- ever since i have had CFS, and even before, crowds and i have a hard time. i get claustrophic and have to leave. i won't even attend like an outdoor concert for the noise, crowd and the touch. i also have sensitivities to light, and some smells. thanks for letting me share.
- I have the same problem with noises and smell. When a commercial comes on the T.V., I have to ask my husband to turn it down. I have been doing this for 12+ years. I try and grab the remote so I am in control of the volume. Also, smells bother me. He uses this spray deodorant that makes me sick to my stomach. He knows to turn the bathroom vent on after spraying. The florescent type of bright light bothers me the most. I don't like going to movies because the sound is way too high, and I always take ear plugs with to help drown out the sound. In fact, I carry a set of earplus with me in my purse!!
- —Guest outtasteam
light and noise and skin sensitivities
- I wear visors, sunglasses, or the changing to dark glasses when we leave the house, even to church. Noise I endure or leave. Wind across skin is painful, so I cover up even in summer. Buy a bunch of hats with brims or visors and wear the heck out of them. I'm getting foam earplugs now, great idea!
Light and Noise sSensitivity
- Oh noise and light!! I've had ME/CFS almost 10yrs and I can have tthe volume quiet soft on the tv and others can't hear it, if they turn it up, it sets my tinnitus off Arrrgh!!! Yes I also need sunglasses which have to have a high sensitivity factor and be covered at the sides too. Also like others, if there are alot of people together in one room the noise, and all the talking becomes jumbled. I feel like screaming and have to escape.
- —Guest Barbara Mears
Wondered if it was just me.
- I have been experience light and sound sensitivity for the past few weeks. I finally searched the internet to see if it might be a symptom of fibromyalgia which I do have. In a way it is a relief to find that it is not just me. While I will bring it up with my doctor..I guess now the next step is to find better ways to cope than hiding in my bedroom! I have a family that I have no desire to be separated from this way. Thanks
- —Guest LisaD
Light and noise sensitivity
- I have had fibro for 14 years and have found the light and noise sensitiviy getting worse. The lights in the supermarkets are the worst. They make me feel like im on a boat at sea, when i was expecting my daughter i had to stay away from certain stores as i would actually pass out. As for noise...well, that is even worse. when i am at home on my own the house is usually in silence or else the tv is turned down low or i have classical music playing in the background. When everyone is home i find it very difficult to understand what is being said to me if the tv is blaring, the radio is on and people are all talking at the same time, its like my brain just cant seem to grasp what is being said, or else it takes a few seconds to process the conversation.....hence to say my social outtings are few and far between
- —Guest Lin
sensitive to light, sound and smell
- after the C-section of my 2nd and last son I got FM. I stay home so I can control the noise level, the lights from my sons video games make me ...I can't watch or play. Flashing lights from commercials. Some people can get epileptic seizures from them. my nephew has. Both r very irritating to my senses. when I was 9 my eyesight started going downhill so fast they thought I would be blind by the age of 18. I'm not, but I think it made my hearing better. then when I got fm at 32 the noises got louder. before I get a migraine I would not see an aura, My sound would turn up. putting away the dishes is especially hard for me. The silverware is so loud and clanking of the dishes sometimes I have to leave and do a little later. The smell amplification came with pregnancy and went away with the first son, but never went away with the second. So everything smells. everything my husband cooks smells so I have to turn on the air cleaner, the stove fan that sucks out the steam and smell.
- —Guest s
light and noise sensitivities
- i not only suffer with CFS and fibromyalgia, i am also a Highly Sensitive Person, and light and noise sensitivities are only a couple of the sensitivities i live with. i also am sensitive to touch and smells. also, i am HSP emotionally and mentally, so if you are sensitive to light and noise, take note to see what else you are sensitive to. you could be HSP as well.
- Iwatch very little T.V. The way the sound goes up and down almost makes me cry and my husband's channel surfing makes me nauseous. Ilove family gatherings but after a little while the sounds all run together and I can't pick through them. I wind up just sitting with a stupid look on my face and wishing I was alone. And whistling! aahh Whistling feels like knitting needles to the ears. hmmm I guess sound is a problem for me.
- —Guest Sharlet
increases my anxiety
- I've had Fibro since 1987. I also have RA, severe OA & an impaired immune system( born with it). I've also had 1 cervical spine operation, 3 lumbar spine surgery s & 1 foot operation. All b/c of the severe degenerative disk disease that has come with the OA. Sometimes between the muscle pain from the fibro, joint pain from the OA & inflammation from the RA it gets to be too much for me to take! Loud voices, high volume from the TV & crowds really increase my pain & I become anxious. I've also had a problem with bright lighting. I develop headaches easier. I've had these conditions a long time & make the best of what I have. I've needed to remain flexible & get 9-10 hrs of sleep each night. I MAKE myself go to the gym 4-5 times a wk no matter how I feel. Exercise & good sleep are what helps me the most.
- —Guest POCT
- I wear glasses and get the lens that atomaticly darken in bright light. A God send.
- —Guest Diane Barham
Noise cancelling headphones
- I am very sensitive to noise and have Fibro; every morning I am bombarded with the noise from my refrigerator running. It was driving me crazy. Finally I bought a pair of noise canceling headphones, which totally block out that noise. I also received a written note from an ENT written on prescription paper saying I can wear headphones while driving. I also wear them during movies. They have saved my sanity. My sensitivity has reduced some over a couple of years, I can sit in some restaurants now. Howeve,r it all comes back if I am very fatigued.
Assault to the Senses
- FMS hit me full on very abruptly; light & noise issues were extremely difficult to deal with, especially since people thought I was overreacting. Flashing lights & images make me dizzy & give me migraine-type symptoms. When eating out, I assess the lighting before being seated & I wear partial cotton balls to mute the restaurant noises. All sounds are louder. I ask people not to talk so loudly, especially in a car, and they give me strange looks. If the TV or radio is on and someone talks to me, I cannot hear what is said. Four years later, they still don’t get it: mute the TV or don’t talk to me. I wear sunglasses to the grocery store night and day as the lights are too bright. For 3 years, I complained about the loud store music and finally got results. I ask people to talk slower because I cannot process info as fast. This is one of the most frustrating things. Customer service reps are the WORST about talking too fast. I wear cotton balls to sleep so my sleep is not disturbed.
- —Guest Lulu
Light and Noise Sensitivity
- When I'm getting a migraine both bother me very much. Many times noise, even music drives me nuts. I do better with instrumental. It seems to jazz my nerves. When it gets bad I start to shake and want to scream or cry.
- —Guest Gwendolyn
Auditory and visual noise sensitivity
- My biggest problem right now is getting dark enough sunglasses. I've looked at the cheap to the expensive, polarized and non-polarized. They all seem about the same. Any ideas would be helpful. The problem is I have to get enough sunlight to avoid SAD. I've moved to the sunbelt and this winter has been much better than the last few. I have both visual and auditory noise sensitivity. It does make a social life even more difficult. I was diagnosed with PTSD, but I wonder if it is just another symptom of fibromyalgia. Meditation and yoga have helped. I started out very slow with yoga so as not to cause injury. Meditation helps me feel calmer when I am faced with various noises. It at least gives me time to react more calmly and less startled - most of the time. Keeping my blood sugar even with a balanced and high on the veggies diet has helped a great deal with all my symptoms.