Migraines. Botox has helped HA and neck , ear, Shoulder pain , My husband has severe FM Sometime I think I got this from Him or maybe it was the unimaginable stress with my teenage daughter. Don't let this disease control you remeber you are so much more than it
- —Guest Barb Hole
I think this might be my problem
- I had started thinking I might have narcolepsy because I have periods of time of extreme fatigue that no one believes. It happens every two or three months. Today I had another bout. I just have to lie/sit all day and if I fight it, I get so dizzy I think I'm going to puke. Then after one or two days, I'm fine. It happens if I've been esp stressed or worked/exercised really hard. It's paralyzing. This time I had unexplained excruciating tendonitis in my wrists up to my elbow for the past week, something I've never had before. I have a lot of the other symptoms you all list. It's good to see medical comm. is starting to investigate, but for now, I'll try the supplements and just try not to get mad at myself--I don't have control over when it affects me.
- —msguess
CFS/Fibro
- Oh my you all, can't believe that I found this site. Almost all of you have similar or the same symptoms as I do. I was diagnosed with CFS/Fibro Jan 09. I have the awful headaches, muscle/body aches, stifness, brain fog, no energy, exhaustion, not feeling rested even on the rare occasion that I do sleep more then a few hours a nite. Moodiness, easily stressed. Light & noise bother me a lot, my hands, fingers & toes tingle at times. Have problems with my eyes twitching & thinking & memory are pretty well shot. I often feel on edge, general acheyness, always tired, usually sleepy. I am always having to push myself to get things done that have to be done. Both my husband & daughter are disabled so I have to take care of them as well as me. Can't get on SSD cause husband is getting it. I could not work if I had to. This disease makes me feel so worthless & trapped. I cry a lot because of depression & pain,I don't go anywhere/do anything I don't have 2.Thank u all 4 understanding
- —Teenysmom
helpful hints
- These symptoms listed really help to under-stand what goes on when suffering fibromyalgia.
- —Guest jazzy
Borogirl
- I was diagnosed with CFS in November 2010, since then I have had no let up! I was off work for 8 month ( I am a RN) I returned on a phased return which I am managing some days, but I feel I am no way ready to go back to full time hours yet although we need the money, my manager gave me 2 options reduce hours or leave!! I am so fed up I struggle to get out of bed some days, have no energy and feel I am going nowhere at all with this. I attend a support group quarterly which is great just to be able to spend time with people that understand where I am coming from. If I finish work I cant get any help with benefits, I am at my wits end. Can sympothise with everyone here as its an awful illness that drags you down. Thanks for letting me sound off
- —Guest Borogirl
couldn't count 8 quarters
- Trying to get into a lecture today I couldn't count out the correct number of quarters to make $2..00. Really look like an idiot. I have all the symptoms and they vary day to day. Yesterday it was carpel tunnel in both hands, today it's my left leg paining me. I have great Drs. and that helps me a lot. I use Xyrem to sleep at night, and Lyrica in the daytime. Both make a big difference in my feelings of well being. The good sleep has taken away the migraines, but I'm left with dry eyes and mouth. Fighting off depression and anxiety takes all my strength, and the weight gain with Lyrica is so scary. Wishing we could find out the cause and the cure before I die. I'm 70 now so there's not much time. Oh, my I.B.S. is much better with Amitiza. And I do try to exercise 5 days a week.
- —Guest abot bensussen
Does any one have these symptoms
- I can be sitting in a chair or sitting anywhere and all of a sudden I fall asleep and talk about weird things I was diganosed with fibromyalgia but I was wondering what these symptoms are from?
- —Guest Donna
Long and Winding Road
- Diagnosed with FMS 1990, along with MVP, TMJ. CFS came1992. Has been a lonely road with Drs not really knowing anything, friends and family thinking it's nothing, just get over it, etc. Fortunately I didn't have to keep working. Looking in a bookstore for a book on FMS/CFS (there weren't any back then) found a book on the MVP, with a large subset of people with Dysautonomnia - had all of the systoms of FMS and some CFS so I knew I wasn't crazy. Since moving and changing drs (military) over the years and experimenting with many meds, found supplements that help, too. 1) Magnesium Citrate 2)Gingko (blood flow to brain) 3) CoEnz10 + all B vitamins. 3) 9mg Melatonin 4) Iodine/kelp as thyroid booster. Music therapy has short term help. Had been on Zoloft for years + Ativan and Lorazepam a night. This spring switched to Savella, dropped Ativan. This, the dr. said, would give me more energy for CFS. Has not worked for me even at 100mgx2. Any of you take vaccines? Heavy metal toxins!
- —Guest Melinda
CFS symptoms
- i am wondering if anyone else with CFS/FM seems to have become dyslexic since becoming ill. i have had CFS since 1993 and i am constantly reversing words, or sentences. it drives me crazy when i realize it, but most of the time, no one even questions what i say, like they either noticed it and didn't want to embarrass me, or didn't notice it because they know what i mean. crazy!
- —kodiak1052
Sick as a dog, but hoping in Christ
- As a child, I always had less energy than my siblings. I was perfectly content to curl up in a corner and read a book while my siblings played outside. I was bothered by this because people thought I was lazy. And this was all before CFS kicked in! I've had CFS for three years and I'm thankful that I've always had a low-key personality or this might just drive me insane! I've found that in a way, CFS has been a blessing to me because it has forced me to prioritize more and be more dedicated and devoted to the things that I do choose to do. Being sick has also helped me to stop seeking happiness in earthly things and instead look forward to when Jesus will permanently heal this failing body of mine! I have dealt with depression since I was nine years old, so one would assume I'd have a terrible time with it as a CFS patient, but that's not the case. In fact, because I am relying on God more and putting my hope in my future with Him, my depression has lessened a great deal. Praise God!
- —boycechristin
Reducing Work Hours Helps
- My worst symptom is post external mailaise. I go to a new level of fatigue when this happens. At worst I've had help dressing and walking. The worst is trying to hide symptoms at work, then paying for it when I get home. (Increased fatigue and weakness as a result - post external malaise again!) I don't think I'd mind the results of the malaise if I didn't have to work. I think I could bring down my symptoms and become more functional. But then I wouldn't have health insurance. As a compromise, and out of desperation, I've reduced my hours to 30 - minimum to still get benefits. It is still too much, but the best I can do. Fortunately my doctor filled out fmla paperwork. Unfortunately my boss is not happy about this. At least if I'm fired I may be able to file a claim against the company for not complying with the family medical leave act. I encourage all who are still working and struggling to ask if your doctor would help you request reduced hours.
- —Guest Chicklet
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