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Waited Decades for a Fibromyalgia Diagnosis

Share Your Story: What Did It Take For You To Get a Fibromyalgia Diagnosis?

From fibrorobin

Updated April 24, 2010

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My Early Symptoms Were

Extreme fatigue and pain all over. The neck pain was the worst way high up in the base of my skull feels like there is an ice pick stuck in there.

How Long I Was Sick Before Diagnosis

Decades

How Many Doctors I Saw

I lost count honestly

How Doctors Treated Me

They all thought that I was hypochondriac, no one believed me 'cause most all the test results kept coming back normal.

How I Felt Before My Diagnosis

I felt hopeless and scared and didn't know what to do, I couldn't imagine being like this the rest of my life and having no explanation for it.

I felt like I was going to fall down and be stuck there for ever without anyway to get back up.

How My Diagnosis Changed Things

At least now I know that I am not crazy or lazy, I still get a bit emotional as I am now going through menopause and the lack of estrogen has made my fibro and fatigue magnify by about 70% (worse)

My family still does not get it, but at least the now acknowledge that I have it.

Yes my Drs are more understanding if I want to try new and alternative things to help ease the symptoms.

Advice

  • Please don't be discouraged if the Dr's don't listen please just fire the bad Dr and find a new one.
  • Join a support group it really helps to be able to share your pain, stress , grief and the good things that happen as well. There are some great online support groups too.

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