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Adrienne Dellwo

Now What? Just Diagnosed with Fibromyalgia or Chronic Fatigue Syndrome

By February 1, 2013

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Are you struggling to come to terms with a diagnosis of fibromyalgia or chronic fatigue syndrome? Are you unsure where to even start when it comes to treating or managing your condition?

A new diagnosis of a chronic condition can be overwhelming and frightening. We've all been there, and for many of us, those are the worst-ever days of our illness.

For those of you who are in that position right now, here's a place to start figuring it all out:

What are you going through right now? For those who've been through it, what words of wisdom can you share with the new members of our community? Leave your comments below!


Photo Andersen Ross/Getty Images

February 1, 2013 at 9:14 am
(1) dfwmom says:

You will have to “gear down”, and adjust your commitments to your available energy and ability, and focus on the basics — diet, sleep and exercise appropriate to your condition.

Others, unless they have experienced this illness firsthand, know very little or nothing about your illness. Even doctors are not taught much about this illness, because there is so little that is known about it. You will encounter many clueless, rude and insensitive people, even (or especially) doctors, employers and even (or especially) your own family members. It is common for persons with this illness to be accused of laziness, exaggeration and hypochondria, even by their doctors. Never let them get to you. Demand respect. You are not to blame for your illness. Always remember to give yourself credit for coping with this difficult illness.

Look beyond traditional medicine for answers. Adjust your schedule. Try herbal supplements for sleep or anxiety, and other therapies like accupuncture, massage, water therapy, etc. You don’t have to see a doctor just to see the doctor. Only keep seeing a doctor, if the doctor is actually doing you some good.

February 2, 2013 at 3:08 am
(2) George says:

Re: dfwmom

Well said. I appreciate the insightful comments you post on this site.

February 2, 2013 at 3:34 am
(3) DFW Mom says:

Thank you, George, for your kind comment.

I always look forward to Adrienne’s posts.

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