1. Health
You can opt-out at any time. Please refer to our privacy policy for contact information.

Discuss in my forum

Adrienne Dellwo

Extreme Itch in Fibromyalgia & Chronic Fatigue Syndrome

By August 20, 2011

Follow me on:

Because fibromyalgia and chronic fatigue syndrome involve the central nervous system, we get all kinds of strange goings on in our nerves. We can get burning, tingling, numbness, pin pricks and itches. This category of sensation is called paresthesia.

A recent comment from a reader brought up the itchiness:

"I need to figure out the 'itch' because I literally want to take my skin off! I'd love to hear if anyone else has experienced this. It's always symmetrical and it feels like every nerve under my skin is being electrocuted." -pondering1

Believe me, I know that itch! It's maddening, especially since scratching doesn't do a thing to help. In fact, in my experience, scratching just makes the whole area scream on top of itching.

Several things may help you get rid of or at least tone down that itch:

  1. Capsaicin. This topical pain reliever depletes your cells of their pain messengers, essentially forcing them to stop complaining. Tread softly with this one at first, though -- it has a burn that's too intense for some people. (More about capsaicin.)
  2. Ice. Cooling the area can relieve any inflammation that may be putting pressure on the nerve, but most importantly it can deaden the feeling. (Learn to ice properly.)
  3. Pain killers. For the itch itself, acetaminophen (the ingredient in Tylenol and secondary ingredient in Vicodin) is the one that's most likely to help with nerve pain. Again, if the nerve pain is a result of inflammation, anti-inflammatories may help as well.
  4. Calming the nervous system. Certain supplements (theanine, rhodiola), medications (Xyrem, Valium, Xanax), acupuncture, and yoga and meditation may all help keep your nerves from being hypersensitive and causing these kinds of sensations.

My preference is using #1, 2 and 3 to ease symptoms short-term, but elements of #4 to prevent them long term. I haven't tried the meds, but I've had success with the rest of the treatments listed there.

Have you had the vicious itch? What helps get rid of it? Leave your comments below!

Learn more or join the conversation!

NEWSLETTER | FORUM | BIO | TWITTER | FACEBOOK

Photo Thinkstock Images/Getty Images

Comments
August 20, 2011 at 9:17 am
(1) Deborah Korch says:

I start getting itchy and twitchy around 7:00 almost every night. It’s maddening. Nothing helps. I get it all over, including in my ears, nose and throat. If anyone has a treatment that works, I’d be forever grateful.

September 1, 2011 at 2:47 pm
(2) Kim says:

I have found ice to be helpful. Try a netti pot for your nose, and crushed ice for your throat. Your ears may itch because they are attached to your throat via the Eustasion Tubes. Holding ice at the back of your throat may give your ears relief.

September 1, 2011 at 3:29 pm
(3) Laurie says:

I get itchy and sore everynight too, especially if I have done too much. I have to sit and rest and either soak in cool water or cold cloth and i take chlortabs (generic for chlortrimatine tabs). It always works for me

October 20, 2011 at 10:13 am
(4) Jesse Dziedzic says:

This surely makes great sense to anyone.

August 20, 2011 at 11:55 am
(5) Lori says:

I used to get itchy. Found out I can’t use cheap shampoos and soaps, like Suave and White Rain. There was something in them I was allergic to. I use Pantene now and the itch is gone. It’s worth a try. I am also on Neurontin which helps the nerve pain.

August 26, 2011 at 3:42 pm
(6) Shelly says:

I also can’t use many shampoos, it is the sulfates in them, lotions also…that contain lanalool.

August 26, 2011 at 4:23 pm
(7) Laurie says:

Oh wow…I never thought about that! I’ve been using cheap shampoos for a while now and have been scratching my head like crazy!!! I should have thought about it as I am sensitive to a lot of things…thanks!!

September 1, 2011 at 10:57 pm
(8) Carmen Margarita says:

I had been scratching my head like a crazy for YEARS.Some months ago I began to use shampoo without sulfates and now I feel better. I feel itch in my arms and neck too.

September 7, 2011 at 4:42 pm
(9) Regina says:

Lori, I have found Neurontin to be a Godsend! It helps so much with so many of the wide variety of Fibro symptoms. I keep repeating it but I really think people like us shouldn’t fear it, it’s not addictive and it doesn’t make you high or have any sort of severe side affects. In fact, I don’t notice any side affects, I split my dose throughout the day building toward night time so that I can relax and get to sleep at a reasonable hour. My dose is 3,000 mg a day. I know that sounds huge but you build up slowly and it works great. I have regular blood tests and my kidney and liver function are very good. I wish more Drs. would catch on to using this for pain, sleep and other similar symtoms like the itching we tend to get. Thanks for bringing it up.

September 8, 2011 at 2:58 am
(10) Meff Thompson says:

I take 600 mg of neurontin per day, at bedtime. It does have side effects, though you may not notice if you’ve been taking it a while. It was prescribed for me by a pulmonologist. It is “off label” for my symptoms, but it works. It is an anti-seizure med, so some (most?) doctors wouldn’t know about using it for other things.

September 8, 2011 at 2:48 am
(11) Meff Thompson says:

There are two shampoos without itchy stuff: WEN, available at Amazon and other places, and ONE, less expensive and also available on Amazon. I buy the latter at a local beauty supply store.

August 20, 2011 at 12:25 pm
(12) sheri says:

wow i couldn’t believe it when i saw this i have always has a problem with this but it would only happen once in awhile when i get tired or stressed but as the years went by that seemed to increase but i did’nt even think or know that it might have something to do with FIBRO i recently went to the doctor and told him i needed something for stress and that it was making me itch sooo bad i wanted to scream and pull my hair out he gave me Clonazepam it seems to calm me down some and help with the itch some but it makes me feel drunk and tired i have to go lay down and it puts me right to sleep witch is ok cuz i cant seem to sleep anyway im on the pain meds u said but dont find that they help i have all that u said burning, tingling, numbness, pin pricks and itches its like having restless leg syndrome all over your body but for me stress does make it worse going somewhere to be by yourself helps a little but i dont know if someone has any help i would love to know THANK U VERY MUCH~~

August 20, 2011 at 3:09 pm
(13) Rachael says:

Histamine, a substance usually released during allergic reactions can cause itching. Benedryl, an antihistamine comes in a creme form for putting on itchy skin. If cremes do not work, or the itching is widespread, there are also over-the- counter oral antihistamines available, which may help relieve the itching. Tricyclic antidepressants such as Doxepin or amitriptyline also have antipruritic properties because they contain a very powerful antihismanic ingredient.

August 26, 2011 at 11:51 pm
(14) Denise says:

I have to take a Zyrtec every night when the itches start (it always starts in the early evening). If I don’t take it early enough, the itching would keep me up all night!

August 27, 2011 at 2:11 pm
(15) Diane says:

I started using childrens benedryl in liquid form – 2 tsp at night. It helps calm the itching. Anything brushing against my skin at night can cause more itching – sheets, clothing, my hair falling into my face, neck and shoulders – even the breeze from the fan.

September 2, 2011 at 4:56 pm
(16) REET says:

My doctor gave me the smallest dose of Clonazepam and it doesn’t work then Atarax which sometimes helps but makes the RLS worse so I may try the childrens benedryl. When my hair gets in my face it itches and I want to shave my hair off. It’s getting close to that time because my nose and fingers are starting to itch or maybe a crawling feeling with it. Why won’t doctors just give us something that works? I have had about all I can take. I don’t drink but at night it sounds like a good idea. About 6:00pm mine starts but it’s a little early this afternoon, it’s 5:00pm so it’s going to be a long night. Thanks for being here.

September 4, 2011 at 2:44 am
(17) Anna says:

Again I can relate! Hyper sensitivity esp as you described. Summer breezes may be nice but they’re also killers, too!! I am driven crazy by clothing tags hitting my neck. Love that many companies now using printed on tag info instead! I get many other skin sensitivities, too. Those silly Fibro nerve problems! I used benadryl so much when I worked grave yard shift that I developed a “paradoxical reaction” to it – meaning that I react the opposite of how someone is supposed to react. So, in stead of sleepiness, I get hyper and antsy and wanna run around the block!!

August 20, 2011 at 4:15 pm
(18) Dee says:

How strange. I’ve had an itchy scalp since around the time I lost one of my grand-parents and had continued to believe that it was caused by stress.
I’ve never connected it with my FM, you’ve given me food for thought and I’m gonna research some more.
Thanks.
Dee

August 20, 2011 at 4:58 pm
(19) Robin says:

I usually just take benedryl and suffer LOL

August 20, 2011 at 5:12 pm
(20) Kristin says:

I find natural fibres through the day so you dont get too hot or cold help a lot, this can be a delayed reaction. I also have a co-disorder which is a rare autoimmune sensory neuropathy, so I have to be excessively careful or I dont just itch, I feel like a voodoo doll!! Acupuncture is great too, my therapist is now used to me turning up with biro shapes everywhere to help her see which nerves are worst. Finally voltarol gel is good, or biofreeze as they help numb the area.

August 20, 2011 at 5:27 pm
(21) Robin says:

It is so odd, the things i thought were unrelated to the fibro seem to be related after all… the rocking back and forth, the sensitivity to light and loud noises and now the itches! what next? benedryl helps me.

August 26, 2011 at 4:22 pm
(22) Dawn says:

OMG… I completely agree. All these things that I have had for years nearly on a daily basis that I thought weren’t in anyway related to FMS in fact are absolutely related to it. There’s been so many times I thought I was going crazy. I don’t know about your Dr. but mine is very sympathetic and tries hard to relieve “all” of my symptoms but as they change daily, it’s nearly impossible to completely inform patients to the many, many, many, many symptoms of FMS. So most of it (symptoms and treatments) I am finding out as they come. It’s so wonderful to have an outlet and resource to help all of us.

August 20, 2011 at 5:40 pm
(23) Mary D. says:

I’ve long wondered if my itchy bumps were related to my fibromyalgia. I get tiny red bumps, usually on my legs, that itch with great burning intensity. One or more will break out, then disappear while others break out elsewhere. Then, for stretches of time, no itchy bumps. They seem to reoccur in the same places where they were before. Doctors always suggest that they are insect bites, but no, I’ve lived with this pattern of bumps for enough decades, and in enough different environments, to know that’s not the case.

Does this sound familiar to any of you?

I use a topical anti-itch cream, Gold Bond for now. It is effective for about 6-8 hours per application.

August 24, 2011 at 11:59 am
(24) Rebecca says:

I get the bumps on my leg too, but they don’t itch as much as they are painful.

August 27, 2011 at 11:33 am
(25) Shirley Anne says:

I get those bumps on my legs too – just one area. I can’t scratch or it really burns. I use an anti-itch spray – OTC. On my head I use that anti-itch liquid for hair – OTC

September 1, 2011 at 5:29 pm
(26) Cheryl says:

I get what I call hot spots, mostly on my palms. One will appear, say near the thumb, then as the day goes on it will move across my palm and itch like crazy while burning too. Sound crazy? My husband watched it happen so now I know it’s not all in my head! LOL really. i get itchy all over as well. As others stated cold, topical 1st is always best. I have also found Curel soothing lotion really is. I usually need 2 coats before it breaks the itch. I am a 20 yr FMS sufferer and have blamed it on everything I have. No to meds or surgery unless I can’t walk. That hasn’t happened in 10 yrs. although I have been told that was what I needed to keep me on my feet. No, it wasn’t. I choose where I spend my energy and protect it as much as I can. I am lucky to have a husband who believes and understands, chldren that are grown and no grandkids to pick up.
I hope you all find peace and less pain.

September 3, 2011 at 2:25 am
(27) Mandy says:

I have had the itchy patches like that too. I have eczema. It is always in the same places when I have outbreaks. A patch on my calf, a patch on my thigh, the side of my breast, my low back and worst of all places, my crotch. I have gone nuts with the crotch thing and no one ever figured it out. I have steroid creams that the dermo gave me, but you have to use them in moderation or it can screw up your skin even more. I have been dealing with it for over 10 years. If it gives you any idea of how sick I am of it and how irritating it is, my Fibro is secondary to the itch. THAT’S BAD!

September 3, 2011 at 5:34 am
(28) Dale says:

Mary, I get those awful bumps too. They start out as tiny little itchy areas, like a dry patch on my leg & the more I scratch it, the more it spreads into teeny blisters that itch something awful. They just keep spreading & will stay for mos. until suddenly, they finally disappear. There is a name for the FMS rash, but sadly can’t think of it now. Someone yrs. ago gave me some liquid with witch hazel & a mixture of herbs that was a real help, but they have passed on & nothing makes the difference for me too much until it finally goes away on its own

September 3, 2011 at 5:51 am
(29) B says:

sounds lie excema, go see a derm dr. I had it on y legs but turned outIwas allergic to the nickle in the chair legs. I have excema on my inner hands when I stress out. if u see little tiny bumps do not scratch them, it will only spread the exema and your body will have a memory for it. try cool gel pads or cold towel for 15 min. untilu see a derm Dr. just don’t itch it whatever u do.

September 3, 2011 at 6:20 am
(30) Dale says:

B–You’re right about it getting spread by scratching it. My dematologist said it was excema, but it is something else, & the name of it eludes me now. I found it while searching one eve. about FMS rashes. Interesting how you figured out you were allergic to the nickle in the chair legs. Who would have ever thought! Thanks for the suggestions.

September 3, 2011 at 12:12 pm
(31) Deb says:

Mine are so bad that I have scars all over my arms and hands from the itch. Am now using presription LIDOCAINE gel. It numbs the area quickly… with no side effects.

August 20, 2011 at 6:16 pm
(32) April says:

I’ve talked to so many docs about my itching and they keep telling me to use plenty of moisturizer. It doesn’t help. I’ve tried changing laundry soaps too. Now I have an idea of what the cause is and know I’m not crazy. Thanks for mentioning this. I think my 7yr son takes after me because he’s been itchy forever. Glad to know there might be a cause behind it and that I’m not hallucinating.

August 21, 2011 at 1:10 am
(33) Dean Kelley says:

I have had success with homeopathic Dolichos pruriens 30c, which is for itching of unknown origin. It even worked when I was struck with Allergic Dermatitis that felt like I had been dipped in itching powder (no reason found after testing), but I had to use Prednisone for 7 days to stop the reaction. The Dolichos diminished the itching, and continues to do so whenever I start to react. Also, nerve pain can be treated with Hypericum perf. 30c. I try homeopathy first because the remedies have no drug effect and no drug interaction. Safe and effective! I have not found anything that tames FMS, however.

August 22, 2011 at 10:19 am
(34) Rachel says:

I have Fibromyalgia and hypothyroidism and experienced this kind of all-over, under-skin, going-crazy itch when taking natural Armour thyroid hormone replacement.

I believe there is a significant connection between the hypothyroidism, the immune system and the Fibromyalgia. I’m hypothyroid because my immune system attacked and destroyed my own thyroid (autoimmune disease). My doctor and I reasoned that my immune system was allergic to the natural thyroid hormone in Armour as well, causing the itching. Interestingly, when I took synthetic T4-only Synthroid, my Fribro pain increased immensely, but no itching. When I began taking synthetic T3 +T4 Thyrolar, I had neither the itch, nor the pain. When I take synthetic T3 alone, I feel great for a little while after, and return to regular Fibro state and fatigue soon after.

This seems significant to me since thyroid hormone is utilized everywhere in the body. If one is allergic to natural thyroid hormone, then the allergic immune response will follow the hormone throughout the body and cause damage everywhere as well, I imagine.

Benadryl and Loratidine (Claritan) help in the meantime.

August 22, 2011 at 6:46 pm
(35) sleepwalking says:

I get itchy too. The worst is the feeling that I have spiders crawling under my skin or over my face. ugh. I also break out in hives behind my ears and along my jaw line every evening. This is not related to any allergies – I’ve been tested for those.

August 22, 2011 at 11:19 pm
(36) Rachel says:

NIACIN!

I just remembered that Niacin (B3) can make me itch like crazy, even when taken as part of a regular daily vitamin or Vitamin B supplement mix. I can itch at the low 100% daily value of just 20mg. Sometimes it can take 5 or 6 hours before the itch comes on, so it’s hard to make the connection between the symptoms and the source!

I agree Fibro can have some very squirrely symptoms, but hopefully the source of the itch is something within your control so you can avoid it!

Best luck!

August 23, 2011 at 1:05 pm
(37) Judy says:

I get the itchies and every doctor I have seen says it is “bug bites”, “dry skin” or many other things. I finally came across a combination that seems to help and the itching has decreased. No scented anything on my skin, incl. laundry soap, shower products and lotions. I currently use a lubriderm product that is fragrance free and for itchy skin. At night I have been taking one benadryl to help with sleep and then was prescribed valium for a muscle cramp in my neck, that night no itching. This lasted at least a week. I then would have to take out one item and the itchies cam back. I have done this many times and removing the valium, benadryl and keeping my skin hydrated appears to be the key to keeping it at least to a point where I can sleep, and not scratch sores on my skin. Hope this helps someone else.

August 23, 2011 at 6:11 pm
(38) Pam says:

My scalp is always itchy and it’s much worse when I am in a flare. I have tried all kinds of shampoos and products but nothing seems to really help. Makes sense it’s related to Fibro and the brain.

August 24, 2011 at 1:34 am
(39) cyn says:

The upper left portion of my back, up by my shoulder, drives me crazy. I’m hypothroid.

August 24, 2011 at 11:48 am
(40) Traci says:

I have always had eczema and thought the itching was because of it. But I also have fibromyalgia and have itching fits, often in the middle of the night. It feels like bugs crawling on me. I am happy to report that most of the time I can connect my itching fits to having eaten sugar that day. Sugar and popcorn are two triggers for me. I hope this info. helps someone else.

September 8, 2011 at 2:44 am
(41) Meff Thompson says:

I have that feeling in my legs, restless leg syndrome, for which I take neurontin. It works. If I forget to take it, I can’t sleep. I also take alpha lipoic acid, which helps with shooting pain in feet. (600 mg/d sustained release. More at times. With food.)

August 26, 2011 at 3:47 pm
(42) Matt says:

I also experience the itch. It can be maddening. I agree with the statement to stick to suggestions 1-3. In suggestion 4 she mentions the use of Xyrem. I have been on literally hundreds of medicines in the past 15 yrs including strong narcotics such as Methadone, Oxycodone, Morphine etc. The worst medicine for one to be prescribed is Xyrem. I would love to know how about being an advocate against this medicine. I speak from experience. This medicine does not belong in the fibro pool. I would certainly answer any questions anyone has regarding this medicine. However I would prefer to do so in a private email rather than this public forum. Just let me know. Be well – Matt

September 1, 2011 at 3:05 pm
(43) Mindy says:

Report it to the manufacturer. I was on Abilify and had to do that – one of the ‘unreported side effects’ was an increase in compulsive behavior, and being a compulsive gambler trying to stay clean was near impossible on Abilify. I had talked to a couple other people who had the same experience, so I reported it.

August 26, 2011 at 4:01 pm
(44) Melanie Coffey says:

I had never experieced this as bad as i did in July. The upper shoulder or shoulder blade on my right side drove me crazy. To top it off i could not use the back scratcher because it was right on that bad tender point. My husband rubbed it slowly. It finally went a way after a month.

August 26, 2011 at 4:42 pm
(45) Xenia Eliassen says:

I get the infernal itches/pin pricks/tingles at night, while I’m trying to sleep, and as soon as I scratch one place, it moves to another place, rotating all around my body, often in several places at once. And I know it’s nerve-related, nothing dermatological-based (I’ve had dry-skin and heat rashes, and those feel totally different than this). The ONLY thing that helped relieve these itches was taking 10-30mg of Sarotex (amitriptylin) an hour or two before bedtime, to give it time to start working. I really can’t recommend it enough, but I’ve also heard that it doesn’t work for everyone, so my advice is just to try it (ask your doc about it, since it’s a prescription drug) and see if it works for you.

August 27, 2011 at 1:28 pm
(46) sweetart says:

I do the same! I lay down everyday in the middle of he afternoon because of the back pain. When I’m amost asleep, the itching starts. I get a little itch on my nose, then my forehead, then my chin, then my right arm then the nose again, you get my drift. So I never do make it to sleep. I take Ambien at night so I can get to sleep before all that starts.

August 26, 2011 at 5:23 pm
(47) pondering says:

I was surprised to see this finally come up! I have tried everything! If I put ANYTHING on it, it makes it a thousand times worse! I have never been given meds for this particular problem. I have been to 2 dermatologists and an allergist and none know what to do for me! My only solution is a dangerous one; I take the meds I have plus benadryl until I finally fall asleep! For me it is pure agony and will continue unless I go to the extreme of taking meds! I’ve even been to emerg. and the doctors look at me sideways as if it is in my head and tell me to go home and take BENADRYL! LOL One day I will take too many meds! I hate to think what it is doing to my kidneys and liver. I now have a rheumy, an endocrinologist, 2 Dermatologists, an allergist, 2 neurologists, and even a shrink! I fired my GP because I felt he was of no help because he basically gave up on me even knowing what I was doing and now the new GP doesn’t really want me because he thinks I’m “doctor shopping”! I’m almost at the point where I just can’t take all these symptoms anymore. I have IBS really bad (constipation) so that for the first time in my life I have hemerroids! I have just been diagnosed with Sjogern’s syndrome (most of the day I can barely see because my eyes are so dry and I cough all the time). The pain is from head to toe! I am very temperature sensative especially to heat. I have severe arthritis in my wrists and knees. I have ringing in my ears for days on end along with a headache. My cognitive thinking is totally mesed up (short term memory and confusion). I have intermittent speech problems and I can’t find the words to get out. My co-ordination and balance are off And, of course, there’s the fatigue and lack of a good night’s sleep. I am having a hard time just getting through a day yet eveyone thinks I look fine and healthy!! I don’t know how everyone else gets through life, but right now I’ve about had enough!!! I wish I could find someone to help me!!

September 1, 2011 at 2:18 pm
(48) Cindy says:

I know what you mean – I have had trouble with docs until I found the one I am with. I gave up on a barn full of docs and use only my GP unless I need some special test – and I fight tests like crazy. There are very limited treatments for what we have and I always ask what are you giong to do differently after the test/procedure (hypothetically)? If there isn’t any difference, I don’t take the test. PLEASE hang on and keep looking for reasonable GP who is willing to let you take charge of your health care. You need someone overseeing all the different docs and working as your advocate. I understand completely about the ear ringing, headaches, can’t find words, everyone thinks I look fine! I finally gave in and applied for disability after a vertebrae crumbled. Just realized I may have Sjogern’s, after losing a couple of teeth due to decay from dry mouth … it is an ongoing learning experience for sure. Hang in there, do what you can to care for yourself and don’t worry – we know you are ill, even if some folks don’t! blessings and all good to you – Cindy

August 26, 2011 at 6:59 pm
(49) Tammy R says:

My hands and arms are very prone to weird itching, especially at night. It is so intense that I can’t sleep until I figure out some way to control the itching. Ice has been a big help. I have also had to stop wearing jewelry. And I am a celiac so I have to be very careful out the types of soaps and lotions I use.
Regardless of the above solutions, if I have a stressful or physically exhausting day, I can plan on some ugly issue popping up, whether it’s intense itching, racing heart, horrible pain….the list goes on and on.

September 3, 2011 at 5:32 am
(50) B says:

WhenI ate too much salt I would pay for it. the hands would ithand swell, and running them under clwaterwasallthathaeped.
sea salt is thesecret. neer itchor swel again. great for
when uhave yourperod too,noswelingbloating feeling.

August 26, 2011 at 9:30 pm
(51) MillyMolly says:

I too suffer this mainly when overtired or stressed I get it on my lower arms and hands worst right across the knuckles drives me insane! After this it is usually followed by the sharp jolts of pain on the underside of my arms, a rather liken it to being stung with a cattleprod: short, sharp & painful!

August 26, 2011 at 10:46 pm
(52) Marilynn says:

I too have the itchiness on my back, arms and scalp. What I was looking to see if anyone mentioned and may not really be related is if anyone feels like they are getting bitten by small bugs that aren’t really there? I have this feeling but especially at night and it drives me crazy

August 27, 2011 at 7:52 am
(53) Janet Wildeboer says:

I have been dealing with the itch for years! This is the first time I have seen anyone report the problem. and how to treat it.
For me the ice helps the most, and I take the medication. Bactine calms it down, and I use Hydroxyzine HCL.
I have had breakouts all over my body. One doctor told me it was caused by whiplase and he would need to do cut into my back of my neck. I never went back to that office.

August 27, 2011 at 9:20 am
(54) Emily says:

Please be aware that narcotics cause itching as well.

Itching like crazy, lips swelling and wondering whether I am having an allergic reaction as I write this.

August 27, 2011 at 9:29 am
(55) Christine Travers says:

I’ve had severe itch and pain my whole life and was told it was growing pains and allergys and to just live with it well I have and it has only gotten worst. I was told 2 years after the birth of my first child that I had fibromyalgia. When symptoms came on during my pregnancy I was tested for everything and it was all normal as usual, or negative. Then the you have fibromyalgia and it made sense all the symptoms. When you put them all together no Doctor was doing that I’ve tried all kinds of medications and nothing works for me. I am very allergic to antibiotic and pain killers so I have a hard time. I basically have to live with the pain. I exercise and do alot of stretching, but that still doesn’t always help. I also had gastric bypass surgery because my weight was getting out of control and could not lose no matter how hard I tried nothing worked. I feel alot better but now my sugar is a problem keeps dropping and then spiking, (hypoglycemic). I had some bouts of low blood sugar before surgery, but it really has got worse since.does any one have any suggestions or any helpful ideas.

August 27, 2011 at 12:19 pm
(56) Mbloom says:

I have had problems with severe itching since I got Fibro-CFS 21 years ago. It felt like fire ants under my skin. If I scratched the top off the spot it felt better but I had dozens of small sores. It was worst on my rib cage both sides and on my arms and legs but no place was free of itching. I would check myself for shingles rash but could find none. Then finally last fall I did get a shingles rash not on the typical rib cage area but a spot on each arm and each leg. I went to the Dr right away and was given valtrex (expensive). I took it for 7 months and got improvement in the itching as well as with my other symptoms such as pain and fatigue. I think that our bodies do not handle our virus load and reducing it can give considerable relief. I like to use coconut oil on my skin right after bathing. It is very soothing. My evening itches are gone.

August 27, 2011 at 2:32 pm
(57) Linda says:

I’ve had fibromyalgia for at least 30 or more years – when I was much younger and before I was diagnosed, at times my body and especially my head would itch like crazy & I didn’t know what to do about it either. Much later, after I found out what my affliction was, I tried using Benadryl (liquid or capsule) which helped tremendously because I felt as though it was related to my hypersensitivity to outdoor allergens. I have also used Hydrocortisone 1% lotion, it helps while im waiting for the Benadryl to take effect. i do not use cheap shampoo either – in fact because of my hair loss due to my thyroid problem, I use Nutri-Ox (generic brand shampoo & conditioner for Ni-Oxin – use3d for hair loss). This helped my head itching quite a bit also…

August 27, 2011 at 2:57 pm
(58) Andrew Porter says:

I developed an itch on the lower part of my back, where no matter what analgesic was used, or ointment, it would not disappear. However, a blood test soon revealed that part of my ME/CFS was caused by the virus Varicella Zoster on the verge of erupting, causing a full blown attack of Shingles. Fortunately, using the antiviral drug Aciclovir for about four weeks eliminated the itch, an itch that has never returned.

August 27, 2011 at 3:24 pm
(59) Sandra says:

How nice to see this topic come up. My left back, md-way below the shoulder has itched for years. Usually I have my husband scratch it, until it turns to pain. I’ll try the Benadryl and capsaicin, separately. Also get the spiders under the skin. I call it the creepy/crawlies.

August 27, 2011 at 7:34 pm
(60) Paula says:

I am also very glad this topic came up! I have had the itching problem, and at times have felt like it’s inside the skin, not on the outside. It’s so weird, and irritating. It’s happened a lot when I’m about to drift off to sleep, and makes me anxious then. My scalp has one particular spot that will itch, even though I know my hair is clean. I am comforted by the fact we can all share this crazy experience, and gain some insight by what others have tried. Thanks fibro friends!

August 28, 2011 at 12:35 am
(61) Betty says:

Celiac disease causes symmetrical rashes on elbows, knees and sometimes other places. Symmetrical is the key word.

August 28, 2011 at 5:12 am
(62) Sharon Levin says:

Parasthesia occurs in FM when stressors are activated, when allopathic/other meds are allergens to the person, when food and drink are incorrect and eliminations have not taken place especially. The CNS will only be able to ‘tell’ the site ‘chosen’ to annoy and become dysfunctonal the less proper attention of underlying causatives are sought. Treating EFFECTS OF SYMPTOMS is adding to the problems. Having said this, one v helpful aid is homeopathic staphaphraglic dosage c6/c30, 2 every 3-4 hrs until symptoms are under control and the patient has taken responsibility by finding a Naturopath who has Functional Medical illnesses knowledge and has graduated as such, a clinical nutritionist, an MD who has post grad Integrative degree, a complementary helathcare professional workingin the field of FM+ME etc. Sharon Levin-Head Fm South Africa + Holistic Prof Counselor/Consultant/Clin Nutritionist et al. http://www.fibromyalgiasa.co.za

August 28, 2011 at 11:53 am
(63) Paula Chapman says:

I’ve had this since childhood and nothing helped. Never associated it with FMS because my dad also seemed to have the same problem. This will make me rethink how I deal with it. Only things that help are showering at night instead of morning (when my skin goes crazy with the itch!), and using a oil-based after shower moisturizer like Neutrogena Body Oil on my legs and arms rather than lotion

August 28, 2011 at 6:21 pm
(64) andrea says:

i also have the itchiness it feels as though something is crawling all over my body.i seem to suffer with most of the other related symptoms to fibro, i have cfs mps and most days i feel like i am falling apart, i also have had epilepsy since the age of four years old i am now 48 and developed fms after i was assaulted by a service user while working as a support worker, i have been unable to work now for two years since the assault.

August 29, 2011 at 10:05 am
(65) Heila Louw says:

My doctor recommended using a soft soap for my laundry and rinsing it in vinegar. It seems to help a bit.

August 29, 2011 at 12:26 pm
(66) Gail says:

I get the “itchies” every night and always assumed it was from the vicodin. I have heard about sulfates being a problem…maybe that’s what is causing the little bumps on my scalp?

August 29, 2011 at 7:04 pm
(67) Marti Marshall says:

Had the itch so bad once it caused scarring I”d itched myself til I tore off skin. Put on antibioctic then onto maintenance dose which I quit after six month. Now I have the itch that comes nightly which with cool clothes and ice I can manage. Wonderful to know their areothers out there. God Bless

August 30, 2011 at 10:38 am
(68) LeslieW says:

I knew I couldn’t be the only one ,but geez…

I am blessed with FMS/CFS and Idiopathic Peripheral Neuropathy ( I do believe they are all part of the same disease ). It took me a few episodes of mindless,violent itching of my hands,foot tops, or lower legs, mostly hands , realise that topicals were doing no good and there was nothing on the skin surface to cause the poison ivy level itching that was happening.
I actually had a few synapses kick in and then decided that perhaps this was “nerves gone wild “, and if it was ,perhaps the Neurontin I take for nerve pain had worn away. The drug has only a 5 to 6 hour half life and I think the longer you take it, the shorter this gets. Or so it seems. When I washed off all the topicals I had put on in my frenzy, the cold water seemed to help a tiny bit. The Neurontin kicked in about 15 to 20 minutes later and the itching was gone. If it weren’t for Neurontin my nerve pain would leave me curled up in a ball in constant tears and agony.
I am quite convinced that the episodes of such horrible itching in my case are simply more manifestations of my wonky Peripheral NS, as evidenced by the lack of bites, rash or anything else that could cause itching.I have dealt with various contact and allergic dermatoses since I was a small child and this FMS itching just adds to the fun. I am lucky to have one of the most wonderful Rheumatologists in the world and she is very sympathetic and so on top of her patients’ medical and psychological condition.
I have not tried the homeopathic remedies mentioned by Sharon L. and Dean K. , but have written them down to discuss with her at my appointment next month.
I hope my adventures with itching might help someone else.

August 30, 2011 at 12:30 pm
(69) Sara-Rivka says:

I use an aloe vera leaf from a plant we have. I split the leaf, rub the sticky stuff on the itchy place and it really helps…
Sara-Rivka

September 5, 2011 at 2:51 pm
(70) Bev says:

I’ve found some relief by upping the Omega 3′s in my diet. And I’m trying to minimize the Omega 6 oils like soy & corn oil, since they can be inflammatory. (http://en.wikipedia.org/wiki/Omega_6)

Right now, I’m drinking three tablespoons of flax oil daily, which makes me want to gag, but seems to be helping. I’m taking Spectrum brand (avail at Whole Paycheck). If you get it, try the cinnamon flavored one, which masks the flavor somewhat.

Mostly, I just try to keep educating myself. None of the “mainstream” advice seems to work. (Interesting interview here that goes into this.)

The simple fact is that no one will take care of us like we will.

August 31, 2011 at 10:38 am
(71) aliaus says:

I have fibro and psoriatic arthritis, I have had an itchy scalp for years and assumed it was to do with psoriasis though I am lucky enough to only ever had 2 patches of it. Looks like the scalp is fibro. I scratch till I bleed and also seem to get lumps (hence I thought it was psoriasis). I get itching patches on my skin but mostly only for short periods and not everyday. The funniest thing I think I have had with itching is in my ears. It definately only started after the fibro.. I have since read that the secretions of wax are different in fibromites… I was amazed, it certainly touches every part of us lol, hugs to all xx

August 31, 2011 at 7:34 pm
(72) Dotty says:

I am on Neurontin which helps the nerve pain.

August 31, 2011 at 11:38 pm
(73) christiane says:

Thank you so much I thought I was crazy.lol It is that fibro saga again. Benadril helps cold showers and ice. So glad to read all the comments since I can`t sleep so well either…

September 1, 2011 at 1:53 pm
(74) Sybil Glass says:

I’ve been having “the all over-drive me crazy itches” for a verry long time, and could never figure out what was causing it. I’ve tried keepin track of what I was eating, thinking maybe that was the cause. So relieved to hear that it’s my fibro causing it, and how to help it.
Thanks so much for all of your comments and recommendations.

September 1, 2011 at 1:54 pm
(75) Scousette1st says:

Hi I have been on chlorphenamine for 2 yrs was told the itchiness was side effect of tablets I looked like I had been beaten up with the bruising to my thighs and arms due to scratching had to go emergency clinic in end it was that bad thank you for clearing up the cause as I have changed mess and still suffer x

September 1, 2011 at 1:56 pm
(76) Nikki says:

Has anyone else had a problem with a deep inner ear itching? It drives me insane, and i always wondered if it was related to my FM symptoms. Its so deep in the ear that i can’t even get to it half the time. I’ve had my ears checked (they were fine) AND flushed, and nothing helps it.

Thanks,
Nikki

September 1, 2011 at 4:00 pm
(77) Dottie says:

Yes, Nikki, I have had that deep inner ear itching, and agree, it does drive me crazy! It is especially bad at night, so it is hard to sleep. I haven’t found anything that helps, either. Sometimes it gets so bad that I scratch the part of my ear that I can reach raw, and then have to put medicine on it to heal it, only to do it all over again. I am not happy to hear that you have this itch, too, but I am happy to hear that I am not the only one, and to know that it is evidentally from the fibro.

September 2, 2011 at 7:58 pm
(78) Bluebird says:

I have this problem, fibro people can feel their ear wax and it itches terribly. Do NOT use a Qtip to remove it, it crams it in further. To explore a solution, I got a regular hairpin, and vERRRRY carefully, slowly put the hairpin where the itch is (deep), move it around on top, take it out and wipe the ear wax off, stick it back in, move it around on bottom, and my gosh the ear wax that comes out is incredible. I keep doing it until the hairpin (old-fashioned kind our mothers or grandmothers used) comes out clean. No more ear itches til next week and more wax! Apparently fibros produce buckets of the stuff. Try it, see if it works for you. I’m sure I am gently touching the edges of the eardrum, but I have learned to be oh so gentle. This works!

September 3, 2011 at 6:15 am
(79) Dale says:

I have had the deeeeep inner ear itch, as well as the bottom of my foot or top that can drive me nuts. I found that being allergic to some things caused the inner ear itching, like chamomile tea. I do have what everyone else is describing too & never gave it a thought either that it was all related. What else?? Lol. Hugs to all.

September 1, 2011 at 1:56 pm
(80) Rusty says:

I find that benydral (spelling) helps me the most. As there has been time when I have itched myself raw. It seems to help calm the itching a lot.

September 1, 2011 at 2:01 pm
(81) Beth says:

Go to the health food store or a natualpathic doctor and get products that are natural for bathing, aawashing hair etc. detox baths help , 1 cup bakinggsoda (evens out PH, one cup hydrodrygin peroxide, (kills germs) and one cup epson salt as this brings down inflamation. I thought at lst this is just silly but now sometimes I do this several ps times a day because it helps so much. Bless you all, I got fibro after getting bit by a tick.

September 1, 2011 at 2:05 pm
(82) Cindy says:

I use a OTC antihistamine. I take gabapentin (generic nerontin/Lyrica) and prednisone, but sometimes I have ‘break through’ itching. The antihistamine takes care of it – don’t know why, but it does. Hope it helps someone else.

September 1, 2011 at 2:17 pm
(83) Karyn says:

I’ve had Fibromyalgia for about 31 years now. Originally they diagnosed it partly as Lupus. There are times when I itch so bad, it’s like there are bugs crawling on my skin. I usually take an additional benadryl and use topical anti-itch benadryl to help each the itching. Tylenol helps, but I have additional problems on top of it, so I take naproxyn sodium.

September 1, 2011 at 2:21 pm
(84) Rebecca says:

Yes I have them everywhere, the worst is my head and hands. I feel like something is crawling under my skin at times. I though it was my Psoriasis – Arthritis, glad to know that its nerve. My face drives me crazy at times.

September 1, 2011 at 2:45 pm
(85) Windy says:

I use to get hot spots on my legs and bottom of my feet. It was like someone getting a cigarette lighter close to my skin. It does not do it as often as it use to.

September 1, 2011 at 3:00 pm
(86) Mindy says:

I take Zyrtec once per day. It seems to be the only thing that helps with the itchies. As with everything, some days are better than others and sometimes I still itch, but it does help. I’m also someone who can’t use the cheap shampoos, conditioners and soaps. Treseme (anti-breakage) is what works best for me for shampoo and conditioner, and I use Dial body wash (not with the beads or pearls it it – they make me itch). If it’s a really bad day, I keep some cheap, store brand bendryl around and take one of those. It helps for me :)

September 1, 2011 at 4:21 pm
(87) Sue says:

I am soooo glad someone has associated itching with Fybromyalgia!! I thought I was going crazy or had a bug or something else causing it! What a relief, just knowing I am not gong crazy or alone with this. I am sorry others itch, but now, I know it is another bothersome side affect of this awful disease. I have used a product, called BioFreeze, and it does help. I have also used an alcohol swap but it only stops infections. I have scratched so hard and often on some places, that I have made sores! Now, I will use the products mentioned and I hope others are helped by your putting this online! Thank you so very much!! Sue Jensen

September 1, 2011 at 4:24 pm
(88) Crystal says:

The only thing that I found that has worked for me as I have had the same SEVERE ITCHING… is that I am taking
Gabapentin.. It helps with the nerve pain.. Pretty much nothing else has worked for me.

September 1, 2011 at 7:21 pm
(89) Sarah says:

So glad to know I am not crazy. The palms of my hands itch all the time, annoying but not the worst. The part that makes me nuts are the little pin pricks that feel the same as the evil shingles. Never last very long but still surprises me every time.

September 1, 2011 at 8:03 pm
(90) Michele Allen says:

OMG, I thought I was insane! Every night it gets worse – my back, arms, behind my knees…I thought I was crazy. I have tried everything and couldn’t figure it out. I had no idea it was connected to Fibro, which I have. My allergist thought I was nuts. THANK YOU – this is awesome to know!

September 2, 2011 at 12:32 am
(91) PAT MCKINNEY says:

I STARTED THE ITCHING RIGHT AFTER I WAS DIAG.IN 1997,WENT TO A DERMO.,AND CREAMS AND ASLL BUT NO HELP.I ALMOST WENT NUTS,THEN IT WENT AWAY FOR AWHILE.MY LEFT ARM WAS THE TARGET AND (THIS IS GONNA MAKE YOU LAUGH)ONE DAY I WAS SEARCHING FOR SOMETHING TO HELP AND I FOUND “VAGISIL” AND MONASTAT IN MY CLOSET SO YEP,I PUT IT ON ME AND IT HELPED SO I KEEP IT ON HAND!!!BENEDRYL HELPS AS WELL.I WILL BE FINE BUT WHEN I START TO RELAX AND GO TO BED I START.THE HEAD,LEGS ARMS AND ALL.IT IS A TOUGH ROAD WE MUST TRAVEL.

September 4, 2011 at 2:35 am
(92) Anna says:

I don’t think you’re crazy – those meds are used for yeast infections & skin inflammation, so it helps both symptoms calm down a bit. Good luck!

September 2, 2011 at 3:57 pm
(93) NancyLL says:

For the last 3 years, I thought I was the only person in the world experiencing the awful itching. My gums even itch. My teeth turn to a sensation of feeling like metal in my mouth. I tried everything. I can take more benedryl (6 at a time) and zyrtec that other people would be sleeping for days. I changed my body wash to Burts Bees and my shampoo to Renpure Organics. They don’t remove the problem, but at least don’t contribute to it. I’ve been in the shower when the water touching my skin was adding to the itch. My PCP, who is the head of Internal and General Medicine in my local hospital spoke with his colleagues, and his answer was that no one he spoke with had any answers. This is the same doctor who doesn’t believe in ME/CFS…..It’s so infuriating. He believes I have chronic fatigue from depression (sound familiar???), but that it’s not an illness, which has changed my life entirely for the last 9 years. I wish that all people who are skeptics or non-believers live with these illnesses (“FM, ME/CFS) for just 6 months, and then tell me the hell I exist with doesn’t exist.

Getting back to itching, the body can only respond to one sensation at a time….so I’ve used numerous ice packs stratigically placed all over my arms, legs and forehead.

The best is the product “Biofreeze”. It works wonders temporarily.

I’ve changed my food intake, stopped vitamins….trying everything to pinpoint the source of the itching. It’s awful.

September 2, 2011 at 4:20 pm
(94) cindy says:

Hi,

I have had the itches on and off and most doctors just look at me like I’m crazier than I really am. Now, I know who is the crazy one, or sh/I say incompetant. If doctors are going to treat fibro, they sh/know the symptoms. Or at least look up the symptoms prior to treating the patient.

My head started to itch. I finally switched to head and shoulders shampoo and the itching is gone.

My ears itch alot most of the time. I use walmart’s anti itch cream on them.

I’ve tried every anti itch product on the market. Most of the time, the itching will be specific spots on my legs, arms, belly, neck. Each itching session has different itching spots.
The ointments don’t help.

My brother had nerve damage in his hand. He had itching so bad that his doctor gave him a medication to stop the nerve itching. I have had good results with it. My doctor prescribed it.

I don’t know if this is the generic name or not: hydroxyz hcl 10 mg tablet, 1 @ 4 times daily. It does make me sleepy, but it relieves the itching. Sometimes I’ll use the generic benedryl and get relief from the itching. Just depends on the intensity and the number of areas that are itching.

Just reading about all this itching is making me start itching now! Hope my comments help. Thanks for your comments. It’s the first time I’ve ever seen any comments on itching. Most doctors are unaware of all of the fibro symptoms. I had to show them that itching was one of them and this was when the symptoms list was about 40 and fibro had not been talked about as much as it is now.

Oh, yes, I also use ice, too. Jesus Loves YOU.

September 2, 2011 at 8:50 pm
(95) renee says:

I had severe itching, too, all over my body. My arms and my hips and my ankles – it would start in one area and before I knew it I was clawing at my skin with no relief. I made an appointment with my dermatologist. He said that itching is usually from an internal source and isnt always able to be determined. He recommended that I take Zyrtec twice a day to help with the itching – because it usually is a histamine reaction. So far it has worked pretty good. I’ve been taking it twice a day for about 3 or 4 months and have only hac minimal itching which I usually can soothe with lotion.

September 2, 2011 at 11:12 pm
(96) Pondering says:

Hi!

Well, it sure is good to know I’m not alone!! Unfortunately, I have yet to find an answer. Benadryl, Claratin and all the rest of the allergy meds have done nothing for me. In fact, I have taken as many as 6 Benadryl at a time along with my prescription meds and still not had relief until I fall asleep. I have been on clonazepam for years as well as other various mixtures of antidepressants and anti-anxiety prescriptions. Lotions and creams only aggravate the problem. I can only hope that when I finally go to see my rheumatologist in 2 weeks that he may have some sort of answer for me. Thanks to eveyone for your suggestions and support, it truly does help to know I’m not alone and not going completely crazy.

September 3, 2011 at 12:30 am
(97) cindy says:

Hi,

I wanted to add that I used calamine lotion and had great results. Just don’t turn the bottle upside down and expect it to come out slow. It comes out fast.

Hope this helps you. Jesus Loves YOU!

FYI: I figure if people can use omg=Oh My God, referring to Jesus as a curse word, I can use Jesus Loves YOU because of the first amendment’s Freedom of Speech. Any others out there that believe the same? I’ve been banned from sites for using Jesus Loves YOU! I pray for those people, if you don’t want to be prayed for, then don’t ban Jesus Loves YOU!

Cindy

September 3, 2011 at 2:37 am
(98) Betty says:

Gail, The “little bumps” I had on my scalp turned out to be a B vitamin deficiency. I am taking a B complex as well as liquid B 12 and at least that part of my problem is solved. Also because of the liquid B 12 my skin has darkened to a normal looking color. Hope this helps you. We are all so different. No pat answers for us.

September 7, 2011 at 11:59 am
(99) betty says:

I get bumps on my head too, I thought it was from stress. I too think I have figbro, haven’t been diagonosed yet. I also suffer from depression which was recently put opn cymbalta and abilify which i feel alot better, more energy. I’ve also had this warm feeling going down my leg, don’t know where that came from? I have severe pain in both arms now so i will see what the dr tells me..

September 4, 2011 at 3:04 am
(100) Anna says:

So many stories I -and most everyone else, I see- can relate to, can give a name to! Whether it’s med-related; seasonal-related; nerves; hyper-tactile-sensitivity, etc etc – it’s a pain in the . . . . the everywhere! And a jumble of symptom easements, aids, coolants, even heat from capsaicin – - – yet, alas, no cures. And I’m being ultra cautious not to dig at my arms & legs when the little blisters of early eczema show. There’s already plenty of scarring on my arms & legs from itching, dammit! My mom used to suffer, too; called it her ‘nervous rash’ & would soak in an oatmeal bath! I always found that so amusing – mom floating in a big bowl of oatmeal cereal like the raisins I’d add to mine!!! Odd. Oh well – whatever we can find to help it; which is why I love this format to share problems and solutions! Read on -

September 4, 2011 at 8:08 am
(101) olga says:

drying myself with a towel and using body scrub makes me get an itchy sensation that both itches and feels like im an an FIREANT PIT I have to PAT DRY myself with the towel
NO RUBBING and CANT use body scrubs. Does this happen to anyone?

September 4, 2011 at 8:33 pm
(102) Mercedes says:

Sometimes is excrutiating, I have two remedies: one, fill the tub with water and add olive oil (few goutes) and take your bath, don’t use soap.
I buy a cream marvelous the name is ITCH perfect and quick.

September 4, 2011 at 9:30 pm
(103) Pati Chandler says:

Alpha Lipoic Acid is a great Antioxidant – fat and water soluble. But I use it for nerve pain, numb and tingling hands and feet and extreme itching. Doctors in Germany have been using Alpha Lipoic Acid (ALA) for diabetic neuropathy for more than 40 years. The Borne Clinic in Michigan and it’s sattelite, Crossroads Healing Arts, in Indiana, have recently been using an IV of 800 mg for nerve pain in Fibromyalgia patients quite successfully. I started by taking capsules (400 mg/day in divided doses) the first year, and now these last 12 years I’ve been taking 300 mg per day -each day- and have had NO itching, RLS, numb and tingling hands and feet or skin pain/neuropathy —for the last 12+ years! I also have the benefit of a great antioxidant working foras well!

September 10, 2011 at 5:50 pm
(104) CaraElena says:

One symptom of my fibromyalgia is an itch I can’t find. My arm or leg will itch and I can’t seem to find the right place to scratch. I’m sure there are other topical pain relievers out there, but Sarna works best for me. With the Sarna, you can cover a large area of the body so you are sure to get that itch. It doesn’t have a greasy feel either and it feels cool to put on. I can never thank the pharmacist enough that told me about this stuff. It really works.

November 5, 2011 at 1:36 pm
(105) Debbie says:

For the last 8-10 months I’ve had a very scratchy throat which makes me cough. Before, I took Benadryl and after a month or two it went away, so I figured it was some kind of allergy season coming back. But now it’s been so long this time… I’m beginning to wonder if it’s ever going to let up. I only take a Benadryl at night and sometimes I wonder if I’ll be able to wait til then.

Maybe this is another beautiful symptom of this lovely illness. We never cease to be amazed, truly…truly.

December 31, 2011 at 3:43 pm
(106) Faye says:

I have fibro so bad that I was going crazy with burning and itching..Took ice packs to bed every night to try and cool the heat…Used castor oil and it helped some..My bones ached all the time..
My naturalpath gave me Enzogenol( pine bark extract) Sometimes it is under the name Navitol…I take it after dinner and I sleep like a baby..
He also checked me foor heavy metals and I had alot of lead in my body.He gave me 3 supposittories Xeneplex and the lead is gone..As soon as i used them I started feeling better.The body cannot heal umless you get to the root of the problem.
Now for my skin I use ” GLOVES IN A BOTTLE ” It is amazing my skin is showing fabulous results in only 3 days…You have to use such very little of it , it is a shielding lotion…I bought all of it at Bashes pharmacy in Arizona and ordered some more to take back home to Canada with me …$10.00 for 8 oz..I finally have my life back,feels so good…Drs could do nothing for me…Hope this helps….Happy New Year to all Fibro suffers…Faye

January 19, 2012 at 10:08 pm
(107) Romona says:

Hello all FMS folks, it is amazing all we go through with this, horrible, we hurt all the time, have to consider everything we do, or better yet, the outcome, of what we do, most of of don’t sleep well and when we do to be woke up by itching, unbelievable!!!!! I have itching at all times now not just at night sometimes lasting for days at a time with no let up, it seems we have tried all of the same thimgs, really with no real results, but to add to the list of temporary solutions try oatmeal baths, with luke warm water, hot water only makes you itch more, do not put anything else in the water and I know this may sound crazy, but do not use any soap or rub your skin, just soak, when you get out dont rub yourself dry, pat yourself dry lightly. Like most of you have said it is good to hear from others whom are going through the same thing, don’t get me wrong I would not wish this on anyone, but it is helpful to know that you are not alone, and even though we dont know each other,we can be there for one another in times like these.

January 20, 2012 at 4:42 am
(108) Joanne Shore says:

I am always itching, the worst areas for me are my head and my feet, they can drive me insane some days

March 6, 2012 at 9:15 pm
(109) Sharlene says:

I have been going crazy with itching! Nothing works,not even benadryl. Cornstarch offers some relief! I tend to itch anywhere that I perspire. Lower back, under arms,under breasts,crotch etc. I just decided out of the blue to do a search of fm and itching not expecting to get a hit,boy was I wrong. Will try taking something for pain see if that helps,haven’t been able to get in to my doctor yet but will be going there as well.

March 26, 2012 at 2:14 pm
(110) MANDI says:

I have the itching it drives me crazy.Have tried itch relief cream to no avail.

March 28, 2012 at 1:45 pm
(111) Mel says:

Cannabis stops the itching for . However, I live in Texas, the Bible belt butthole of the USA. And far far away from the sensible folks on either coast. It is an atrocity that people go to prison – PRISON – for using or cultivating an extremely useful medicine that would grow wild and be free for the taking. If I use marijuana to ease the extreme pain of fibromyalgia; the out-of-the-blue insidious awful ITCHING, I am a criminal. A dirty drug addict. Pothead. Law breaker. Prison bound.

My understanding is that the powers that be in the healthcare BUSINESS need to synthesize dangerous drugs in order to make their money money MONEY. Healthcare is rotten in this country. Especially for women. I’ve been through so much “it’s all in your head” dismissal on account of my gender to span ten lifetimes.

For me, around 6 Xanax can help stop the itching, but that leaves me short at the end of the month and having to detox the drug and feel horrible.

Nobody overdoses on marijuana.

A cool swim in a pool (if you have one — I don’t) or a cool bleach bath sometimes does the trick.

Legalize medicinal marijuana in all of the U.S!!!!!!

April 12, 2012 at 10:26 pm
(112) Aromodub says:

must check louis vuitton discount suprisely

April 23, 2012 at 11:46 pm
(113) Mitzi says:

I too suffer from FM and have my entire life… Neurontin helps but is a very dangerous drug over a lifetime of taking it. My Mother developed seizures from it ..taking it for RA. Like the above post Canabis would help but not legal where i am either. The itching is horrible. Spider web feeling all over and then feels like being bit by something on various locations. Docs have me on Valium and Zyrtec for it which only helps by putting me to sleep. Long term Valium use for me is not good as i have reations to it like every other drug. I am allergic to Benedryl for Gods sake! All pain pills make me sick. Never have tried Lyrica as have been on Paxil for 15 years and afraid of other meds..
Chiropractic care helped me the most and kept the TMJ at bay but is too costly.. running out of options.. seems i am EVERY symtom of Fibro Forever :/

May 25, 2012 at 2:03 am
(114) Kay Rovik says:

I have MS, lupus, sjorgrens, ehlers-danlos, fibromyalgia, chronic fatigue, diabetes, I get staph infections, and a few other less worrisome problems.
I have had extreme itching for over 14 years. 13 years ago I begged my doctor for help and she found something that works. This I found is from the MS. I take hydroxyzine originally I started at 25 mg 3-4 times a day, I am now at 6-9 a day. It controls it. Nothing over the counter works, same as the home remedies. I have scars all over my body. Main itching is left shoulder and down the left side of my back, arms, and face. I put the clindamycin gel that I have for the staph infections on every spot, all day. The only thing that helps a little is cold showers, but when you get warm throughout the day, then that doesn’t work anymore. Laying on ice pads helps everything. I also take lyrica for the severe tingling from the MS. This is like taking a needle and stabbing me. That works as long as I take it twice a day. It doesn’t touch the pain from the fibromyalgia, like the ads say. The neurontin stopped working at 3600 mg a day. Plus I am allergic to all pain medicine, everything so I really deal with the pain. All pain meds cause me to itch. I deal with the fibro by ignoring it and concentrating on the more important problems. That is not to say it doesn’t hurt, it does. I was diagnosed in 1984. I was diagnosed with the MS in 2001 after looking for 16 years and seeing an MS specialist in neurology. I now have really bad tremors in my voice and hands, but look at life as it could be worse and there is nothing you can do about it. There are worse problems out there. This too shall pass.

May 30, 2012 at 3:33 pm
(115) Skip Savage says:

When I first felt the itchies a few years ago, it was more of a tickle. I thought I had head lice, because it started after a hair cut. In fact, it still seems to flare up after a visit to my hairdresser.

I’ve considered treating for demodex mites too, and I may try sulfur soap one day. We all have these critters, every one of us, but perhaps we can feel them, when others cannot.

Otherwise, the itchies come and go. Months can go by without so much as a prickle. But right now, I can’t stand the breeze in my hair.

June 10, 2012 at 3:59 am
(116) devinepainter says:

Oh dear people, you have lyme disease. The intense itching I have is just like you described and I hope you experiment a little bit. Start alkalizing your body with no sugar or coffee or alcohol and start drinking green juices, see if your itching gets worse. If it intensifies then it is most likely die-off. You can try many things. The most potent reactors for me are aerobic exercise, 30 min of alternating running (not jogging) and walking will make me itch terrible. Drinking lemon water, eating raw crushed garlic (with a little olive oil, herbs, and sourdough bread). Have a spoonful of organic expellior pressed coconut oil. When I went on anti-bacterials for lyme disease my itch disappeared in about 2 months. All my other symptoms intensified during this time, which is normal. Please check into this.

June 10, 2012 at 6:22 pm
(117) Mary says:

Have had that itching at the back of my head for over 20 years. It comes and goes and shows up mostly when I get hot and the only thing that helps me is Scalpicin
. It immediately releives the itch at that time.

July 9, 2012 at 12:13 am
(118) Lorraine Vickery says:

I’ve had fibromyalgia for many years. I often wondered if the agonizing itching was fibro related, so now I am sure it is. I have had alot of itching in every place on my body … the doctors thought I had scabies at one point, but it wasn’t. Then they thought I had head lice. Nope! It wasn’t that either! I just thought it was all my nerves. When it first started, it came on like a vengence, no mercy, and it looked different each time I looked at my skin. Sometimes I had long red welts all over my arms, as if long worms were under my skin. But, most of the time it is invisible stinging itchy skin and feels like I ran into some fiberglass or angel hair. I tried all the creams that just made it worse. I finally started taking a medication “little green & yellow” pills called Hydroxacin & also use a clear ointment called Lyderm… it really settled the itching down and it works… Hope this helps. I’ve been off the Hydroxacin now but still use the ointment whenever I have a flair-up…I usually get itchy nipples … the ointment helps alot!

July 18, 2012 at 4:32 pm
(119) Kristi says:

I was VERY happy to find that others were experiencing the same thing I was – and that it was NOT in my head!

I have found that Xanax and ice do help. Good luch everyone!

July 19, 2012 at 10:22 pm
(120) Sherri says:

I have been SUFFERING with fibro itch for quite some time now and it will start out as a little “tingle’ either on my upper body(arms,chest) or on my lower legs near the ankles. The only thing that helps me is to take large doses of diphenhydramine hydrochloride. If I take 50 -100 mgs at the first sign of an episode, I can usually get it under control in an hour or less. I take 2000 mg of Gabepentin each day to help with the neuropathy, but it doesn’t help me with the itching. My arms and legs are covered in scars from all the scratching because I will do it well past the point of bleeding.
All the triggers that are being discussed here are also some of the things that will set my itching nightmare off, but there is no real pattern to time of day or duration for my issue. I just hope and pray that science will find a magical treatment that offers more long-term relief for people like us……all before I tear the skin off my body.

August 1, 2012 at 7:07 pm
(121) Susan says:

Itching primarily at nig
Ht could be dust mites in the mattress. buy dust mite covers for your pillows and mattress and box spring…helps a lot

August 1, 2012 at 7:07 pm
(122) Susan says:

Itching primarily at nig
Ht could be dust mites in the mattress. buy dust mite covers for your pillows and mattress and box spring…helps a lot

August 5, 2012 at 8:07 am
(123) Donna says:

Hi, I’m Donna and let me start out and say i know very well, how the itch is madding. I have searched doctor after doctor to fine out what was wrong with me. I have fibromyalgia,my itchiness got so bad in my leggs that i’ll need to get laser treatment to fade the scars.I went and saw a dermatologst . They put me on Tramcinol/Eucerin 1.1 its a type of steroid cream for your lower extremities and let me tell you the itch is GONE, 5 years i dealt with that itch, no more. I hope this helps you, and i’m truely sorry anyone has to go thru it.

August 16, 2012 at 4:37 am
(124) Damon says:

I’ve had this bad itching sensation for about a month now. Went to the doctor. Because I thought I had lice. Nope not lice, the doc told me it was dry skin. I don’t see any flaking though. It drives me nuts sometimes like bugs crawling under my skin. I don’t know what to do..

August 18, 2012 at 3:21 pm
(125) keelee says:

Look up Lymes disease. The Lyme epidemic is more widespread than HIV-AIDS, the Plague, bird flu virus and H1N1 combined.

It is also the most controversial.

Illness is a message to change. Everyone deserves a healthy chance:)

August 21, 2012 at 12:05 am
(126) Myrna says:

My left hand started itching and burning in 1992. It about drove me mad. All these years later, I’m still itching, but now it has moved up to my elbow. I have tried everything and seen several dr.s. Finally I was diagnosed with Fibro. and it was determined the itching was part of the Fibro. What helps me, is ice and pain meds. I’ve been doing that for a long time. I have scars from scratching. I’ve had babies, migraines and Kidney Stones, but this itching has been by far the worst thing I have experienced.

August 21, 2012 at 10:01 pm
(127) Mary Woods says:

I have had or at lest known I had Fibromyalgia for about 12 years and I just started the itching and burning on my left butt and down the leg to behind my knee just a few days ago, it is driving me crazy, I can’t sleep because of the itching. I few months ago the left side of my back started going numb and tingeling, I just thought I had a pinched nerve, I haven’t been to the doctor yet because my job is so active, ( I am a jantior of a 4 story courthouse) so i just figuredi would have to deal. I can’t take very many med because I had stomache surgery about 15 years ago and most meds hurt me, so i use my job to help me with my Fibro pain.

August 24, 2012 at 2:48 am
(128) Dave says:

How coem noe is even considering DEMODEX, the hair mite, it causes this as well and can spread all over your body, and the mites live in your skin and come out at nite, they eat the skin from the inside of the pore they infect and also eat the serubem fluid that our pores produce, start searching DEMODEX on youtube and google. TEA TREE oil in a bath helps to kill off the mites, and 97.8% of humans worldwide have them, just at a contable population, but some of us like myself may have a infestation. you can barley see them, but if you find one when you try to squeeze it out of the pore like a zit, it scoots back into the skin when you try and pull it out, you have to use tweezers, they look like little white worms, and yes everyone thinks your crazy for itching and saying it feels like something is crawling under my skin, well there is. its, the DEMODEX mite, or hair mite, or eyelash mite. I would be surprised if no one finds out that they have a infestation of them and its causing the itch.

September 2, 2012 at 10:40 pm
(129) Judith says:

Omg. Finally other who experience what I do. At times I have scratched so bad that I have given myself actual black and blues . There are more times then others where it is unbearable! I want to just jump out of my skin. My husband thinks I’m crazy but tank god I found this sight and now I know I’m to crazy . Thank you all who understand in the same suffering and uncomfortable ness.benedryl seems to help a little but will follow other advice.

September 7, 2012 at 2:23 am
(130) Shirley says:

I have severe itching and burning of my arms and scalp starting every evening about 6 pm lasting until 1to 3am. I have been unable to sleep at night. My nerves are shot. I take vicodin which I think contributes to the itching sometimes. I did great with Darvocett N 100 but that has been removed. I have been dealing with this fot over 30 years. I have lost most of my teeth and somedays can hardly find the words to communicate. My children do not understand this disease at all. I pretty much am a recluse. It is just easier.

September 11, 2012 at 3:05 am
(131) kellie says:

okay ya’ll, for years now i often start itching on my shoulders or my arms, or feet, or my hands. it becomes the most maddening itch. i end up getting anything i can find such as a pasta forked luke spoon thing, hair brushes etc. i have tried EVERYTHING! i am scarred and have very recently had a biopsy punch from the center of one of the horrible claw and brush marks on my arms. by that night i had the most awful infection, green pus and all.
this has gotten so bad i have to fight getting a wire brush or a razor to nick the skin repeatedly in the hopes it will stop. i am not crazy bit this itch makes me beyond crazy. there is no rash and no precursor i can blame it on. wtf? i’m losing it! ice is all i have found that helps.
please help me ya’ll
i can bcan

September 11, 2012 at 11:59 am
(132) Patti says:

I have had fibro for 50 years. My father was diagnosed with it in th Cleveland clinic in 1952. There was nothing that really helped the pain and discomfort until I stopped eating wheat in March..Since then I am almost completely free of all the fibro, It is like a miracle.. Plus I have lost 30 pounds!!!!!! It is very easy to do without wheat especially when the results are so miraculous. This is now a way of life for me. I am a completely different person.

September 12, 2012 at 9:52 pm
(133) kmw says:

I was diagnosed with fibromyagia this past year, and have RLS. I have the itch in my thighs occasionally, scratching leaves a large bruised lump that eventually resolves. Before I started taking Cymbalta, I would get severe stabbing, needle-like head pain, bloody nose, from certain fragrance, cosmetics. There are still certain odors that bother my head. Has anyone had this?

September 17, 2012 at 7:06 am
(134) Veronica says:

I have fibromyalgia. I also have the annoying itching in my arms and feet area mostly. I tied everything. Cortisone creams. antihistamines, itch creams from varies drug stores. I found that to stop the itch so I do not scratch is to apply non-whiting plain ol cheap tooth paste. Let it it dry. |t takes away the itch. I have scares all up in down my arms from itching. My arms are scared from years of experimenting with drugs that did not work for me anyway. When I start getting a itch I just apply it right on the spot and leave it for awhile. Usually it goes away, if not I just reapply and leave it. I sometimes look funny walking around with toothpaste all over my chest , feet and arms but I am a much happier person without the intense constant itch. Hope this helps anyone who suffers from the itchy crawly’s.

September 23, 2012 at 10:28 pm
(135) Brett says:

I have severe itching as well, though mine manifests itself differently. Mine seems to be caused by content with something in the bed, and only after a time of using it. For example, if I buy a brand new pillow, I can use that pillow for about a week and be just fine. However, after about a week, any contact with that pillow for more than 15-20 mins will start me itching wherever I am touching the pillow. If I lay there long enough, then the itching will spread to my whole body. But if I get up out of the bed, within 15-20 mins, the itching goes away. Needless to say, I have a stack of used pillows, each of which will make me itch now if I use them.

I travel some on business, and hotels are often a blessing, as the pillows and bedding a fresh to me. But if I stay 6-7 nights in a hotel, or go to visit family for that long, I will start to itch in those beds as well.

I have had every blood test known, and nothing appears out of the ordinary. To me, it seems as though my body is producing something that gets into the bedding, which over the course of a week builds up to where I am then allergic to it. I have a great Gastro doctor who can’t find anything. I have been to 3 dermatologists and 4 allergy doctors. The only diagnosis they can come up with is Dust Mites. I don’t buy it! Doxypin is the only medication that seems to help, but it makes me incredibly drowsy and drunk feeling the next morning.

I am out of ideas! Any thoughts or suggestions would be greatly appreciated.

September 24, 2012 at 4:28 pm
(136) pearl says:

I’m itchy as hell! It happens during the night .,feels like I’m th only person who is experiencing the problem,not even the local midwives know about the problem they think and have told me that I’m allergic to something and prescribed allergerx which can be harmful during pregnancy!

September 26, 2012 at 1:48 am
(137) Dia says:

I am very allergic to Cannabis – hope it never becomes legal where people can smoke it in public ( I am allergic to cigarette smoke as well but Cannabis is worse) if you have allergies to any nuts, trees, pollen, weeds, etc. it is likely you’ll have an allergy to it as well…talk about itching!

September 28, 2012 at 5:36 am
(138) qatheworld says:

pearl, I also got excruciatingly itchy during my pregnancy, for me it was my entire legs, it itched so bad I felt like I had to scratch my skin off. I didn’t want to take potentially harmful drugs. One suggestion was benedryl but that only “took the edge” off and also made me sleepy and groggy (which was tolerable at night but it didn’t exactly solve it). The one thing that worked and that I’ve used many times since for allergic reaction rashes, etc is hot water. Run water that is as hot as you stand it… hotter than you would normally like but not enough to burn yourself, as hot as you can take (in the shower). At first this will sting a bit (especially if you’ve been scratching) but within seconds it should turn into delicious releif. For my legs, I filled the tub to reach all areas and soaked. For smaller itchy areas just running water on the area works. The hot water interrupts the nerve signal to itch and it lasts for several hours, then you can repeat (for me, once in the evening was enough to get to sleep). This also works for bug bites.

I also get the “eczema” itchy patches on my hands that turn into tiny blister-like things eventually. This is worst during my allergy season, the worse my allergies (hayfever, etc) are the worse they get. Later the blistered area would crack and even bleed if the blisters had been popped, especially after getting wet and drying out. The best thing for that is flax seed oil (orally, not topically). I take it preventatively, and increase the dosage when my allergies get bad or if I see the signs of this starting in my hands. Luckily my mother had the same thing and got this cure so she passed it on to me. I take capsules because the oil tastes pretty bad.

October 1, 2012 at 7:43 pm
(139) Casey says:

I have had severe itching for the past 3 1/2 years. My initial reaction was of course, to take Benadryl… but I am allergic!! It causes hives. It drove me crazy to the point I had to scratch and it would cause raised welts where my fingernails had been. I noticed, however, it would almost always happen at night. 5 years ago I was tested for allergies after being diagnosed with asthma at age 49. The only positive was for dust mites!! So I concluded that my itching at night was from being in my bed and dusty bedroom. I can’t dust it… and my husband is limited physically so it’s hard for him to do it. So I do what I can. Eventually I tried another antihistimine (Clarinex) and since it didn’t cause a reaction, took it for 2 yrs. Its effectiveness vanished, I went crazy for another couple of months, and my P.A. prescribed Xyzal. FYI–I was diagnosed with fibromyalgia 9 yrs ago after a car accident and resultant cervical spine fusion. I really feel for you all who have posted!! Try an antihistimine, those work well for me. Also, go to your local health food store and get a bottle of Neem Oil. Get an empty prescription bottle, fill it with any good lotion, then add 2 droppersful of Neem Oil and shake well. Apply lotion to your itchy areas and within 5 mins the itch will calm down. Fantastic stuff!!! I am a nurse and have recommended this to many people.

October 5, 2012 at 10:12 am
(140) Leslie says:

I am so glad I came across this site. I have thought I might have Fibromyalgia. My doctor has mentioned it, but we never really went any further than that. After reading this, I am going to insist we look much closer at my symptoms. My symptoms have always seemed to be all over the place, but when put together as they are here, I am pretty well convinced that I have Fibromyalgia. Thank you all so much.

October 7, 2012 at 9:04 pm
(141) Maureen says:

Wow! I’ve had this for years. It drives me insane. My legs, i scratch them til they bleed. My head, my neck… it drives me crazy! It’s driving me crazy right now. I have fibromyalgia and seem to have episodes but never really tied this with it. Not sure why not but it makes sense. This stays with me and I see little relief. Some days are okay but some are not. Some are past annoying and can be painful. What causes it? What are the triggers? The other symptoms I seem to be able to control to a certain extent, these I can not. Any suggestions on how to control the onset would be greatly appreciated.

October 10, 2012 at 7:40 pm
(142) shez says:

My husband has suffered with sore and itching feet for sometime now.
he recently had a knee replacement and since then has been in a state of constant itching inside of his feet.. nothing can help or take away the itch.. its like it is in his bone he says.. not the actual external skin.
Does anyone have any ideas on what the problem is. He has been to numerous podiatrists who have told him one thing or another. Just two weeks ago was told his second toe is too long, and that could be causing the pain he is experiencing.. not the itch though.. wow.. 2nd toe too long?? He doesnt have itching anywhere else like most of you guys, but none the less its driving him crazy.. says he wants to just chop off his feet to make it better.. (not that he would do that.. but I guess its a way of saying how uncomfortable it is). He sleeps perhaps two nights a week now, and is up and down the rest of the time.. itching is all day long..not just night time.. if anyone can shed any light on this I would very much appreciate it.. would help me too.. :)

October 13, 2012 at 9:05 am
(143) carlo says:

I have grains in my ingle, under arm my neck and legs
it me sins very much sometimes I scrath my self loudly
thia itchy some day it is very strong , I can to suppor please
to recomended some cream some body to herame thank you.

October 15, 2012 at 12:25 am
(144) Pam says:

How wonderful to read that I am not going mad and that the itching has kept me awake tonight and on many nights in the past is caused by Fibromyalgia/CFS. I have Sjogren’s Syndrome and Hypothyroidism but have only recently been diagnosed with Fibro. My GP said one day all the bits of the jigsaw will come together and we will say Oh thats what it is!! Thanks to his care and the ability to surf the net for information I feel I may be getting ‘there’. Thanks for your wonderful web site it has given me so much information. I have been searching for 25 years now all I need is a cure!!!!!

October 26, 2012 at 7:16 pm
(145) Valerie says:

Yes ice is the answer, I have a large ice pack that i wrap in a towel and lay it along the brachioradial portion of my arm {Forearm) it certainly does relieve the itch and the pain. I also find that not letting my husband get on my nerves as much as he used to is a huge benefit… it has been 2 weeks since my last itch.

October 31, 2012 at 1:51 am
(146) Mary says:

My itching comes on fast without warning. I want to rip my skin off it gets so bad. My doc sent me to an allergist. He prescribed Hydroxyz ( generic for Atarax), told me to take one or two a night religiously for one year. He said it would eventually trick my nervous system into not sending the itchy signal to the brain and then I would be cured. The problem is this drug really knocks me out and I feel drowsy all the next day. But, I works amazingly!!! I think the drug is a strong version of an antihistamine . Otherwise the only thing I’ve found to work are sleeping with several cold packs wrapped around my arms, hands and sometimes feet. Certain pot helps too. The whole thing sucks bad. I hate this.

November 4, 2012 at 7:32 pm
(147) Cheryl M says:

Oh my gosh, I never really related the itching to the fibro. My Dr. tried to convience me it was dry skin, until I took pics in. My butt was dark black and blue as well as areas on my thighs, arms, chest and back. I have been up for 3 days in a row itching. I was finally given aterax which has helped some, I have used topical creams but would need to get it by the barrel. Not one spot on my body has been missed. Glad to finally hear that it all related. Thanks for all the information. Oh yes, ice, hot bathes,Benadryl have tried it all and still itching.

November 5, 2012 at 4:16 am
(148) 1000beanies says:

I have had this start a few months ago. I have suffered from FMS for 14 years. Mainly severe muscle & joint pain, insomnia, but this, is simply the WORST.
It seems to occur the most when I change shoes, tread on certain surfaces in bare or stocking feet, and always at night. It ranges from short intense “pricks” in the ball and tops of my feet, which are bearable, to the full scale warfare, a comparison would be the opposite of orgasmic. It comes on very fast ( seconds) to the first sensation of pricks in the arches and blows up so fast I almost feel like I will vomit, seriously. I have found only 2 ways that are quickest, one I don’t recommend, but if the area is small, and I catch it fast enough, it doesn’t seem to “spread”. I have taken a sharp object ( anyone who has experienced it will understand I’m not crazy) like a knife, hard plastic like a credit card, sharp edges of a key, and press hard in small strokes evenly right at the prick of the itch, and it seems to cancel it, alternately, setting my feet in burning water as hot as I can stand for at least 5 seconds. Ice takes too long, but in place of near scalding water, I use it only in a pinch. These are not for everyone, and I realize I shouldn’t even be doing them, but it’s the lesser of two evils, because I HATE to throw up, and killing myself is out of the question.

November 6, 2012 at 8:12 pm
(149) Cheryl says:

Hi all,

I have had fibro for over sixteen years now. This is also one of my problems. I will tell you one of the things that truly help me when it comes is the medication that is also used for restless leg syndrome. When it hits it feels like my bones are jumping out of my skin. It is horrible. The medication that seems to help is mirapex. When it is really bad I take clonzepam and it eases me a bit and I go to sleep. Usually when I waken it has subsided. Hope that helps. It is no fun living with this but I know exactly how you feel what you are feeling and you are not alone.

November 13, 2012 at 8:13 pm
(150) Marta says:

People I get an itch anytime anywhere. And it could be my hands and feet, or it could be an arm or a leg, even my back. my doctor gave me Zyrtec for allergies, it so small many times I swollow with out water and it will not make you sleepy or drowsy.
BTW I have had Fibromyalgia for 13 years, and this itch may be caused by anything your body is full of and your inmune system wouldn’t fight anymore.

November 15, 2012 at 12:02 am
(151) Teresa says:

Thank you all for the wisdom ..i have some great new things to try. I have not been diagnosed with anything yet due no crappy health ins. I am suffering mentally and physically. My scalp and face itch uncontrollablely ilon a daily basis. I am up all night with my skin crawling, heart racing, shortness of breath. I feel like i have on going panic attacks. So badu i amduno reduced to tearsu and anger. I dont know if its stress or something neurological. Maybe both. It feels like i am on drugs and im not! Ive chronic neck and back pain also which lately has intensified. I pray we all find solitude.

November 16, 2012 at 11:03 pm
(152) Angel Waite says:

My doctor told me to take Zyrtec, it keeps me pretty much itch free. However, If I fail to take it, I am miserable and nothing helps. It drives me crazy, I will scratch so bad in my sleep I bleed.

November 22, 2012 at 1:39 am
(153) Wendy Sulewski says:

I have Fibromyalgia there are plenty of nights I suffer this severe itching and even at times during the day. It also leaves brusing. I came here for help I will try the methods listed here such as the capsaian cream. I don’t know what else to do and it keeps me up at night. It’s horrible.

December 11, 2012 at 7:55 pm
(154) Anna says:

I have had M.E and fibro for a long long time (over 12 years). I get really really unbelievably itchy hands and feet to the point that both in my sleep and in moments of pure itchy hell I scratch my own skin off. I struggle to find anything that helps, but all your suggestions have been really useful. The doctor was more concerned about the cuts themselves and that they weren’t healing very well when I first went in for help, and told me to wash my hands a lot which would hopefully help them heal better. She didn’t go any further than that or give me any more suggestions, although washing them did help to heal them and make them feel a little less itchy although the effect didn’t last long. Often I find that creams just make me more itchy because I too am really sensitive. Luckily I don’t have this problem all the time, I had a very bad year of it a couple of years back and it is something that pops up when I am exhausted, stressed, low or have something else like a cold or flu or infection or something. It’s really reassuring to hear that you all have the same problems (it’s not reassuring you are all in pain – it’s just nice to know I’m not a mutant freak!) I’m really interested that some of you are on Neurontin for your pain, because my legs are so painful that often I feel like I want to chop them off. I went to the Dr a year ago to see if there was anything else I could do for my legs, and she put me on Amitriptyline. I then got Shinges and was advised that it would help that too. I don’t think it did much good, didn’t help my legs and I got really depressed when I cut down and when I was trying to come off it and so I decided that it wasn’t for me. I have just looked up Neurontin and the first website I have gone on to says that a possible side effect is depression and suicidal thoughts and I just wondered if anyone had had trouble with that? Or have been fine?
Thanks for all your help
Anna

December 12, 2012 at 11:33 am
(155) Kim Toles says:

Benedryl helps me. This is so annoying. Argh

December 20, 2012 at 9:53 pm
(156) Brian McCullagh says:

Don’t rule out scabies, it is rampant as of late. If your maddening itch tends to come out at night and/or you notice a linear pattern forming you should check with your health care provider.

January 2, 2013 at 12:14 am
(157) damon says:

The bottom of my feet itches a lot and so does my palm. I tried taking alergy medicine like benadryl and doesnt do anything but make me drowsy. I also have s reacurring rash on my neck and it does go away wen I use cotizone or cream of that nature. As soon as I stop using it it comes right back. My eyes also itch and sometimes jump or twitch. I have tried stop using washing products certain foods etc that may cause allergies but it still continues. I also get dark rings around my eyes and my knuckles hsve little swollen like bumps on them. I don’t know what is going on. I have gotten blood test but results show my body is perfectly healthy. Someone please help me.

January 2, 2013 at 8:19 am
(158) terri says:

I take vistaril. It is the only thing that helps me.

February 3, 2013 at 8:40 pm
(159) nicki says:

I have excema/dermattis,and fibro,, i went to aa dermatologist who said my itching was so bad,that my scrathing caused a staph inf. he put me on leviquin, which made me more itchy, stressed out tendon in foot, itchy now in my private area. and cause this med lower you good bacteria, i got the stomach flu. and im still itchy.my skin looks horrible.ive put alot of different meds on skin, nothing helping.. help…

February 11, 2013 at 5:25 pm
(160) Leslie Leavitt says:

I too have itchy skin especially around the ankles. Two things that have helped me are Newton Brand Eczema-Skin Care and Hylands Hypericum Perf. 30X. I take them together and it really stops the itch. As with all homeopathic remedys you have to use it several times a day. These can be purchased at a healthfood store or you can call the company direct.

February 13, 2013 at 2:31 pm
(161) theresa says:

I have read all these and I am soooo grateful to the authors. I have itching at night which often wakes me and a strange series of eruptions on my knee. I didn’t realise until I read these comments that it COULD be connected with my FM. I am going back to my Doctor armed with this article in the hope they can understand it a bit more.

February 25, 2013 at 3:58 pm
(162) janet e says:

My itching is the worst on my forearms. There is no rash. Like others ice works the best. I’ve tried all kinds of lotions, creams, antihistimines and none of them work. My endocronologist swears that it’s from thyroid antibodies. I have Hashimoto’s Disease which causes an underactive thyroid. My itching comes in spells. I might itch every night for 2 months and not again for 6 months. I have discussed both Fibro and CFS with my GP doctor as I have several other symptoms. He’s finally willing to admit that he believes it’s something other than my thyroid issues so maybe we’ll finally get closer to finding out what my problem is. I have been suffering for over a year now and am just about at my witts-end.

March 5, 2013 at 11:54 pm
(163) Barbara Samuelson says:

I have intense itching all day… I wake up throughout the night to itch or to just get up… I have been trying Benadryl, but it does nothing… because it is not an allergic reaction… I have no rash… I have dug myself through the skin… I am doing my best to not itch. I was a Nurse for years, but I have symptoms I never heard of…. Does anyone else have lumps under there skin? all over? No pain from them though. I get the electrical shock pain… usually in my legs and arms. I have insomnia at times… Since I also have severe Arthritis throughout, there is even more intense pain to deal with…. I try to focus on a project or something else to try and ignore the terrible pain and scratching… headaches… migraines… I would love some relief. I have been diagnosed with Fibro and arthritis since I was 28 years old. .
( 47 now) it gets worse by the year… I have been suffering a long time… no one listens or helps. I have several more diagnoses that all effect those two and I feel like I am in a vicious circle… Just cannot break free!

March 30, 2013 at 5:40 pm
(164) Michelle Kirkpatrick says:

I have started having the intense itching or crawling on skin sensation. So bad that I cry myself to sleep. I just started new fibro meds so thought it was those, but I have changed meds and still have it. Some days are worse that others. I also have heart arrythmia, so a lot of the fibro meds I can’t take because it aggravates my arrythmia.

June 1, 2013 at 4:07 am
(165) Brian P says:

This makes sense now. I’ve had to have back scratchers all over the house and in our cars for years. Come to think of it, when I’m on my Gabapentin the itches seem to ease up! Good article!

June 5, 2013 at 11:23 pm
(166) Amy w says:

I was diagnosed about 5+ years ago with FM and just for the past year I’ve been getting these bumps that look exactly like bug bites. I get 2 or 3 in a row on my arms, hands and feet. They itch like crazy and at times make that part of me feel numb and burn. It happens every few months and I have searched high and low for any type of bug bite it might be (fleas, bed bugs, spiders even dust mites!) Docs haven’t been any help. They tell me it’s bug bites and send me home with an rx for antihistamines. This is different from the all over “phantom” itch I get mostly at night since these are actual bumps. Sometimes the bumps even turn into welts the size of baseballs although that’s not always the case. Does this sound like something anyone else has experienced or is this discussion more about the all over itchiness? I was talking to someone with FM who said she gets the same type of bumps and her doc said it was from FM but she’s not really a credible person for info. Any help would be appreciated! Like I said, it’s been going on for a year now and I’m getting really frustrated! My sister in law is convinced I have bugs in my home and won’t let my nephew stay even though I’ve had a professional check for bed bugs! I have 2 younger kids and neither one of them has had ANY type of bug bite looking marks on them until 2 weeks ago, my daughter got some itchy red bumps. Again, checked for any bugs or anything it could be, and I’m coming up blank! Hers really could be bug bites though from sand fleas or something since the weather has been nice and they started playing in the sand at school.
Thanks for any help!

June 29, 2013 at 8:06 am
(167) Melinda Allgood says:

Itching was one of the first symptoms I had years ago. I went to many Dr. ‘s trying to figure out why I was itching. After other symptoms started I was diagnosed with FB. Now I know to avoid anything with perfumes. It is nice to read these comments and know I am not out of my mind.

July 4, 2013 at 5:18 am
(168) Andrew J. says:

I had no idea that this intense itching all over my body along with bumps was any way related to fibromyalgia which I’ve never been diagnosed with. Its only been understood I’ve been giving no information on it by any doctors pain doctors dermatologist or otherwise. however I am disabled and have DDD and spinal stenosis with severe sciatica nerve damage which is causing severe pain throughout my right side my right foot is numb and without feeling. .. stabbing or being shot with arrows through my pelvis. I’ve I’ve been unable to receive back injections nor been able to utilize physical therapy in the pool because of my staph infection I was almost hospitalized and at times I feel like I should be hospitalized. At this point since I’m prone to staff infection I have to sanitize hibicliens and every now and then take a bleach bath, wash my clothes with a little bit of bleach, lower the sugar in taking my body watch soda drinks, take a probiotic and drink Kiefer yogurt probiotic drink.

Continued next paragraph

July 4, 2013 at 5:20 am
(169) Andrew J. says:

The intense itching throughout my body sometimes my skin just have a feeling and even looks like it hurts I’ve had multiple staph infections as a result of the scratching… I have been tested for STDs all negative I did test positive for staph infections however they were resolved I did test positive for ringworm and fungi infection lamisil of medication. I got a yeast infection all over. I’m getting headaches where sound…light…movement… Comprehension of words or conversation hurt. Systematic for extreme panic attacks and anxiety after bad episode I have tremendous itching everywhere almost unbearable.
I have been treated for various skin afflictions , staph infections preventing me from getting much needed interventional pain therapy increasing my pain increasing the rash. .. everything increasing. I have been on 5 different antibiotics and am currently taking lamisil and 333Erythmican however zyoxx better the insurance company only pay for it one time help the most. Ear nose and throat was fine. At this time I believe lyrica has increased my nervous system nerve pain and instead of reducing burning of the feet severe pain in my toes as the dosage was increased the pain increased and became unbearable Dr noted that was the opposite effect of what it would normally do so they decreased the lyrica an added another pain medication which has helped so far but I believe the lyric it needs to get out of my system bad it is caused more severe nerve pain than it relieved. I didn’t mention but my body or right side of my body does go numb. while sitting or lying in bed or sleeping which is a more severe pain.

Continue to next paragraph…

July 4, 2013 at 5:22 am
(170) Andrew J. says:

If anyone has any information that can help or understand what I’m going through.

I’m also having difficulty losing weight Lipton hormone sensitivity is out of whack I’m borderline diabetic at this point I’ve recently became a vegetarian to curb certain intakes. I’ve also purchased phenomenal water and Spencers gel the Internet the Spencers GL seems to work to a degree and I have not tried the phenomena water yet I’m hopeful thank you for listening.

July 19, 2013 at 12:58 pm
(171) Ally S. says:

I have been experiencing stinging sensation like itchy and biting all over my body from one spot to another including my scalp. This has been going on and off since 2008. It has come again for 3 days now. Please help. TQVM.

July 21, 2013 at 12:36 pm
(172) Howard says:

each time i used to read smaller posts that also clear their
motive, and that is also happening with this post which I am
reading at this place.

July 26, 2013 at 11:14 pm
(173) Lacy says:

I was diagnosed with fibro about 2 months ago! I have been to a trillion drs in the past 8 years all of which say Its mental and I need counseling!!! I finally found a gp who diagnosed me I have several enlarged varicise on my stomache continuous abdominal pain and this unending inch in my bones it’s not on my skin It’s in my bones!! Nothing I do helps has anyone else ever experienced the feeling of something crawling around on and in the bone?? This is a terrible feeling it accrues
Mostly at night around 5-7 then continues through the night!! Sometimes if I do too much it starts in the morning!! I run a low grade fever most the time!! I mean I feel like my knees and elbows need to be opened up idk how else to describe it also I have this burning sensation in my abs I mean so bad I cry sometimes but the crawly itchy feeling in my bones is unbearable! Please let me know of I’m the only one most the peeps on here have the itch on the skin I mean I have that too but does anyone have it in the bones???;( please tell me I’m not he only one!!;( thanks in advance!!;)

August 22, 2013 at 1:10 am
(174) Eli says:

OMG thanks to everyone now I know I’m not craizy. This overall skin itch
Is part of my FMS every pour in my body is a constant itch lyrica works great for the FM and best of all THE ITCHING.

If your not bothered by the side efects in what got me was puffy face hands and feet and worse muscul spasms that hurts so bad that
I rather itch. ;(

August 27, 2013 at 3:47 am
(175) site says:

I’m very happy to discover this page. I want to to thank you for your time for this fantastic read!! I definitely liked every bit of it and I have you saved to fav to check out new things on your site.

August 30, 2013 at 11:13 pm
(176) Jo says:

Try Sarna anti-itching lotion, along with a dose of an anti-histamine. You may find you are having an odd allergic reaction, such as papular urticaria

August 31, 2013 at 11:02 pm
(177) Leslie says:

The itching gets me at night. Not only is it hard to get to sleep anyway, but the skin itching all over makes me nuts. Lotion helps but feels sticky. I’ve been taking Ibuprofen at night for the morning pain, but after reading this post I’ll switch to tylenol.

September 7, 2013 at 11:56 pm
(178) Tracy says:

I too was recently diagnosed in April. I have also had itching in my scalp even before I was diagnosed. Now I seem to have it everywhere when I drink or eat certain things…I.e. ice tea, coffee…anyone else have this? Any good remedies? I’m already taking lyrica.

September 10, 2013 at 11:43 am
(179) Alyce says:

It sounds insane, but more and more often the bones of my right arm (sometime other places) itch. That’s the only way I can describe it. It’s like when someone runs something lightly across your skin over and over until it’s no longer a tickle but starts to become annoying or “itch”
If anything, from clothes to air, touches my arm it makes it a hundred times worse. It starts as an annoying itch, but will progress to an ache and then severe pain.

Has anyone else experienced this? I know fibro will cause some people to have intense itching on their skin, or pain when they touch certain things, but I’ve never seen anything that sounds like this.

September 11, 2013 at 8:25 pm
(180) janes says:

HAVE ANY OF YOU BEEN ON FLOUROQUINOLONE ANTIOBIOTICS SUCH AS CIPRO, LEVAQUIN, AVELOX OR FLOXIN. THIS POISON HAS GIVEN ME ALL THE SYMPTONS OF LYME, FIBRO AND PHERPHERIAL NEUROPATHY. I EAT NO MEAT UNLESS GRASS-FED. NO ASPARTAME AT ALL OR SUGAR. NO BREAD AT ALL. LOOK UP FLOUROQUINOLONE TOXICITY SYNDROME AND READ THESE STORIES ABOUT WHAT THESE ANTIOBIOTICS HAD DONE TO PEOPLE.

September 20, 2013 at 4:28 am
(181) scott says:

I have been experiencing the feeling of bugs crawling all over my head, face, ears, back and arms for quite a while now. I also have a white substance that seems to be coming out of the pours in my face. I am prescribed a fairly high dose of oxycodone on a daily basis for pain, everyone thinks I’m crazy and my doctor just keeps telling me there are no bugs, but no testing has been done. My doctor finally prescribed me permithrin cream 5% but the problem is still there. I have searched the internet for all of the symptoms that I have and I came across something very disturbing. the name “demodex mites” popped up. If this is the problem does anyone know if oxycodone could cause this problem?

September 23, 2013 at 1:01 pm
(182) Tamar says:

Below, I put an excerpt from an MIT research paper on magnesium and fibromyalgia – both how A deficiency can cause itchiness (by increasing substance P) and how it works like Neurontin for pain. In my experience, myself included, people with fibromyalgia don’t absorb magnesium very well so the search for anything to get your magnesium stores higher can be a long process but well worth the benefits.

“A magnesium deficiency also increases levels of substance P, a chemical which has been implicated as being responsible for increased pain levells in FMS.  Several studies, such as the following, show this:

Magnesium is known to regulate or inhibit many nerve receptors, such as NMDA or 5-HT3, which have been considered as sources of certain types of fibromyalgia pain.  Neurontin, for example, is used because inhibits NMDA activity.  Since magnesium also blocks NMDA receptors, studies have used intravenous magnesium therapy to try and treat similar types of neuropathic pain:”

September 26, 2013 at 8:56 pm
(183) karen says:

The itching is terrible i scratch and dig all over, It always seems to happen worse at night. I have found taking Zyrtec has helped me lots. I have scratched so much i have made my skin bleed.

September 29, 2013 at 12:48 am
(184) Linda says:

anti-histamine will work

September 29, 2013 at 5:46 pm
(185) Lisa Doherty says:

I have had this itch going of and on for months now. I have mild fibromyalgia that comes and goes in different spots on my body. The itch always occurs in the same spot however. It is under my right ear and on the jawline on the right side of my face. It is the most intense itch I’ve ever experienced. The only thing that works for me is Benadryl. It makesme extremely tired though which is a huge problem, but the itch can’t be tolerated. Has anyone had this particular spot act up? At first I thought it was allergies because it would happen when I was chewing, but there was no connection in foods, and it started to happen whenever I ate anything. Please
let me know if this is something that anyone else has had as sometimes it feels like I’m losing it.

September 30, 2013 at 6:22 pm
(186) Casey says:

I’ve had a horrible, chronic itch for over 5 years now. Since I’m allergic to Benadryl (I break out in hives), I didn’t try anything for months. But the itch drove me crazy!! And I’d scratch as little as possible and still raise welts. The first thing I tried in desperation was Claritin and it worked for a couple of years. When it stopped working, my doctor put me on Xyzal 5mg at bedtime and it works GREAT!! The one drawback is it’s very expensive. Eventually I figured all this must be related to my fibromyalgia. Once in awhile if I am out of the Xyzal, I’ll go back to taking Claritin or Allegra for a few days and that gets me through okay. Another thing that works for a small itching flare-up is neem oil, which you can buy at health food stores. A couple of droppers mixed with a good quality lotion (like Nivea) in an old prescription bottle. Shake well. When you get itchy, smooth some of that neem oil lotion in and within 5 minutes, I am itch-free.

October 1, 2013 at 9:20 am
(187) Moira says:

Have all the above. I think it started in childhood, decades before I was dx’d FM. I notice it is worse in the areas of my body/skin that have that ‘cotton-woolly, almost numb’ feeling. That confirms for me that is a parasthesia. As Devin Starlanyl has said (not direct quote) ‘if your nerve endings don’t know what they’re feeling, they just say “itch”‘. Just have to turn your mind off it, a nice bath in soothing stuff can help, but it’s a bit effort to have a bath when you’re feeling ill.

October 18, 2013 at 6:17 pm
(188) blue says:

I have had itch all my life and is is very bad at night-during the day not so bad
I have found pain meds /tart red cherry juice as well as oatmeal baths help but sometimes nothing works and I scratch all night
I do feel that caffine makes it worse so I stay from diet sodas /coffee and tea *I have been drinking decaf
At one time I had a doctor but me on Adrax *not sure if I am spelling it right* and it did help but I can not stay on seditiaves all my life!

October 18, 2013 at 8:16 pm
(189) Dianne says:

I am the one who originally started this conversation and the itch got to the point where I would rather have died than live with it. In fact, I was hoping I would take too many pills accidentally one day and never wake up because it was so bad. Then one day someone mentioned to me that vitamin B12 can cause that type of itch in some people. I WAS TAKING B12 on the advise of my doctor. I QUIT taking it and within 2 weeks the itch completely disappeared never to show up again. I am so relieved because It had interfered with my entire life to the point where I could no longer go out at all. Showers had started it and then it began firing up on it’s own whenever. I am so thankful to that person for mentioning B12 to me. I recently had my B12 levels tested and they are fine. Even if they weren’t, I would never again take B12 to go through that torture. I don’t know if this will help anyone else, but it did help me.

October 19, 2013 at 10:20 am
(190) Theresa T.. says:

I have had fibromyalgia for about 10 years now.. My mother also suffered from it. I know well the creepy Crawlies that start after you get in bed. Especially after a strenuous day. I have relief with a very hot bath and when I’m out I rub a cream called Theragesic on my hands and feet, legs etc that are driving me crazy. It works. It used to be just my legs and feet but over the years has progressed to my hands as well.
Best of luck. Theresa.

October 20, 2013 at 4:51 am
(191) b says:

I take zertecand it brings it down enough so if I get my mind on something else it works.

October 20, 2013 at 5:33 pm
(192) Sara says:

I have vaginal itching that is not caused by any infection. For yrs Neurontin and Valium worked but it came back with a vengeance. I now use Valium suppositories, Soma (a muscle relaxant) and have had Botox to stop the spasms. I do stretching exercises. I’m about to start Cymbalta. This is not a derm problem but neuropathic itch.

Has anyone else had this?

November 7, 2013 at 4:39 pm
(193) Cynthia lee says:

I have itched for over 4 months. I have been on prednisone for 3 months, rx creams and antihistimenes. Finally, a special thyroid test revealed an abnormality. Ask Dr about a full work up on the thyroid and don’t back down if their ideas have not worked. It took me 4 Dr visits before someone was Awake to symptoms

November 16, 2013 at 7:47 pm
(194) Steven says:

My itch began in 1995, when I was unemployed and depressed. Since I am the kind of person who would probably never even consider taking anti-depression meds, I instead self-medicated with carloads of Coca-Cola & Chocolate & Coffee, which is about when the itching began, first in the palms of my hands & the soles of my feet, but occasionally it would show up anywhere on my body. I used ICE with great success early on, but then my Father, whom I was surprised to find out, suffered with the same itch in the palms of HIS hands, told me how very HOT WATER takes HIS itch away immediately . . . . . and you know what, IT WORKS!!!! The trick is to get the water as hot as you can stand it, without actually getting burned. Admittedly though, it can be a very inconvenient remedy on those occasions when the itch attack occurs, when, as luck would have it, because of the location of the affected body part, you are forced to jump, fully naked, into a hot shower . . . . . especially when you are not at home, and nowhere near a shower!!

December 3, 2013 at 11:49 pm
(195) Shawn says:

I have been itching for 7years now and I used to think Claritin worked but maybe it’s got worse! Welt show up without warning usually my neck and wrists. Now my shoulders feel like I have arthritis and pain has made the itching feel like a walk in the park. Doctors think it’s allergies but I’ve tried everything. When welts are spoted by co- workers it’s not in my head or allergies! Help please!

December 25, 2013 at 1:40 pm
(196) Christina says:

I just found out that I had bed bugs and got my apt treated for the bed bugs. And I know that they r gonna and I don’t have them any more. I keep thinking I still have them but I don’t is it just the thought that’s freaking me out and making me itchy? I feel like I’m driving mself crazy…

January 14, 2014 at 8:16 am
(197) Dollie Vassallo says:

Mr. Elliott,<br />Letters via USPS sounds so novel in the internet age even though it is one particular letter produced for many, but it surely doesn’t sound like a pen-pal relationship. Can just one write back towards the author from the letter?

January 19, 2014 at 2:08 am
(198) Nikki says:

I suffer from fibromyalgia, type 1 diabetes and chronic kidney disease. I have been itching for about two weeks now and its getting worse. I’ve scratched so much until my body is full of scars. I totally understand the want to lay down and die. I know it sounds extreme but the pain this itch is causing is excruciating. I will try taking two 750 mg vicodin to see if that helps. Thanks so much for all of your posts because I thought that I was losing my mind. I knew that it was due to my nerves but didn’t associate that with my fibromyalgia….

January 25, 2014 at 12:25 am
(199) JO says:

A friend told me about Bag Balm , it was used to sooth cows udders when frostbite or other problems occurred . Farmers are quite happy with this product.
I am very happy , some of my eczema is drying up. It helps with itching .hope this helps you. It seems a lot of people know of this product.

January 25, 2014 at 2:21 am
(200) Linda Coady says:

I have such sympathy for all of you but I believe the itching at night is caused by a DEMODEX infestation. Demodex are microscopic mites the live in our bodies. They are sensitive to light and crawl out at night to mate (crawling sensation). The female goes back into the body and lays eggs. They can live anywhere on the body
They live mostly in the hair, eyebrows and lashes.

Please try this test. Take a q tip and gently rub your eyebrows and eyelashes. If you see any dander, you have them. Please Google Demodex. Tea tree oil kills them. Good luck everyone!

Start using tea tree oil at once. It kills them. I mix tea tree oil in baby shampoo for shampoo and rub it gently into my brows. Use 50/50 tea tree oil and coconut oil to treat lashes 2 x day for 2 weeks. Put on lash line with a q

January 29, 2014 at 9:21 pm
(201) jo meadows says:

Lavender oil helps my sudden intense itchiness (like hives) more than anything I’ve used. I live in Ecuador where hydrocortisone is unavailable, but lavendar helps more for me anyway.

January 30, 2014 at 11:33 am
(202) Elaine says:

I itche at the back of my neck and on top of my arms at the elbow. I have litterally scratched sore’s on my arms and neck. I have tried everything does not help, I take Epic 100 mg as well for something else and that is surpose to help with the nervouse system, but not even that.

Please advice

February 6, 2014 at 12:03 pm
(203) Dawn Figuiera says:

I’ve been getting itchy for many years especially on my back in my upper legs I’ve never known that this is one of the side effects of fibromyalgia this is new to me I’m hearing it today I always wondered why I was so itchy I put on lotion on every day I’m glad more research is being done maybe one day we’ll find a cure for fibromyalgia

February 26, 2014 at 8:18 pm
(204) Donna says:

Hello. I came on here because i was searching for answers or help. I just can not take this itching any more. Its driving me crazy. The my feet bottoms & tops itch so bad. When i uncontrollably have to itch digging in with my nails & still can not reach the itch that feels like it somewhere between the surface of my skin & just befor my bones. As i itch it also feels like waves of tingling ekectrical shocks radiating from the knee to toes back and forth until i stop itching. Its not just my feet. Its also my palms, wrist, entire length & all around my legs, buttocs & groan, turso front and back, arm & neck & my scalp itches so much my hair is falling out. When this dose this which lately seems to be every night any more. It starts around 6-7ish PM. I do suffer from autoimmune & Anklin Spondilosis & Raynoids & just been told about a month ago that i also have Fybromalygia (sorry i spelt these wrong. I cant even pronounce them right. My Doctor always gets a laugh out of that). Anyway if i put lotion on the itches it releaves it for a little bit. I use the (Equate-WalMart brand of the Aloe Cool & Fresh Body Lotion With Aloe and Cucumber Extracts). Also one of my nedications is Soma ( muscle rekaxers) for my leg, neck and hands spasms. If i take one of those and either just sit with legs up on foot stool or go lay down for about an hour or so. The itching just completely stops. Benidril dont realy stops it. It will ease it. But the Soma stops it completely for about ten to twelve hours. its been doing it a lot these days. I have noticed it does it more just befor and during storms. But dont do it until at least 6-7ish PM. Sometimes it will do it in the mornings but mostly at night. I try to stop it without the Soma, until i can not take the itch no more. I also get that bruising from the itching. Anyway i am not sure if the Fibro causes it. I just know what i do for it. Hope this helps. God Bless you all and you all feel better. Donna.

March 7, 2014 at 8:56 am
(205) Deb says:

I am so glad to see this discussed. I have had maddening itch on my arm(s) to the point I am extremely scarred. Nothing seems to help.

March 9, 2014 at 12:08 pm
(206) Rukhi@.mail.com says:

After eating certain foods eg shiitake mashrooms I get very itchy. I also wash my bed linen twice by risinging it’ in a hot cycle.
Use only baby shampoo. Use vinger to clean floors. And use natural oil soap certain soaps ,make me itch. Once in a while I use antibacterial soap.

March 14, 2014 at 12:48 pm
(207) Serenity says:

I get extreme itchiness on random parts of my body at random moments in varying degrees. Some times I take cold showers or put a cool cloth on certain aries some times I just have to wait it out. I love discovering and experiencing new symptoms of fibromyalgia (sarcasm), don’t you?

March 16, 2014 at 7:23 pm
(208) amy says:

It’s like hives all over the body…no rashes for me. Also like being allergic to couch fabrics, cotton dresses, labels in clothes…like lice crawling in my hair. Like invisible bugs biting on arms or legs that I must SLAP for it to stop. I have RLS, High blood pressure and Arthritis. Some excema in my ear. Allergic to dog hairs? we always had dogs. I have checked for bed bugs, dust mites, head lice and I have none. I feel like I am going crazy. I want to shave my head too. I hope it is not FIBROMYALGIA!

March 17, 2014 at 2:47 pm
(209) katherine says:

my face and scalp itch so bad all the time i now have scabs on my face and scalp from scratching all the time it is absolutely awful

March 27, 2014 at 7:25 pm
(210) Cathy says:

I too have horrible itching skin. It feels like it’s coming from the inside out, especially on hot days. The more you scratch, the worse it gets, and it travels around the body. I have been diagnosed with fibro, hypo thyroid with a goiter, tinnitus, brain ischemias, copd, chronic Gerd, metabolic syndrome, migraines, degenerative arthritis. I too was taking Benadryl at night, and all the classics like Celebrex, ambien, Zoloft etc., with no relief, just made things worse, then I found a great doctor. First he balanced my hormones, including thyroid with bio identicals, I fake natural pain relievers like bosweilla, hyaluronic acid, devils claw, and celadrin. For the itching, he put me on hydroxizine. Low dose at night. If I forget to take it, by the third day it’s an intense itch coming on! I am also on a sugar free, yeast free, no processed food diet, no milk, no alcohol, low carb diet. (doug kaufman, phase one diet), look him up online. Lots of fresh organic fruits, veggies, clean proteins, and fresh juicing.and good oils, coconut, olive and fish.I have found more relief by going natural vs the synthetic pill route. Saving my liver and kidneys for the work it was intended to do without the burden on drugs. I

April 8, 2014 at 1:16 pm
(211) Lupe says:

I have some sort of itch all the time. Its embarrassing. I have also experienced hives on top of hives that burn if touched or sscratched. Right now besides an itch here and there my arms feel so heavy they hurt.

April 10, 2014 at 4:51 am
(212) Farm Heroes Saga gold hack says:

nectars  nectary  neddies  needers  needful  needier  needily  needing.
slyer    slyly    slype    smack    small    smalt    smarm    smart.
reaccent reaccept reaccuse reachers reaching reactant reacting reaction.

Feel free to surf to my page – <a href=”https://www.youtube.com/watch?v=GxO8LXOXmDI”>Farm Heroes Saga gold hack</a>

April 12, 2014 at 2:12 pm
(213) Linda says:

I took a natural product that had me totally flushed and itching like crazy.
The only thing that helped was benydril. you have to get something in your blood stream to counter act the itching.

April 13, 2014 at 4:49 pm
(214) Barbara says:

I get severe itching as soon as I start getting hot, cooking, going outside, exercising, etc. If I get to the sweating part it’s unbearable painful itching. It won’t stop until I get completely cooled down in the AC. Anyone have any recommendations?

April 23, 2014 at 1:23 pm
(215) Mary P says:

I have had itchy, hot skin if I am in the direct sun, scratchy, or I put pressure on my skin & some fabric’s also make me itch. I have found RX Hydrocortisone Cream 2.5 is not doing the trick any more. I found by keeping anything cool (lotions, cold bottle, ice,wet wash cloth,or if my hand was cold; I put my hand on the hot part of the skin, frozen veg’s- if I do not have RX at the time). I also keep samples along with RX in purse; I never know when I will need it.

April 25, 2014 at 1:01 pm
(216) Linda says:

I have had itching off and on for years. It started with a vengeance when I first was diagnosed with Systemic Lupus, many years ago. The prednisone I took along with methotrexate must have knocked it out at that point. Then it would only come back once in awhile. Not till 2 years ago, did it come back with a terrible blast! It is pretty much constant and all over and inside to out. I have seen 7 different kinds of doctors and none have any real answer. My relief came when I saw a Neurologist for a benign tremor, and she put me on Neurontin! What a God-send!! I take 900 mgs a day now. I spread it out through out the day and I also take Hydrocodone and a muscle relaxer for pain, Zyrtec , Benadryl for allergies and Xanax for panic disorder and the tremor I have. They all help a little, but the Neurontin kicks the insane itching completely!! I had blood allergy tests run and nothing came up on them. The Lupus seems under the wire now for a few years too. So it must be my nervous system gone awry! I am grateful to read others explanations of this. Not that I’d want anyone to itch like a crazy person, but it keeps me a little saner. Thanks to all of you who have written and shared. I will let my many doctors know that I’m not the only one. :)

Leave a Comment

Line and paragraph breaks are automatic. Some HTML allowed: <a href="" title="">, <b>, <i>, <strike>
  1. About.com
  2. Health
  3. Fibromyalgia & Chronic Fatigue

©2014 About.com. All rights reserved.

We comply with the HONcode standard
for trustworthy health
information: verify here.