SUPPLEMENTS? ABSOLUTELY!
- After clinical nutrition, and dumping the 39 known-allergens in FM, CFS, ME people, whether active or not, they are 'forever', so are supplements. The brain-body assistants, esp Life Extentions FDA credibility, are amazing helps-but are NO CURE. We are 'the cure' - if we eat 100 correctly, take the correct supplements from a healthcare consultant who is INTEGRATIVE, keep our lifestyles correct for our condition, keep stressors at bay-we can and must in order for supplementation to work- then work well with Adrenal Hormones, Endocrine, Hypothalamus, CNS, ANS, Immune systems, lymphatic and lymbic sytems will co-operate all the time. Good luck. Sharon Levin Anti-ageing brain-body Integrative specialist South Africa.
- —Guest Sharon Levin
supplements + omeopathy
- I have a diagnosis of CFS since 5 years, made blood tests resulting in severe mitochondrial damage. I am on magnesium, L-carnitine, vit B12, + coenzime comp and ubichinon (omeo) by shots. I have the impression my situation has improved, especially muscle pain, and energy. It is no cure, just "maintenance" for less suffering. + I now am on Immunage - papaya - good for the immune system. Is anyone on omeopathic remedies?
- —robertina3
acupuncture
- I've had fibro since 1988....Supplements have helped alot...COQ10, magnesium, good multivitamin, L-Carnitine. Had my Vitamin D checked and it was very low. Now take 2,000mg Vit. D daily....it helps. Started taking acupunture 2 years ago along with my supplements....really helps me....my 87 year old mother also goes for treatments for other health issues and it has helped her too....try acupunture if you can as it might help you as much as it did me....Good Luck to all....
- —Guest Linda
Supplements
- I had my doctor run my vitamin D level. It was very low. He put me on Vitamin D, which is so strong I take it only once a week. After 13 weeks he will run labs on my vitamin D level. So far I don't notice a difference in muscle pain but only been on it for about 4 to 5 weeks. I have also increased my vitamin D level in my diet. It will probably take a while to see if it works. My doctor said that sometimes it will work for people with Fibromalgia or CFS.
- —Guest Bill
Supplements Work!!! No Meds for me
- I take daily Co Q 10, B12, B100, Calcium Magnesium Zinc three times a day, Fish Oil, Chrominum, and SAM E and a multu vitamin. I get accupuncture once a month and massage once a month, I aslo walk three times a week at least. When I first was diagnosed I could not walk up the stairs and cried because of the pain. Even when I have pain now it is not dibilitating and it usually means I have stress of have over done it. This has worked for me and many, please try it if you can.
- —Guest Rosawoo
Wonderful Idea
- after reading all the good responses, i think the best idea i found here is to start keeping a medical-only journal from day 1 or now, include all drs appts(reasons,outcomes), meds & supplements and reactions. after 16 yrs of fibro fog, i sure hate repeating med trials cuz i can't remember what i took, what it did, etc. i take mine to every dr appt and test and procedure. i put down drs names, phone #, speciality,dates,outcomes--worth its' weight in gold.
- —Guest kat3331
supplements
- I never read about adrenal supplements. These have been my lifesavers. Bovine adrenal glands have given me the energy to keep my part time job and family going for years. Adding CoQ10 woke me up and actually made me feel rested in the mornings.
- —Guest keepongoing
FM/CMS since I was 14
- I got what I now identify as FM/CMS at 14. I am 35 now and went through hell untill found how to deal with it. For me 5-HTP, Omega3 and Ginkgo biloba do the job. For some reason Ginkgo biloba improves brain circulation, which helps regenerate central nervous system damage, so I do not feel so much pain and I sleep better. I tried only 5-HTP before, but adding Omega 3 and Ginkgo Biloba for the last 6 months made significant change. I was on an antidepressant for the last 4 years due to severe depression caused by pain and lack of Serotonin. But now I could completely replace SSRI with 5-HTP, Omega 3 and Ginkoe Biloba. However, I constantly exercise and started adding lot of greens (fresh salad) to improve vitamin K intake, which aided to overall benefits. I will also try other suplements suggested by others.
- —Guest Mindiga
Supplements
- I have been reading all your suggestions for supplements with great interest. I have been down the subscriptions road with nsaid's and anti-depressants for about 6 years. These helped me only for a while and with some very unpleasant side effects. I take too many supplements to mention but the most recent one that seems to be helping since the last 5 days is Alpha-Lipoic Acid 200 mg on an empty stomach in the morning. Just a little burning side effect. In these last 5 days, although not totally free from soreness, I have not touched any other meds. When I am stiff and start to move around I can manage the pain better than I have for a very long time. Hope this continues. Thanks all for your invaluable suggestions. Keep them coming!!!!!!
- —wantotango
Supplements
- The only supplement that I have found to work, for me, is MIRAC. It is a combination of pineapple and grape seed bioflavinoids. I do not take the full amount as I have developed late in life allergy to pineapple and other things. Many times I must stop the regimen, recover and begin again. My doctor introduced me to this supplement and I love her for that.
- —kbavouset
member (re: burning feet)
- thanks for all the info... it is the tops of my feet that burn, BURN... what you describe as allodynia... i was beginning to think i had sugar but i really don't think so.... i am being tested... i have had polio, shingles, migraines, tics, etc..... i will be trying the epsom salts and finding out more info about the meds, etc... again, thanx for giving all the info....
- —Guest nancy hoiaas
detox B12
- Tried detox for blood circulation & vit b12 which relief pain immediately. I'am suffering fibro more than 5 years. I got a terrible muscle pain & weakness after taking statin. If you have fibro, don't ever tried statin for lowering cholesterol..
- —Guest kamar
St. John's Wort and birth control
- St. John's Wort is known to interfere with the efficacy of oral contraceptives....last thing you need if you're depressed:)
- —Guest kim
Watch your wheat/gluten
- I found out that I have wheat/gluten allergies and that was what was causing most of my fibromyalgia symptoms. I went to an "alternative" doctor and she put me on various supplements and herbs and started me eating organic foods. I feel 100% better since going to her.
- —Guest ginger72
Supplements that helped
- I was orginally diagnosed in 1988 with CFS. I quit my job, sleep for six months and tried everything I could to relive my symptoms. The worse thing other than the constant fatigue and anxiety attacks was the feeling that my nerves had all been stripped of their coating. I imagined it was an electric wire with no covering. There was some product out at the time (can't remember the name) but I lovingly called it Swamp Juice and it was just a big load of magnesium. Really, really helped. I started small and walked for 15 minutes a day. 7 minutes out, 8 minutes to get back. Then slept the rest of the day. Eventually I took a 12 hour per week job - thought I would die the first week. But kept getting better and got back to my usual 70 hour a week work schedule. Takes effort and patience to survive and recover from this disease. Good luck.
- —Guest Cheryl
