I've shared 10 little things that work for me -- now it's your turn! Help us all learn to manage our symptoms better by telling us what helps you. Share What Works for You!
CFS HYPOTHYROID IBS AND ALLERGIES
- Had very severe CFS about 2 years ago. Things that work for me: 1 A heat bag. 2 Choosing light jewellery 3 Zumba on the x box I only do 3 minutes at a time and need longer rest periods (a bit like when I started walking again after my first major episode when I first got it and doctors were NO help. 4 ACAI tablets- legitimate from Healthspark something or other. I use 4 a day and they are packed with vitamins and the antioidant thingys clear my system after excecising because we build up too much lactic acid and then our body fights it like a poison and that's whjy we feel fluey. 5 Cut out caffeine, gluten, wheat, soy there are loads of great alternatives in Tescos, ASDA, Sainsburys etc.Eat frequently even if you feel full.It's weird but the routine helps you. 6 To lose weight I use the Doctor Clarke diet-it's so much better than the Atkins &carbs are allowed. No smelly breath &lost half a stone in 2 weeks.(If u cheat on it though it's not forgiving)it doesn't feel like a die
- —Guest becky 007
Showers
- When my ME/CFS was bad, I used to use a shower stool to sit on. It took less energy to shower, leaving more energy for other things. Also, I didn't have to worry about losing my balance. Frequently, I'd shower at night, so if it did sap all my energy, it was ok 'cause I was going to bed anyway.
- —Guest Melissa Rada
Help!
- I've been unable to wear a bra, waistband--or anything around my middle for several years--not even an elastic band. My doctor doesn't think it is fibro because I don't have soreness and fatigue, but this is sooo terrible. I've read on this group that other people have problems with not being able to wear clothing, but it seems with them that it is the material--mine is the pressure. I think it is definitely linked to my digestion. Can anyone offer any help. I feel like I'm at the end of my rope.
- —Stinglover
noooo diet soda
- I think that diet soda's cause fms so when you cut it out it does miracles!
- —Guest becca
Morning and Fibromyalgia
- I do wake up achy and stiff. I used to be a morning person, but I am not anymore. I use a heating pad or a hot shower/bath to ease my oain, I also use an infared sauna, which helps as well. I have trouble sleeping and wake up feeling like I have not slept at all. My doctor of 8 years left for a new position recently. This made me panic because he worked with me to help manage my symptoms. He was very supportive and incoraged me to be proactive and research my condition as well as excersise and a healthy diet. I have a new Dr. and even with my health records from my primary Dr. and A Rheumatologist, he asked if I was sure I had fibromyalgia. He wanted to know what my oain felt like and I told him it was like having the worst body flu ever. Lyn
- —LG57
chris
- I've been dealing with fibro and osteo arthritis for a long time. Last year I started on a diet of no wheat, caffine, sugar and aspartine. It really helps. Of course there are days that nothing helps and i must rely on God's love. Chris
- —Guest chris kicklighter
Zumba Exercise
- About 1 year ago I joined a fitness group with 2 amazing motvational instructors who know the fundamentals of the body and nutrition. With this fitness group I have found my love for Zumba. Zumba has increased my muscle strength, balance, agility, energy (oh and that fibro fog does not come around so often.) I take the group classes 3 times per week and walk out with a smile and pain free. I no longer take prescriptions drugs for pain & sleep. I drink geen tea at night along with magnesium supplements to get my good nights rest. I have switched my diet to gluten free and no longer have IBS. My physicians group is thinking about putting my story in one of their newsletters. They just had a health and wellness expo and had Zumba for 2 hours demonstrating the great effects it has on our bodies mentally and physically for all health groups.
- —Guest 241fitnessmember
Low Dose Naltrexone--A life saver!!
- I can't tell you how much LDN has made such a difference in my functionality level of FM. It has decreased my level of pain, therefore I have more energy. I take 3 mg every day. I would recommend anyone trying the LDN. The only side effect is sometimes it causes you to have vivid dreams. My pharmacist recommended I take it in the a.m. instead. I am taking it in the a.m. and no more vivid dreams. Go Naltrexone!!
- —Guest Outtasteam
Comfortable shoes
- I discovered "Aerosoft" shoes. It is more comfortable than crocs and shaped to support your feet. I am lately picking my outfit to match my shoes!
- —Guest Heila
Ultra Low Dose Naltrexone
- My nurse practitioner suggested this as a trial. I take only 2 mg daily and it has seemed to increase my energy and cognition. I understand it was first utilized for M.S. The only caution is to discontinue taking it while on any pain medications as it blocks their effectiveness. You can research this medication online and then check with your doctor. It is not very well known yet.
- —Eachmomentmatters
Aqua-fit and the hot tub keep me going.
- Coping with fibro I love nature and watching plants grow. I get a good workout staring new beds and trying to domesticate the woodlands. I have several resting and thinking spots to re-energize between tasks. Life is good listening to the birds and waiting for each plant to revelle itself.
- —Guest Sparky
FibroLady
- I find that damp warmth helps the most. It seems to relax the muscles and ease the pain. Sometimes just a warm touch or massage will greatly decrease my pain. During stressful times I soak in a warm bath, rub body lotion on softly and curl up in a warm blanket. Water appears to be the most soothing thing next to a gentle lymphatic draining massage. But keep away from cold water. I have found cold anything to induce Charlie horses or even the rolling waves of pain that causes everything to tighten. The best thing to do for yourself is stay away from coldhearted people who try to minamize your pain. They will cause you to get stressed and feel more pain. In some cases these negative nellies make it worse by making you feel abnormal. I treat each symptom as it acures rather than taking all kinds of medications. I know this illness is not terminal so I have to continually create new ways to accomplish old things. The good news is I CAN DO IT!
- —Guest W. Louque
My little hints
- Hi all, I have had ME/CFS for only 18 months but I have found these little things help me: 1) vitamin B complex (from a herbal shop) helps my energy, and I also take omega 3 for brain fog and functioning 2) aloe Vera (juice or capsules) to help with digestion and constipation 3) Ginger root - this is a godsend for me as I suffer with nausea a lot. When I start to feel a bit grim I drink a Ginger tea or take a ginger root capsule (herbal shops) and within 20 minutes I start to feel better 4) comfy clothes at night time. I like to wear really soft fabrics at night 5) like other people have mentioned, a heated blanket has been really good for me too 6) a healthy diet - I find this hard as when I am feeling exhausted I like to reach for sugar for a quick fix. However I still have a little bit of what I fancy but including fruit and veg has helped me 7) good sleep hygiene and a bedtime routine helps me too xxx
- —Guest Becky
What works for CFS
- I have had CFS for almost 30 years. Here is what helped me the most: take a multiple vitamin (energy), take a very low dose doxepin (helps with aches and pains and makes me fall asleep, also more energy), and also take a cod live oil pill and eat fresh ginger root in a smoothie (helps with aches and pains). I still have hair loss and have limits on the length of strenuous activity but these things have made me feel much better. You should try them.
- —pri9
Exercise
- I have found for me that exercise seems to help the most. I Have been doing Zumba for almost a year now and If I dont do it at least one to two times a week I have a lot of pain and trouble walking. I actually do Zumba three times a week with a class but I moderate how much I can do and how fast. I love it. I do have some days that I really hurt bad but the people in my classes and my instructor urge me on and it makes all the difference in the world. I am not able to take many of the medicines offered for our pain so I am left to Tylenol and flexeril for the pain and muscle aches. I am interested in finding more out about the food we should and should not eat but I am starting to think that keeping a record of my activities and my food and drink intake may be the only way to determine things for me. Heat does seem to help. On days that the brain fog sets in I think acceptance that you are having trouble functioning is the only way to handle it and remember that tomorrow will be bette
- —Guest Kim Barbee-Tucker
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