Funny fog moments
- During the first few years I went to about 3 doctors all of them trying to help me figure out what was wrong, "labeled with FMS early" but couldn't accept it...One doctor was teaching me how to cope... I was coming home from one of my doctor appointments, sitting at a light and completely blanked out... I couldn't remember how to get home...Luckily I had a prepaid phone with me, called home. My husband picked up and I blurted out..."where am I????" He was like, what??? I said, I started giggling, and said "I am coming home from doctor such and such and I can't remember where I am", how do I get home? He and I both got a kick out of it...I could have cried or laughed, but with this illness, it is best to laugh instead of getting upset,,, from that moment on I take directions with me anywhere more than a few miles from home. lol Strange note, you know I forget all sorts of things all the time, but I can remember exactly what happened and what events lead up to my sudden onset of CFS/FMS.
- —Guest gracie
Dumbing down
- I have for several years been dumbing down my speech. As a person who is well educated and prolific and proficient in the English language, I find it embarrassing, belittling and humiliating. Friends have noticed how I "lose my words", so I just dumb it down to little tiny words I can remember and settle for sounding like a child. Just another of the joys of this DD!
- —Rhijulbec
Learning new things with brain fog.
- I took a new assignment at work after being out for medical leave. It was a totally new to me dept, with systems I had never used - my learning curve was very steep, especially with fibro fog . I wanted to be honest about my condition, so explained how learning affected me. When I get too much new info in my head at once, it feels like the new info all has arrow points and is fighting to get outside my head. I can feel painful points from inside my head. I just have to stop, do something else, and maybe come back to it, or be done for the day. Unfortunately, instead of being considered Honest, Open, & Transparent (HOT), my peers seemed to make me the scapegoat for everything that went wrong. They decided I couldn't keep up the pace, even tho I built a tremendous program. Would I try being HOT again - only if I know the people I am working with very well -- it's just too risky with people who don't already respect me and what I can contribute through the fog. Any similar experience
- —tabitha31149
brain fog
- I almost always aprk in the same spot when I go to stores. One time I did not do this, after looking ofr my car for 30 min. I just knew it has been stolen. I call the police to report it and then call me husband in tears to tell hime my car was GONE! My daughter answered the phone and replied, "mom, you drove dad's truck your car's at home." Luckly the police officer knew me and just laughed and helped me find the truck.
- —Guest saddlebred
Let the sunshine in. Cut through the fog
- My daughter is 16. Has been ill for 7 years. Her worst symptom by far is cognitive fog. Not only does she have to ask what she was just talking about.... she doesn't remember what she learned yesterday. She can read. She can't remember or answer questions about it. She can listen... but zones out. The only way she can learn is through the visual mode.... She watches and learns from every medical show on television and can share her knowledge a month later!! She remembers what she has learned visually. She is lost in a crowd. She can't focus on what people are saying. She often says how stupid she feels. This is a girl who is extremely smart who seems to have a a thick heavy curtain covering her brain. We need to find a way to cut through the curtain of fog and let her brain function at its best once again. If we canfigure that out then she can continue on to college. if not.... she will not be attending college due to brain fog!! so sad.
- —Guest bstark
Funny moments another take
- Sigh, I forgot to tell a funny moment. You can see that my mind is often somewhere else. No wonder my feet hurt. I have my mind stuffed down there. No really, laughing is the only thing that keeps me sane with this stuff. Especially when I can see the word in my head (visually) but cannot find it in my mind to say. So I play charades which makes my friends and me laugh a lot. And I have often said that my mind is stored in my left toe and takes a while to get up to my head. I have had that condition long before the fibro/myo got going (or maybe it was going then but none of us knew it.) However nowadays it is every day that is a challenge and a delight. It is all in my perspective. Thanks for this forum
- —Guest ForgetfulSky
lost in the fog
- Thank you to everyone for sharing your stories. I have a mixed connective tissue disease (told it will probably be diagnosed Lupus one day) and have lived with the episodes and flare ups for 10+ years. Thought the excess weight (300 lbs) was the issue, so I had gastric bypass, now I'm 1/2 the weight. This bought me 2 good pain free years! (Praise the Lord) But, now it has all returned and the fog is becoming so spirit crushing if that makes sense. I teach school and question my effectiveness when I must correct myself so often. My heart is still teaching but my mind is betraying me. It is validating to hear others confirm that I am not crazy, and though it seems selfish, there is comfort in numbers. I appreciate not being lost in the fog alone. I may not be able to see each of you, but when I turn around in a hallway and am not sure where I am anymore I will know (though not remember it then) that someone else somewhere is lost with me! :)
- —Guest mommateresa
Gah!
- I have yet to find a permanent job since being laid off 2 years ago. I am 58 with myo/fibro/asthma and blank periods. I don't know but think they are fibro moments. If so, they are really bad. I can't remember things I was thinking of just a second before I started to do it. Today, I wanted to set up a label cloud for my blog but when I got to the page to make the change I could not remember what I wanted to do. I also have trouble at my part time jobs where I am asked to do something I have done for years and years and cannot remember how to do it at all. My neuro has put me on ritalin to help. As you can tell from the first issue with the blog, I am not too sure it works. And of course there is no proving this condition to qualify for disability. Arrrrrgh
- —ForgetfulSky
Foggy moment stories
- I have ka-drillions, but this one was good from last week. Went to Target for no reason, I meant to go to a party supply store next to Target. Good lord! My back didn't appreciate it at all. :?O
- —foggy.agent99
BRAIN FOG/FIBROFOG
- I HAVE BEEN SUFFERING FROM A DIAGNOSIS OF FIBROMYLGIA WITH CRONIC FATIGUE AND BRAIN FOG IS JUST ONE OF THE SYSTEMS THAT ARE PRESENT AT LEAST 80% OF THE TIME.I FEEL NOT ONLY EMBARRESD BY THIS SYSTEM BUT IT EFFECTS ME IN MY ABBILITY TO FUNCTION IN EVERYDAY LIFE.I AM ONLY ABLE AND CONFIDENT TO DRIVE ONE DAY A WEEK DUE TO THE INTENSITY OF BRAIN FOG.IAM AFRAID THAT I WOULD NOT BE ABLE TO RESPOND TO OR REACT TO THE QUICK DECISSI0NS THAT HAVE TO BE MADE WHEN DRIVING SO I HAVE TO DEPEND ON FAMILY AND FRIENDS TO GET ME TO DOCTORS VISITS AND OTHER PLACES.I DO NOT FEEL COMFORTABLE BEING AROUND OTHERS OR EVEN GOING TO CHURCH WHEN I AM EXPERENCEING SEVER BRAIN FOG.I CANNOT EVEN MANAGE MY OWN CHECK BOOK AND PAYING MY BILLS AT TIMES DUE TO THE SEVERITY OF THE FOG.I HAVE NOTICED THAT WHEN THE INTENSITY OF PAIN THROUGHT MY BODY IN MUSCLES AND JOINTS AND ALL OTHER SYMPTOMS ARE PRESENT THAT THE BRAIN FOG IS AT ITS WORST.I HAVE READ AND CONTINUE TO LEARN AS MUCH AS I CAN ABOUT THIS DISEASE OR SYNDROM .
- —Guest DAVE DOWNER
Humor and fibro fog
- Oh the brain fog or a fibro state of mind. My husband will often say, "tell me the subject and I'll tell myself something I want to hear." That works for me. LOL More times than not I can tell a person all the things a particular thing "does" but can't pull up the word. Humor works wonders in all situations ... if we didn't keep laughing, where would we be?
- —Guest SWWatches
brain fog
- people say, "We all forget stuff." But this is a different level. I once won the spelling bee at Texas Tech University and after I got CFS I couldn't remember how to spell "cheese". I kept thinking there was a Z in it, or forty. I kept spelling it fourty. The fog is some better than those first days, but it is still my most frustrating symptom and the one I would most like to change.
- —Guest striley
funny fog
- My friend and I have almost the same symptoms when it comes to fibro. Bless her heart she also has rhemotoid arthritis, I only have osteo arthris, which is enough for me. We have both worked all our lives until fibro put us down. But we have to laugh at our selves when it comes to fog. I'll say "what was I talking about? She'll say I don't remember. We will laugh so hard. Where most people will say "it's right on the tip of my tongue" We will say "it's right on the tip of my toe" We will laugh more cause we know it won't be remembered for a long time. Then after a long time one of us will blurt it out. Several topics later. It is pitiful but funny. She understands and I understand what it is like where other people do not. They just think we are crazy, and we laugh about that too. It's like we are speaking a different language.lol
- —Guest Cathy Kirby
Frustrating Conditions
- I can relate to all the responses given. Blanking out words, names, numbers makes me feel idiodic. I have been in situations where I cannot remember my phone number or Social Security number. Sometimes the situations will trigger a panic attack and then I really feel like I am falling apart. I have gotten lost in a grocery store that I wasn't used to. One section turned in on itself and I could not see how to get out. The hardest to accept, though, is not being able to track a series of instructions or directions. Someone might say----XXX is easy to find... just make the first right turn, then blah, blah, blah. I seem to loose track after the first turn. Thank goodness for the GPS tracking system in my car or I might never go anywhere. So much of FMS can lead to living a more isolated life. This forum gives us an opportunity to reach out and give us a voice................even if we can't remember what we wanted to say!!
- —clumberlover
Bad brain fog
- I am about to turn 50 in a few weeks and the brain fog I am experiencing is horrible. I am not sure if any of this is connected but I was diagnosed with Endometrial cancer in August and had a Hysterectomy in October. Since then, I have suffered from fatigue, insomnia and just a general feeling of malaise. My memory is awful and I can't remember simple things like names of places and people. I am a long haul truck driver AND I am taking online classes and am just about to give up pursuing a degree because I just can't think. I also have a diagnosis years ago of a low tolerance for stress and I have the most stressful life of anyone I know. My brain also feels like there is an uncomfortable pressure most of the time. My experience is very similar to most of the people here. Thank you for reading this post. Have a great day.
- —Guest Momma Gramma Jen
