From the article: Light & Noise Sensitivity in Fibromyalgia & Chronic Fatigue Syndrome
Many of us with fibromyalgia & chronic fatigue syndrome have light and noise sensitivity. Do you have this symptom? What has it done to your life? What helps alleviate symptoms? Share Your Experience!
Don't get me started!
- It is sooooo difficult to get people to understand this! I wish I could quit my job, but it's the only one I've been able to hang onto, and I'm living below the poverty line as it is, and so, even though it's incredibly unpredictable (I never know how much work I am going to get from month to month), I just have to keep going. I use earplugs, when I can, meditation techniques, herb tea, stretching, and just holding on until quitting time.--15 years to old age pension, eek! ^^
- —Guest Rhapsode
F.lux helps computer monitor brightness
- For light sensitivity I could not live without a free program called F.lux. It automatically adjusts your monitor brightness throughout the day. It helps me so much!
- —LadyLarke
Noise and Light
- Noise gives me direct pain. I can feel it along my extremties and get relief from massage... Light on the other hand makes me feel light-headed as if I were gping to faint. Many times I have had to leave a place and sit down. At night just before sunset, if I'm on the shady side of the road where the trees cut the light, I have to pull over until there are no shadows. Lets not even talk about monitoring teen dances..... The lights - the lughts-
- —Guest Ginette
Hyper Sensitive to everything it seems!
- I honestly think my hypersensitivity started before the rest of my symptoms. And now it can be full blown outta control at times. But not just when I am in a flair! I was always the crabby aunt that couldn't handle the kids screaming, babies crying and too much loud noise in the house. I'd discipline the nieces and nephews and my own kids for being too loud in the house. Now I can get a 'reaction' if there are too many stimuli going on at once. Such as visual and audio at the same time. Going to the movies is rare. I also have extreme chemical sensitivities and smell and taste things others can't. I HATE eating anything that's been in styrofoam now! UGH! I taste it!
- —Guest Fibro Mia
Light and Noise Sensitivity
- I've had both sensitivities for many years before having full-blown fibromyalgia. When I have a fibro-flare up, these sensitivities become much worse. I can't even tolerate certain voices sometimes. It's nice to know that my issues with lights and sounds are genuine and not me being difficult with people. Hypersensitivity is just part of fibro...I'm still learning to deal with it after 3 years!
- —She_Always_Hurts
noise
- loud noises cause piercing pain deep inside my ears which lasts all day, I can not even talk on a mobile phone. I also lose my balance with loud noises. I have itching deep inside my ears. My ears look fine upon examination by doctors and specialists
- —Guest alison
Janet
- It wasn't until I started on Cymbalta that I realised that my husband scraping his spoon on his breakfast bowl wasn't just annoying - it had been hurting me for years. I've never said anything to him about it and I'm glad now I didn't I don't even hear it most mornings now.
- —Guest Janet
Sensitivity to stimuli
- I am overly sensitive to almost all external stimuli, especially in the mornings. I tell my friends and family to pretend I'm hungover! I generally can't watch movies in a theater, and I'm even to the point where I use the subtitles on movies I watch at home so I can turn the volume down. I only have one light on in the evenings, a low watt UV light. I have to close the blinds on bright days. I can't handle certain smells, food textures, clothing, changes in temperature. I have multiple chemical sensitivities and countless allergies. I break out in rashes (including strange circular rashes on the palm of my right hand) and have respiratory problems. I'm also extremely sensitive to changes in barometric pressure. I had to stop working at my office job. I'm glad I found this site. I have a hard time making people understand how this stimuli is like a physical assault at times. Years before my Fibromyalgia diagnosis, I contracted Histomplasmosis and wonder if that was the underlying cause
- —Guest metoo!
Light & noise sensitivity
- Oh Im so glad im not alone in this sometimes feel as though i'm going mad-lights- normal daylight is too bright all the time, car headlights, flurescent lights, I get really bad migrains that make me feel sick and like someone commented previously sometimes it feels like needles in my eyes so painful, also does any one ever get small flashing lights in their eyes I've had this checked out no other cause so am wondering if it is due to my Fibro, Noise-Oh i want to scream get so irrittated and angry when noise hurts my ears this affects me most when tv to loud, people talking loud too many talking at once, whistling or any silly noise's made by people, Fridge humming, certain bass sounds in music and when I wake every morning I have an awful ringing/drilling noise in my ears so annoying. Its so hard to explain to everyone all the time sure they think im loopy.
- —Guest Rach
Light and Noise Sensitivity
- I went to my neurologist earlier this week and asked him about light sensitivity and he wanted to know what on earth made me think it could be because of my fibromyalgia. He looked at me like I was nuts. I can barely ride in a car unless I am driving at night now because my eyes are so sensitive to the on coming cars and most of the time half the people have their brights on and it feels like needles sticking in my eyes. I have to keep my eyes closed half the time in the car at night. When I drive it helps because I am looking more directly in front of me on the road and some how it just does not hurt as badly. I can also end up with a migraine after going some where if I am not driving. I rarely like to listen to music any more. I find that instead of relaxing me it actually creates irritability and causes stress. I hope this helps someone.
- —Guest Joni
No longer able to go to the movies
- I see so many ads for movies that I would love to go see, but every time I try to attend a movie, it triggers my fibromyalgia and also causes migranes. The volume at most movies is so loud it is intolerable. I have to wait for DVD's which is ok, it just would be nice to be able to go to a theater. I also cannot enjoy a night out with friends at a pub where music is being played especially if there is a big crowd. I am so tired of explaning to people that loud noise causes me physical pain.
- —DParlow
Light & Noise Sensitivity
- I've been unable to get answers to this question all my adult Life! AND ". . . don't it make my brown eyes BLUE!" Eye docs have dismissed my question with the CLAIM "People with light eyes often are more sensitive to light." HUH???? My eyes were Hazel Brown and are now blue having lost pigmentation at the onset of symptoms. Light Sensitivity existed BEFORE pigmentation was lost. Is it a warning signal? A "Precursor?"
- —Guest yehshivida
store terrible music
- I go to a nursery to buy plants cause they r beautiful and make no noise. But the whole time I need to be relaxing and concentrating on how I could create a beutiful container plant to brighten up everyones day, the jazz music is annoying me and I can't concentrate on what I want to buy. other nurseries around hear also have horrible horn music playing. I have to get out of there. They even pump the music to the outdoor plants! I should try going just using my ipod of music I like, music to calm melike for the dentist chair....
- —Guest S
sounds
- Has anyone else been overwhelmed by the toilet flushing in the public restrooms? It seems to me the auto flushing toilets are the worst noise in the world.
- —Guest foolishWitch
Noise hypersensitivity
- I have FM/CFS and am an HSP. Noise is by far the worst debilitating symptom of FM for me. Read my post, inspired by this article, here. http://www.livingwithfibromyalgia.ca/noise-hypersensitivity/
- —LadyLarke
1-15 of 37Next
