Extra Energy
- OK, so I have been barely coping for some time now. I decided to go all out and get some of the supplements that Adrienne and others have been talking about under supplements. I am able to cope better. I am especially excited about having more energy since I am taking Ribose. I still have to pace myself, etc. I have more thinking energy since I have been taking Omega 3's, Rhodiola and Ginkgo. Still cannot overexert, but more consistency in functioning. I am also taking Melatonin, L-Theanine and Valerian for sleep. I wake up several times, but go right back to sleep. Sorry it's so many, but they are helping. Best Wishes
- —mimisue2
A few things I have learned
- Was diagnosed with CFS 6 yrs ago after having to lay in the front yard from exhaustion simply walking the trash to street. Symptoms are similiar to yours where there were days I couldnt leave the house because of IBS. I couldnt go into stored the lights made me dizzy and lightheaded. To ride in the car made me vomit. Exhaustion so severe somedays I couldnt sit up or even hold a pencil. Thanks to a wonderful dr who worked with me I have had better days. None spent in bed but I do continue to have struggle with other complaints though to a lesser degree. PLEASE always ask your dr before taking any medicines.
- —starshine11494
Guess I have CFS and FMS
- I was diagnoised 15 years ago with FMS. Now, after reading about CFS, I feel like I have both of them. I realize a lot of the symptoms are the same, but there are some listed for CFS that I have that aren't listed for FMS. Great, just what I need. I, too, have no social life anymore. I work a full-time job and put on a happy face all week, but come Friday night, I go home and don't come out of my condo unitl Monday when it's time to do it all over again. I've been divorced for the past 10 years and live alone, so I don't have to worry about anyone but myself. However, all my family lives close, but it's a struggle just to go visit them. I've quit going to church because I need that extra day to do nothing so I can make it during the week. I get so frustrated because I try to clean my condo on the weekends. I usually have the vaccum cleaner sitting in the middle of my floor all weekend. I want to do things, but just can't find the energy or the ability to get myself up and going.
- —shastaholly
Fatigue; Partial Tip
- Severe fatigue today from stress. Had a group of guys working on my roof, and the noise, etc. extremely stressful. I could not leave because they needed to put electrical cord inside the house, had to ask questions, etc. And I was too stressed to think of what to do-severe fog. Today I woke up with more fog, fatigue and pain than usual-severe. And today they had to return to finish the work. It took most of the day. I tried to take lots of rest breaks and listen to tv shows. Lying down for long periods of time will lead to eventual return of an amount of energy. Trying to smile some to get back my sense of humor. I have taken everything off my calendar for a few days to catch up on my rest and energy. Then I will go back to pacing myself-doing a little at a time with frequent breaks and making sure I eat balanced meals and take all supplements. Cannot do that when I am so fatigued.
- —mimisue2
Anyone's spouse or children affected?
- I have all of the symptoms. Pain I can live with... it's there... but the worst is the extreme fatigue and brain fog. There is recent research linkin CFS and Fibro to a newly discovered retro-virus XMRV. If this is true, it explains why my husband feels the way I do. Also my best friend was diagnosed and her hubby feels similar - our hubbies are undiagnosed. We both have children - my oldest son I relate to - he was diagnosed with ADD and when he describes it to me it sounds very similar to my brain fog symptoms. I was diagnsed with fibro this year, but have had symptoms for at least 12 years. I'm going through my first major flare-up. Initially was diagnosed with major depression/anxiety until I took a list of my symptoms that filled up a page to the doctor. Forget trying to explain how I feel,I can't find the words. Good luck everyone, maybe we are on the front of a new medical discovery.
- —Guest MeliscentVega
loss of sense of SELF
- I have cfs, and it seems like my symptoms like to play tag team.... "Let's see which of this should torture her today!" It has been years since I've felt healthy, and for the two years I've been dealing with excruciating fatigue, cognitive difficulties, food sensitivities, and... the list just goes on and on. I'm not sure what I mind the most. Barely making it through each day at work? Having basically no social life because I simply don't. have. the. energy? Spending days in a fog? Seemingly unending pain and discomfort? Or situations like this morning, when I couldn't figure out how much change I should give someone.... they gave me two dollars, and the product was 65 cents... but do you think I could figure out how much to give them in return?!? I felt so stupid! I think I miss me the most... my mind is dulled, my intellect damaged, and my sense of humour diminished. I've lost the sense of who I am vs what the condition has made me.
- —Guest mary
At Least I'm Not So Alone Now
- When it first became apparent to me that I was ill, I felt so alone. I had no idea what was going on and doctors weren't much help at all. And my husband, bless his heart, doesn't really have a clue. After several years of thinking that maybe it was all in my head (like some doctors seemed to think), I finally got a doctor to say that it was probably CFS. But that I was stuck with it and still pretty much on my own. At least with the various websites and comments I know that there are others out there with the same horrible issues I have. Right now I'm dealing with muscle pain and weakness, sore throat, exhaustion, tinnitus and swelling. But I have had most of the huge list of symptoms at one time or another. The panic attacks and anxiety are the worst. And I couldn't hold a job right now to save my life.
- —Guest so-many-dogs
cling to my maker
- I'm rather fed up right now (ta for the chance to vent) with post-exertional malaise -the thing that happens when you push yourself a cm over the line when at the time you feel fine...that horrid, sickly feeling that can last for days or weeks even. I've had CFS for over 3 years now, I'm almost 30. I am extremely social as a person so find it hardest missing out on seeing my loved ones cos of fatigue. I HATE not seeing people that I love. THe illness is so mean because it does not forgive the slightest over-exertion (at least at this stage of it, I was doing better before). It's not nice to know that i could get worse, or better= the unknown. But as another poster has said, I thank God that my identity and life purpose stay the same. I'm not depressed, bitter or hopeless b/c Christ Jesus rose from the dead after paying the death penalty for my (& your) sins & flaws against the holy beautiful God- he's with me everyday & will resurrect this sorry body when JC returns. Seek & find Jesus.
- —Guest karby
Fatigue and Fog Oh My!!
- The fatigue is horrible. 2 or 3 days a month i feel great, if i could just bottle those days. Fog is getting worse, meds don't help that problem just makes it worst. Sometimes cannot complete a sentence...feel stupid. Pain is ok now but what will tomorrow bring. Sore throats and cold that last weeks!! All we can do is cope the best we can. Be strong!
- —Guest Priscilla
Lou Lou
- Hi all cronic fatigue sufferes: At the moment i feel unwell all the same things: fast heart rate not sleeping sore throat head ache sickness aching joints: I have had this for 5 years diagnosed: I have food allergeys and i b s: I always end up at the emergencey department with chest pain : I will talk again soon bye:
- —Guest Lynn Thompson
is this right???
- This cant be right? Where did this come from? I am active and still relatively young. Started in one hand, then shoulders, back, arms. hip and now feet. Worse at night Doctors say I am healthy. I feel like I am complaining. How can I be sure? I refuse to take medicine unless its safe. This sucks!!!!
- —Guest this sucks
A Lifetime of Pain . . . Happy Ending
- My earliest recollection of pain was as a small child sitting on the floor and complaining about pain in my knees. My dear Aunt Lillian was the only person that even noticed. She sat beside me and messaged my knees. I loved and appreciated her for that more than she could ever know. Knowing pain at such a young age led to my early career decision. At age 4 I decided to become a nurse so I could help others feel better. Read more at: http://nutriphysics.blogspot.com
- —Guest goodhealthtoyou
Fatigue and pain
- Fatigue and pain are the worst. Very little brain fog, some name forgetting. Ambien doesn't work at all for me, though I feel much better, sometimes, if I get a good night's sleep. The only thing that's ever helped me sleep is Halcion. Used to have sore throats, but haven't had them for years. Irritable bowel flares up once in awhile. I'm haviing trouble finding the right meds. They're all starting to backfire on me - give me terrible side effects or don't work at all. The last six years, have developed one or two new problems each year; last year it was atrial fibrillation.
- —edwards29
walking like drunk
- This was a new symptom for me with my latest flare, my feet seemed to go the opposite of where I intended. It was pretty scary, also sleeping at the wheel, even scarier. Brain MRI showed nothing of course, sent me for Physical Therapy, the therapist just happened to be specialitst in myofacial pain, says the facia (muscle sheathing) near my skull and shoulders was so tight it could be causing lack of oxygen and poor nerve conduction, this the sleepiness and drunkeness, 2 weeks into it and actually seeing improvement in walk, less tension in perpetually clenched jaw. Still sleepy though.
- —Guest weeroo
Undiagnosed, but suffering.
- For the longest time I didn't know. I haven't seen any doctors who were competent enough to give me an answer (though I realize how hard it is to spot many illnesses---trial and error, after all), but the pain has been overwhelming. Worse yet, I find myself struggling to form coherent thoughts/concentrating on the simplest things, especially with recollection or reading. I've lost most the of muscle strength in my right arm (right hand dominant), and many people don't grasp the reality that when things become physically impaired, it's more than a physical issue---it becomes emotional when you're no longer able to do things that were at one time so mundane and easy. Also, the exhaustion that I constantly experience makes home life excruciating. Little chores like doing the dishes by hand/folding laundry have become impossible. The fatigue is murder. Finding a job with this illness, let alone in our economy, isn't going to happen! Fingers crossed we can all find a little pain-free peace
- —Guest kyttenfox
