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Adrienne Dellwo

Getting Comfortable in Bed with Fibromyalgia & Chronic Fatigue Syndrome

By October 1, 2012

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As different as every case is, a nearly universal issue for those of us with fibromyalgia and chronic fatigue syndrome is poor sleep. A common complaint among us is that we can't get comfortable in bed, and for a multitude of reasons.

Your mattress, pillow, sheets and sleepwear can have a big impact on your comfort level. To help you make the right choices, I've put together:

Of course, our sleep problems go way beyond discomfort! For more information and help on this complex issue, see the articles here: Sleep Problems in Fibromyalgia & Chronic Fatigue Syndrome.

What helps you get comfortable in bed? Do you have discomfort problems you can't overcome? Leave your comments below!


Photo Adam Gault/Getty Images

October 1, 2012 at 5:43 pm
(1) Becky Stricklin says:

I had Fibromyalgia only a short few months until my husband bought me the wonderful Tempurpedic Cloud ergo adjustable bed. I feel like I am lying down on a cloud. I can raise the head to watch tv, raise the bottom to incline my swollen ankles. I also can use the light massage to help with poor circulation issues. It has been the greatest gift ever received! It provides me with comfort & a much better sleep or rest time.

October 1, 2012 at 7:32 pm
(2) sarahd says:

Becky-what do u mean u had Fibromyalgia only a few short months? It won’t just go away with a new bed…

October 1, 2012 at 7:57 pm
(3) Jo says:

I understand, you were only diagnosed for a few short months and your husband sought to get you some relief by buying the new bed. Perspective is everything.

October 1, 2012 at 9:55 pm
(4) Donna says:

i have had fibro for 27 years if that Tempurpedic Cloud ergo adjustable bed takes it away iam getting one tomorrow!!!!

October 3, 2012 at 12:05 pm
(5) lynn says:

Me too! If I really thought it would cure…

October 5, 2012 at 3:37 pm
(6) Dianne Bunn says:

I too have a cloud bed and pillow and sleep alone (not the greatest arrangement) but, it works. It doesn’t make the fibro go away but that in hand with my Cesamet (marijuana pill) before bed and I sleep soooooo much better than I’ve ever slept before. I still wake up at least once a night but, that’s much better than more than 6+ times a night. I’ve had fibro for about 30 years and I’ve never slept so well.

October 5, 2012 at 3:41 pm
(7) Marnie says:

I found the most wonderful sheet sets on QVC, made by berkshire blankets I think. They are the “original” polar fleece type sheets…soooo soft! Really helped with the nerve endings on my legs at night. Funny how such little things make a difference! Also, my rheumatologist started me on Effexor. Has anyone else tried that? Has helped with the constant muscle aches. More even than Cymbalta and others. Blessings and some sleep relief for everyone!

October 5, 2012 at 3:44 pm
(8) Rachael says:

I find a number of things help me sleep more comfortably:

1) Wear socks in bed, nobody can sleep with cold feet.
2)I bought a memory foam matress topper off of ebay and it makes the matress more comfortable.
3) Have a clean and tidy bedroom as I cannot rest in a messy room.
4) Pop a hot water bottle under the duvet 10 mins before getting into bed – nobody likes a cold bed.
5) A few drops of lavender oil on my pillow naturally relax me.

October 5, 2012 at 3:55 pm
(9) Martha says:

Blankets are too heavy for me, so I use a light-weight blanket for all of me, and then an afgan folded in half when it’s cold. I also warm the bed with my heating pad, and then leave it on (lowest temp), on top on the blanket when I’m in the bed. Haven’t found a good pillow, though; the memory foam ones seem to get “hard” over time.

October 5, 2012 at 4:14 pm
(10) Sarah W says:

I realized, thankfully very early, that I sleep much better if I don’t wear anything to bed. When I’m completely nude, the fabric of the sheets is the only fabric I need to deal with (right now, it’s nylon), so my skin isn’t “confused”. It’s amazing how much of a difference it made.

October 5, 2012 at 4:20 pm
(11) Marie says:

I have a temperpic mattress also, unfortunately is the first one they came out with. I would love to have the cloud. One thing I have found is that I can’t deal with synthetic fibers. I put a down mattress pad on my bed, cotton sheets and either cotton or wool blankets. It really makes a difference for me.

October 5, 2012 at 4:32 pm
(12) georgia says:

Firstly, I think Becky S. may have meant to say that her husband bought her the Tempurpedic mattress just a few short months after her diagnosis. Is this correct Becky? At this point in time, I don’t believe there is anything that can “cure” Fibro.

In my ongoing effort to get a better sleep, I purchased a Tempurpedic mattress almost two years ago. It is extremely comfortable & accomodating to tender points, etc. My only complaint is that turning over is somewhat difficult as the body sinks into the memory foam so when it comes time to turn over I have to lift myself out of the sunken position. That being said, I find I change positions less because of the instant comfort the memory foam provides.

Another benefit this mattress provides comes when changing the sheets. The corners are light weight making it easy to fit the sheet on.
My previous mattress was very deep & I used to dread changing the bedding as lifting just the corner was very difficult.

The Tempurpedic is somewhat expensive but well worth the money. It has a 20 year warranty & it does come in a variety of styles, some of which are more reasonably priced.

October 5, 2012 at 6:49 pm
(13) kathy says:

how do i get comfy in a bed? i don’t. i have to sleep in a recliner and have been doing so for over 10 yrs. if i sleep laying down, i am unable to get out of the bed due to the pain in my lower back. i figured it was all due to the fibro, but when i was sent to a back surgeon, he said i had arthritis in my lower back and some kind of birthdefect where a hole is smaller that it should be. i didn’t understand, but he did say to never let anyone talk me into back surgery. but what i wonder is if it’s not the fibro, why didn’t i start having to sleep in a chair until after i had fibro for a few years and not before? who knows. all i know is it feels like a butcher knife is stuck in my lower back when i sleep laying down.

October 5, 2012 at 7:14 pm
(14) Wendy says:

I first bought a Select Comfort, NEVER buy one! It sinks and raises depending upon the barometric pressure, so you have to adjust every dang night. On top of that, it is a compressor to the bed and makes a TON of noise when you need to adjust it.
The second one we have bought is a local version of the Tempurpedic. I like it but hubby does not and wants to get Posturepedic. Sigh…just got used to the Tempurpedic that we have had only a year or so.
So its always a personal preference as to what you like. I always have a pillow between my knees and double pillows under my head. I always go to bed at about the same time. If I go to bed any later I am messed up for the night. Then I wake up early and I need a nap sometime the following day. I also have to have the TV on because the lack of noise makes me nervous so it calms me. Strange I know, but it works for me. Hubby just deals with it. He comes to bed hours later than I do so, I can get comfy first and he can when he is ready. The life of a fibromyalgic. Life is just so FUN! LOL

October 5, 2012 at 10:00 pm
(15) Sandra says:

I have had a higher end Tempurpedic bed for several years. It makes the difference between getting at least a few hours of solid sleep and getting almost none. I use down pillows because I ca punch them around to work with any position.

Now, any suggestions about what to do about the cop who moved in next door and promptily acquired not one but two pit bulls who live next to my bedroom in a zero lot line subdivision. He is gone a lot. No training for these dogs, just leaves them in the back yard to bark at every little thing. I have not been able to lay down for a rest and possibly small nap since they have found their voices. We are home most of the time so our dogs are not allowed to do that. However, these two pit bulls charge the fence whenever my dogs are out. The fence is old and once the male dog is full grown it will be nothing for him to break through the fence. It is a mess.

October 6, 2012 at 2:22 am
(16) Jean says:

The only bed that I can stand to sleep on is the select comfort, which I set to the softest setting. It is also adjustable so that I can raise and lower my head or feet. I have tried the Tempur-pedic and the Posturepedic, but found them not to be soft enough.

I use a body pillow that I can position under my neck and around my arms and shoulders to give me support, super soft sheets and an electric blanket. I add to that a couple of rice bags heated in the microwave for even extra warmth.

I wear PJs made from modal fabric and, of course, warm socks.

The most important thing that has helped my sleep has been taking
Ambien nightly. I suffered for years and years with only 3 to 4 hours of interrupted sleep per night.Now I happily get 6 to 7 hours per night! I take my pill then start reading my book and in a few minutes I’m sound asleep!

October 6, 2012 at 7:38 am
(17) andie says:

hi i live in great britain and i found that so called mans comment s disgusting,i would love him to live with fms for just one day,let him see how much it hurts,my partner and myself have had to live with fms and all the other associated problems that go along with it for nearly four years,since i had an accident at work.i could not wish for a better and more understanding man.

October 6, 2012 at 10:06 am
(18) Linda says:

This is my first comment; a subject I think I can contribute something to. My husband sleeps on a tempurpedic, but I find it too hard and after about 15 minutes pain starts at all the pressue points, especially the hip area. My haven of comfort is a baffle form water bed. It gives when needed, supports where needed and most importatly it is warm whenever I get into it. Loose fitting nightgowns in cotton or flannel are what I find works best for clothing. Linda

October 6, 2012 at 12:56 pm
(19) Little Mama says:

I have the top of the line King sized intelliBED, pillow, knee pillow and seat cushion. It’s made out of thier patented intelligel and is used at all the top hospitals, high end hotels, super elite nursing homes and for those who need it. I’ve had it for 5 years and it greatly improved my quality of life & helped me go into remission for my pain. I used to take MSContin 60mg 3x’s daily, with Oxycodine as the breakthrough helper. I am completely free from all of the narcotic pain meds & only take Ultram when needed which is almost never. All this is a miracle considering I have Fibromyalgia, Degenerative Disk & Joint Disease, Night Terrors and Insomnia. I was able to go off the narcotics extremely easily and only experienced rebound pain, very uncomfortable & irritated skin sensations for a few days. The bed made me feel like I was being held by my Mother in a cloud of comfort. It keeps my spine aligned, supports my body without pressure points being triggered. I love my intelliBED!

October 6, 2012 at 2:10 pm
(20) Cindy says:

Hey guys, lighten up. If her new bed gives her comfort and relief, God bless her……………be happy for her and quit criticising!

October 6, 2012 at 3:38 pm
(21) BeckyG says:

I also sleep in a recliner. I can’t lay flat or I awake with pain and can hardly move to get out of bed. I tried a memory foam mattress pad and I agree with Georgia, it is difficult to turn when you have to fight the mattress. For those who find blanks to heavy, in the past I have used an electric mattress pad. It works like an electric blanket only it is under you and heat rises so even on low it keeps you warm without the weight.

As far as medication I have been on Trazadone Fleseril, and pain pills for several years now. From time to time I have picked up pointers from here and from I2I support groups. I have added melatonin I take 6 mg about 45 min to and hour before my other bedtime medications. which are the Trazadone, Flexeril, 2 arthritis strength Tylenol and one of my blood pressure meds that tends to make me drowsy. I have gone from 4-5 hours sleep to 61/2-7 hours most nights. The best sleep I have had in years.

October 8, 2012 at 10:20 pm
(22) Cindy says:

I sleep on a soft sided waterbed and it made all the difference in the world. Softsided waterbeds typically use a 4-5″ mattress or bladder that fits inside what looks like a regular mattress with a padded zipper top. They are much lighter than the original hardsided waterbed. I also have a thick puffy mattress pad and two different types of foam padding which has gives the waterbed more cushioning. With foam or inner spring mattresses I woke up with stiffness, lower back pain; and excruciating shoulder and upper arm pain from sleeping on my side. With the waterbed and foam, the bed gives enough give that I don’t wake up that way anymore. Another must (for me anyway) is having microfiber sheets. They are like sleeping on silk and make it easier for me to move and turn over than sleeping on cotton sheets. They are very inexpensive (cheaper than cotton) and I get mine from Walmart. I purchased three sets in case they ever stop selling them. Just be sure to wash and dry on cooler settings. I still don’t have an ideal pillow system. So far the best combo I’ve found is a down feather pillow on top of a memory foam pillow to get support on my neck. One last thought. New softside waterbeds are typically $800 to $1000 dollars so I put mine together used for less than $200 using Craigslist. To be cont.

October 8, 2012 at 10:21 pm
(23) Cindy says:

Softsided waterbeds pt. 2. In putting a used softsided waterbed system together you need; a heavy duty typically nine legged bed frame, a special softsided waterbed foundation (that looks like a regular bed foundation yet has a hard top to support the waterbed mattress), and a soft sided mattress. Some mattresses use a water tube system which I have not tried as each tube has to be filled with water and then placed into the bed. Such a setup would be too heavy for the average fibro sufferer. I recommend a regular waterbed bladder (mattress) with NO wave reduction as they are so much easier to drain and are lighter to move. I love the wave feeling as I find it most relaxing yet for those that don’t remember that the extra foam padding will reduce the wave action. While I don’t use a waterbed heater they are available or an electric mattress pad can be used. Replacement bladders for softsided beds cost about $100 and will last for years if properly taken care of. I have five cats and with all the padding I don’t have to worry about kitty claw punctures. I hope this helps someone put together a bed system to alleviate pain and stiffness. For those that prefer temperpedic or other mattress systems, try microfiber sheets. They are much like the feeling of silk or satin yet don’t pull out and have to be tucked in like satin nor do they stick to the skin. Sleep tight everybody:)!

October 8, 2012 at 11:20 pm
(24) kathy says:

hi everyone, i can’t wait to share this. on this ‘sleeping’ topic i can only say i have a tempurpedic and i use ambien–for years. what i really want to share is that today i got RELIEF from prednisone, oral. i visited my GP today after a 3 week flare like i’ve never had before. all i could do is sleep, sit around, feed myself, and take my meds. my GP asked me, ‘what do you think might work to find you some relief?’ i asked, ‘do they use steroids to stop inflammation?’ she said, ‘usually not, but we’ll give it a try.’ i took the 3, 20 mg today and within 3 hours my pain has changed markedly. i do feel steroid weird, but OMG, the spasm in my neck and chronic headache are gone. i have no idea what will happen tomorrow, but this has worked. i have been so miserable. my heart goes out to anyone who has to live with this every day. my fibro is with me constanly, but flares up like this about 2 times per year. i am very lucky. back to the med schedule; i’ll take 3, 20mg tomorrow, then 2 pills for 2 days, then 1 pill for 2 days, then 1/2 pill for 2 days. my GP sometimes uses this treatment along with antibiotics with really bad sore throats. sorry i’ve taken so much time to explain this, but this is groundbreaking progress for me. i hope it can help someone. k

October 9, 2012 at 4:56 pm
(25) barb quester says:

a few years back i bought a Select Comfort bed, which i love. a long time ago i had a waterbed which i also loved, but this is so much easier to move, since it’s only filled with air. i wear comfortable sleep clothing, and sleep in soft flannel sheets. i even spent considerable money on down pillows because i can’t stand the pillows i get from Walmart or any other store. still, there are nights when my adrenaline is off the charts and i can’t sleep. so i have done the best i can with my sleep comfort.

October 10, 2012 at 1:45 am
(26) Marcella says:

I use a thickly padded mattress cover over a memory foam mattress topper. I use cotton sheets and a VERY light weight comforter. In the winter I add a woven cotton blanket over the top part of my body. My feet are very sensitive and I can not stand the pressure of even the lightest cover on them so I elevate the covers at the foot of my bed with two heavy duty pillows that lift them up away from my feet like a tent. It is a lot of hassle when I get ready for the night because I use the same pillows for sitting up to read. I read for about 1/2 and hour, then take about 8 mil. of Ambiem, I have split from a 10 mil. tablet, not an easy thing to do with my pill splitter if they are an odd shape, and then adjust my sitting up pillows to the foot of the bed before I go to sleep. I use a down pillow to cradle my head and one regular pillow between my legs to support them. I wear long nightgowns because they are less restrictive. In the winter I wear long granny nightgowns made of satin on the outside and a soft lining on the inside in the summer I wear light nylon or light cotton nightgowns. If I am in really bad pain I take a 50 mil Tramadol. On super bad painful nights I will take a half of a Ocycodin. If this does not work I listen to soft guitar and ocean wave relaxation music on my iPod until the pain subsides. I was diagnosed with CF/FM about 15 years ago.

October 11, 2012 at 3:58 pm
(27) Lexie says:

I have just been diagnosed with FM, but I believe I had it for years. I not only have terrible sleeps and can not get comfortable, but I also suffer from Night Terrors, which I believe is due to the FM and not getting to reach REM sleep ever!!!. I am 44 and I believe I had FM since I was in my mid 20s. I always had to sleep with blankets between my legs and arms so that they don’t touch. I have restless leg syndrom and unconciously rub my foot and ankle back and forth on the sheets. I find this soothing. I am always hot, and kick the blankets off and then I get cold and put them back on. The back of my neck sweats and I am constantly turning from my left side, to my right side because my hips pain against the mattress. When I do fall asleep, i end up on my back, but usually end up waking up from a night terror and then I have to go on my side again. I have a queen size bed, and sleep alone. I don’t think anyone would be able to sleep with me. My mattress is the worst, so to improve my comfort I added a feathered mattress and a mattress pad. Nothing works. I am so considering buying a new mattres for my sanity. I seen one at IKEA that I tried out and liked. It was specifically for people with back problems. If I buy it. I will let you know how it feels. I also hate having anything on my body that is confining, so I wear a large short nightgown, thin cotton to keep me cool.

October 22, 2012 at 6:10 pm
(28) Jackie Foster says:

i have had fibromyalgia for 29 years and i’m now 61.it has been a long rocky road for me as the usual runaround and no one believing but we bought a memory foam mattress topper at least 3″ deep an put it on top of your mattress and i have never slept sp good until i got this topper.Don’t get the mattress pad,the topper only and when the day comes that i win a Lottery then i will buy the complete memory foam bed.its the best investment i ever made and we bought it at zellers for half price,like $92.00 and if you don’t like it you can get a full refund…i luv this memory foam mattress topper and would be lost with out it…Hope you can all find one too……soft hugs

October 22, 2012 at 6:22 pm
(29) Sara C says:

I have a Temperpedic Cloud & love it! I sleep with my feet up which helps relieve the back pain (I also have Spinal Stenosis along with the Fibro). It helps greatly. I also have to have at least 2 or 3 Tylenol or Advil PM tabs. I, too, find that having the tv or a radio on low helps me block out any other distractions & helps me sleep. My only problem with the waterbed I used to have was when the power was out, I couldn’t get into bed because my entire body froze up. Now I just stay warm with flannel sheets & dress warmly, including socks.

October 22, 2012 at 6:57 pm
(30) Vicki says:

I toss and turn all night, but get usually 6 hrs of sleep. Blanket softness is important, and I have a thin one that I like between me and a fleece blanket for warmth. I, too, am usually hot, but I sleep next to a man who puts out a few thousand BTU’s! I found that when I took Ultram regularly at night I got night sweats really bad — like soak the bed bad. I still take it when I have flare-ups, but not regularly. I sleep in my panties because I toss and turn so much and get tangled up in anything else. Our mattress is a pillow-top, and it seems that all of those pillow-top and memory foam help initially, then it “settles” and becomes harder. The best thing to do to control my pain is to take an afternoon nap. Oddly, I fall asleep better if I’ve had a short nap. Otherwise, it’s like I get over-tired and can’t sleep. I used to take Ambien, but after a bad scare where I accidentally mixed up my morning and evening pills, that was the first med I stopped! I’ve done Effexor, Cymbalta, Wellbutrin, Lyrica – pretty much everything in the 18 yrs or so I’ve had fibro. Working part-time and napping has helped the most.

October 22, 2012 at 7:10 pm
(31) Dot says:

I have tried several pillows trying to get the support I need for my neck. I have had Fibromyalgia for 15+ years. The pillow that I discovered Works for me is made by “My Pillow” I chose one up from the softest they make. These pillows stay supportive under your neck. They are machine washable. I paid apprx. $79 for my King size pillow and I would not trade it for anything. Just research My Pillow and see what you think.

By the way, I have been on Cymbalta for 7 years or longer but I am not doing very well at this time. My mom passed away this summer (12) days in Hospice, and I have had a flare up of my Fibromyalgia ever since. Does anyone think I need to try Effexor or any other drugs? Open to suggestions………

October 22, 2012 at 7:23 pm
(32) Shelly says:

I’ve had fibro for the past 18 years. During the first few years slept on a soft sided waterbed and that was good until it broke. Then got a select comfort…much better! Just got a new select comfort in which the head and feet raise as I can no longer sleep flat. It’s really all about what works for you!

October 22, 2012 at 7:49 pm
(33) Jan says:

I have had fibro for over 30 years. I have a Temperpedic 2″ mattress topper that I love and a down alternative comforter with a flannel duvet cover on it. I have had the topper for 10 years and really want to get the 4″ topper now. I just wrap up in the duvet, kind of like a cocoon. Nice!

October 23, 2012 at 12:27 am
(34) sue says:

I have had fibro for 39 years, and am on disability because I cannot sit at a computer or drive for extended periods. 3 years ago I finally found a memory foam bed on close-out (a temperpedic knock off). With the memory foam mattress, and several memory foam pillows (love the stuff, I wish I could invest in it!) of different sizes and shapes, I sleep so well. One to place between my knees when I sleep on my side (hip bursitis kicked in), two for when I lie on my back to keep my knees elevated (lower back pain), the contoured one for my neck for side sleeping, and a small travel pillow size to help elevate my right shoulder when I sleep on my side (bursitis and fibro again). I know it sounds complicated, but I now love sleeping, napping, lying down, and rave about it to my friends. I wake up with little pain, and the AM exercises help alleviate that so that I can make it through the day.

October 23, 2012 at 12:30 am
(35) Candace says:

Its really bad having chronic fatigue and fibromyalgia and you can’t afford a new a new bed.

October 23, 2012 at 2:26 am
(36) MollyB says:

Investing in a good mattress, along with a mattress topper, have been 2 of the best decisions I’ve made in years. Soft but, firm. Makes a big difference in sleep quality and quantity.

February 3, 2013 at 11:55 pm
(37) Debby P. says:

I sleep in a heated waterbed. An old school waterbed. It’s nice and helps a lot with my pain.

April 2, 2013 at 11:21 pm
(38) Kim V says:

Hello all~ I read this and my heart sunk. Oh my. I have had a tempurpedic bed for almost 10 years and it’s the worst thing I ever did to myself. I was unaware as my immune system was frying out that I was sleeping on the enemy. This bed is full of chemical toxins that off gas continually. In my heart I think those things have played a major role in my health declining to the level it has. I cannot wait to get this monster out of here. The only reason I decided to comment tonight was my concern for others. I had never, ever thought about the health of the mattress I was sleeping on until approx 2 weeks ago and now I’m doing the best I can to learn about the fire retardants that are poisoning so many of us. I hate to be an alarmist but I must encourage you to check this out for yourself because what I would hate more would be for any of you to become more ill. Please google off gassing mattresses and see what I’m talking about. Peace & Love to you all~ Kim

May 5, 2013 at 12:38 am
(39) Barbara says:

Hi. When I received my back pay for my disability I went right out to The Sleep Number store and bought my bed. I am divorced, 58, and live alone. So it doesn’t matter that I can set the firmness or softness for just myself. I also have as bought as much cushioning for the top as I could get. It is the only bed I like now. It is also adjustable so I can sit up and watch movies on my computer in comfort. I would love to be able to read in bed but the lighting in my apt is terrible, now matter what other lighting I use.

I sleep with just my underpants on, except for when my son comes home and then I wear a short night gown. I sleep with just a sheet over me and sometimes when it is colder out I use a flannel top sheet. They keep me and my feet warm. I have problems though when my feet are cold and my body is hot. Lately, I have been having to have a fan blowing on me at night or my head sweats to the point that it wakes me up because my pillow case is so wet. The fan keeps my head dry.

My feet are always cold except for when I have shoes on. Sometimes then if I am not on my feet my feet feel like they are frozen. I have discovered that If I am on my butt, even in bed, they are cold. If I sleep on my stomach, my favorite position, my feet are not so cold. Last year I found a heating pad that is for feet. It is longer and wider than a heating pad and it goes over or under, I haven’t decided which is best but if turned on about 15 minutes before I go to bed, the foot of the bed is nice and warm.

August 16, 2013 at 11:48 am
(40) kelly says:

I have a 100 % wool mattress pad as thick as they come. I take it with me when I travel. It makes even a pull-out couch feel good. Currently sleeping on an air mattress. I run an purifier in the room. I use organic cotton sheets, a light down comforter in summer, cotton and wool blankets added in winter. Sleep in only over sized cotton night shirts. I also take 100 mg of trazadone which probable helps more than anything.

September 16, 2013 at 4:21 am
(41) gina daiber says:

I cam believe all the people comfort on memory foam beds One T can.t turn over on it and any thing my body touches starts to burn in a few min.I have been in a recliner for 13 years. I get very restless tho and feel like I need to lay down I have a twin Temp adjustable bed but I feel like a beached whale and ant turn or move ,I have FM but it is due to Lupus and MS .I lost my lung to lupus and the saw your ribs and spread them to take the lung out leaving me in pain after the surgery my stomach kept getting bigger and is huge but hard, I went from my normal weight of 119 to 300 lbs in 8 month. I cant stand not having a bath to fit in or a bed to lay in .I need a comfortable bed any suggestions.

October 15, 2013 at 9:21 am
(42) ronna says:

I was just diagnosed with FM and its the worst when trying to get comfortable doing anything. RE: lexie I also have to turn from my left side to my right side, then to my back after my right shoulder starts to hurt, then to my stomach after my legs and feet start to ache and burn from being on my back, then I start over again back to my left side after my entire body had a full rotation. Having restless legs doesnt help. I wake up for work @ 6am by that time Im through, my body feels like a building is laying on top of me. On the weekends I can’t lay in the bed past 8am, I get up and go on the couch to avoid the pressure points or sit in the Big comfy chair, drives my hubby nuts I leave him in bed. I never get the best night of sleep always tired. There is a product called TWO OLD GOATS in a blue bottle that really helps, its for FM and arthritis pain, also works wonders on my migraine (rub across your forhead and back of neck) I take lyrica that helps me get through my day at work and a little relief at bedtime too, but can’t get that good sleep we all wish for. A lot of good tips here though.

February 24, 2014 at 11:33 am
(43) Bruce says:

I cannot sleep laying down for more than two hours at a time..laying down isso difficult I go from laying on the floor to the copuch to the bed to the chair..I sleep sitting up more than ever before I need a chair to sleep in that can be a multifunction chair so I can adjust to get comfortable..
I have gone from ADVIL to Methadone,Oxy/Lyrica/Vicodin/toradol..from U of M hospital to cleveland clinic..So I asm not seraching for a Doctor but relief in the form of a chair to sleep in or something new and beyond my thinking..
Thanks for lsitening and for Everyone who has this Chronic Illness my heart goes out to you, It’s so terrible to live with..
Bruce spears

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