Vulvodynia can have a major impact on your life. While it's common in FMS and ME/CFS, it is not a symptom - it's a separate condition that needs to be diagnosed and treated on its own. Any source of pain has the potential to make your FMS and ME/CFS symptoms more severe, which makes proper treatment especially important.
The pain or discomfort of vulvodynia doesn't come from any obvious source. The tissues appear healthy, there's no infection, and there's no injury to blame it on. However, that doesn't mean it's not "real." How do you know it's real? Because you can feel the pain.
Symptoms of vulvodynia can range from mild discomfort to severe and debilitating pain. It may be only in one area or it may move around. It may be sharp or diffuse, and it may come and go.
- Burning or stinging
- Overall soreness
Vulvodynia can cause pain during sexual intercourse, exercise, sitting, and other aspects of daily function.
Medical science has identified several types of vulvodynia, and each one has a unique set of symptoms. About.com Sexuality Guide Cory Silverberg has provided this article on the different types: Types of Vulvodynia
Causes of Vulvodynia
We don't yet know what causes this condition, but doctors believe certain factors may contribute to its development, including a history of vaginal infections, past injury, hormonal changes, skin allergies or hypersensitivity. However, these factors aren't necessary for developing this condition.
Vulvodynia is not believed to be a sign of something more serious, such as cancer, and it is not a sexually transmitted disease.
The first step toward a diagnosis is telling your doctor what you're experiencing. That may be uncomfortable for you, but it's important to have that conversation so you can start down the path toward feeling better.
Before diagnosing vulvodynia, your doctor will likely rule out other potential causes of your symptoms, such as skin conditions, bacterial or yeast infection, and other medical conditions.
Treating & Managing Vulvodynia
A range of treatments are available to help you combat the symptoms of vulvodynia. They include:
- Medications: Tricyclic antidepressants and anticonvulsants may help alleviate your pain. (They don't mean that you are depressed or that it's "all in your head.") Antihistimines (allergy drugs) may help with itching.
- Topical creams: Cortisone or estrogen creams are sometimes effective.
- Myofascial release: This technique can alleviate pain in the pelvic muscles.
Antidepressants and anticonvulsants are common treatments for FMS and ME/CFS as well. Your doctor can help you find the drug(s) that best fit your conditions. If you're seeing multiple doctors, make sure each one knows what medications you are taking.
You may be able to manage symptoms by making a few changes in your daily routine, such as:
- Keeping soaps and other hygiene projects away from the vulva.
- Wearing loose-fitting underwear.
Pain from clothing is a common problem for people with FMS. For suggestions that may help alleviate your pain, see: Dress for Less Pain.
Vulvodynia in FMS & ME/CFS
Researchers don't know exactly why vulvodynia is common in FMS and ME/CFS. However, a prominent theory is that they all share a common underlying mechanism - central sensitization.
In central sensitization, the central nervous system (brain and spinal cord) become hypersensitive to unpleasant stimuli. That can include pressure, noise, smells and chemicals. Sometimes, in involves the skin as well.
Learn more about central sensitization and the group of illnesses related to it: Central Sensitivity Syndromes.
Living with Vulvodynia
Women with vulvodynia can struggle with more than pain. It may make you feel isolated, especially if problems with sex have an impact on your relationships. Embarrassment may keep you from talking about what you're going through, which could further isolate you from other people.
You may find that some people don't believe in your vulvodynia pain, which can make you feel invalidated. That can be especially painful if it comes from your sexual partner, who may feel rejected when you avoid sex. Open communication may help you resolve hurt feelings in both of you. You may want to consider couple's counseling as well. Get help finding alternatives to intercourse here: Rebuilding Your Sex Life with FMS & ME/CFS.
A 2012 study of vulvodynia and comorbid conditions showed that feelings of invalidation were worst in women who also had ME/CFS. That's not surprising, since ME/CFS is poorly understood and often not taken seriously.
Like any chronic illness, vulvodynia can lead to depression. If you believe you could be depressed, talk to your doctor about the treatment options that are available to you.
- Also See: National Vulvodynia Association
Arnold LD, et al. American journal of obstetrics and gynecology. 2007 Feb;196(2):128.e1-6. Assessment of vulvodynia symptoms in a sample of US women: a prevalence survey with a nested case control study.
Arnold LD, et al. Obstetrics and gynecology. 2006 Mar;107(3):617-24. Vulvodynia: characteristics and associations with comorbidities and quality of life.
Carter JE. JSLS: Journal of the Society of Laparoendoscopic Surgeons. 1998 Apr-Jun;2(2):129-39. Surgical treatment for chronic pelvic pain.
Hartmann D, Strauhal MJ, Nelson CA. Journal of reproductive medicine. 2007 Jan;52(1):48-52. Treatment of women in the United States with localized, provoked vulvodynia: practice survey of women's health physical therapists.
Nguyen RH, et al. Psychology, health & medicine. 2012;17(5):589-98. Co-morbid pain conditions and feelings of invalidation and isolation among women with vulvodynia.
Reed BD, et al. Obstetrics and gynecology. 2012 Jul;120(1):145-51. Relationship between vulvodynia and chronic comorbid pain conditions.
Rodriguez MA, et al. Journal of urology. Jan;189(1 Suppl):S66-74. Evidence for overlap between urological and nonurological unexplained clinical conditions.
Rodriguez MA, et al. Journal of urology. 2009 Nov;182(5):2123-31. Evidence for overlap between urological and nonurological unexplained clinical conditions.
Smith HS, Harris R, Clauw D. Pain physician. 2011 Mar-Apr;14(2):E217-45. Fibromyalgia: an afferent processing disorder leading to a complex pain generalized syndrome.