Updated (Originally published Aug. 22, 2012)
The chronic fatigue syndrome community could use some powerful friends, and according to the White House Chronicle, it just might have gained a few. Here's an article about a woman's plea to the President and his response:
New Information - Read a thorough account of these developments from Rich Carson at ProHealth.com: The Most Important Two and a Half Minutes in ME/CFS History
Will this be a game changer for the illness? Could it bring some much-needed attention and help influence the direction of things? I hope so. I'm fairly cynical where politics is concerned, but I also recognize that a nudge here and there can help re-shape things. And hey, it's better than nothing, right?
NEWSLETTER | FORUM | BIO | TWITTER | FACEBOOK
- A Simple Explanation of Chronic Fatigue Syndrome
- Living With Someone Who Has Chronic Fatigue Syndrome
- FAQ: Is Chronic Fatigue Syndrome Psychological?
Photo © 2012 Getty Images
This link works…
http://phoenixrising.me/archives/13145
Hope is hope and I will take it!
Should we do something to ensure this continues if Romney is elected?
I have never been one to delve into political actions but I certainly would like to see this effort/action continue in the next administration.
Anyone out there have the background/knowledge to let us know what we can do to keep this action moving, even if Obama is defeated?
@ anne
President Obama is the first president ever to acknowledge CFS (it doesn’t hurt that it is an election year). Based on past history, the odds that another president will also acknowledge the need for more attention (and money) is very low – presidents tend to have a very full plate.
Regardless of who is elected the CFS Advisory Committee will continue to meet, but whether their proposals will be heeded if there is an administration change is not known.
Patients who aren’t sure if they can make it to the polls or not in November can vote by absentee ballot.
It’s because President Obama has a kind and loving heart. He really cares about people!!
I don’t count on anything where Obama’s concerned. But, best believe because of Ann Romney’s on-going fight with M.S. (close cousin to Fibro. & CFS), I’m sure these diseases WILL be addressed.
I second what “eaglehaslnaded” says.
I have to agree with eaglehaslanded and buddie. So far almost everything this president and his adminstration has done or says seems to be the opposite of what is true.I do belive that we may have hope through the struggles of Ann Romney.Sorry that politics was brought to this forum because it usually only leads to hard feelings and we have enough trials and tribulations to go through ourselves. God bless us all.
There is no evidence that multiple sclerosis is closely related to chronic fatigue and fibromyalgia. NONE>right now there is great disagreement as to the cause of multiple sclerosis. All we know is that the myelin sheath around parts of nerves is destroyed, leading to messages from neurotransmitters not being transferred properly, leading to poor responses from the body…….The cause up until now was attributed was attack by the immune system but there are questions about this now. I was told by my world wide know rheumatologst the fms is not an autoimmune disorder. That’s why it is so hard to diagnose.
I have me/cfs and fibromyalgia and my brother has ms. I think that we have a common genetic problem with our immune systems.
I THINK THEY ARE AUTOINMUNE DISEASES.I HAVE FIBROMYALGIA, IBS, MIGRAINES HEADACHES, ETC. I HAVE A VERY CLOSE FRIEND WHO HAS FIBROMYALGIA, HER SISTER HAS BEHCET SYNDROME AND THEIR MOTHER JUST PAST AWAY, SHE DEVELOPED PULMONAR FIBROSIS, AND ANOTHER RELATIVE HAS LUPUS FOR 40 YEARS.
The fact that an administration has recognIzed CFS and the need for more research, treatment, etc is a huge step regardless of the political affiliation of the President. This recognition shows that our President believes CFS is a serious illness and recognizes the needs of those afflicted by it. Most of us with CFS/ME have encountered people who don’t believe CFS exists or think it is ” just in our heads”. I’m happy to know that the next time I have an encounter like that, I can refer to President Obama’s letter and act of recognition of this illness and those of us afflicted by it.
CFS blog: http://whatswithcfs.blogspot.com