From the article: Brain Fog/Fibro Fog in Fibromyalgia & Chronic Fatigue Syndrome
Brain fog/fibro fog can be frustrating, embarrassing, debilitating -- and sometimes even funny! Share your brain fog stories, and compare yours to everyone else's. Share Your Foggy Moments!
fibro fog
- I constantly feel like I am having a million thoughts at one time. I can never get one thing totally done before I am on to something else. I have FMS, and the fog is severe. I can't do anything I use to do, remember anything, multitasking is a thing of the past. I bothers me so much I only get more depressed with it. I has made my life harder than it shoud be
- —Guest cheryl
Brain Fog Stories
- In 2011, whist writing a dissertation, I found myself having to read paragraphs that I had written over and over again as I found it impossible to determine if they made sense. What seemed gramatically correct one day, would not the next. I felt like I had forgotten how to write the English language, struggled to keep things in the correct tense and would waste hours staring blankly at a page of my work that may as well have been written in Esperanto or Latin for all the sense it made. The research and writing process took four times longer than it should have as a consequence. I was relieved when it was over but was also saddened as I knew it did not represent the standard of work that I was capable of.
- —lozwatt59
brain fog
- I find taking 0.5mg of clonazepam helps with the fog. It seems to settle my brain down. And avoid caffine. x
- —Guest rabbikernow
Makes me look like a fool
- I seem to have brain fog moments every single day. It can be something as simple as not remebering where Ive put my phone, to not being able to remeber what happened two days ago. Its frustrating, I constantly have to explain myself to people and am made fun of frequently by people saying I have dementia. It makes me so frustrated that people think its something to joke about when for me it produces some truly humalitating moments
- —Guest dimmey
At least we're not alone... Sigh!
- My favorite thing is learning new things. I wanted to get a PhD before I turn 60, but now I am glad I finished my MS in time. I can learn and do artistic, nonverbal things, but I can't track mental activities well enough any more, which is heartbreaking. However, I have learned a number of tricks to help with daily life. I bought clips to put on my keys and put key rings on my purses so I can clip my keys to the OUTSIDE of my purse. I rarely lose them any more. I use a small credit card wallet and only buy purses with a compartment it will fit in on the outside. Life saver. I carry a small notebook in my purse and write down everything, like where I parked. I developed a system at work where I have a to do folder. Inside the front cover I put post its of Must Do items, and any To Dos that are on paper are slipped in it. It opens first thing in the morning, and saves my life at work. Also, I explained to my boss that I need things in writing whenever possible.
- —KellieSnider
You Understand
- Before I was diagnosed with FMS/CFS my husband called and asked me to get a paper from upstairs and give him some info on it. I became very upset and started to cry that he was asking such a hard thing. He thought I was being lazy and selfish... and ridiculous. I had no idea how to tell him sensibly that it would literally be too hard. Reading this I just had a wave of, "she knows." Now my husband gets it. He has been to see my doc with me, and is so supportive, but in the years before diagnosis it was perplexing and so challenging in so many ways.
- —Guest Guest, Kellie
detached
- Got diagnosed with fm/cfs 5 yrs ago...dont remember exactly. I am recently divorced and a major part of the end of my 14 yr. marriage was brain fog. He never believed, nor understood, or really cared to. To him I just was never paying attention, uninterested, and had my head up my a**. I was called names. I was and still am chronically tired, and have small spurts of normal energy, then have to relax. I am stressed easily and memory sucks..mostly short term. This particular issue has costed me everything in my divorce. The very first consult with my atty, I had to bring someone with me...everytime I saw her, I was not alone, I explained why. Brain fog. Her sympathy seemed sincere. Two years passed, great offers passed, some I found she never even told me. The evening before trial...she unexpectedly called me in her office, told me to bring no one. He and his atty were there to settle. She tricked me. I was exhausted, fogged, and unprepared. If only I could have thought clear on my own.
- —Guest tonyabb
Gah! I'm only 34!
- I've thought for years that I've had Fibromyalgia but have never been diagnosed. It started w/ the pain & in the last few years I've started with the brain fog. My last funny story was forgetting what Lot I parked my car in at the airport. I knew what side but didn't remember the section A-Z!!! Had to ride with the man who takes down the license plate numbers so he could help me find it. When I go to Wal-Mart I almost need to write down what # row I park in. Same thing at the mall parking garages. It's getting so bad that I have a hard time remembering simple words. I can have a conversation with somebody and 30 seconds later forget the whole conversation. I get 8-9 hrs of sleep, eat a healthy diet, exercise 4-5 days a week. I guess I need to add some supplements as well. I just tell everyone that I'm Add, I think they understand that more than Fibromyalgia. :/
- —Guest Leah
kayden
- i phoned for a spicy chicken pizza it came out as chizzy spicken pizza
- —Guest madge
Get Provigil
- On days when I need to find my words, to make sense when I speak, I take half of a Provigil tablet. It's a stimulant that allows me to find the lost words and thoughts. I don't use it daily, it's expensive, but it does help me to appear more normal. Recognizing faces is a bit more difficult and nothing helps me with that. It's so unnerving to think you know someone whom you don't and never did. Horrible illness, this fibro stuff.
- —Guest abot bensussen
Can't study
- I've had this sympomts since like forever, I'm 26 years old an my math skills go up to everything I can solve in my calculator. Millions of embarrasing moments in school when I couldn't do that divission or add up the angle imside the triangle. The worsttime ever. But that's not all, I was studying my I absolutly loved at the University: History and from the begging I just couldn't read A sentence of anybook, could apent four gours in the lybrary trying to read 1 page!! Very frustraring... 2 years later I got the answer: cfs and fibro But still with no degree....I NEED SOLUTIONS, WE NEED SOLUTIONS
- —Guest Sophie
fly by night
- I've been seeing the same therapist for almost 5 years now, but somehow I couldn't find her phone number. I even went online, beginning to think that maybe they had moved out of town. Were they just a fly-by-night, make believe office? Weeks went by, I didn't go to the office because I was afraid it was empty. Finally a friend came visiting and realized I wasn't using the right area code. Did so, and found my long lost therapist with great relief!!
- —Guest abotsd
Fibro Fog
- I have had Fibromyalgia/CFS since 1992, am now 65 years of age. I had a complete hystrectomy in 1977 without any estrogen supplements. I found I would cry while taking minutes at a Board of Directors meeting, but when I found that I had walked from work over to the drug store, couldn't remember why I was there or how I got there, I pankicked and called my doctor. He immediately had to give me directions to his office again, but gave me a hormone shot and started me on hormone replacement theraphy. With amazing results, the crying stopped and the fog disappeared. Of course, now at almost age 66, I find I can't go from the phone book, the answering machine or any short term jont, without writing things down, it has just become a way of life. Long term memory is great, but short term memory is a real fog. I am thinking of retiring the end of this year, but am afraid if I don't have a reason to get out of bed in the morning and get those old joints moving, they will stop!
- —JonDiane
I have SERIOUS LOSS OF TIME!
- While I totally understand, and Pray for ALL OF US THAT SUFFER FROM THIS SCARY & EMBARRASSING DISEASE, about My Brain Fog/Memory Loss, and COMPLETE LOSS OF TIME!! My Mother and I live together, THANK GOD, and I've been sick for 7yrs or so, and am unable to work anymore! She'll go to work and be gone for 8-10hrs, and when she gets home, and I'll have 10+ projects going, scattered EVERYWHERE, Which I don't realize, and she will ask me 'What have you been doing all day/night?' And, I'll Have NO IDEA! It's as if my memory has been erased! And, all I can say is 'I DON'T KNOW!' And, I TRULY don't! I have COMPLETE LOSS OF TIME!! For ALL those hours!! And, It's SO embarrassing to me! And, Frustrating For Her! She says 'Its Like You're 4yrs old again! And the tears of anger, fear, humiliation, depression,et As I was saying.........It's just SO UNBELIEVABLY EMBARRASSING! So, I'm wondering if ANYONE had complete loss of time for that long? I mean, Its gotten WAY OUT OF CONTROL!! How can you NOT REMEMBER what you've been doing for 8-10+ hrs? And I've had test after test, every imaging done you can think of! And, Get This..... All The DR'S Keep Telling Me That ALL the tests, Neuorology Tests Anyway, Are ALL NORMAL!!! What?!?! And, I tell them, 'Ok, THAT ITSELF, IS NOT NORMAL!' So, after watching MYSTERY DIAGNOSIS, I learned a VERY IMPORTANT LIL SECRET, and went & Googled EVERY SYMPTOM I HAD, & hit ENTER! And, OMG! Just like the woman did on the show, MY JAW HIT THE FLOOR! On my PC screen pops up something I NEVER HEARD OF! And it was Dead On to EXACTLY WHAT I'VE BEEN DEALING WITH! M.E.! I Cried Like A Baby! But, Happy Tears! All I could say is 'I'm NOT CRAZY!' Over & Over! Now, all I need is a Dr that not only treats it, but FINALLY Believes in it!
- —Guest Vampirella
Brain Fog
- I was on my way to church, which is close to where I use to live. I couldn't remember where I was or where I was going. I called my brother-in-law, who came from another side of town to transport me home, which was almost two hours away. Second, last week I was awaken by a call. The lady asked if an ambulance needed to be called, as she could tell I was confused. I instead asked her to phone inside the home to get someone to help me. My biggest concern was; did I hurt someone while I was banked out. I pray each day there will be a cure discovered. Until then let's stay strong in spirit and heart.
- —Guest Victoroa
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