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Adrienne Dellwo

Excessive Sweating in Fibromyalgia & Chronic Fatigue Syndrome

By August 31, 2010

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Do you find yourself dripping with sweat at odd times, for no apparent reason?  This is one of those bizarre, confusing symptoms of fibromyalgia and chronic fatigue syndrome that you don't see on those inadequate little symptoms lists. Doctors and researchers don't really bother themselves with it because we have so many bigger problems, but when you have to deal with this every day it can have a big impact on your life. Here are some of the comments I've seen:

"What exactly causes the excessive sweating? Is it hormonal, side effect of all my meds? or a combo of both? I don't bother to wear makeup in the summer because there is no point - it just melts off."
"I have a problem that I have not seen yet..unexplained excessive sweating...like just stepping out of the shower...hair dripping wet..clothes...soaked! ... It has put a big damper on my lifestyle."
"My limbs get so cold and painful during that time, and yet my face will be sweating from the heat inside."
"I can't stand too much heat either, my heart starts beating too fast, and I sweat profusely. I can be sweaty and my skin too cold at the same time!"
"I sweat heavily - especially from my head and neck - from the least exertion."

What Causes Excessive Sweating?

Several things could be responsible for our sweating, either on their own or in combination. They include:

The only cause that's "curable" is the medication side effect, and that may not be an attractive option to you if the drug is doing more good than harm. This is one of those symptoms we have to either live with or find ways to manage.  One of the important things is to stay hydrated -- replace both the water and the electrolytes you sweat out, because dehydration is really no fun.  And it can be hard for us to tell when we're dehydrated because the symptoms can be similar to some we already have.  (You can find them here: Symptoms of Dehydration.)

My biggest sweat issue is on my forehead. It's generally worst right after I get out of the tub or shower, and it can get ridiculous if I blow my hair dry right away. Sometimes it stops with a thorough wipe-down, but other times it just keeps coming. On those days, I have to wear a hat because the front of my hair will look horrible. I often carry a hat with me in the summer, in case the sweating starts again. I've tried antiperspirant on my forehead and in my hairline, but it does nothing to help.

I think mine comes from both heat sensitivity and autonomic dysfunction. My body seems to "hold on" to heat too much, and then my system can't regulate itself properly to turn off the flow once it starts.

What triggers your sweating? Do you have an idea what causes it? Does anything help? Leave your comments below!

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Comments
August 31, 2010 at 6:17 pm
(1) Kristina says:

I have been going through the sweat-thing and chalked it up to just being “one of those” fibro things. Mine is worst on the scalp and face, but can include my arms and legs.

I use stick under-arm DO, and spray under my breasts and on my back- which seems to help some… That clammy, sticky feeling can be really annoying though! I often have one arm and leg that are perfectly normal, and the other side is cold and clammy-I feel like I’m losing my mind sometimes!

July 25, 2011 at 5:57 pm
(2) sylvia says:

I sweat like this too.wondered if it ead my heart
Guess it is fibro. My scalp and face and under my breasts..

August 31, 2010 at 6:52 pm
(3) Mia says:

I’ve had excessive sweating of the face and scalp for over 2 years now and tried everything. One of my Dr’s thought it was due to taking Tamoxifen from my breast cancer. When I hit the 5 year mark & quit taking them and got no relief we knew it was probably due to the Fibro because I’ve taken 3 month long breaks from all the meds at one time or another. I had enough with this current (ending, whoop whoop!) summer. I sought out a dermatologist who tried medical strength antiperspirant. It helped some but the tingling, burning sensation along with the skin dryness wasn’t worth the small relief. So 4 days ago I had botox!! I’ve had improvement everyday! And total effect takes up to 10 days, so I am very encouraged!!!! Especially now that I am reading that this is most likely from Fibro and other Fibro sufferers have this. Thank you for the info!

August 31, 2010 at 6:56 pm
(4) John says:

Mine usually hits me at night, when asleep. It seems to effect my whole head and neck, but I can also have full body night sweats at rare times, but the head sweats are the norm. In two to three hours I can soak my whole pillow, but as the night goes on it usually gets better. I tend to buy lots of new pillows. I can sleep hard while it happens, and the wet pillow is what wakes me up. Two of my favorite doctors say they have never heard of anyone doing this before.

August 16, 2011 at 1:57 pm
(5) Abdalla says:

Thanks GOD.. I’m not alone.. ^_*

August 17, 2011 at 10:17 pm
(6) Rand says:

I realize this is an old thread but Im so overjoyed to find I’m not alone that I must post. I’ve had random sweats ever since my second round of cancer / chemotherapy. It was by far the most difficult of my cancers and I came very close to not making it. Ever since I’ve had odd, random events such as sweating. The more damp / clammy I get the more I sweat despite being so cold I’m shivering.
Chronic fatigue seems to be a big factor but any stress on my body will cause me to wake up in a soaked bed and a pool of water on my chest. The worst was after a major surgery a few years ago. I still have nightmares about it. I had an elbow replacement and was in horrible pain. This was one of those hospitals that have attitude about pain control so it was 24 hours after surgery before I saw a pain technician. By then I was soaking my bed every 15 minutes. The nurses piled sheets by my bed and it was up to me to change my linens. I felt like I was in some movie of a sub third world country. I had never experienced an anxiety attack before that week.
I am terrified because next month I am having the elbow replaced again. I’ll be going to a better hospital this time but I am most worried about the sweats than anything else. There’s nothing more miserable than to be cold and wet and unable to get dry. The only solution I have is to keep a stack of bath sheets by my bed when I’m sweating. I can always tell my immune system is under stress because it triggers the sweats. I wish there were an answer but just knowing I’m not a freak makes a huge difference for me.

August 18, 2011 at 12:50 pm
(7) mark says:

it happens to me every night pillow soaking wet some times body soaking wet just like i have had a shower

August 31, 2010 at 9:39 pm
(8) Jomije says:

Curiously, I have the opposite problem. I do not sweat at all. No need for deodorant. No sweat, ever.

August 31, 2010 at 10:27 pm
(9) Marecha says:

Thank you! I thought it was some weird peri-menopausal thing that my face poured sweat while my arms were cold enough to have goosebumps. I never would have linked it to the fibro. Getting out of the shower is the worst for me too. Takes me hours to cool off unless I can sit on my bed necked (with the ceiling fan on) for 30-45 minutes before getting dressed. I rarely get up early enough to do that. I walk around with a washcloth. Its is especially embarrassing when I’m in a patient’s room with sweat dripping off my nose. :( I find myself rushing so I can go in the hall to wipe my face or sneaking so they won’t see me dry my face.

I can’t thank you enough for this column. It has been a blessing to me.

August 1, 2011 at 6:59 pm
(10) Teresa McLaren says:

Marecha, Wow I have had the exact same problem for about 5 yrs now. I thought it was pre-menopausal as well.But when I think about it the sweats started at the same time my sevier symptoms started. I couldn’t even work between the hot flashes, the muscle fatigue and pain. I went to the doctor and was sent to a an orthopedic specialist. I am doing better now with Nurotin, lyrica and tremidol. I have to take lots of cool showers and sit in front of the fan afterwards. I walk at least once a day and work in my vegtable garden with my husband.I get exhausted easily and overheat if Im not careful.I drink fluids mostly ice water, stay as cool as possible, and get some kind of excercise every day.My meds help, but getting up and doing something helps me just as much because I’m doing something. I have just recently found out 3 of my maturnal aunts have seveire fibro and both my teenage daughters might as well.

September 1, 2010 at 12:26 am
(11) esther says:

After showering, I turn the water to cool to cold and stand under it and this seems to help me.

May 24, 2011 at 10:45 am
(12) Alexandra says:

I have had CFS/Fibro for over a decade and have had a sweating problem for as long as I can remember. I have been on medical strength antiperspirant which did not work at all and nearly burned my armpits off. One thing that did work for me was changing my clothes (socks, undergarmets, shirts, etc.) 2-3 times a day which I still do. The most successful thing that I do is after showering, I turn the water to cool, stand under it for a few minutes, and make sure it lowers my external body temperature. Girls, it is important that the cool water runs all the way through your hair. I highly recommend this advice. Esther, this is great, right?!

Good luck, everyone!

November 2, 2011 at 6:38 pm
(13) Gayle says:

I have been dealing with muscle and joint paint for about 15 yrs now but was only diagnosed with Fibro about 2 yrs ago. They put me on Cymbalta. It helped immensly with the pain but about a year ago the sweats began in earnest. When I had them before, I thought early meno since I was about 35. Now I’m 42 and they say it’s about that time. I say BS. That wasn’t the problem then and it’s not now. I think it’s the Cymbalta and since that helps with the pain, now I just need to figure out how to ease the sweats. I have had some success with the cooling of the water temperature after a nice warm muscle relaxing shower. It’s the middle of the night ones that are really making me frustrated at this time. But like many people have posted, I’m glad to see I’m not the only one that this is happening to, that’s why I’m sharing my thoughts on the subject. Unfortunately, no real help from me cause I just am just now realizing it’s a symptom of the Fibro. Good luck to all of us :)

September 1, 2010 at 12:34 am
(14) Lois says:

Funny — I always thought that my giant flop sweats ( Hey, Lois, you just come in out of the rain?) were somehow pre-menopausal in nature.Terribly embarrassing to have to deal with the public on a daily basis just drenched in sweat — I worked retail at the time.

I wonder what the connection is between this bit of info about excessive sweating being a symptom of fibro, and the articles I recently read saying that experiencing a good sweat might be actually beneficial to those with fibro? Rather confusing! Maybe Adrienne can find some correlation?

From Your Guide: Interesting question, Lois! This is still an un-researched area, so these is just my best guess, but I wonder if the sweat is our bodies’ attempt to get rid of toxins, real or misinterpreted. Our bodies tend to misinterpret a lot of things as dangerous when they’re not. ~Adrienne

September 1, 2010 at 12:50 am
(15) Elisabeth says:

And I thought I was nuts! I was sooo tired of people saying it was a “hot flash” when I certainly know the difference and this IS NOT A HOT FLASH!!! It just happens, IMMEDIATELY! Out of nowhere! You are fine one minute and then BOOM! You are break out in this heat that is unbearable. In fact, its painful! When I try to tell people that, even my doctor, they look at me like I’m crazy! My husband knows and he has even tried to tell the doctor. She won’t even listen to him. Its embarrassing, its humiliating, its painful. And it really does take a toll on you and your life. It makes you want to just sit in a chair with a fan and not do anything. I sure wish they could find something to do about this.

September 1, 2010 at 1:15 am
(16) Diane says:

Thank God someone is talking about this symptom.
I swear that it will be 55 outside and I am walking
a dog and I am sweating buckets. It is so embarrassing.
I also discovered how easy I can become dehydrated now
that I am extremely careful and always have a bottle of water
with me.
The one thing I have noticed is that after I sweat my pain
diminishes often. Anybody else have this reaction?

May 12, 2011 at 7:59 am
(17) Twanad1956 says:

Yes I can say that I know how it is with the sweating thing.I have had to stop doing a lot in my life because of the sweating I can’t cater food or server at weddings or anything else with water dripping off my face,neck and my hair looks like I stuck it under a faucet.I wish someone would help us.I sweat just walking through the house I sweat when it is 25 degrees outside.

August 18, 2011 at 9:46 pm
(18) Linda says:

My head sweats so bad i carry one of my husbands hanky’s to catch the drips from my hair. I keep my hair short cause I can’t stand it running down my neck. My son does the same thing he say’s it’s anxiety and pain. He don’t take any meds. he broke his back when he was in the navy and lost his arm up to the shoulder in a work accident.

September 1, 2010 at 3:43 am
(19) Betsy says:

I was diagnosed with fibromyalgia and psoriatic arthritis 18 years ago. Right now I am in my 4th flare, having started late last year. The sweats are new to me. I have cold sweats and they come on without warning. I could be sitting up in bed reading when suddenly I realize my scalp is soaked and I feel like I have been misted over my whole body. The only think that has worked for me is to immediately drink a large class of water and lie down until the sweating stops. This is just one more thing in my life to remind me that I am sick. Very disturbing.

September 1, 2010 at 5:41 am
(20) Mary says:

Thank you for posting this. In reading the reader’s comments, now I don’t feel so alone in this awful problem.

No one would believe what I go through just to get my makeup on. I have part of a paper towel plastered to my forehead to try to stop the river from flowing down my face. I have another one stuck on my neck. ETC!!!

I tried those scarf things that you freeze in the freezer, but that was not so helpful. I do find that if I rinse a washcloth in cool water and rub it on my neck and up and down my arms, it gives a bit of temporary relief.

You might say, don’t wear makeup! but then I would look like f how I feel and that would be very scary. It’s hard enough keeping friends with these conditions.

I always try to read the links you provide, as they give a lot of extra-helpful information.

Thank you for helping us to become more informed and less alone.

September 1, 2010 at 9:59 am
(21) mandie says:

i use certin dry (wallgreens versioon works too) it closes off the sweat glans its over the counter. i started using it when shooting pool. it kept my hand dry.(some salesman use it so they have dry hand to shake w/) you put it on the night before sometime it takes two or 3 app bsfore full effect. good luck

September 1, 2010 at 11:15 am
(22) Mia says:

To Mary, I know what you mean when you say you have trouble wearing make up. I would be hotter & sweatier when fresh out of the shower. So, I would try to cool down first. Then I would use a fan to blow on me while doing my hair and make up. It was never enough. It seemed like as soon as the make up touched my skin it set off the streams of sweat from my scalp. So I would use paper towels (they leave less lint than tissues) to blot my face I as I went. Until one day I realized that by the time I got done all I had down was futile….make on….make up on paper towels….finished…..but face looks like I’ve been out all day anyhow so why bother. I stopped wearing anything but a little concealer, waterproof eyeliner & wp mascara. I don’t look the way I used to but I don’t feel defeated before heading out the door.

Update on botox. Yesterday was an almost sweatless day. Today I took my Synthroid (I hadn’t taken a full pill in almost a week) and I have been sweating almost like I did before the botox treatment. So depressing! How do you go to your teenage daughter’s indoor & usually non air conditioned volleyball games while dripping sweat? I use a paper fan or a battery op fan, pat pat patting the sweat with a folded paper towel. Embarassing for me and her!

September 1, 2010 at 3:19 pm
(23) abotbensussen says:

I’ve given up wearing make-up, just a little lip tint, my hair gets sopping wet in gym and my face runs with sweat regardless of activity. I do find a little ice cold water, sipped slowly, can help me out a bit. Maybe it’s good for my skin, I look a lot younger than I am. Just turning 70. I know it’s my most noticeable symptom. and I hate it.

September 1, 2010 at 4:03 pm
(24) Dave says:

I wonder what the doctors who blames this on hot flashes/menapause would say is causing this symptom for me,. A 57 year old male with the same sweating issue. I have the problem after showering but I’m wondering if anyone has sweating episodes after eating. This is when it’s the worst for me.

.

June 15, 2011 at 6:48 pm
(25) Shona says:

Dave, yes, I have the problem after eating and sometimes just thinking about eating brings on the sweat. My GP originally told my I had reactive hypoglycemia, but it has been getting worse and now happens at any time day or night. Ladies I know exactly where you’re coming from re make-up. Once upon a time I would never be seen out without a full face on… now… what’s the point when you see it dripping off onto your favourite top .. I hate it. So pleased I found this column as I really did think I was going mad.

October 11, 2011 at 11:45 pm
(26) Sue says:

I have the sweating after I eat as well. At the dinner table I have a fan blowing on me while I eat. So between preparing the meal and running around getting everything ready I’m hot and sweaty from the prep but after eating it gets worse.\
Not much fun when you are out to eat and you dont have your fan.

September 1, 2010 at 4:21 pm
(27) Kris says:

I have the same problem. Freezing one minute, the next I’m soaked. It’s so bad after I shower, that I now only take showers at night so that I don’t have to worry about getting ready and going out afterwards. And forget using the hairdryer… another good reason to shower at night; you can air dry your hair, and having wet hair sometimes helps me cool off.

Like many others, I have pretty much given up on make up, or doing much to my hair. Because I sweat so bad, I can hardly put the make up on, and if I do, then I end up wiping it off with all the beads of sweat. And my hair just becomes this frizzy mess that sticks to my face.

I’ve recently started having really bad night sweats. I wake up in the morning drenched, sopping wet hair and sheets.

Also I’ve recently started sweating buckets under my breasts, which is really annoying. My bra ends up wet and smelling all day, and there’s nothing that seems to help it- not even antiperspirant.

It seems like this mainly happens when I’m doing something physical- even the “simple things” like unloading the dishwasher or taking a shower. If I sit still too long, I get really cold. I think it’s another part to the hypersensitivity from Fibro. It’s definitely something that’s caused me to have to significantly alter my routine. Glad to hear I’m not alone (though I’m sorry others have to deal with this too!)

September 1, 2010 at 5:52 pm
(28) Slinky says:

I’m really glad someone has brought this issue up. I have ME/CFS and Fibromyalgia and have had problems with excessive sweating for years (under arms, face, groin etc).

Do any of you get ‘hot flushes’ as well as the inability to regulate thier body temperate? Or do you start sweating profussely after having a bath? and feel drained/ exhausted/emotionally fragile? or is it just me?

September 2, 2010 at 1:35 am
(29) Kim says:

Kris,
I am a very large chested women and here recently I have started swearing profusely under my chest. I find that putting baby powder on just under my boobs before I put my bra on this really helps.
I am so thankful for this article. I thought I was going nuts. I wouldget so hot and start sweating so bad that I would start to throw up and a couple times be on the verge of passing out.
I am really sorry that we all have to go through this but I am very glad that we have someone who cares enough to help us with important information like this. Thank-you!

September 2, 2010 at 4:32 am
(30) Marcie Myers says:

Regarding sweating profusely, especially the areas around the ears , the scalp, the face, and chest areas: I wanted to make you all aware that ANTIPERSPIRANTS contain the metal aluminum. You can create TOXIC LEVELS of aluminum by using an antiperspirant “all over”. I don’t remember anyone mentioning having recurrent lowgrade fevers (99.8-100.2) which for me just serves to make the hot “hotter”. I’ve always felt that the fevers along with times I’d be having the hot outbreaks regularly that this would be when the virus(es) would have left their hiding places in order to come out and “multiply”. I’d always feel that much worse during that time. I found out several months ago that I am sero-positive for the retrovirus, XMRV and hope to begin with 3 HIV drugs within several weeks. I have no doubt that XMRV will prove to be the causative factor for the other symptoms, including a weakened immune response which allowed me to get EBV, CMV, HHV6, (I should state this more correctly: my body continues to keep HIGH titers to these viruses as though I had an active case which I don’t but my body is reacting to “some” kind of virus and consequently my titers stay fighting mad high. Contact the Whittemore-Peterson Institute in Reno, Nevada and inquire about free XMRV testing if you’ve been diagnosed and have the severe symptoms of CFS. I’m looking at HOPE for the first time in over 16 years and am actually looking forward to taking HIV meds for the retrovirus XMRV until more specific meds are developed. Send your doctors, all doctors, copies of articles about XMRV. 99.9% have never even heard of it and this is your best chance yet at becoming well. MAKE THEM KNOW ABOUT IT! Check out “Phoenix Rising”‘s info on XMRV. Marcie

May 24, 2011 at 2:38 am
(31) Patty says:

@Marcie…Thank you for mentioning the toxic levels of aluminum that our bodies can get by using antiperspirants “all over.” It is known that too much aluminum exposure causes Alzheimer’s disease, so please be careful! I use Tom’s Deodorant (all natural ingredients, no aluminum) under my breasts and at groin line. I still sweat, but at least I don’t stink too!

September 2, 2010 at 2:23 pm
(32) Kristin says:

I too had given up with trying to find a cause. Funny its often the head, which is what I get too. I have found wearing natural and very breathable clothes a great help. Also i found this great hair powder on Amazon LABEL M RESURRECTION STYLE DUST its a tiny bottle, but you only need a minute bit, and it soaks up the after effects far better than any dry shampoo. I hate dripping from my hair in meetings, not much i can do till I escape under the excuse of a trip to the ladies, then stick my head under the dryer, add the powder, use a natural bristle brush, and then hope the sweat is over!!

I am interested to hear more about the botox – how long did it take to persuade yoru doctor? And was this US or UK?

September 2, 2010 at 2:33 pm
(33) Lynne says:

Dave, mine doesn’t always happen after eating, but it often does.

I’d be interested to know if anyone else notices a pattern of sweating worse either right after or a certain period of time after eating. Though it’s probably still controlled by the dysautonomia, perhaps for at least some of us it’s connected to blood sugar issues, which can cause very similar symptoms!

September 2, 2010 at 2:35 pm
(34) Lynne says:

Oh, and a question about the botox… does insurance/Medicare ever pay for this, or is it also something else we have to pay for ourselves?

September 2, 2010 at 3:23 pm
(35) Vicky says:

Everyone is saying it, but it is so true in my case; I thought I was the only one dealing with the excessive sweats. I just put it down to my weight and menapause. This is a great forum for support. Thank you all for sharing. I don’t feel so alone anymore.

September 2, 2010 at 7:25 pm
(36) joan says:

Sweating around the scalp line. All my face, neck, ears and such get wet but the top of my scalp is dry. Exertion seems to trigger it.

September 3, 2010 at 3:42 pm
(37) Mummylady says:

I have always had excessive sweating problems. I am very large busted and I use Mitchum’s under my breasts and under my arms. I also sometime tuck strips of regular white t-shirt cloth or cotton fabric in pads under my breasts.
I ALWAYS cool down in the shower, no matter what the weather. The hot water makes your capillaries expand to expose more blood surface to be cooled and so I get dizzy after showers unless I cool down and shut down those capillaries (this is due to dysautonia!)
Any food with hot peppers or “hot” herbs and spices WILL make you sweat. Wine and alcohol can also make you sweat.
I wear natural fiber clothes, loose fitting, and do not wear panty hose. I go bare-legged and wear long skirts and sandals pretty much March-December unless there is snow. I also wear only leather shoes if I have to wear real shoes.
My feet tend to sweat a lot otherwise.
Wiping forehead, back of neck, in between breasts, over arms, elbows wrists, ankles, knees with a wet towel helps if I am out or have walked to work or have done housework. (Same sort of idea as the shower cooldown)
I am almost always hot and sometimes my skin feels as if I have a fever. My husband and cats love it in the winter!

September 3, 2010 at 3:51 pm
(38) kim says:

I have seriously sweaty feet all day long. No matter what type of socks I wear and even with deodorant.

September 3, 2010 at 4:49 pm
(39) Gabriela says:

I have been in surgical menopause for nine years and take a very low dose hrt for the symptoms, one of which are hot flashes and night sweats. I Still get these bouts of profuse sweating and it is a full body sweat the equals a night sweat (i.e. Drenching me and my clothing Completely!) I find that I get this when I am getting ready to do something socially and I am a little nervous or anxious about going. I get it to a lesser degree after showering and slight exertion but the worst is from social anxiety..It’s like my autonomic nervous system kicks into Overdrive and won’t stop for at least an hour to an hour and a half..By then I am drenched and embarrassed and I feel like I need to leave. It completely Sucks..Espcecially because I don’t often have the energy to go out socially very often. Ugh.

September 3, 2010 at 4:59 pm
(40) Diane says:

Last weekend I went to 2 stores. Both were air conditioned and I was sweating constantly in both. My whole body was soaked in both stores. Sweat was dripping down my forehead and every where else. I had planned on going to a 3rd store but I just went home – i couldn’t take it again.

September 3, 2010 at 5:21 pm
(41) Catherine says:

I’m so glad you are talking about this really disturbing symptom. I can drip like I just stepped out of the shower and I hate it, without makeup I look post mortem. I’ve tried everything but it pours off, you feel clean for a bit after a shower but not for long.. I had on a long summer dress, a really pretty deep purple and nice and cool for Las Vegas weather, I had puttered in my yard just a bit and started to sweat by the time I got in it was pouring off me, I sat down with a towel to wipe my head and catch my breath when I got up my couch was a pretty purple.
I hate this sweating thing, I go through clothes, sheets and towels like crazy. It’s hard to feel pretty or cute or anything. Boy this topic struck home.

September 3, 2010 at 5:43 pm
(42) Debbie says:

I’ve had problems with excesive sweating for years. I was diagnosed 13 years ago. the least bit of physical activity causes me to get extremly hot and then to start sweating. people around me will have iciles on their eyelases and I’m sweating. I am more comfortable if the air is moving, so I live with a lot a fans. I have a battery powered one that I take to the office with me and some times sit by me while watching TV if hubby is an icecube. This has really helped me out more than anything and it is just a small relief, but some is better than nothing.

September 3, 2010 at 6:15 pm
(43) Carol Wong says:

I was having “night sweat” which is sweating all over, only at night and my neurologist ran some blood tests. I have a M spike which is some protein in my blood that if you have enough, you have Multilpe Myeloma. So I need to be montored for the rest of my life for a rise in the level of that particular protein. I had never heard of this before and bet many people have not. Anyway, I think if the sweating is at night, people should get that blood test.

September 3, 2010 at 6:15 pm
(44) Marilyn says:

I really appreciate all the comments. I had suspected this excessive sweating was from the fribro/cfs and am now convinced thanks to everyone having this problem. Now what do we do?

September 3, 2010 at 6:17 pm
(45) Nancy says:

Thank goodness we’re talking about sweating! I sweat no matter what the temperature is. I sweat all over, especially on my face, chest, underarms, hands, and my bottom. I’ve not found anything that helps. All I can do is use powder and deodorant – often with little effect.

I’m very tired of this (0bviously). I cannot wear solid color shirts or any shiny materials. My sweat will always show through it eventually. I also keep my hair short and cannot wear bangs.

Although I live in a “hot” area, Texas, this sweating has great increased during the many years I’ve had Fibro. Just talking about it helps some. This is certainly not a subject I want to discuss in general conversation with friends.

Thanks so much for bringing this up!

September 3, 2010 at 6:27 pm
(46) Nancy says:

WOW! I just realized why I wound up in the ER a few weeks ago! I had just weaned myself off of Cymbalta and was starting Savella. I began to sweat so profusely that I could not drink enough liquid fast enough to compensate. I was sweating through my clothes to the furniture. I was drinking tall glasses of water CONSTANTLY, was burning up on the inside, and was freezing and clammy on the outside. This happened for several days and I was always in a climate controlled environment – never outside. Now I know that having both Cymbalta and Savella in my system- even in very low levels – was seriously affecting my neroprinephrine level. I was dehydrating at an alarming rate. When seen in the ER, they immediately started fluids because I looked very dehydrated. They assumed I had come in from a very hot day. WRONG!!! PLEASE BE CAREFUL WHEN STOPPING AND STARTING SIMILAR MEDS!!!! I will be alerting my doctors immediately. No one ever mentioned it to me. Because of my medical bills with Fibro, I cannot afford medical insurance. Four hours in ER cost me just under $4,000. FAIR WARNING!!

March 12, 2011 at 10:44 pm
(47) Leigh says:

This is very interesting…I have taken prozac for years…and was just given Savella to start up along with the prozac… I also live in a very hot climate, but even in temp controlled environments with normal exertion I am pouring sweat and itchy all the time, not to mention I will be 34 and have the worse facial acne ever!

July 25, 2011 at 6:18 pm
(48) sylvia says:

Savella makes me sweat profusely. .I just don’t. Take. It.

November 2, 2011 at 6:48 pm
(49) Gayle says:

I’m glad to see your post and two replys to it. I have been considering switching from Cymbalta to Savella but based on this thinking not. Cymbalta is doin a pretty good job for me but I’ve heard good things about the new Savella and wondered if I might do even better. But I already deal with sweats, especially at night now, and do not wanna up that symptom and chance gettin more on the plate. Thank you for the post.

September 3, 2010 at 6:29 pm
(50) Mog says:

I don’t actually sweat at all. Which is obviously preferable to all these stories. But I do suffer with any rise in temperature – I hate the summer months – I just feel iller in any heat. I wonder if my inability to tolerate the heat is to do with the lack of sweating, that I can’t cool myself down. Admittedly I was the same before the ME, but my ability to tolerate the heat is now much worse.

September 3, 2010 at 7:21 pm
(51) Lois says:

For those (like me) who find excessive perspiration under their breasts to be a problem: I found a product, called, interestingly enough (!!!) Anti Monkey Butt powder that I find quite effective. I believe that the manufacturer also makes a LADY Anti Monkey Butt formula, in a lovely pink container, which contains some sort of baby powder/calamine whoknowswhat talc — but it works. Cuts down on the perspiration and the chaffing that may result from a damp bra.

September 3, 2010 at 7:29 pm
(52) JUDI says:

I can never get my hair dry after showering. Like Diane, going into stores (even when I am on my scooter) leaves me with soaking wet hair. Walking just a little has the same result.

September 3, 2010 at 8:50 pm
(53) Mary says:

My problem is that I don’t sweat enough. This has always been the case with me. I also suffer with multiple chemical sensitivities, and this is thought to be directly related to my body’s inability to detox through sweating. It seems that in addition to the symptoms which we share in common (pain, fatigue etc.) each of us has our own unique symptoms.

September 3, 2010 at 9:02 pm
(54) Mia says:

So today is 1 week since I received my botox. We paid out of pocket because right now I have a very simple insurance plan. It is not worth crap but with my history of breast cancer, cervical neck fusion, another torn cervical disc and the lovely Fibro just to insure me on a better plan is $1,000 per month minimum. We sold our house and rent now to save money. Well the botox was over $500 here in Ohio, USA They injected my forehead, upper lip and chin. I have sweat from my scalp, nose and cheeks too. But she didn’t even want to go beyond treating my scalp for fear of me loosing facial expression. I urged her to please do the lip & chin. The areas that were treated are definitely sweating LESS!!! I still fell overheated and sweat from the other places but at least it is reduced in the areas that are noticeable. If I could also have my scalp done in a few places I would feel better. But this is an improvement. And it might get better yet, they say the full effect can take until 13-14 days after. Would I do it again? You bet! I can now wear a little makeup and feel a little more like myself again. But Fibro is ruining my life in other ways that a shot can’t help. My ex has decided since I sleep so much and don’t work that I must just be lazy and has passed that off on our teen daughter. My new hubby takes awesome care of us both but now daughter wants to go live with her dad! Lord help us all!

September 3, 2010 at 9:16 pm
(55) Roxy says:

I suffer from this too — have found some relief from taking the herbs kava (anti-anxiety) and Butcher’s Broom (helps with vasomotor syncope), stopping Cymbalta, and using strong antiperspirant on face (irritating to skin though). My pharmacist commented that using Inderal might help; this hypertension drug is sometimes used to help with stage fright. Has anyone tried Inderal?

September 3, 2010 at 9:30 pm
(56) Michelle says:

OMG I have been noticing more and more of this. Everyone thinks I’m nuts because I am 32 years old and getting hot flashes. For the most part, I sweat while I’m getting dressed and doing makeup and hair, but lately I have been noticing this when I clean house. Yes I used to get hot while cleaning, but now I drip sweat. I have always hated the heat but this summer I tried to avoid those hot days by staying in the air. If this is what menopause is like, I don’t want it. Can’t I get a break because of the hot flashes I get now? Isn’t that enough torture at 32?

November 2, 2011 at 6:53 pm
(57) Gayle says:

Michelle,
I know how you feel. My sweats started when i was about 35. At the time, I was told it was not menopause but they didn’t know what it was. About 5 yrs later, I was getting them loading the dishwasher so I told the doc we need to figure it out. It turned out to just be another symptom to add to my list and they finally! diagnosed me with Fibro. Now I deal with it more often and try to figure out how to make it stop because it is the most noticable of all my systems. Finally a Fibro symptom the world can see. Only they think it’s something else and I just want it to go away.

September 3, 2010 at 11:00 pm
(58) Linda says:

Empathise with all of you above. Have found ‘Summer’s Eve’ a Godsend for the under breast and groin sweating. When it gets out of hand and huge itchy rashes appear I use ‘Hydrozole’ cream (over the counter) which is a mixture of mild cortisone and antifungal. Works very quickly and I have had some horror rashes that my husband has photographed. A pharmacist told me to use this until rash cleared and then continue with an antifungal (Canestan) alone for two more weeks. I try to get to it quickly now before it gets bad.
Am pleased that this sweaty thing is not just my being overweight or loony (or both)! Hate it too. Live in Brisbane, Australia – get hideously humid summers – pool and aircon are all that keep me sane (ish).
Had a weird sweaty ‘turn’ recently when taking Lexapro for the first time. Even scared my calm husband – face red with white around mouth. Anxiety made me light headed then. Ruined weekend trip. Have stopped Lexapro and can at least have an orgasm now (not that I have much libido) and no more scary red faces. has anyone had this effect with Lexapro?

September 4, 2010 at 12:38 am
(59) Tammy says:

Wow… I thought it was just me. I can sweat while standing near an air conditioner. I carry a washcloth with me at work to mop up the sweat. People tell me that my skin is so cold and clammy and can’t believe I am sweating so much. I have fibromyalgia also with DDD, arthritis, carpal tunnel, and now sleep apnea. Something new all the time.

September 4, 2010 at 9:29 am
(60) Shelly says:

At first, I thought it was pre-menopausal, somehow connected to my hormones, but I’m not really sure anymore. I can have a “sweating flare” when I just THINK of something stressful. Other times, I am perfectly fine and the sweat drips from my head. Night time is bad, usually within 10 to 15 minutes after laying down I will have an episode. Then I fling covers off and try to get comfortable for quite a while after. When I finally do feel like I could sleep, I become very cold and wrap covers back around me, somtimes shivering to sleep! It has gotten worse in the past 3-4 mos. When I’m at a store, visiting friends, whatever I’m doing, I am prone to sweating. I’m very frustrated and wish someone knew how to turn it off!

July 24, 2011 at 11:07 pm
(61) Lori says:

I have been diagnosed with fibro for 16 years. But in the last 2 years I started with this sweating thing. When I have a bad fibro flair I start sweating and have cold feet. I mean really cold painful feet. Soaking in hot water is the fasted way to relieve discomfort. I have never been a sweater and started wearing a hormone patch when I started with hot flashes at 49 yr old. This new sweating is out of control- changing clothes at night several times. Also during the day- sweating then chills and goose bumps. Hot/sweat- cold/chills all day long. Like bad hot flashes but not due to hormones- due to fibro. This is a new fibro symptom for me, glad to heqr I am not alone! Does anyone else deal with the cold feet thing during a flair?

November 2, 2011 at 6:59 pm
(62) Gayle says:

Lori,
While my feet don’t seem to get the painful part of the cold feet, they do get very cold at times. One night I might not be able to get warm but yet I still sweat some and the next night, I’m super hot and sweat a ton. My feet seem to always be cold. I invested in some microwavable feet socks but only heat them for 1 minute or they are too hot. Not sure if this will help but it has seem to even out my body temp a little by just warmin up my feet. Still sweat some but I’ve just begun some new meds too so not sure how it’ll all play out yet.

August 1, 2011 at 7:42 am
(63) Dave says:

Hi Shelly,

Just reading this amazing forum. I thought it was me being overweight( BMI 42) but i am so” relieved” to see I am not alone (although; my commiserations to all of you as we are all in a very uncomfortable situation). I can say that my symptoms are identical to yours. I find the only thing that helps me is cool air and lots of it, which when in the office on a day -2 C degrees everyone thinks you have totally lost your marbles. it is especially bad before important meetings and then nobody is listening to you but rather watching your forehead which is threatening to flood the room!!!!!!!!!!!!

September 4, 2010 at 1:27 pm
(64) Zella says:

This site is a wealth of information. What a relief to read I am not alone. Sweating after a shower, any exertion – literally drips off me, especially my head — my hair never dries. The cycle of sweating and freezing is so common for me during the night.

I have found that Clubman’s Talc makes a huge difference– it is zinc based so no rash develops. Before I found it I was using Aveeno Anti-itch cream, which is marvelous. It stops itchy rashes after only a few applications. You can use talc after you apply it.

Again, thanks so much for all the wonderful information found here.

September 4, 2010 at 6:42 pm
(65) Linda says:

I have just read everyone’s comments and I am utterly astonished that I am not the only person in the world with this problem. I have been doing research for two days now to try and find a cause for the excessive sweating. All the symptoms described are exactly the same for me and my doctor had me almost convinced that I am still going through menopause. No way! This summer has been horrible – the humidity has almost done me in and the air conditioning sends shivers throughout my sweaty body, head, neck, face, back, chest, and underarms mostly, as it dries. I don’t go anywhere due to the embarrassment and smell. I change my clothes 2-3 times per day and also suffer from night sweats. There just has to be a solution! Now if we could just find someone or something to help us.

September 4, 2010 at 11:30 pm
(66) Sr Sharon says:

Yes Adrienne, I have a massive problem with overheating and sweating mainly from the head. I ran the Air Cooling all during winter because I felt like a prawn thown into boiling water. It is so severe I nearly pass out with it and have to lie down, even on the floor at times if I cannot make it to the bed. The shower is worse and though I need warm water for my neck and back, I have to keep it temperate. My is partly the FMS and the Medications, but I cannot manage without the medications. Lately I have been desperate with pain. I am just sick of the whole thing. I hope to see a Musculo-Skeletal Specialist soon to see if Intramuscular or other Injections can lessen the spasms. Thanks for your article. My sister has now developed the condition full blown and we have a cousin who has had it for years, well 2 cousins really, but from different sides of the family and my mother has it so there must be some genetic component to the condition, set off by Infection or God Forbid, cross infection even. Research is what we need but there is nothing much happening here in Australia. It seems to get more attention in the USA.

September 4, 2010 at 11:56 pm
(67) Sandy says:

I have this sweating problem even when sitting and in winter so heat doesn’t have much to do with it. I also have noticed I start feeling warm and sweating while eating, but the very worse part to me is the freezing and goosebumps when I am soaking wet all over and go into a place with air conditioning. I feel like a crazy person shivering like I am in a freezer, sitting in the hospital or walking in the grocery I am miserable and a stinking mess from the sweat. My doctor of course said hot flashes, it’s been 12 years since I went through the change, but of course she put me on another drug. The only good thing seems to be losing weight, I have lost 50 lbs in six months without trying.

September 5, 2010 at 12:46 am
(68) Jacquie says:

So glad I found this column! Several years ago, I found an article that said some anti-depressants can cause sweating. I changed from Doxipin to something else and the problem went away. This, after 2 1/2 years of being told “Hormones!” However, now the sweating is back, with a vengeance, and I am not taking any anti-depressants. I suppose it is just the fibro,– but I don’t have to like it!

September 5, 2010 at 11:46 am
(69) joan ravallo says:

my sweating is mostly chest and breasts and comes at night and wakes me up, ggggrrrr. my doctor even had me run to the er for blood tests in the middle of one. this showed mycoplasma infection. but dont know if it was active or not. he didnt say anything about treatment, of course. but when this does occur, i feel terrible when i wake up in the morning . i know im going to have a bad day or bad spell. it usually happens 3 or 4 times in a row, and then it stops for a while, then starts up again. it is definately a cycle type thing. but i have had months when im in a good spell when i dont have it.

September 5, 2010 at 3:31 pm
(70) Debbie says:

I can’t believe this, I am not the only one!! I’m 56 yrs old and used to NEVER sweat but in the last few years, it has gotten worse and worse. I thought it was menopause, (Drs said it was… but 8 yrs??), then they said too much thyroid med. We’ve lowered that and sweating is still a problem. DHEA test was ordered and that was a big SHOCK. Normal blood levels for my age should NOT be over 414, my reading was 1300!! Some symptoms of high levels of DHEA in the body is excessive sweating, hair loss, deepened voice and the growth of facial hair!! Oh my gosh. So my endocrinologist is monitoring me and is baffled.

My sweating can be horrible. I get out of the shower (cool water) and at times can get makeup on if I hurry. Normally though, I have to go in stages… stand in front of the fan, eye liner, go back and stand in front of the fan, eye shadow, back in front of the fan, some fast blush. I can’t tell you how many times I’ve had to leave the blush brush out to dry! I’ve started to wear my hair up in a pony tail to get it off my neck My bra stays damp and my underwear is always damp too(I never thought I’d be TELLING anybody THIS)!! I’ve been using Ammens powder. Sexual relations with my husband ends up with my sweat making ours bodies SLIDE. He kisses me and he has to wipe his mouth,says it’s like kissing a “wet washrag.” I sit in church and when I break out in one of my sweats, I use the bulletin to fan my face, I just want to hide. These sweats come out of nowhere, they are very Powerful & fast, like I have a sauna inside my body. After a few minutes, it subsides.

To top it all… I have scoliosis & the pain is out of this world. So I must sit with a HEAT PAD behind my back. You can’t even imagine having this sweat problem & having to sit with a heat pad cranked on High.

I’m not alone, nor am I crazy. Lord, help us.

September 5, 2010 at 3:51 pm
(71) Margo says:

I’ve had FM for over 3 years, but it’s only been recently that I’ve had a problem with sweating, so I’m not sure my sweating is connected to fibromyalgia. However, I have very recently (in the past couple weeks) been having other symptoms that sweating might be related to… maybe. I’m still being diagnosed for these new things.

But regarding the sweating, for me it’s not just being out in the heat (which is really good for my fibromyalgia overall), but any bit of exertion. I mean, it’s really ridiculous how little exertion it takes for me to just break out in a sweat as if I’d been doing back-breaking work. Vacuuming & cooking, for example, cause me to sweat profusely. Cold showers seem to help, but what seems to work even better is to do something sedentary for a while to cool down.

For me, being in heat is a contributing factor, but the main thing is exertion, even very little exertion. I go outside and pick a handful of baby weeds and I have to come inside because I’m sweating so much, although you’d think I’d just dug up a field of potatoes for the amount of sweat.

This has just been recent, so I haven’t even talked about it with my doctors, especially as I’ve had so many health things going on that makes this sweating sort of fall by the wayside. I guess I should tell my doctor(s) about it though.

Margo

November 2, 2011 at 7:10 pm
(72) Gayle says:

Margo,
I see the date on your post is from 9/2010. Hope you’ve gotten some answers. Yesterday I told my husband I seem to live in Nowhere cause that’s where I always end up when I go to see a doctor! My most recent visit was to a Rheumo specialist. She took 15 tubes of blood and about a cup of urine. Results: no problem except a small amount of micro blood in my urine. even said all my muscle inflammation was normal. But this did not match what my other doc said when he put me on Cymbalta about 2 yrs ago! Which something would make sense and match all my pain and fatigue. Sorry to ramble.

I was responding to your post because it’s sounds so much like me. They only diagnosed me with Fibro about 2 yrs ago but I’ve been dealin with the symptoms for about 15. About a year ago the sweats started up really bad doing little things like loading the dishwasher and folding laundry. Like you, I’d have to sit for a period of time to “cool down” even in the winter. I was way outta balance, two hours in the yard was a four hour nap to recoup; 10 minutes loading the dishwasher was 1/2 hour resting on couch to re-energize. I didn’t like the ratio. So I started pushin my doc again and we decided a specialist was in order to confirm the Fibro rx. Now it’s back to testing of bodily fluids and meds to rule out everything. So I kinda feel like I’m back to Nowhere and startin all over. Time will tell if it’s more than Fibro or just more symptoms of the same.

September 6, 2010 at 8:52 pm
(73) Naomi says:

So it’s a symptom of fibromyalgia! I sweat mostly at night while trying to sleep. I’m up and having to change my sleepwear 2-3 times per night. It is good to know that I’m not alone in this.

September 7, 2010 at 4:19 pm
(74) Shannon says:

Thank you, thank you! My sweating is out of control. Plus I live in Houston, where it is almost always really hot and humid. So you can imagine the rivers of sweat I typically have. I take cold showers and then try to air dry under the ceiling fan in my bedroom, and I apply baby powder everywhere, but nothing seems to help. I sweat all over, too — my head, neck, face, back, under my breasts, and (how humiliating) my butt.

I also have this weird thing where my body temp seems to rise overnight rather than fall, like a “normal” person’s. I have to keep my house at 68 if I don’t want to wake up in the middle of the night covered in sweat.

Granted, when compared to the neverending pervasive exhaustion and full-body pain, sweating isn’t THAT big of a deal. But it’s certainly embarassing and definitely affects my quality of life.

September 7, 2010 at 8:32 pm
(75) Judy says:

Since before I was diagnosed with Fibro/CFS I was always sweaty but never under my armpits. I now sweat so bad all over my body but my body remains very cold to the touch and my feet are alwsys freezing cold. What is this about?

September 9, 2010 at 9:44 am
(76) Jennifer says:

I had this problem too when I hit the apex of my chronic fatigue symptoms. Thankfully it has gone now as I seem to be going into remission of the worst of the disautonomia. I would break out in a sweat from loading the dishwasher! It would be in my scalp, but also under my breasts and crotch. It felt awful–I would sometimes go change my underthings because I got so sick of the damp/clammy feeling. Even before the cfs hit, I had problems with blow drying my hair–most of my life! Hard to have pretty hair when your scalp is sweating. Now I mostly air dry and use a diffuser on low and that has eliminated it for me. But I have curly hair and can get away with it! Just keep improving your diet. I think diet and poor digestion are predisposing factors to these syndromes. I have recently come across some information about fructose malabsorption that I personally think could be a contributer to the development of these syndromes–it causes IBS symptoms and MANY of us have those. It may not be a symptom, but a cause. Look into it if you think you have digestion issues. It can keep you from getting all the nutrients from your food. I have eaten a stellar diet for years and still got cfs–but I’ve always had bowel probelms. Now I think I may know why. This fructose malabsorption is a new discovery, from Australia and they are doing research there. Google it or read Wilipedia for more info. Cheers!

September 10, 2010 at 6:27 pm
(77) Judy says:

I too suffer from this! I had a total surgical hysterectomy in ’95 and was dx’s with fibro in ’99…still suffer with terrible sweeting….all docs say is menopause…ha! that was a long time ago. I suffer terribly mostly on head, sometimes back too. It just drips and drips. I have rx for cream from derm. doc for back which helps there but suffer with head. Question for everyone…has anyone ever heard of any clinical trials for help with this? Has anyone had enough clout to suggest some kind of study where SOMEONE with a MD would LISTEN and maybe study this seriously?

September 12, 2010 at 6:40 pm
(78) murna says:

I am interested in all the comments about sweating,I am going to try the Vit C as I have so many issues ,but I had cancer [colon]i was told that I had only a few months but the blessing was I overcame the problems [even though I had a terrible toxic reaction to chemo.]Then I got a vius and like the rest of you I have gone down with all the symptoms and one is sweating my whole body never stopped .I had so manuy problems after the surgery that I was put on a medication called Oxybutintin [ this was for a bladder problem,the medication is a Anticholinergic as well as for bladder problems] I am not sure if it is available to everyone but it sure stops the sweating 5mg B D once you settle down with the medication .I can only say I was nearly at breakdown stage with all the washing I also have a severely handicapped son ,so all I did all day was sweat and wash,to me it is like a miracle now .I do not know if this would help anyone or as I said it was for another medical condition so you would have to discuss this with your medical Doctor.
You have to watch your teeth as mouth is dry at times so take care there, dicuss that issue with your dentist.

September 12, 2010 at 7:25 pm
(79) Murna N Z says:

Just another comment about the medicaion Oxybutinin it helps with the sweating as I have mentioned but it does not help any other symtom with people who have C F S like I have ,I still have terrible headaches sore throat and fatigue and all the rest ,so I do not want for any one to get their hopes up that it helps other symtoms,Regards

January 17, 2011 at 11:07 pm
(80) Kate says:

I want to say, as I read your letter it I couldnt believe the similar things we have had I to had cancer 2 times Ovarian Chemo and all that I to had a virus in the summer Did Vit C do anything ,for the sweating ? I also have headaches High blood pressure .After I read your emails I took the Oxybutin and it took away the sweats I want to thank you so very much for this advice I can put up with the dry mouth .I hate the sweats This has helped me soo much
God bless you for that Kate

September 14, 2010 at 6:32 am
(81) Avril Simmons says:

I have excessive sweating which was put down to menopause, but seeing all these comments confirms my belief its part of the syndrome. I suffer from sweating which just suddenly flares up – my scalp and neck, under my breasts and my body feels ‘misted’ over as if a fine spray has been applied. I carry a large man’s handkerchief always, to mop up. It’s pretty embarassing, but most of the folks who are in my life seem to understand it’s part of my condition. Sometimes I need a tea-towel its so bad, and like the others, it just washes off my makeup! I have FMS, osteo arthritis and psoriatic arthritis and the excessive sweating affects my psoriasis causing eruptions on my head, ears, nose, chin. Lovely! This needs to be taken more seriously – it surely affects our quality of life and research needs to be done!

September 14, 2010 at 9:09 am
(82) Kathy says:

I thought I was going crazy with the sweating thing. So glad to know I am not alone. It can be freezing and snowing and I will just pour sweat! I hate it!!!!!

September 14, 2010 at 9:41 am
(83) LGH says:

Oh, the sweating! From the head & under my breasts, it gets so hot under my breasts I reckon I could fry an egg. When I’m really sick it smells funny too, my bras smell vaguely like urine, yet I don’t get that BO smell. Just after the shower is the worst for me too, especially in summer. I start with the water hotter & gradually turn it back to luke warm before I get out. Still need to stand in front of a fan after & I put on my clothing as the last thing, so I can cool down. When its bad I put white vinegar in with the wash or the wierd smell doesn’t come out of the clothing. It also corrodes my metallic glasses frames pretty badly. It strips the colour off them.

In the last year I began another bad FM flare & I’ve had night sweats too, I thought at first I was peri-menopausal. I also take Tertroxin for Hashimoto’s & one of the side effects is, you guessed it, excessive sweating. I can start for no reason, a slow shuffle through an air conditioned shopping centre can set it off. I get so wet with sweat & red & hot I’ve had people think I’m about to have a stroke & they make the embarassing comments about the sweating too. What do they think you can do, turn it off?

I don’t wear much makeup these days either. I’ve had some success recently with mineral makeup staying on, but make sure its bismuth free, or it itches like crazy with all the perspiration.

September 19, 2010 at 11:02 pm
(84) Lynette says:

Sweating during and/or after eating was partially the result of my blood sugar dis-regulation. I was diagnosed with diabetes about 18 months ago, so now my meals are much more balanced. I eat every three-to-four hours to prevent a drop in my blood sugar (hypoglycemia), which can also cause sweating. Another simple cause was eating foods, like soup, while they were still steaming. Now I eat smaller servings and switch between steaming foods and cold foods like salads.

Sweating at night while your extremities are freezing can be the result of your body responding to shock. Shock can be caused by a number of things made worse while you are sleeping: low blood volume (which can be caused by dehydration from – you got it – sweating!); low blood pressure/neurally mediated hypotension/autonomic dysfunction; an inadequate intake of oxygen caused by sleep apnea, nasal congestion, or asthma. When your body goes into shock, blood is redirected to your core so critical functions can be maintained. In my case, a mild form of asthma was causing this to happen.

From one to three days prior to the start of my period I also have night sweats-especially from my head. I sleep with a fan on my nightstand and I point the fan at my head to cool it down. A wet washcloth on my forehead or the back of my neck helps, too.

The most effective powder I have found is “Quinsana Plus” with 1% tolnaftate (purchased in the US). This powder is an antifungal, absorbs moisture, and feels very silky. One of the things I especially like is that it doesn’t clump when it gets wet, which I find is a problem in my shoes.

Sweat residue irritates my skin so I carry makeup remover cloths with me when I am away from the house. This keeps my skin from becoming itchy and the cloths provide some cooling benefits.

Multiple Sclerosis patients can experience similar symptoms and many of their support forums provide product information and good ideas for finding relief.

September 20, 2010 at 9:44 pm
(85) linda says:

interesting, I just told my Gyn Doc about it and he said it was not hormonal and probably I just needed to loose weight. It is so severe at times, I find myself avoiding social situations when I am in the “sweating mode”

October 28, 2010 at 12:59 pm
(86) kimg. says:

For the past few years I have lived with excessive sweating, mostly in my face and scalp. If the sweating isn’t embarrasing enough, my face turns the deepest shade of red. This happens several times per day, mostly with no physical exertion. I work at a primary school so I am constantly around people. I want to crawl under a chair and never come out when people comment on my red face and sweating. Of course I am the only like this so they think I am a freak, well I think I am a freak. It can be 30 degrees outside, everyone around me freezing with layers of clothes on and all I am wishing is that a blizzard wind will start blowing to cool me off.

After the sweating begins, I become short of breath and so tired I want to lay down, and I start yawning. I have been to the doctor, been in the hospital, and no definitive reason for my symptoms.

May 21, 2011 at 6:31 pm
(87) Jamie says:

Same thing happens to me. Out of the shower, take an hour to put on makeup. Blowing air to cool off and dry the sweating. Then when I eat, excessive sweating & then 1/2 hour later I get extremely tired. Can’t hold my eyes open?????? Pleae help.

November 9, 2010 at 8:29 pm
(88) marty says:

I sweat like no tomoro. I’ve read all these blog s, I’m sweatingas I write this I sweat all night long ,,sometimes I don’t sweat at all ,,we still don’t have any answers ,I just know I’m over it started about 6 months ago ,I sure wish someone could help us .I have no clue what to do ,,it happens after I eat a lot ,I just talk to somebody and I start sweating then stops .my pillows art drenched help I’ll try anything !!!@

November 11, 2010 at 12:48 am
(89) ginny says:

How do all of you just accept this… it is ruining my life… i can’t sleep because I’m drenched all night and then I can’t functon all day because of sweating profusely all day… there must be a reason… why isn’t anybody concerned enough to find out why, why doesn’t anybody want to find out why we are like this… I won’t accept it, I can’t live with this along with everything else… search people, search… lets help one another… talk to your drs… do SOMETHING….

November 11, 2010 at 2:06 pm
(90) Linda says:

I have been trying to do something about it for quite some time now. I have searched the internet, I have talked to my doctor, who contends that it has something to do with menopause. No way, I am finished with menopause. I did try and take Oxybutynin (Ditropan, Lyrinel XL) which is an anticholinergic medication used to relieve urinary and bladder difficulties. Oxybutynin is also a possible treatment of hyperhidrosis, or hyper-active sweating. This helped with both problems but the side effects are several and the acid indigestion became too much. My doctor wants me to try again and I might just try it again as I enjoyed not having the sweat pour down my face, neck, and chest. Besides this I am at a loss as to what more can be done. If anyone has any ideas, please let me know.

November 11, 2010 at 9:55 pm
(91) Ginny says:

Linda,
I’m sure you have tried like everyone here… it’s SO AWFUL.. something has to be done about this for all of us who suffer with so much…
After two months of suffering and waiting to see a endocrinologist yesterday I saw one right from down BELOW…it was one of the worst experiences of my life… he told me that even though I’ve had a FULL HYSTERECTOMY I’m still in menopause and that I had to see my gyn and my dermatologist for BOTOX… I was a good hour away at a huge group of Hospitals for this app. and good thing I brought a friend as I cried all the way home from despair… what was I going to do now??? After getting some sleep I called my primary care doctor and told them what happened and then I called my gyn dr. and got an app. for tomorrow.. I then called the office where I saw that horrible dr. and talked to the secretary there and told her what happened and she told THE CHIEF OF THE ENDCRONOLOGY Dept. and he called me back within 5 minutes… He apologized and told me that he personally would like to work with my drs. to try and help me and stated that this dr. would be disiplined for his actions… another dr. was in the room, a very sweet young woman dr. and she couldn’t believe it but she could testify for me.. So we’ll see what happens… I guess we just keep trying… God Bless You and all of us here..

December 15, 2010 at 2:46 am
(92) Fraser says:

I am diagnosed with FM. I seem to be very sensitive to heat, the result of which is profuse sweating. My back seems to be the worst, with it becoming saturated. However, it is generally all over. Strangely, I can feel cold soon after (like fever). The sweat also feels very sticky ie it does not seem to completely dry – needless to say, but clothes are wasted after this. This is not my recollection of “normal” sweating. Is FM sweat different to normal sweat? I also note the sudden onset of sweating that can come from exposure to heat or stress.

December 19, 2010 at 4:07 am
(93) Avril Goodall says:

I am so glad to see this discussion – I have been suffering in silence with these very embarrassing hot sweats, and more recently, it is affecting my hearing, since I use two hearing aids which are constantly malfunctioning due to getting wet!!!

I have tried so many things to try to reduce them, but no joy.

December 20, 2010 at 2:38 am
(94) Judy says:

Oh my gosh. I thought I was the only one. No Doctor would listen to me, only told me I was menopausal. I’m 63 years old and still on hormones for hot flashes. I know it not menopausal. I am at my wits end. I don’t know what I can do. After reading what all of you wrote I am glad to know this is not just in my head and that there are others out there that have the same symptoms. I get extremely hot, I sweat profusely, I feel drained like I can’t even stand up anymore. I can hardly go grocery shopping because I never know when these attacks are going to happen. My husband goes with me and gets me water. We used to think it was because of low blood sugar because I have diabetes but I’ve tested while this is going on and my test is normal, not low. And this is what it feels like. Like my body is being attacked from the inside out by heat, sort of like baking. I keep telling my husband I am going to combust right before his eyes. Sometimes it’s so bad I have to go to bed and then I still have the hot flashes and feel very weak. At least I am lying down. Sometimes I have to stop driving and sit there until it passes. I finally got on the internet to see what I could find out what I can do about them. I feel worse that you all seem not to have found anything to help and I feel better to know there are other people that have this same problem and I’m not going crazy.
Thanks for all your stories. I wish we could find some help. I’ll keep looking.

December 21, 2010 at 1:47 am
(95) shalee says:

Wow I thought I was alone with this issue. Have been diagnosed with a million things which fibro, chronic headaches, deg. disc diease, depression, high blood pressure, vitamin d def., and fluid build up behind my ears that causes ringing and pressure. I pour sweat during the day when the heat is on in the house and at night when I am in bed cold as can be but sweating. I hate this cause I sweat from my head down and alot of sweat which really is very embarrising and during the summer I can’t go out at all without my hair pulled back and yet I sweat like I would have been running a marathon. Forget going out in public and it always follows me then. No dr seems to think it is a issue but me personally do think it is. Well thanks for letting me share!

December 23, 2010 at 4:46 pm
(96) Andy [Andrea] Peirce says:

Thank goodness, after all this time, I have finally found out what is causing my terrible sweating. I was diagnosed with fibro several years ago. It is SO embarrassing, and annoying to have to keep apologising to people about the sweating – mainly from my head, like a fountain, onto my ears, glasses, etc., and my back and upper body. I am constantly wiping my face with a kitchen towel [tissues are a waste of time!]. I rarely wear make-up now. When I finish showering, the activity of drying starts the sweating in a big way, so when I’m dressing to go out I sit and cool down before I put on my clothes. I walk around with a hand fan like some Spanish sinorita. I have to wear lose, natural fibre clothes without sleeves. The advantage there for me is that I live in the tropics. Then when everyone is warm, I feel cold and have to use a shawl. It’s crazy. I went through menopause and cold sweats ago, and that was different. I feel so much better now that I know I’m not the only one.

December 27, 2010 at 12:18 am
(97) Michele says:

So I suffer from excessive sweating from my head, neck and chest mostly. I have been having this problem for about 2 years now. I am about 50 lbs. overweight but this started before I was overweight. I am now overweight becuase I can never do any kind of activity. The slightest movement even trying to take a shower, get dressed, wash dishes or anything i start to sweat alot. My underarms are mainly okay becuase I have clinical strength deorderent to put on.
My sweat does not smell.When I am soaked I could easily squeeze my clothes and the water runs out of them. My hair gets so soaked it looks like I just washed my hair and then to top it all off I get really cold sweats after I start to cool down and I am sitting . I always need the icepack on my head also I get very bad migraines. I also need the air conditioner and fan blowing on me. My skin feels cool to touch yet my face is beat red and I am drenched in sweat. Continued on next post. Michele

December 27, 2010 at 12:20 am
(98) Michele says:

I cannot stand this. I have been to several drs and none of them can figure it out. They all say that I do have a problem but they just dont know what it is. I have had several tests more than I can name including blood work and sometimes the bloodwork comes back abnormal and one minute they think I have Pheochromycytoma and then the next minute my bloodwork is fine so then they dont think I have pheo and then they give up and on to the next willing dr.
I am going crazy. I have lost most of my friends cause they dont understand that I cant do anything without going through all of this and afterwards I end up with the chills and a bad headache. It is not worth going through this so most of the time I am just sleeping or laying on my recliner so I dont have to go through this. On top of everything I also was diagosed at the age of 17 with Fibromyalgia so that surely does not make it any better. I cant even make it to Wawa and family functions are another embarrassing thing. Everyone looks at you like why are you sweating its like winter time and I am dressed like summertime yet still drenched. If anyone else is like me please contact me. I would like to talk to someone that is also going through this. Also if anyone has any answers that would be great or any suggestions! Thanks! Michele

December 28, 2010 at 11:05 pm
(99) Kitty says:

I have found an great site for this problem the answers are in here check it out very helpful I am trying
oxybutynin. It took a few days.. good luck…. kitty

http://www.scumdoctor.com

January 2, 2011 at 3:16 pm
(100) Judy P says:

I too, have been dealing with increased sweating. When I first started Savella, I had terrible sweating – drenched all the time, even on my palms. Now, I break out in a clammy sweat with minimal exertion (walking across a room), after eating, and after showering, I also use a fan to try to dry off more before I get dressed.

I’m not willing to rule out peri-menopause, as I’m 51, and also starting to have heavier periods, but really think much of it is related to the medicine. The Savella and Lyrica combination works very well for most of my fibro symptoms, however, so I bought a “clinical strength” antipersperant that keeps me from smelling like I did when I was 13, and I’m actually dry under the arms. I am also using powder more than ever before.

No night sweats, however.

January 3, 2011 at 3:30 pm
(101) Ginny says:

Since commenting on the site I went and saw an endocronologist after a two month wait and he came in and told me THERE WAS NOTHING HE COULD DO FOR ME AND TO GO SEE A GYN OR A DERMATOLOGIST AND WALKED OUT AND LEFT ME IN TEARS…it was awful….
Then I went back to my gyn and she put me back on 2mg. of pure estrogen and after about 3 weeks at least the night sweats stopped but the day sweats didn’t and now i’m back to bad night sweats and day sweats and I see my gyn tomorrow… I’m at my wits end and life is awful… I don’t know how to deal with this any longer… I’m going to go to the site about the oxybutynin…. oh God please hear me….I pray for help for myself and ALL OF YOU.. I can’t live life like this, and nobody understands… my brother told me last night that this is my life and I have to learn to deal with it.. I do, I can’t go anywhere or do anything.. I’ve become a couch potato and very, very lonely and what makes it worse is nobody seems to care.. I guess they do but they don’t know what to do or say so I get ignored…
Ginny

January 3, 2011 at 3:58 pm
(102) Linda says:

I understand exactly what you have been going through. Been there done that. Right now we are in the middle of winter -24 C below. Sweating is not as frequent as in the summer time but still have day and night sweats; especially getting dressed, after a shower and when I am stressed. I keep saying to myself, “stay calm, don’t get frustrated and try to deal with it until somebody comes up with some help”. Physically it doesn’t help but emotionally I am trying to deal with it. I haven’t found a doctor who can help so I need to learn how to deal with it myself until I find some help; otherwise I could go insane. Its good to share with others so you don’t feel all alone. As with the pain, excessive sweating is just another symptom people with fibromyalgia must deal with that nobody else can help with. Take care and lets all hope and pray that we get help soon.

January 11, 2011 at 7:53 pm
(103) Kathy says:

Gosh, most of you guys are a carbon copy of me! I have fibromyalgia (wish the dr’s would figure out what it really is) and thyroid disease. I sweat profusely, whole body, dripping sweat. I take cold showers, doesn’t help much, but a hot shower would be unmerciful.
I live in Florida so summers are unreal for me. I basically live in my pool and even sweat while I’m in there. In fact, I became so hot while trying to cook supper tonight, I went and put my feet in the pool. The water temp was 54 degrees but felt like heaven.
I have had the sweating problem for the last 15 years or so and gets worse each year.
I wishn Dr’s would take us serious. Possibly a problem with the endocrine system?????
The only thing I can do for it is sit still, drink lots of water and take potassium for cramps from dehydration.

January 12, 2011 at 8:31 pm
(104) Avril says:

OMG am I ever so GLAD to read this!!! For over 2 years now I have suffered this horrible symptom of fibromyalgia!! We have had minus 10 degrees recently, and you sure do get some very STRANGE looks when you go out in a T-shirt in that temperature.

I am coinstantly being asked by supermarket checkout girls if it is pouring with rain outside because I am literally dripping all over the conver belt. I feel like either not going out anywhere ever again, OR wearing a sign saying – ‘NO, it’s not raining, and NO, I didn’t come out straight from the shower I have a medical condition and this is just one of the symptoms!!’

February 6, 2011 at 4:19 pm
(105) Margaret says:

Boy am I glad I kept this post. For years I’ve been wondering about excess sweating, —- especially having a hot drink or hot meal. now it looks like a side effect of my fibromyalgia and or CFS/ME. None of my medics have been able to answer this question so I think they must have thought I’m “off my rocker”. Thank goodness for this site—
I’m now getting the answers I’ve been seeking.

Do any of you have breathing difficulties ??? I’d love to know if you do.

February 16, 2011 at 5:37 am
(106) Diane says:

Thank you to everyone for commenting. I was starting to think I was going nuts. The doctors were looking at me like they thought I was nuts. Like the sweating was not a major problem. On it’s own it’s not a major problem but you add that to all the other problems of CFS and Fibro and we’re getting close to breaking this camels back. I’ve started sweating since taking pain killers and antidepressants. Prior to that I always felt cold and my joints were painful and stiff. Sweating is the lesser of these two evils but is it too much to ask to find a cure?

February 17, 2011 at 4:23 am
(107) Pam says:

Thank you to everyone who has shared their comments. I, like so many others with Fibromyalgia have suffered with the profuse sweating. The chronic pain, leg cramps and severe fatigue are bad enough but the sweats are about to do me in. I have most every sympton of each story posted regarding what triggers the sweating, like showers, vacuuming or any type of activity and sometimes I sweat doing nothing. My doctor is very caring and has tried several things to help stop the sweating but so far it has remained a mystery. FYI, I have a few suggestions worth trying, I shower first without getting my head wet then I wash my hair in the kitchen sink with very cool water. I wear powder foundation makeup by SheerCover. I order it online. JC Penney carries BareEssentials which is very similar to SheerCover. I drink at least 5 bottles of water a day and I always keep a bottle of water in my car and purse at all times. Well, other than all of us moving to Alaska and living in an igloo I don’t have any other suggestions. I really appreciate the information about the Oxybutinin and if my doctor will put me on it I will post again to let ya’ll know good or bad how it works for me. I am just so happy to know we are not in this alone, I guess misery really does love company :-) ! Everyone be blessed and all of you are in my prayers.

February 22, 2011 at 2:34 am
(108) Pam says:

UPDATE: After reading comments by Kitty regarding Oxybutynin (5mg 3 x per day) I called my doctor the very next day and ask if she would let me try it. She called it in that day, Feb 17, 2011 and within 24 hours I had stopped sweating. I felt the flush and heat in my face but did not sweat. Now after being on the Oxybutynin for four days the heat, flush and sweating are gone! I consider this a miracle. I highly recommend this medication and will be forever grateful to Kitty and this website for sharing this amazing information. Good Luck to all of you!

March 10, 2011 at 9:45 am
(109) deirdre blagg says:

i have looked up the Oxybutynin and it does not mention about sweating pam did your doc look it up im not saying it’s untrue i want to make sure so i have all my bullet’s to fire to the doctor. If it work’s i will be so excited i would be tickled pink sorry gettting to excited there lol.Would be great if you could give me some more detail’s on it pam or i have stress incontinence too,and the tablet sound’s like the oxycontin and oxynorm im on also.Right look forward to you getting intouch im also on facebook.Take care pam x

March 10, 2011 at 9:38 am
(110) deirdre blagg says:

Mine is defo the fibromyalgia/cfs/pos/si/ibs/thyroid’s/allergies/and so on there is more but do not want to bore you as i do get sick of it too.Anyway i sweat from head to feet and it is so embarrising sometimes when out in the summer and my back is totally wet you can wring them out and that goes for my trouser’s too it sometimes look’s like i have wet mysell,I wish there was a cure i have just read pam’s mail and i think i might ask the doctor for a try of them hoping i can take them with all the tablet’s im on.
I do also think that the tablet’s have a lot to do with it but i did sweat alot before trhem so the fibro is the problem good luck to all

March 19, 2011 at 6:17 pm
(111) Nic19 says:

I almost cried when I read your paragraph about sweating after a shower or bath. And on your forehead! I am still waiting for an “official” diagnosis, but have been chronically exhausted for two years and in constant pain for about a year now. Thank you from the bottom of my heart!! I am printing this off and taking it to my doctor next week!!

March 21, 2011 at 8:31 pm
(112) Patricia says:

I was so happy to find this info. I had a hysterectomy in 2001, and since then have had extreme problems. I have gained about 70 pounds of weight, been diagnosed with fibromyalgia, high blood pressure, irritable bowel syndrome, etc. I have been having a lot of pain, some hair loss, extreme fatigue, and very extreme sweating, almost on a daily basis. I am so tired of it. It actually makes me physically ill, to where I just have to go to bed. That is very hard when you have to hold down a job. Luckily, I work from home doing medical transcribing, and the company is very understanding and forgiving, allowing me to work part time and take a lot of breaks. My problem is, is that it is getting worse all the time. I, like so many of you, don’t even try to wear makeup anymore, because: #1) it’s hard to get on, and #2) it just melts off if I do manage to get it on. I am on about 10 prescription medications. I have been tried on every type of hormone in the book, and nothing even phases these sweats. If anyone has any suggestions, I would be very happy to hear from you. I have a hard time doing anything, not just because of the sweats, but I also suffer from severe fatigue, depression, and a lot of pain, with my joints feeling very hot to the touch, and also some swelling.

March 21, 2011 at 8:34 pm
(113) Patricia says:

by the way, I failed to mention that while I am sweating, it is usually mostly the neck and face, while feeling cold in the extremities. My hands, feet, and nose especially are very cold to the touch. I also have a lot of this start after baths, showers, or eating.

April 8, 2011 at 3:03 pm
(114) Rosa says:

Thankyou all for sharing. I too have suffer with sweats day and night every 2 hrs or so sometimes more frequently. Sometimes at night the sweat can last an hr or more. I have been suffering for about 15 yrs and finished with the menopause 10 years ago. My gp tells me the night sweats are different to the day sweats but can not tell me why or wherefore. I have searched and searched the internet but have not found any answers . I have tried herbs and vitamins potions and lotions and have lost faith in the medical profession as I have had no support from them. I had glandula fever when I was 17 and have suffered with chronic fatigue, fibromyalgia ,ibs etc ever since.I am now 57. Life is tough but although I am sorry that others are stuck with similar symptoms I don’t feel so alone now. Has anyone out there had any glandular tests done. I feel that perhaps there is something awry with my adrenal glands or thyroid though my thyroid tests have come back borderline.
Blessings to all.

April 9, 2011 at 9:14 pm
(115) Ginny says:

First of all I want to thank all of you for sharing…. I have been suffering with day & night sweats for years.. always thinking that is was menopause when they first started back in the 90′s but they never really went away. I have suffered with CFS since 1977 and was dx in 93 when I collapse. 95 was dx also with Fibro and also stopped my menstruating. Right before I collapse the sweats were unbearable and thought it was the changes. never thinking it was the CFS.. throughout out the years it has only gotten worse.. I even tried the night gowns for the hot flashes which really don’t help me .. thought of doing the sheets but who can afford them.. I am at my whits ends.. I can’t keep on going on like this.. bad enough I am back to having all 18 major symptoms going on with the CFS right now… I need help can anyone give me some advise help.. thanks…

April 9, 2011 at 10:56 pm
(116) Murna N Z says:

I have just read about your symtoms and in regards to the sweating you mentioned.I posted a comment last September [ re sweating ]I had previously studied up my medical books six years ago, I came across Oxybutynin ,I was really looking for some drug that would help my bladder problems but on finding that this drug was an anticholinergic it appeared to me that this maybe helpful, it has been more than helpful to me. I have explained to other Doctors of the help this drug can be for some people with excessive sweating . Ask your G P if this said drug may have some benefits for you. All the best.

April 9, 2011 at 11:51 pm
(117) Mia says:

Today I got so depressed from the sweating. With spring I feel more like doing something besides sitting at home. I got all ready to go (despite sweating) and finally after I realized my hair was getting wet again I gave up! I am sick of this. I can deal with the pain I have because NO ONE SEES IT! But the sweating is socially paralyzing me!
I’ll update on the botox. It really only gave me partial relief and that didn’t last very long. Maaaaybe 2 months. Way too much $ for that. I was SO excited that I had any relief I know I sounded like it helped a lot but it really wasn’t enough.
So I have noticed patterns. I break out sweating when I eat, get emotional, get ready to go to a social function AND when I drink anything fast. Showering makes me crazy! I have to use cooler water and then make it colder before I get out. Blow drying hair? I use cool setting.
I read about a drug Glycopyrrolate that has been used topically. It is normally used for ulcers I think. But it said it stops bodily secretions and at a low dose topical it has helped for days at a time. Has anyone else heard of this?

April 27, 2011 at 6:05 am
(118) Twanaf1956 says:

OMG! I know what you are talking about.I wish someone would find a cure for this I had stopped wearing makeup and I don’t roll my hair anymore,it doesn’t do any good.My head will be dripping almost pouring sometimes with sweat and it will be 30 degrees I don’t get this. I take a shower and blow dry my hair get dressed then it’s time to start all over because my hair will be dripping in sweat.This has effected my working because how can you cater and sever wedding cake while wiping sweat,GROSS Someone please help.I have fibro and expect some sweating but this is not normal.

May 15, 2011 at 4:28 pm
(119) Gina Pogol says:

I sweat about 10 seconds into any form of exercise. I sweat at night. I sweat for no apparent reason and often get nauseated at the same time. Interestingly, the doc at the Mayo Clinic said that chronic fatigue was “crap” and did not care that I am XMRV+. Mayp also could not explain why my catecholamines are so high that my heart docs thought I had a pheochromocytoma (adrenal cancer). The Mayo docs actually came up with a diagnosis of “autonomic neuropathy” which is not helpful as they could not say why I have this. They also completely ignored that it’s apparently a symptom of CFS. As long as this is the best that mainstream medicine can do we don’t stand much chance of getting relief.

May 15, 2011 at 4:46 pm
(120) Pam says:

OMG – I’m so glad to read it’s not just me! I had a partial hyserectomy at 31; went through menopause at 40 and have had my estrogen under control now for a long time. I kept thinking I needed more estrogen.

When I was on Cymbalta my sweating was much worse – I quit that horrible medication. I started with LDN (low dose naltrexone) and the sweating got worse but the relief was so much more welcomed.

I kept thinking it must be my thyroid but all the tests were “normal”.

Even though this is part of the CFS/FM dilemna I really wish there was something I could do to fix it; morning, day and night I deal with this.

May 26, 2011 at 1:36 pm
(121) Daw says:

I find alot of sweating problems, i am overweight but even when i wasn’t i found expending energy to do things lifting cleaning bending over too much would cause sweating.

I have a huge problem with heat at night even in the freezing cold i have to have arms and legs stuck out of my blanket my hair and neck gets soaked.

I figured some of it was connected to my posterior dislocation of my right shoulder and chronic pain, being as showers have been extremely painful and unnerving since i was a teen.

But going for a walk in the coldest time of the year in Australia/New Zealand gets me completely soaked hair, even sitting at a computer desk sometimes i can just start sweating normally armpits.

i have other strange things i don’t think fit, sometimes my knees get ice cold, other times they get really hot, normally in contrast to my body temp, the most extreme when i’ve been awake 10+ hours, i haven’t sought anything about my excessive sweating since its a minor problem in the grand scheme, but it sounds like i should be looking into this more.

Thanks for all the comments about how it effects you all.

May 29, 2011 at 1:22 am
(122) Linda says:

I’ve had Fibro/cfs for 30+ yrs but just started the sweating/freezin thing about 3 years ago after I contracted Lyme Disease. Glad you posted this article as I kept thinking that my the sweating and freezing were a result of the Lyme Disease and the doctors had no idea! Sweating was so bad at times that I had to change the bed 4 or 5 times a night & me. Then I would be so cold, I just couldn’t get warm even with my heated mattress pad and 3 blankets & a down comforter! I started having intestinal problems about 4 mos ago & at that time the freezing & sweats seemed to calm down some. Still have an attack now & then but it isn’t constant like before. I do drink a lot of water & it or anything else I drink it has to be very, very ice cold. Doesn’t help sweats a lot but does taste good. Sure helpful to know I’m not alone with this sweating/freezing problem.

May 31, 2011 at 10:05 am
(123) Kim says:

I get incredibly hot and break out in a sweat. Any time of day or night with no apparent reason. Since I never found a doctor who took fibro symptoms seriously, I “self-treat” my symptoms, mostly with vitamins and aspirin. I wish there was something that helped. I have a tiny 4″ fan hanging on the headboard, and I turned that thing on during the dead of winter, throwing the covers off to cool down! And now that it’s summer, it’s worse, even with air conditioning, I can’t get the house cool enough for me.

So far as sleeping goes though, I did find that a pillow with a 100% cotton cover and 100% cotton sheets helped quite a bit. Polyester blends are great for no ironing, but the polyester seemed to “conduct” the heat and make things worse. So did the memory foam pillow I was using.

June 4, 2011 at 12:18 pm
(124) marie says:

I have been suffering from the same problem and have been taking gabapentin, its really good . I sometimes still feel hot but the sweating has stopped. It is also very good for anyone suffering from hyperhydrosis. Both my sister and my son suffer from hyperhydrosis and are now on gabapentin which helps dramatically. hope this is a help to you. Also dont just try it for a week and then think its no good, it took me about three weeks to feel the benefit, but i have read it can take six weeks to feel the full effects. Hope this is a help to you.

June 4, 2011 at 12:55 pm
(125) Linda says:

I have taken gabapentin for years 2007 and it has not helped my sweating in the least. I am still looking for a solution. I now have itchy bumps all over my head from sweating as well as my neck and lower. After my shower I have Kleenex on my forehead to catch the sweat and a towel around my neck. Sometimes for hours. Has anyone heard of any new solutions?

June 10, 2011 at 1:07 pm
(126) Heather says:

I’m taking the Gabapentin as well for the pain and it has helped a LOT (not completely by any means but a lot) but I am still sweating. My worse! part is the legs… I look like I peed myself every time I get out of my chair!! Talk about em-bar-assing!!! (no pun intended on the last part of the hyphening there!!) I am going back to my doc at the end of the month and talk about the Oxybutynin… I do have a laugh/cough/sneeze issue anyway with my bladder so I really wouldn’t mind taking it – my sister is on it for OOB issues, and if it works for the sweats so much the better!!

June 19, 2011 at 2:07 pm
(127) Laura says:

Now, I have MS Dxed in 1998, and my sweating problems started in 2000 with the pregnancy of my son.
Should I be asking my Dr about possible chronic fatigue as well? Or assume this is another MS thing to add to my list.
My problems sound exactly like the ones I read here. I need to have 3 fans on me, and still feel the sweat under my breasts just from typing idly here!
It’s whole body, and my feet feel freezing all of the time, but socks make the sweating worse, even though me feet finally feel a little better!
No happy medium for me!
My sheets look like they have been bleached from my sweat, etc.
Would shaving my head help? LOL kidding, mostly… lol
Thanks to anyone who has any words of advice for me!!
Laura

June 21, 2011 at 7:15 pm
(128) Victoria says:

I have had fibro, myofacial pain synd and cf since about 2000. I am also post menopausel and I don’t take hrt. I also was diagnosed 2 years ago with Lupus and Sjogrens.

I get the sweating year around mostly my head and neck, however, if I have overdone it and am in a recovery time…say did too much and am down the next two days…I sweat profusely. At night it is horrible, my entire body sweats, even my fingers sweat, pours off me, bed wet, sheets wet etc. when I am in this recovering mode even if I am doing nothing just sitting and relaxing, I sweat. During this time my body aches horribly like I have the flu.

When my body has recovered sufficiently, usually it only takes a couple of days, the full body sweating stops.

So I believe it is my bodys reaction to having overdone it and it trying to repair.

June 27, 2011 at 8:38 pm
(129) Diana Holvik says:

I have read the original post and all the comments here and have saved a lot of them for future reference. I am registered nurse and have had Fibromyalgia and CFS since 1988, diagnosed in 1994 by a rheumatologist at Toronto Hospital. I can’t remeber when the excessive sweating started, but it was back around 1992, 93. I was 38. At first it was diagnosed as perimenopausal, then menopausal (I stopped menstruating at age 46) then postmenopausal. The sweating got worse whnever the FM/CFS got worse. So did what I call “Broken Thermostat Syndrome.” ie feeling hot and cold at the same time, cold feet and legs while pouring sweat from head, face, neck and torso, and hot enough to bake an egg under my breasts as one of you put it. And feeling like a freak for years. When I am really sick I pour sweat just typing and can’t type more than a few lines because my fingers make the keyboard wet, and my glasses get wet and steam up even in winter. But then, when I’m really sick I can’t type more than a few lines because I get so shaky. Shakes and tremors often go with the sweats and the other symptoms also increase. It was a couple of years ago that I decided on my own that the sweating had to be the CFS and Fibro. Reading all your posts has made me feel better. I never knew I was not the only nutbar who got out of a cool shower and turned a fan full-force on my wet, naked body to get dry. My husband has always thought I was a nutbar. I run a fan winter and summer on myself at night even when I have the air conditioner on. It is the only way I can sleep. And I tote bottles of water with me everywhere and always a cloth in my purse to mop my face and neck.
Thank you all of you, for sharing. I feel like I’ve discovered a secret club. Doesn’t help the physical suffering but it does lessen the mental anguish some. And, yes, I keep praying and I’ll keep everyone here in my prayers.

July 5, 2011 at 1:29 pm
(130) Gina Pogol says:

Neurontin (gabapentin) helps with the sweating a great deal. So does glycopyrrolate but that affected my vision too much to be practical.

July 15, 2011 at 1:38 pm
(131) Beth Coats says:

July 15, 2011

I was Dx with Fibromyalgia after my bout with Breast Cancer, Chemo and Radiation Treatments about 3 years ago.
My whole life I have been cold natured, never breaking a sweat. But a couple of months ago I began to experience excessive sweating! I actually create my own shower!! My husband said he had never seen anyone sweat like I do. It pours down my face from my forehead, my neck and more recently my legs and arms just drip with sweat!

I have to take 2 showers a day! Which is very time consuming and exhausting. When I wear make up it just drips off my face with the waterfall!

As the other lady mentioned, mine also can begin after taking a shower. But it will start if I am simply putting clothes in the wash, washing dishes, or any light activity!

Yes, we do have many bigger problems than sweating, but when a person sweats as much as I do, and other sufferers, it is very disruptive and aggravating!!

I can’t wait till Winter in hopes that this excessive sweating stops or at least slows the flood!!

Beth

July 24, 2011 at 11:20 pm
(132) Lori says:

I became very ill with fibro in 1995 but was never a sweater. I did hot flashes and hormone patches 5 years ago which stopped the hot flashes. About 2 years ago I had a fibro flair and started the sweating thing. Like severe hot flashes- dreanched at night, having to change clothes several times. Same during the day-sweating all over- stinky esp in groin area. Hot/sweaty then cold/goose bumps and chills. The peculiar thing was my feet would get so cold- I mean painfully cold. Hot water would relieve discomfort the best. Anyone had the cold feet thing? When my fibro flair improves the sweating improves and feet thing goes away. Makes me feel like a nutcase. Of course the doctor has never heard of it. I am so glad to read all of your postings!!

July 25, 2011 at 7:36 am
(133) naheel says:

what shall i do?
I suffer from many symptoms, like Sweating, Chest pain, Migraine, Continuous headaches, Dizziness, Imbalance, Heart palpitations, Weight gain, Back pain…….ets.

September 24, 2011 at 2:47 am
(134) Duchesssammi says:

I am so very Glad to see this posted..Sorry you are going through all this.
My Husband has all the very same symptoms that you said– BUT Dr. after Dr. has NOT been able to cure any of it – or even seem to have a clue- he has had a migraine that has not gone away and some days its so bad he can barely function- for over 3 years now.
I have taken him to gosh a bunch of different Drs. and Emergency Rooms – and its a JOKE-Its a sad situation–They seem to have NO clue, or answers.
They have taken Multiple x-rays of his head- CT scans of his sinuses-and believe it or not– THAT is ALL they have done and said OH well we cannot find anything- The current Dr. he is seeing for about 1 year now- Has run many – many blood and Urine tests and he claims ( I don’t know what to believe at this point)
It very upsetting and frustrating-But the odd thing is-
Both of us have severe all over every crack and crevice sweats non-stop sometimes especially if I have to be out
and temps are over 64degreeF- I sweat as if I had a hose pouring water on me- non-stop some times for HOURS and HOURS NON-Stop!!
The thing that Really pisses me off is I cannot seem to get any Dr. to take it seriously and do something -anything at this point to help Either of us….
I wanted to know if you got help- and what treatments or procedures did you receive and did anything help???

August 2, 2011 at 5:07 pm
(135) Susan says:

Been reading all the comments, glad to hear I am not alone, the make up sliding off your face etc, would be embarrassed if anyone actually came to the door after I have done some housework as my hair is always stuck to my head with sweating. Naheel you are not alone,I also get chest pains, I get funny looks in the playground sometimes because I am so off balance, I think some of the other parents think I have a drink problem, I am lucky to have some good pals who I can have a laugh with, because sometimes the conversations are mad I get words muddled, back to front, even my kids fill in the missing words for me. I have been put on amitriptyline to help me sleep, but seem to have mood swings has anyone else had that symptom.

September 8, 2011 at 9:23 pm
(136) Holly says:

Thank You. I thought I was loosing my mind. 3 doctors, multiple lab work ups and still no one mentioned my fibro could be the cause. I have suffered with fibro for years, and just mildly getting under some control. But with age, and thinking menopause was causing this horrible sweat issue, I was ready to quit going outside this summer. I have embarrased myself, husband, and family with this perfuse shower I have in public.. So thanks for sharing. Now I have some research to look into, and more work for my doctors too.

September 11, 2011 at 7:38 pm
(137) Shelly says:

I have fibro and can only do so much before I “crash.” Usually, it may be an hour of going to a store and then I start sweating profusely (face and scalp). So, I’ve learned for me that it is a signal that I’m done and need to rest.

I also get it at night, but didn’t know if that was significant since I’m in menopause.

September 13, 2011 at 12:36 am
(138) Holly H. says:

Hey! Like everyone here I have a sweating problem. I have bad night sweats before my period and when I take a shower even if I stand in it freezing cold, I will be sweating about 5 minutes after getting out. I sweat All OVER. We had a new central AC put in due to the old one breaking and had to get some window units to tide us over. Well, now after my shower I go turn the window unit on and stand there. I swear it works better than a fan. I wish I could have one put on the wall in the bathroom. I take Prozac and other meds and the Dr. said the Prozac can cause it, but I just don’t see that being it. I have been on it half my life and I am 36. I hate this, though. I am glad I am not the only one and I hope we all can get some much needed help and relief.xoxoxo

September 13, 2011 at 12:54 am
(139) Holly H. says:

Hi again! I just looked at CFS and wonder if there is a possibility that could be a cause. I take a lot of meds for depression and anxiety. I do sleep a lot, but thought it was from the meds I take. Back in 2000 my ex gave me Herpes2 and I have to be careful with not getting too stressed or not enough sleep or I will have an outbreak. Having to deal with an outbreak is worse than the sweating. Well, I mean as far as feeling sick. The last 5 yrs I have put on weight, but the Dr. always say it is the meds. I am going to look deeper into this and could write you guys a book, if I told everything involved and the meds I am on. It is ridiculous and embarrassing. Thank you for letting me share. Take care and much love!

November 20, 2011 at 8:10 pm
(140) Lin says:

I’m so glad I’m not alone on this one! I thought I was going crazy until I was diagnosed just last week with fibromyalgia,I’ve had all the typical symptoms now for four years and the excessive sweating on my scalp and forehead really gets me dwn,I never used to go out the house without my makeup on but for 2 years now as I just smudge n sweat it all off and can’t say when or dnt get any warning that the sweating is going to. Start,it’s really bad during the night and I wake up not only with the pain to put up with but I have to strip my pillow cases off as they are ringing wet through with sweat.my sweating can Is also bad during the day,I just feel an overwhelming feelinheat rising up my head and bang!! I’m dripping wet n this can happen 5/6 times a day :( I feel dirty n clammy even after a shower,the sweating has got sooo bad I wnt go out not even shopping :( is anyone else this bothered with it? Thanks for listening everyone! :)

December 2, 2011 at 8:15 am
(141) Kelly says:

I also deal with excessive sweating. When I get iut of the shower is when its at its worst. I cannot wear makeup except for eyeliner, eyeshadow and lipstick. I also have a sensitivity to heat an do not own a sweater. I have to dress in layers during the winter because I am frigid to the cold but when I go into a place, they have the heat blaring amd I begin to sweat. The sweat comes on quick and thick, I literally drip sweat and my hair gets wet. I own a lot of lace tops and tank tops and wear summer tops during the cold months underayers of warmer clothes. When in Jamaica, I constantly sweat. I have become fed up with it but the meds I take that cause it, I cannot go without. I hate fibromyalgia. I started taking Wellbutrin to quit smoking and it helped my chronic fatigue.

December 4, 2011 at 12:35 pm
(142) Pat says:

I’m glad I found this thread but am not sure if it relates to me although I do hope so in some regard at least. I started these sweats more than a year ago. I have MS -dx 20 yrs ago with other health issues) and wouldn’t be surprised if fibro was included although with an MS diagnosis, it’s hard to get “extra’s” diagnosed at times. Anyway, I had a complete hysterectomy many years ago and went thru surgical menopause, sweats, the whole bit. Here I am year’s later dealing with sweating I’ve not known before. Mine were worse when I had “the runs” or attacks of whatever out of nowhere. It got so bad I agreed to a colonoscopy and endoscopy the same day as they were sure it was cancer related (there is some type of tumor that can cause similar symptoms of sweating). My results were ok for the tumor but I continue to sweat to the point that my nose even drips and I have to keep something near me to spit out the excess saliva. It went from just before an intestinal attack to anytime it feels like it. I don’t leave the house without a bag that holds towels for wiping sweat from all over. I’m thankful that my spouse isn’t embarrassed to be next to that woman dripping with sweats at check-out counters as now the sweats happen any day, any time, any hour, for no reason at all. I can’t pin them to a thing and believe me, I’ve tried. I would give anything for a reason for this – at least it may make it more “deal-able” in my everyday life. There are times when the sweating is worse than having MS and believe, I don’t say that lightly. I spent years in a wheelchair and I still use crutches today but at least I can get around. I didn’t realize that excessive sweating to such an extent could cause a life to be so interfered with and so embarrassing to deal with. As much as that show “House” gets on my nerves at times, I would give anything for a doctor who’d find an answer for me….for all of us instead of being sent home with guesses.

December 11, 2011 at 8:02 pm
(143) Stacey says:

I am so glad I found this site. It’s nice to know I’m not alone. This sweating thing has been bothersome for 2 years for me. I will be fine then all of a sudden a turn beet red and sweat in my head and face areas. I also wear summer clothes in the winter and have to dress in layers that I can take off when the sweating starts and put back on in a hurry to protect myself from the cold. I will go from freezing to feeling like I’m in an oven and back to freezing dozens of times a day. My poor husband is freezing in the house because of my heat sensitivity. I tell him he can always put more clothes on, but I can only take so much off, especially when we have company! Thanks for all of your input.

December 20, 2011 at 11:32 pm
(144) Kate says:

Oh my gosh! Am I ever glad I stumbled on to this page! I’ve been having the same problems for quite awhile now. I’m cold one minute, burning up the next. Sometimes my upper half is hot, and my bottom half is freezing. I sweat all the time. When I do some housecleaning, sweat pours off my face. The waistbands of my pants are always damp. I have night sweats, or I’ll be freezing. I rarely seem to feel I am at a comfortable temperature. Going shopping is a nightmare because I’m usually burning up and sweating profusely within minutes of entering the store. I’m also a teacher, and the sweating is terribly embarrassing. I’m sorry you all have similar problems, but it’s also wonderful to know I’m not alone.

December 21, 2011 at 6:58 pm
(145) Ruth says:

I have this sweating problem too, but am wondering if it is from meds. Have any of you tried stopping your antidepressant and found that this reduces the sweating? I’ve tried going without my other meds one at a time, and am down to one that may be to blame, Nortriptyline. I’m going to wean myself off of this one next and see if that helps. My doctor put me on a med called Clonidine to try to control the sweating, but it doesn’t help and has side effects itself.

December 22, 2011 at 4:51 pm
(146) Naomi Edwards says:

Wow, just wow… I just finished hiding in the bathroom and couldn’t stop crying because of this very problem of freezing to death as I sweat… I sweat mostly in my upper body, I can touch my back with the back of my hand and there is that much it drips off my hand….. so freakin uncomfortable!!!!!!!!!! The pain at this time is enhanced and at times my skin is burning!! I feel like I am on fire… it is off an on for me for a matter of days then I could be good for a week or a month. I would seriously do myself in if I had to live with this every day… it is just toooooo much! I am concinved it is hormonal because as you can tell by my attitude I completely turn…. yes even when I am here alone I am frustrated and angry for no apparent reason than my body doing things that I can’t explain nor can doctors!!!! They said it was my medication so I came of it, now they don’t know and I don’t have pain control…. God this sucks , I even made a pack with God that if he takes this away from me I will be the best possbibe person ever!!! Yeah I know, insane…. but this is what it does to me!!! I am desperate and I am not even happy that I am not alone… that doesn’t even help the way I feel…. Now I am even more frustrated that others have to go through this BS too…. I think we need more people to speak more about this,,, I can’t live this way!!!!

January 17, 2012 at 8:18 pm
(147) Judy says:

I am so amazed to see excessive sweating linked with fibromyalgia. I have been post menopausal for 12 years and was diagnosed with fibromyalgia in 2008. It was REALLY bad at its worst so that I could not get out of bed. But now it is better controlled, although there is no way I could work anymore. I have horrible sweating. It comes for no reason, or because I walk across the floor, or because I sew on a button or because I think of something stressful. It is worst on my face. It runs down into my eyes, burning like crazy. It drips off my ear lobes, runs down my back. Soaks my whole head of hair. Makeup is a joke. Moisterizers are an invitation for my skin to start beading up. When I get undressed, I have to hang up my clothing to dry, especially underthings. My skin often stays cold. Also my body temperature fluctuates wildly. My GP of 36 years has NO IDEA why this is happening and no suggestions for help. I feel much better knowing I am not alone. I have a fibromyalgia doc but haven’t mentioned this symptom to him. I have found that never getting the shower temp very warm helps, but still often have to lie down for up to an hour to cool off from the exertion. Thank God for ceiling fans.

January 17, 2012 at 8:35 pm
(148) Judy says:

Also, I wanted to mention that I crave salt. People make fun of me because I carry a salt shaker in my purse. My blood pressure is low and my sodium levels are low. I think it is because of the sweating.

February 11, 2012 at 6:48 pm
(149) Sammy says:

i have found some solutions–more like band-aids, but it takes the edge off of always being distracted by the sweating. especially if you’re going out!

for going out: i wedge a small towel ( hand towels that are dish towel size) under my bra, sometimes in the back part as well–need a sports bra for this. also a small towel in the groin area. it took a while to get used to, i admit, not most attractive option–but i found a way to make it fit in my bra and underwear, and can get away with it by wearing very loose fitting clothes.

also important: take extra bra&underwear towels to change once you get to wherever you’re going. also, an extra pair of underwear. if you’re going to be there a while, take 2 sets.

this helps keep you mostly dry, and actually helps keep your face sweating down quite a bit, i find (if i’m not walking or something physical)

for night sweats: a towel on the pillow at night. if i wake up– just turn it around to the dry side,it’s quick and works and keeps you asleep longer.

also,KEEP FACE PROPERLY HYDRATED.
i used to have more sweats in the face then i do now but i figured out that i had to make sure to keep my face hydrated. i know it sounds BACKWARDS–but putting lotion in the daytime is basically impossible for me. so hydrating with the best quality lotion you can (i’ve tried them ALL and for the value and quality–you only need small amounts, i found Origins line is best–it also helps me to relax for bed and makes me feel pampered). i make the face regiment a MUST. took me a while to figure this one out–hope you guys will give it the old college try before dismissing it.

really wish we had a FAMOUS SPOKESPERSON behind our cause so that we would get more funding towards prevention and curing fibromyalgia!!

February 11, 2012 at 7:32 pm
(150) Zella says:

Hi Judy,

This is in answer to your second post of January 17th. Extreme salt cravings may mean an adrenal problem. If you haven’t already ruled that out, ask your doctor to do blood work that includes an AM and PM Cortisol along with a blood test called an ACTH. Put the salt shaker away for a couple of days before the test. Although ACTH is a cumulative reading over time, the cortisol tests read acurately in real time. AM test should be done before 10 am (earlier is better) and PM after 4pm at the earliest.

Sadly, I have a lot of experience on this one.

Low blood pressure and low blood pressure that falls — do you get dizzy when you stand up quickly?– along with electrolytes being out of whack (low sodium among them) could be sign of adrenal insufficiency and needs to be treated immediately.

I know I am not alone in being a fibro sufferer who has had other symptoms ignored because for so long, fibro was and is still considered an ‘it’s all-in-your-head’ disease. Take care.

February 21, 2012 at 4:26 am
(151) Julie Dunn says:

Yeah i have fibromyalgia since it all started i have real bad periods of sweating feel like my thermastate has gone wrong yeah go in shower then when getting dressed or blow drying my hair feels like its all getting wet again i can just get up the stairs at night and then im dripping again thought it was the stairs but stayed at my daughters on ground floor just as bad simplest of things start it off even thought perhaps i was going through the change but no i am not i think doctors just get fed up with seeing me all my complaints will say if you lose weight was like it when i was thinner its your diabetis was not like it before this and been diabetic for 26yrs but i am glad to here im not the only one going through this not that i would wish it on my worst enermy

March 10, 2012 at 12:06 pm
(152) Suzanne says:

I’m so glad I found this post. I was afraid that the sweats at odd times meant maybe my cancer had returned. I went in 2 Menopause early from Chemo 46 yrs old. Now 64 and I sweat @ odd times and at night. Cold feet and head soak and wet. I do have Fibro and I’m on Cymbalta. I was originally on Cymbalta when my husband was 1st diagnosed with Cancer 4 aniexty but, found out it helped my constant pain from Fibro so I have been on it since 06. This sweat thing has been more in the last 8 months then B4. I will definetly try the cold shower B4 getting out. I hope drinking a tall glass of cold water helps during the day time.

March 10, 2012 at 12:06 pm
(153) Suzanne says:

I’m so glad I found this post. I was afraid that the sweats at odd times meant maybe my cancer had returned. I went in 2 Menopause early from Chemo 46 yrs old. Now 64 and I sweat @ odd times and at night. Cold feet and head soak and wet. I do have Fibro and I’m on Cymbalta. I was originally on Cymbalta when my husband was 1st diagnosed with Cancer 4 aniexty but, found out it helped my constant pain from Fibro so I have been on it since 06. This sweat thing has been more in the last 8 months then B4. I will definetly try the cold shower B4 getting out. I hope drinking a tall glass of cold water helps during the day time.

March 16, 2012 at 1:29 pm
(154) Bobbie says:

Do you ever bend over and the sweating becomes 10 times worse? I have to put my face and head in front of the fan to cool off some. My doctor thinks I am crazy when I told her about this. Also, do you get as irritated as I do when you get that hot? The kids can always tell when I am irritated…they say, “Oh, mommy is just hot again.” :)

March 22, 2012 at 4:30 pm
(155) Fiona says:

43 and not sure if going through the menopause. I have night sweats which only happens through my chest. It always gets worse when I have had alcohol over the weekend. I’m not overly large so I don’t really understand why it happens. you wake up, the bed is like ice and more than anything, you dont sleep well, find your always tired, then you eat more, then you feel less energetic, so you relax and have a drink. It’s a visous circle, who said getting older was fun.

March 24, 2012 at 9:45 pm
(156) sarah says:

Right now I just want to cry, but who needs more wetness. I am so thankful to hear I am not alone although I am sorry to read of others suffering as I do. I am no longer able to work and stay mostly to myself because of the pain and my upper body being soaked. I am blessed to have a supporting and caring husband.

March 26, 2012 at 3:28 pm
(157) Mary says:

You are definitely not alone. I have all of the crazy sweating symptoms upon even mild exertion. I, too, thought I was going nuts. I could not find evidence online anywhere, until today, of the fibromyalgia and chronic fatigue connection to my severe sweating and runny nose, both of which occur at the same time.

It is embarassing and upsetting, probably leading to even more sweating. I am glad you have an understanding spouse. That helps a lot.

March 28, 2012 at 8:05 pm
(158) Suzy26 says:

i sweat even when im not doing anything, like just sitting doing nothing especially under my armpits. its really annoying and ive stopped going out as much. i sweat loads usually at mid morning or in the evening rest of the day im ok. ive tried sprays and they just wont work for me. i find it worse if im just nipping to the shop and back i sweat buckets. its really getting me down as i feel so unclean (i shower daily) and my doctor doesnt seem to care much about helping me :(

never ever used to be like this. but had this problem for about 2 or 3 years now

March 31, 2012 at 9:27 am
(159) sweatyEMT says:

It’s so embarrassin to admit… But I sweat the most from my anus… I find I Have to bring a change of underwear with me to work and change the sheets nearly daily… No one can find a cause or cure for my “swass! Very annoying

April 4, 2012 at 5:32 pm
(160) Angie says:

I’ve had this problem for a few years band it’s only getting worse. I cool down before getting out of the shower but as long as my hair is wet I sweat! I sleep with a fan blowing directly on my face but I still sweat. Thought I was losing my mind. Sorry y”all have this too but glad I’m not alone!

April 10, 2012 at 4:01 am
(161) Jane says:

Another sleepless night, and now I know why! I needed to find out what was going on with this incessant sweating, it’s been fibro all along. I just wanted to add a little helper I use to get through the sweats. I too have a billion hand fans and little motorized fans that scare the crap out of me (I have long hair). I use cool-dana’s.

http://www.redbow.com/store/st_viewcategory.php?cat=CS

These are just simply cotton scarves with water absorbing crystals in them.

http://watergelcrystals.com/

These crystals, should you want to create scarves more tailored to your taste, can be found in gardening stores and most recently I’ve found them in Dollar Stores (ie cheap!!). When dry the scarves weigh little or nothing, but wet the crystals bulk up quite a bit. You soak them for 10-20 mins in cool water and they will stay hydrated most of the day..if not longer. I’ve never had any bad effect from the crystals, such as dry skin or rashes. I just sling one around my neck and it helps not only with the sweating and heat, but also with headaches caused by the heat or otherwise.

I won’t deny, they aren’t a panacea, but they can truly make a huge difference in your temperature if nothing else. And yes they can be used as bandana’s.

I normally rehydrate the scarf in the morning before I head out, I leave it in a baggie (which they do not recommend) and pull it out when I need it. The scarves are damp to the touch but generally are not dripping with water, I just don’t want damp stuff in my purse. However, do not do this for days on end, you will end up with mildew in your scarf if you leave it in the bag. You can wash the scarves with gel still inside with mild detergent and hang to dry.

I also managed to find a pair of inserts that can go in your bra, however they only had one pair left, easily made by yourself though :) Think half moon shape.

Hope this helps some of you get through the summer ahead, or the working, or the shopping…and so on..lol

April 14, 2012 at 2:15 am
(162) Julie says:

OK I am not a big sweater, but I do get extremely hot for no reason. I will be just sitting at my chair at my computer, I am typing away and even sitting under the air conditioner vent in the ceiling which is pointing directly at me, and I feel like I’m on fire from the inside out. I literally will completely undress down to my panties and turn on a fan pointed directly at me and sit here and type like that (I am an at home medical transcriptionist, no one here but me so I’m not scaring anyone! HAHA). Anyway, I will leave the fan on and my skin will be freezing cold from the fan and the AC blowing on me but I’m still completely burning up from the inside out. This usually happens around the time I normally would be ovulating I notice. But I have read about it and ovulation should not cause that. I do sweat but it’s more a sticky mist all over not dripping sweat. I’ve never been a dripping type sweater. But the sweat does get my clothes wet especially my back, neck, underarms, and in between my legs. Anyway, it will take sometimes up to an hour of me freezing my skin in order for me to feel like I have actually gained the coolness inside my body and can turn off the fan. Then eventually I will get cold and have to put on some dry clothes, usually a long sleeve and sweats because I’m actually cold. This is so annoying!!!! I have never been diagnosed with fibromyalgia but I wonder if I need to bring this up to my doc and see what he thinks. I am chronically anemic and have just received my 1st dose of IV iron today. The IV iron infusion made me feel the same way, insanely hot but my skin was freezing cold. From what I read, this is one of the things that can happen with the particular iron medication I was infused with. So, anyway.. just adding my story! Glad I found this group.

April 15, 2012 at 12:41 am
(163) Michelle Jones says:

I sweat crazily at anytime especially at night. Then instantly.I’m freezing. This has been going on for about three years. I’m often told its HOT FLASHES, well my comment to that…B/S. I’ve heard of menopausal hotflashes, but why does my heart beat more rapidly during the episodes? I’ve tried OTC relief…didn’t work. I have yet to try anything else, ,.Keeping in mind that I am 45yrs, maybe it is menopause. Who knows, definitely not my doc.

April 16, 2012 at 3:44 pm
(164) sylvia ww says:

I have had sweating from my scalp and face for about rwo years..It gets worse if I take savella so I dont take it for my fibro..any odd change in my self@hot shower..excitement..going shopping..for no reason I start to sweat from my head..If I press my hand to my head my hard instantly becomes wet..almost impossible to do anything..Is this fibro causing this..I have recently been diagnosed with scleroderma…also..I am 59 and already been through a hysterectomy..just dont know what to do..

April 18, 2012 at 11:51 pm
(165) Kay D says:

Fellow sufferers — thank you for your comments. Here are some things I have noticed that may help as well:

I noticed my body temperature actually goes up when I am having these extreme heat episodes by 1 – 3 degrees. As soon as it passes, my body is back to 98.6. So I use soft gel ice packs wrapped in a towel and put it behind my neck while sitting back in chair. If moving around house, those tubes with crystals mentioned above work, but so does a small dishtowel or wash cloth rolled lengthwise and wet with cold water. When it heats up, re-fold and put the cooler side back against your skin. You can also re-wet in very cold water if needed. I also keep a remote control fan positioned near me as much as I can. Oh, and as for bras and panties for women, try barely breezies on QVC. They line their product with a special fabric that wicks moisture away from the skin and actually keeps you fairly dry. It definitely gets rid of the constant dripping down your chest.

April 20, 2012 at 9:34 pm
(166) Millie says:

This is about to drive me crazy. I’ve had periodic hot flashes in the last few years which all the doctors said were menopausal. I argued that a total hysterectomy 17 years ago, I had already gone through this but NOOOO…they were all in agreement. I was diagnosed with fibro 2 years ago and CFS two weeks ago. My sweating is so bad I can’t more than two hours of sleep at a time. I’m so exhausted, I can’t function. I have these episodes between 15-20 times per day. The ones I have at night can last up to an hour and they just drench me. Last week I went to the Mayo clinic. They said the sweating was anxiety related. How can I have anxiety when I’m sound asleep? I’m so flustered. Of all the symptoms of this illness, this is the most debilitating in my book. I have a great job which I think I’m going to have to quit because I can’t STOP sweating and without a good night’s sleep, I’m just exhausted all the time. Someone needs to find the answer to this. I’m losing my mind.

May 4, 2012 at 9:52 am
(167) Simonsays says:

OMG I am so happy to know there are others with this problem – sorry they have it, but glad I am not losing my mind. I notice that it is worse in warm weather – not as much of a problem in winter months – worse after drinking ice cold beverage – going between different temperatures such as from outside to an air conditioned environment or the reverse – after even slight activity. Begins around head/face and it just starts dripping then neck then I am freezing, especially when in an air conditioned environment. I am “of that age” so I thought maybe it was related to mp but it just didn’t fit with the descriptions of hot flashes and I have never heard of them being triggered as noted above. I was diagnosed with fibromyalgia in 1993, but this has been a problem since I moved from the northwest to Houston. I too have seen little about this in fibromyalgia info. Anyone have any luck reducing this problem?

May 4, 2012 at 10:02 am
(168) Simonsays says:

I forgot – this has been about 2-3 years. I too have to carry around a sweat towel or paper towels to soak up the sweat on my face where it is the worst. I too have the issue with being freezing once I start sweating, especially in an air conditioned environment. It is very embarrasing to be having a meeting and have to try and be nonchalant while wiping the sweat or worse yet, try and pretend it really isn’t happening and hoping I can get away to deal with it. If I forget my sweat towel it is terrible. I can be shopping in Walmart and have to stop and get/buy a pack of paper towels to deal with problem even before I can get through with my shopping. It is like my body cannot regulate its temperature correctly. I do not get the night sweats described, just the sweating face/neck primarily, although it can happen at night as well. Just getting up to get something to drink or go to the bathroom can trigger it. I will keep reading posts to see what help is available. Thanks!

May 8, 2012 at 6:41 am
(169) Lile says:

I’ve read most of these comments and I’m going to add my story. I am 65 yrs old and about 2 yrs ago went through a great deal of anxiety and depression. The weight melted off of me. I started feeling extremly hot despite being on estrogen. I felt like I was being burned at the stake. My mid-drift part of my body and breasts were so hot you could fry eggs on me. The Doctors did not know what was wrong despite all kinds of tests. They tried me on steroids which worked the first time but then the heat came right back. It has been two years now and I am still hot but not as bad as I was. I am extremely uncomfortable but able to tolerate the anxiety it brings with it better. I would so like to know what this is but my Doctors are baffled. I have Sjogren’s Syndrome, Fibromyalgia, hypothyroid, and RA. THe Doctors think I am in inflamation but I have too much wrong with me to pin it down. I take a lot of vitamins and walk every night no matter how hot it is outside. I use Neutrogena cool mist shots and that helps. I also lay with ice packs on my body. It works short term.

May 19, 2012 at 2:58 pm
(170) Ann says:

I, as others have said was glad I found this post. I have had fibro for 9 years and i am 54 in Memphis. It was the first thing that can up on google. I think mine is caused by all of the reasons given.

May 19, 2012 at 3:00 pm
(171) Ann says:

I too have it head sweats when I am cool or cold. I have had fibro since 2003 and I am 54 yrs. old. Glad I find I am not alone.

May 19, 2012 at 3:02 pm
(172) Ann says:

Oops I posted twice

May 31, 2012 at 3:44 pm
(173) Mark S says:

Interesting thread, thanks for bringing this up. I hope we can find some clues. Indeed this has a huge impact on your day to day life. It can turn into a cycle, anxiety causing sweating, then more anxiety and so forth. And if, like me, you’re on the max dose of Cymbalta, Mirtazapine and lithium each day, then the shaky sweats can leave you burning hot and sweating dangerous amounts without warning. With me it’s head and face that produce the most, closely followed by armpits and back. That feeling your back’s on fire isn’t far from the truth! Makes me envy those who can’t sweat at all!

June 1, 2012 at 1:57 am
(174) Beverly says:

You might look up Celiac Disease. All the symptoms mentioned previously are associated with Celiac Disease. I have Celiac Disease and I sweat badly when i eat gluten. My body is trying to get it out of me. I also get fibromyalgia, dizziness, dryness when I eat gluten. In fact, if I cheat and eat a slice of bread or a biscuit, I immediately get dry eyes and my contacts pop out. After eating a slice of bread, I get a metallic taste in my mouth, almost the same as on my skin. Gluten is toxic to a lot of people of Northern European descent. You can do the test yourself by not eating gluten for two weeks. I was hurting so badly in my back muscles, shoulder and hip joints, and neuropathy, I could barely get into my office, and I couldn’t walk anywhere. After quitting gluten for a few weeks, my fibromyalgia, arthritic joints, GERD are all gone. It took about a year for the neuropathy to go away, but I feel 17 again and can mow the yard and walk through museums with any pain or breathlessness and fatigue. I don’t take medications – I was offered medication for arthritis, GERD, and inner ear infection but found Celiac on the web and decided to try not eating gluten. It changed my life. I’m 60 and I lost 15 lbs immediately, I am free to go and do whatever I like without any restrictions. Just try it for 2 weeks.

June 7, 2012 at 11:06 am
(175) Janie says:

Oh my God! Someone else has this horrible condition! I have been going crazy with this type of sweating. I have fibromyalgia but never realized this was another symptom of it. It causes me so much discomfort in my daily life. Recently having a lot of back an knee pain as a result of osteoarthritis an spinal stenosis Adding this to the mix is driving me mad…!!! What helps sweating? Well I have tried cold packs from the freezer that have been used for pain relief but seem to help the sweating when I put them in back of my neck or in between my breast while sitting.
I also have itchy hands an feet periodically. Although I hate to complain it seems so minor but the itching drives me nuts sometimes while driving or out shopping I have to stop what I’m doing and apply cream. It’s just crazy to live this way.

June 8, 2012 at 2:12 pm
(176) Cagsaderpagma says:

I’ve recently started a blog, the information you provide on this site has helped me tremendously. Thank you for all of your time & work.

June 11, 2012 at 4:46 pm
(177) Angela says:

I was just recently diagnosed with fibro and I swear I thought I was pre-menopausal too. The sweats are horrible and I know my boyfriend thinks I’m nuts…but I can’t help it. Just last night I woke up burning up and sweating…no fever though, so when I saw everyone on here talking about all the same symptoms, I finally found my answer. Good to know, but still bad at the same time.

~Angela
KCMO

June 21, 2012 at 12:49 pm
(178) Doloras Watts says:

Thank goodness, I thought I was crazy. I have Fibromyalgia, but the Doctor never mentioned sweating. Thank you all for your comments. They really help.

June 21, 2012 at 4:05 pm
(179) TXRed says:

I am sooooo glad to have found this! I thought I was going crazy! I am too young to be having hot flashes, but I sweat all the time! Showers are horrible, even if I let the water turn cold and stand under it for a few minutes. I still have to sit under the fan naked before I can cool off. Blow drying my hair is another story. Once it’s done, it turns wet again because of the sweat. My symptoms sound the same as a lot of you, my forehead, neck, under my breasts is the worst. I live by the gulf coast of Texas, so even in the winter, I don’t have a break. After sleeping, I wake up to my hair being drenched as well as my pillow. It’s gotten to the point that I can’t even watch my son play outside because I overheat in just a few minutes. Makes total sense to me though, this never happened before I had fibro. Again, soooooo very glad to have found that I’m not alone, just wish none of us had to go through it.

June 26, 2012 at 1:08 pm
(180) Wolffie says:

I am so glad to have found this. I’ve had ME/CFS/fibromyalgia for 12 years now. I’m 69 and well past menopause. Back then a small HRT dose controlled/eliminated menopausal body sweats, and I was shocked when I began to sweat under my breasts about 3 years ago. Just this past few weeks it has become full body sweats many times a day, with hot and cold flushes — yuck. The only comfort is that, unlike the underarm perspiration due to low self-confidence that plagued me as a teenager [and was elminated by therapy thank god], these sweats don’t smell or cause my clothes to smell. But I get soaking wet. It is a great relief to find that it is “just” the fibro and not something more serious. I do remember reading some time back that people who had had Mononucleosis [which I did as a teenager] might contract fibromyalgia later [which I have]. A major mono symptom for me was exactly these full body sweats – my mom was changing my sheets 3 times a day. I was sure I’d get over fibro after a few years, but it does seem I’m stuck with it. Anyway, I am grateful for this thread as it has helped me with the acceptance of yet another very annoying and sometimes debilitating symptom. Thanks guys!

July 1, 2012 at 4:00 pm
(181) Cathy Hyburg says:

I get real bad sweating that affects my head, face and neck. Mine is real bad right after I shower, but its bad with just about any exertion. I never connected it to fibro, I just figured it was a side effect of oneor more of my meds! Thanks so much for this article, it definately answered some questions!

July 3, 2012 at 10:04 pm
(182) Lara says:

I too experience overheating and sweating regularly, especially face, head, back, chest, neck, breasts. I used to be a very low sweat person before fibro. The only time I ever experienced relief was when I went off all fibro meds a few years back. Suddenly I was actually too cold a lot of the time. Now I’m back to being too warm. Wine, food (especially anything hot or spicy), physical activity, anxiety, heating pad or rubs, sun, humidity, bathing or showering, sleeping, and warm clothes all make it worse. I have almost no need for warm clothes – I have a pile of sweaters that I’d suffocate in now – and would go nude all the time if it were socially acceptable and comfortable. I also have sun sensitivity from the meds; I burn badly and quickly. And am allergic to most sunscreens. So I’m a fan of cool, cloudy days or else prefer to be indoors when it’s sunny, which is unfortunate. Fibro is so complicated itself, and meds can both help and frustrate. I try to avoid showering closely in advance of having to go anywhere because of the heating/sweating issue, and how it impacts hair, makeup and overall comfort. I sympathize, everyone!

July 6, 2012 at 4:29 pm
(183) Robert Porter says:

This has made my life very miserable for many years now. I remember situations with my last girlfriend where she’d be under the sheets shivering, & there’d be me on the top with a fan blowing on full at my face like some freak. I hate it. It’s so horrible just going down the road to the shops. Sweat Pouring from my face only. Everywhere else? Fine! Just my face.

I beg anyone to solve this intractable condition. Because I am not going to sit in a restaurant & try to relax, when for some unknown reason, I am drenching Noah into his Ark.
I Pray for the day that I am relatively healthy. It’s been so dejecting, being like I am. :(

July 9, 2012 at 4:08 pm
(184) Mimi says:

I’m fine most of the time – (I suffer from Crohn’s Disease and Fibromyalgia) – however, when I am in ANY social situation, hosting an open house for my jewelry sales, giving a dinner party, Thanksgiving, Christmas, etc. I sweat like a pig in heat – on the sun’s surface! The sweat drips off of my head like crazy. The rest of my body is ok – just my head!! I think it’s just adrenaline causing it – or nervousness and anxiety. HELP – how do I get this to STOP!!!???

July 9, 2012 at 4:16 pm
(185) Mimi says:

I sweat from my head profusely whenever I have to entertain or deal with a social situation. I can’t stop sweating from my head – dripping down my face – when I have company here for Thanksgiving or Christmas, or have customers stop in for my jewelry repair or to buy some of my designs. I’m usually fine (excessive heat is another story) otherwise. It just starts to flow like a faucet when I am in one of those social situations. It’s no wonder that I prefer to stay at home!!!

July 11, 2012 at 12:46 am
(186) Jennifer petty says:

I feel like I just found gold! I have seen every kind of doctor under the sun and moon and until a month ago they told me I was generally healthy and made me believe I was crazy. Finally someone/ a gyno said I probably have fibromyalgia and diabetes. He sent me back to a general doctor but one I haven’t seen before. Anyways I truly thought the burning of my skin and the heat was an allergy that somehow the allergist missed and the least of my worries. Thank you everyone for your answers! Now I know it is probably a symptom thr can lead a doctor to an answer for me! YEAH!

July 13, 2012 at 2:18 pm
(187) Dianne says:

I was searching for side effects from sitting in front of a fan soaking wet for hours on end and found this webpage.
Now, admittedly, it’s Summer and hot outside; we don’t have A/C and I’ve been an absolute noodle for several weeks. I’ve been this way for decades and I was told by a Doctor that I’d “broken” my thermostat curing a bout with gastroenteritis and ran a 106 fever for several days.That was in 1974…in 1983 I was diagnosed with Fibromyalgia and have taken everything known to mankind for it. I’m 64 and probabky 35-40 pounds over weight after having lost 40# last Summer/Fall. I let my thinning hair grow out so I could put it in a skimpy ponytail…..makeup, forget it unless it’s Winter. I soak my head in cold water every half hour and jump into a tepid shower every few hours then sit in front of a trio of fans drinking iced water to survive. I can’t afford my Fibro meds anymore so I just take an Aspirin twice a day (I have fragile innards so I can’t abuse Nsaids)…I’m in constant pain and always sweating and yes, it’s worse after a shower. I have severe Arthrits in my hips and lower back, several bulging disks in my Lumbar and Cervical region and pinched nerves as well; my left arm is mildly numb all the time and thumb & forefinger totally numb…..there’s a pinched nerve in my groin so my legs & feet fall asleep quickly which has caused me to fall numerous times…I can’t stand or walk very far without loosing all sensation in my lower extremities. I do what I can but feel robbed of my golden years just when I’ve entered into a glorious relationship. I had accumulated an abundant supply of Prozac and take one 20mg pill in the morning, otherwise, it’s just my BP meds.I smile through the constant pain but my body is angry, my mind forgiving. I wish there was an answer and treatment. This group is wonderful andI wish all of us a breakthrough!

July 13, 2012 at 4:40 pm
(188) april says:

I just got diagnosed with fibro month ago I’m gettng sweats so bad and I am relieved other people do too I thaught it was just me thankyou for all your words of wisdom its helped me a lot

July 13, 2012 at 7:44 pm
(189) Lcarter66 says:

I discovered I was taking two medications which were interacting and causing high blood pressure and sweats – Effexor and Wellbutrin XL. I stopped taking the Wellbutrin XL and my blood pressure went back to normal and the sweating decreased. I still have some sweating, but nothing like I had experienced, prior to discontinuing the medication. I no longer “swim” in my clothes!

The other thing I have done is try to follow the Ayurveda Pitta Dosha diet. It has a list of foods that tend to create internal heat, and other foods that cool the body. Ayurveda is new for me, but it has been practiced around the world for thousands of years (India, for example). It has helped me, immensely.

July 14, 2012 at 9:53 am
(190) Catherine says:

Yesterday morning as I was playing with my cat I thought I felt something crawling on my neck. When I reached up to grab it, it turned out to be a drop of water–and then the rest began to fall. This is how my mornings go. Water rolls off my head as if someone has emptied a bucket of water over it. I also sweat at night in the bed and wake up soaked, my sheets and pillows soaked as well. I also sweat all day at work. I pretty much just sweat. At the same time, I feel cold, my skin feels cold, but all over my body is this film of moisture. I have been diagnosed with fibromyalgia and peripheral neuropathy. I experience numbness in my hands, especially in the morning, and along the side of my left foot. There is one place on my foot that feels thick, as if I’m stepping on something. Weird. But the sweating is the worst. Nice to know I’m not alone in this.

July 14, 2012 at 7:02 pm
(191) jane beaudette says:

I just read all your posts! as we speak I am having a hot sweat!! Its hot here in Iowa but I am lying on my bed in the AC and my face is wet. I have taken Savella for a week but the sweating was happening before that. All due to Fibro as far as I can tell!

July 14, 2012 at 7:02 pm
(192) jane beaudette says:

I just read all your posts! as we speak I am having a hot sweat!! Its hot here in Iowa but I am lying on my bed in the AC and my face is wet. I have taken Savella for a week but the sweating was happening before that. All due to Fibro as far as I can tell!

July 15, 2012 at 3:45 pm
(193) jane says:

so anyway today the pain is back, how long does Savella take to work? does anyone know?

July 24, 2012 at 4:32 pm
(194) Jessie says:

I’m so happy to discover this page. Even thou I was recently diagnosed with fibro (thanks to my physical therapist) I have had symptoms for many years. My physician, gyno, and endro had no reasons for all the stuff my body has been going through for all these years. We have done a ton of tests and I swear they think I’m nuts. The sweating started almost two years ago and its gotten to the point that I can’t leave the house. Between the ac and fans I’m still dying. I can’t even sit on the bed to get dressed without being drenched. We tried cymbalta and I quit it within 7 days because my skin was on fire. Like most of you I’m dying of sweat and heat but skin is cool to the touch. It does not help that i.have had hypothyroidism since I was 18 and I’m 39 now. Plus a total hyst at 7 years ago. I’d take meno pausel sweats any day over this. I just want it to end, I have gained over 100 pounds in the past two years and my sleep apnea doc is irrate with me. How the heck do they think I’m going to loose weight when I can’t even shower or.load the dish washer without getting drenched and out of breath. This is just plain nuts. I want my social life back but how can I without looking like a drippen wet fat hog for slaughter. I thought about going to the mayo but figured its a waste of time its obvious that there is no medical help for us. Between all the money I have spent on diets, Drs, travel I just want my life back.

July 25, 2012 at 4:47 am
(195) Janice Berry says:

I’m into my thirteenth year of Fibromyalgia .A long ways from when I was told I had it and was sent home with just a script for Zoloft because they didn’t know what it was or how to treat it.The sweating each year has gotten worse.I haven’t been on antidepressants in some time now,so it’s not that.This year I bought fans for the kitchen,and one very small one for here at the computer.I ‘ve bought neck coolers[even wear one to bed and it does lower night sweats.]I wear cuptowels wettened when out doing yard work to mop the sweat.I’ve even dyed my blonde and gray eyebrows brown and given up makeup.Still I sweat..I break out in a sweat while sitting here at the computer with a neck cooler and a small fan on top of the air conditioner.My neck pops now nearly every time I move it.It appears to be something to do with all this neck popping that triggers some of the sweating when I’m not physically active.Physical activity causes an all over dripping sweat effect.I now shop at Wal-Mart as it is 24 hr. and usually empty at 6 am,as crowds just suck up the very air and if I go in crowd times I’ll be dripping by the time I get to the checkout.Most of my clothes are too big as this is cooler and I don’t have to try on clothes[an airless dressing room would be just awful,I'd float out afterwards.] And yet my doctor tells me I’m over Fibromyalgia because I don’t have the extreme pain and fatigue I experienced for so many years.So,maybe it’s permanent damage from the years my rheumatoid factor was 625?It’s 4 now.I’m single now,12 years on this.Someone who doesn’t have this just doesn’t understand the discomfort or the stay at home social practices as you’d really not like to extend a dripping hand for a handshake,or drip sweat continuously as you visit..Most of my cooking is via microwave also as I don’t want to sweat on my food.Husbands hate micro waved meals.This,all of this is life in the fast lane for fibromyalgia suffers.

July 28, 2012 at 2:19 am
(196) Cargo23 says:

Cornstarch!!! Use as much corn starch baby powder as you can on all areas except your face. It helps under the breasts like nothing else. I’m still working on the head and face. I have invested in several small fans that are placed in strategic areas around the house. I also have battery operated fans that I wear around my neck. Bought them cheap at WalMart/Dick’s Sporting Goods.
I’m now trying Apple Cider Vinegar with water before meals. Someone even suggested rubbing ACV on my face. Don’t Give Up.

July 31, 2012 at 8:21 am
(197) linda says:

Weeroo, vitamin water got sued (coca cola) for deceiving ppl thinking not much sugar & healthy etc. 33 grams of sugar per 20oz bottle! I wish I can afford omosis type filtering for house prob est way to go.

July 31, 2012 at 8:31 am
(198) linda says:

Hey Janice I hope your doing better. I have many of same problems, but was wondering if neck does have something to do with it I also have neck probs, & I think gaining weight adds to it too. & humidity is a nightmare.

August 4, 2012 at 12:27 pm
(199) catherine grupillion says:

I don’t know whether to laugh or cry! I felt both emotions while reading this post. I know the feeling of the sweating, clammy forehead while others are putting on sweaters. My daughter said to me, “you have something on your face..” It was a perspiration drip, but, because it was so cool it did not even enter her mind that it could be sweat. I just answered, Oh, okay, thanks.” You can explain , even to the closest family but unless you experience it people really just can’t get it. I think they try and mean too, but , you just have to be there!!!!! Well, it’s great for our heating bills!!!

August 4, 2012 at 12:30 pm
(200) catherine grupillion says:

Where is my comment? I did leave one but the reply said I sent a duplication. I only sent one post. I hope there is no problem.

August 7, 2012 at 7:19 pm
(201) tina goff says:

my god my fibromyalga is causing these terrible sweats ive had it for 12 yearsdoctor sid it ws the menapause then tested for diabetous which im on diet only s dieting meeed swets so doctor said he thought it was my heart had more blood tests done waiting for results swear i thought i was going mad astill no wiser till i read this some days carnt hardly move glad to know theres loads of people like hs any one thought like i do that the doctor thinks your making it up.

August 8, 2012 at 2:17 pm
(202) Janey Hand says:

WOW! Is all I can say at this point.. I was SO amazed when I logged onto this site by asking “why do I sweat so badly?” And then I started reading this post and was like WHAT! Other people are doing this too. I was overjoyed and sad at the same time. I have been diagnosed with fibro for about 5 years now. When in the last 3 yrs i began to really think i was falling apart. I cannot keep my balance, I sweat so badly (all the time!) that I will not go anywhere, my vision is bad, my body aches (unless i take a stinking pain pill). I felt so alone in this. Reading all yalls posts have shown me I AM NOT CRAZY!!! Praise the Father. I will continue to read more and would like to know about this botox treatment some are talking about. Thanks yall, you really made me see I am not crazy. But all this sweating is so embarrassing.. I HATE IT. I sweat almost non-stop, and at all times, Janey

August 8, 2012 at 2:17 pm
(203) Janey Hand says:

WOW! Is all I can say at this point.. I was SO amazed when I logged onto this site by asking “why do I sweat so badly?” And then I started reading this post and was like WHAT! Other people are doing this too. I was overjoyed and sad at the same time. I have been diagnosed with fibro for about 5 years now. When in the last 3 yrs i began to really think i was falling apart. I cannot keep my balance, I sweat so badly (all the time!) that I will not go anywhere, my vision is bad, my body aches (unless i take a stinking pain pill). I felt so alone in this. Reading all yalls posts have shown me I AM NOT CRAZY!!! Praise the Father. I will continue to read more and would like to know about this botox treatment some are talking about. Thanks yall, you really made me see I am not crazy. But all this sweating is so embarrassing.. I HATE IT. I sweat almost non-stop, and at all times, Janey

August 8, 2012 at 2:17 pm
(204) Janey Hand says:

WOW! Is all I can say at this point.. I was SO amazed when I logged onto this site by asking “why do I sweat so badly?” And then I started reading this post and was like WHAT! Other people are doing this too. I was overjoyed and sad at the same time. I have been diagnosed with fibro for about 5 years now. When in the last 3 yrs i began to really think i was falling apart. I cannot keep my balance, I sweat so badly (all the time!) that I will not go anywhere, my vision is bad, my body aches (unless i take a stinking pain pill). I felt so alone in this. Reading all yalls posts have shown me I AM NOT CRAZY!!! Praise the Father. I will continue to read more and would like to know about this botox treatment some are talking about. Thanks yall, you really made me see I am not crazy. But all this sweating is so embarrassing.. I HATE IT. I sweat almost non-stop, and at all times, Janey

August 11, 2012 at 8:59 am
(205) Mandy says:

I take robinul for hyper-hydrosis. It can leave your mouth a little dry but u can start with half or even a fourth of a pill and work your way up.
I know a pill may not be what you want to do, but it works well for me. I still sweat, just not so much.
It was embarrassing to work with huge sweaty pits. I would go through a box or more of tissues a week just blotting my face throughout the day.
I think the main use of this med is for stomach ulcers. If you’re interested, ask your doctor.

August 11, 2012 at 9:09 am
(206) Mandy says:

I use robinul for excessive sweating. I think it’s mainly used for stomach ulcers. It does leave your mouth a little dry when u start taking it. U can break it up and start small. It does work for me. Ask your doctor.

August 21, 2012 at 8:59 am
(207) Carol says:

That was happening to me when I was on Zoloft it was dripping wet all the time now that I came off it stopped every time I went back on I sweated like a shower was over my head ! Medicine causes it

August 21, 2012 at 10:33 pm
(208) Heidi says:

I sweat a lot but there doesn’t seem to be any rhyme or reason to it. Sometimes I think it is related to blood pressure – when it’s high I start to sweat. It is really becoming annoying, though, and I think I need to start bringing a change of clothes with me wherever I go because I sweat through my shirts around my mid-section. I have been diagnosed with autonomic dysfunction but not specifically fibro or cfs.

August 23, 2012 at 5:15 am
(209) jean says:

my sweats just come at random … mostly on my face its no point putting make up on it just drips off again ??????????? … iv noticed im cold before these sweats ,and then my face is dripping wet … what should i do ??????????

August 25, 2012 at 2:30 pm
(210) barb fox says:

I wake up during the night at least 4 times and my neck will be soaking wet along with my hair and face my legs hurt I feel I have to streach them during the night and I been having tests after tests the doctor says i don
‘t have fibro she said maybe ms and my blood work all came back neg for rhematoid, hiv, lupas, and i don’t know what else. because i am so tired alll the time. plus the least little thing i do i break out into a sweat. hate feeling that way. my husband wants to go partying all the time, i just want to stay home. i get so embarrassed when sweat is dripping off my face. plus i feel uncomfortable. i would rather stay home and sweat with the air conditioner. plus i was dianosed with allergies, dr said i have ashtha, and i was dianose with sleep apnea but my legs and arms ache and i feel like something like cyst are attacking my body but dr don’t know they think i am crazy

August 25, 2012 at 10:29 pm
(211) Sarah says:

I have to admit that I feel somewhat relieved that the cause of my sudden facial sweating is most likely part of my fibro and chronic fatigue and not any sudden onset of any additional health problems. I’m 42 and have been wondering if this was part of menopause and I had my doubts, but I never would have thought about it being another blasted symptom of the fibro and CFS. The sweating seems to be an overreaction to any type of physical exertion and it only started a few months ago. For as long as I can remember I would feel hot all over, but my hands, feet and nose would be cold, but this sudden sweating is new. Thank you all for sharing your thoughts, stories and pain so that the rest of us could finally find a way to relate. Does anyone suffer from excessive swelling of the joints or possibly even water retention? I have had arthritis since I was a teenager and both of my knees are in bad shape and total knee replacements are in my future, but now I’m seeing swelling in my fingers, ankles and three times as much in my knees. Is this part of fibro and CFS too?

August 26, 2012 at 4:09 pm
(212) Catherine says:

Thank God I am not alone! My sweating started a few months back and it’s driving me crazy! I was just sitting here messing around on my computer when the sweat began pouring. Does it ever end?

August 27, 2012 at 3:53 am
(213) maria says:

Im so glad i found this website i did’nt even think my sweats was connected to my fibro im now 49 and had fibro since my early 20′s the sweats was not to bad in my 20′s only got real bad sweats when just doing normal house work and no night sweats back then but after i got sterilized when i was 27 that’s when they started to get really bad then when i had a total hysto at the age of 39 they took everything away including both overies and they had to put me on HRT it was heaven no more really bad sweats yes i had bad sweats when i was doing house work but that was ok i could deal with that .Then 12mths after that i started with heart problems i had my 1st heart attack when i was 45 then my 2nd last year at he age of 48 i had to have a heart bypass and since then the sweats have come back with revenge the sweats are really embarrassing when out and about i can see people looking at me as the sweat runs down my face and neck and dripping off me i hate going anywhere because of it . It bad enough the night sweats and sweating all the time through the day in my own home but now im starting to feel like a prisoner in my own home because of the embarrassment of the sweating .I did notice on one of the comments on here someone had botox done and that help her so i will be taking a visit to my doctors to see about having it done
I will let you all know how i get on you :)

August 27, 2012 at 10:15 pm
(214) Kathy says:

So glad to see I am not alone. I sweat profusely anytime during the day. It comes on for no reason. I was in the store helping my mom try on shoes. All of sudden out of no where I became this drenched cat. I actually have droplets falling off of my face. My hair becomes dripping wet. I too have the problem with makeup. I found putting my makeup on in the car with the a/c blowing directly on my face helps alot. Also, cold showers. The other thing I found helps alot, whether at home or out, is drinking lots of ice water(I drink a gallon of water a day) I keep frozen water bottles in the freezer. Placing one behind my neck or on my far head keeps the sweat from coming on. I originally had breast cancer and this came on after I was done with chemo. I ended up coming off of my medications, thinking it came from the meds. Did not change anything. The only other meds that I take are anti depressants. I’m going to see the doctor in a week and see if I can try coming off of them and see if that helps.

September 1, 2012 at 12:48 pm
(215) Amy says:

I was ‘happy’ to read this article, as I have profuse sweating, which I do attribute to my Fibro, but is nonetheless frustrtating, exasperating, and embarrassing. The sweat does seem worse in the morning, showers are impossible to finish off pleasantly, and I can never blow dry my hair within at least a half-hour of drying off! But when I exert myself in the slightest way, I can feel the sweat literally drip off my face, neck, between my breasts, down my back and even down my thighs. Talk about disgusting. I just have to find a place to sit and recool my body temperature. Ugh!

September 1, 2012 at 6:18 pm
(216) maryann rossi says:

So happy to hear that i am not weird,terrible sweats cannot get dry to get dresses,my doctor told me it was from the cybalta i was takinf,i stopped,not gradually either,done,so hoping thatafter a week or so off of this med.i will be dry again

September 4, 2012 at 7:05 pm
(217) christal says:

i just started sweating real bad one day and and i dont understand why i have never had this problem until about two weeks ago i cant stand cleaning doing dishes cause i water sweat real bad my face does real bad and i would love to know why im already one of those ppl who has panic attacks thinking there something wrong with me all the time and i have to com myself down and now this im only 30 years old and i was thinking maybe change of life women goes threw .. i can be sitting down and start sweating really bad please someone give me an answer why and what you think .. thank you

September 4, 2012 at 7:24 pm
(218) christal says:

i just started about two weeks ago with sweating really bad for no reason and i need some answers im 30 years old and was thinking maybe the change of life women only goes threw could i be going threw the change of life at the age 30 im already one of those ppl who have panic attacks thinking there something wrong with me and i have to com myself down and now this i can be sitting down and start sweating really bad like water will poor off my face i need some answers or what you think .. thank you

September 6, 2012 at 6:45 pm
(219) Jane D says:

I too have such a problem with excessive sweating. When I walk my dogs it is just miserable. I have a fan beside me all the time. It is like my body thermostat is broken. At night I put covers on, take them off, put them back on, take them off. The other night I woke up soaking wet. My doctors appointment is next month and I am going to mention this. Mine is also my scalp, face, neck and under my breasts. Horrible. Glad I am not alone. I, too, am through menopause. I am 66. This is a miserable situation.

September 6, 2012 at 6:45 pm
(220) Jane D says:

I too have such a problem with excessive sweating. When I walk my dogs it is just miserable. I have a fan beside me all the time. It is like my body thermostat is broken. At night I put covers on, take them off, put them back on, take them off. The other night I woke up soaking wet. My doctors appointment is next month and I am going to mention this. Mine is also my scalp, face, neck and under my breasts. Horrible. Glad I am not alone. I, too, am through menopause. I am 66. This is a miserable situation.

September 6, 2012 at 9:45 pm
(221) marge says:

I sweat so bad I have been in a store and the clerk has come up and asked me if I was o.k. I am just dripping from head to toe and then I get light headed and must turn pale. I also have Fibromyalgia and some other problems. For us girls we have a hard time keeping a hair do and forget make up. And for you guys out there I never thought much about you, and I’m sorry as you have to be hurting just like us girls. We should start a club. Good luck everyone.

September 7, 2012 at 7:57 pm
(222) Liz says:

I can’t tell if the profuse sweating I have–it’s not just my forehead by any means!–is, still, menopause related…or fibro related…or, yes, have been taking an anti-d for the past 6 weeks. Seems as if its gotten work during the past few weeks but also seems as if the anti-d is doing me a lot of good. That is, I’m getting up and out of bed and doing things. I wasn’t. Still haven’t talked with a dr about all that but am putting it together with tthe total tiredness, sore feet (plantars fascitis for a long time), sore elbow (tennis elbow for a long time), such morning stiffness that I couldn’t lean over to get shoes on. Seems to me it adds up to fibro anId I’m shocked. I’ve always been active and had no desire to do anything at all but sleep. The penny dropped when I heard and saw myself shuffling 30 yards to my apt building’s trash drop off and realized I hadn’t even walked without shuffling along for months. I’m 51. I’d go to take a walk in the evening thinking that was something at least and then find I was so sore the next day, my feet were, that you’d have thought I’d run a marathon. Anyway, the antidepressant seems to be helping. Took Cymbalta for three days and though I had headach and was nauseaus felt great in terms of energy and awakeness. Had to stop taking it though as can’t combine it with another medication I’m taking.

September 9, 2012 at 1:38 pm
(223) Sherry says:

I really thought I was crazy!!! FM and chronic fatigue symptoms: tired, can’t think clearly or remember anything anymore,PAIN and the SWEATING. In case anyone is considering antidepressants please check to see if they are norepinephrine reuptake meds. I took 150 mg daily of Wellbrutrin for 10 days and ended up in bed with more pain than normal and sweating out like crazy for five days straight. I stopped taking it. Another problem I’ve had for years with FM is that the Dr.s don’t want to prescribe pain meds around here. They say these type of meds don’t help FM, but I have done much research and find that “centrally acting analgesics” ARE recommended, in other words pain meds do work. I’m going back to the Dr. again on Monday to BEG for help. So frustrating for all of us! Sometimes I think they don’t even know what we have.

September 10, 2012 at 3:05 am
(224) Andy says:

Hi.
I have been having the sweats for a few months. I thought it was an infection but from what I have seen its not. Our G.Ps in the UK are not particularly helpful with either FM or CFS. So I know that going to my GP would be a mistake.

I am not alone. Good luck all.

September 10, 2012 at 3:05 am
(225) Andy says:

Hi.
I have been having the sweats for a few months. I thought it was an infection but from what I have seen its not. Our G.Ps in the UK are not particularly helpful with either FM or CFS. So I know that going to my GP would be a mistake.

I am not alone. Good luck all.

September 10, 2012 at 5:46 pm
(226) Ann says:

I’m 49 years old. I haven’t worn a coat in over 2 years and I never sleep with anything over me, doesn’t matter if it’s below zero outside. I live in Seattle and this summer has been miserable with the humidity. I sweat probably 75 % of each day. I also have insane night sweats. I don’t suffer from fibro. I do suffer from severe and frequent migraines, however My OBGYN put me on Effexor in an attempt to lessen the night sweats and “Hot Flashes”. But they’re so much more than hot flashes. I get so incredibly hot inside, like at my core, and several times it has made me vomit. I will then sweat for hours afterward. This goes on all day. The inner heat and excessive sweating will give me headaches and often they will increase into migraines.
Please know how much sympathy and compassion I have for all of you.

September 10, 2012 at 11:05 pm
(227) Hols says:

My friend had this problem for years. Now I have it. My friend finally got a detailed test regarding her DHEA levels and testosterone levels. I’m trying to get more info from her regarding what tests she had done and where. There is hope. She would pour sweat all day long and now she has resolved this issue. I hope this info helps.

September 12, 2012 at 9:41 pm
(228) Jennifer says:

I am so glad to have seen this I thought I was going crazy I have been in pain for 4 years now & finally discovered it is firomialgya. I have always been a healthy active person and I have always ran hot but it seems that lately since I have been taking Lyrica I have been sweating like crazy. im breaking out all over my face and I never did before I will continue taking my cold showers . good luck to all of you on finding a way to stop sweating

September 28, 2012 at 2:29 pm
(229) patty says:

wow! just read comments about sweating! i too have Fibro and have had this annoying issue mostly after i shower and try to get ready all around hair line, face and under breast. Its so hard sometimes to put my makeup on. i can feel it dripping down my back, its mostly so frustrating. It Feels good im not alone. thanks for comments

October 4, 2012 at 10:56 pm
(230) sarahrayne says:

Reading these comments has me in tears…no matter how I try to explain these symptoms to anyone no one understands.I no longer feel alone.THANK YOU ALL :)

October 5, 2012 at 3:31 am
(231) Juliana says:

My biggest problem right now, aside from the pain, is the sweats! I really can”t bear them! I had TB in 2004 (again) and since then, this problem has gotten worse! I am already diagnosed with Lung disease, and so many other things, I thought it was my lungs getting worse that are causing the sweats? I have just been in hospital with double pneumonia and sepsis! I nearly died! So I am very worried about this sudden speed up of sweats and fevers? I had a hysterectomy about 15 years ago and thought I went through the men..then? but now, these sweats are worse than ever! they’re no longer just ‘night sweats’ they are constant! every ten minutes through the day or night! I am diagnosed with Fibro but no-one has told me to expect these sweats? I’m contantly concerned that I have lung cancer now? or something else terrible? because these sweats are getting worse and worse and more frequent/more severe? Can this really be caused by fibro? and if so…how? and why?

October 9, 2012 at 2:13 am
(232) Dorcas says:

After searching the internet several times, I finally came across this site. Wow — I can’t believe how many others have similar messages. I have fibro, diabetes, low thyroid, osteo and rheumatoid arthritis, and am 15 years post-menopause (10 years since my hysterectomy). I’ve been taking HRT until recently, which seemed to hold some symptoms at bay.

I get hot flashes, very similar to my hypoglycemia episodes I had for 20 years before being diagnosed as diabetic. I know what menopausal hot flashes are. I know what hypoglycemia hot flashes are. But what I am having now is different. It seemed to be related to very high glucose readings. But now that doesn’t seem to fit. My head gets very hot, and my hair gets soaked by sweat. The episodes have a tendence to come while eating, but they can also come while I just sit watching TV, or working on the computer. But they also come when I do anything around the house, or when in stressful situations.

I never heard of this type of sweating being from fibro, so that is a new wrinkle. I’ve been reading elsewhere that it could be adrenal fatigue. I so want to find out what can be done to get it under control.

I gained weight rapidly a couple of years ago – the head sweats got bad afterward. So did the rashes under breasts & other folds. After trying many things, I found that if I use Mitchum gel antipersperant and deoderant after I shower, I don’t get the rashes — this seems to kill the bacteria which causes the rashes, and cut way down on the sweating in those areas. I don’t know if it will work the same for others — but it’s made my life easier without the painful rashes. Wonder if it would help my head that sweats so bad…..

Thanks to all who have shared. It helps to know I am not alone. Please continue to pass on ideas of what this is, and how to control it.

October 17, 2012 at 1:49 pm
(233) sylvia reynolds says:

I thought my sweats were because i had come of hrt at xmas. My head gets drenched and my hair looks as though i have just washed it or got out of a pool.

October 26, 2012 at 9:59 am
(234) Fin says:

I’m 21, really sporty (in fact I’m a Personal Fitness Trainer) but have constant sweat patches under my armpits. It doesn’t seem to matter what I do: shower/no shower, deodorant/no deodorant, wash and leave wet/dry as quickly as possible. It doesn’t matter but it really does stop me enjoying myself. It doesn’t even smell (most of the time) but it’s literally like I’ve left a tap on in my armpit! Doctor didn’t know what I should do, guess it wasn’t a big problem to him. It’s good to know there are a lot of other people out there with similar problems!! Nice thread :)

November 13, 2012 at 7:30 am
(235) loud-Voice.com says:

I wanted to thank you for this great read!! I certainly enjoyed every little
bit of it. I have you book-marked to check out new stuff you post…

November 25, 2012 at 5:47 pm
(236) Diana says:

We are all happy to find out that Fibro suffers are also excessive sweaters, but no solution has been established for this embarrassing and uncomfortable problem. I have gotten off of almost all meds trying to eliminate this sweaty mess, but so far prescription drugs have not been the cause. I hate going out of the house for any reason. I recently retired in beautiful Puerto Vallarta, MX and cannot step outside without sweating profusely from my head. Doctors just look at you like you are crazy and I am sick of that. I have had fibro for almost 20 years and hardly ever sweat until my later years (im 62 years old). I started sweating at night and of course it was menapausal. Now I do not sweat at night, but sweat during the day just sitting around the house. The homes here in MX are not air conditioned and so it makes it all the worse. When I walk into a store with a/c I still sweat. But I have noticed while I am sitting quietly that my head is so hot, burning up. I never want to socialize, because people look at me like I am a freak. My hair is soaking wet all the time. I keep it cut very short, but it looks like I just got out of a swimming pool. A big turn off too, since I am single. And I find it hard to make excuses for it. I don’t want to say it is because I have autoimmune diseases. That just makes for further rejection. People look at me like I am disgusting, and I feel disgusting. All I want to do is go home and suffer alone. I am totally amazed at finding this website thread and finding other people who are suffering like me. One lady mentioned the gluten free diet. I may try that solution. I never see anyone in public suffering like me, so it is nice to know there are others out there with the same problem. The other day I walked 5 blocks to get my hair cut and when I walked in my head was soaked. I was so embarrassed, that I don’t know what to say to people!!!!!

Diana

November 26, 2012 at 9:45 am
(237) Linda says:

Diana, you described it so well. I am 63 and I am exactly like you. No one understands why I want to stay home all the time. I am more comfortable there with my central air and my excessive sweating. I keep asking the doctor but he has no idea why this happens. I too am wondering if it is something I am allergic to as I am having other problems as well. I thank you for your candid opinion and hope someday we can get some help. With the number of opinions stated on this blog it definitely should be looked into. I just wish one person (doctor, researcher etc.) could live one day in our bodies and see how they react. Take care…

December 21, 2012 at 7:08 pm
(238) sylvia says:

I am sooo hoping for something to help with this top of my head and face sweating..It happens every day..If I just move my arms around,sweat starts pouring from my head..Tried some clothes on, at a store..My head hair were soak so bad that I could wring sweat from my hair..It was dripping from my chin and the tip of my nose..A good thing that I had some wash clothes in my purse..My face was red, sweating and looked like I was about to drop.I wish I knew what is causing this for all of us who are suffering..My whole back has been stinging and burning under my skin today..I am so tired..I didn’t get up until 2:00p.m.I thought maybe if I would rest that it would help..It didn’t..I have searched and searched to find some kind of clue as what to do..I have a rash on my face,chest,and under my breasts..that plus pain all over is a lot to depress anyone..I wonder if Celexa causes the sweating..Also when I start to eat a meal, I start sweating..
sylvia

December 21, 2012 at 11:34 pm
(239) Leslie says:

My sweating starts just from moving around too much.Something as simple as loading the dish washer or folding laundry.I also sweat when I start drying off after my shower.I’m so tired of it.I take tray adobe to help me sleep.It doesn’t help anymore.It takes me a long time to fall asleep and when I do I dream too much.So I wake tired in the morning.I have Fibromyalgia,depression and hypothyroid.I miss what its like to have a good nights sleep.If I don’t take my trazadone I wake all through the night.I don’t know what to do.All I know is I’m tired of being tired.

January 26, 2013 at 4:58 pm
(240) Myla57 says:

So glad to have an answer to this hot mess. I just started the sweating and intense heat a couple months ago while I was sick with bronchitis. I thought it was due to being so sick, but after antibiotics I am no longer sick, but still sweating. Like everyone else, all I have to do is move and I’m soaked. For me it’s my hair and the back of neck as well as under the breasts. I live in KY. where we just had an ice storm, the temps were in single digits, but I was sitting on the porch trying to cool off. My husband wears his coat while in the house. I hadn’t even thought of this being the Fibro. When I have these spells, I also get really shaky and actually feel ill. I thought it was blood sugar until I read these posts. I can’t talk, Neurontin, Cymbalta or Lyrica. The side effects were as bad as the pain. I don’t know which symptom is worse, the sweating or the Itch. The itch has almost made me loose my mind. It started in 1992 and I still have 5 or 6 flares a year. I hope someone is doing studies on Fibro. and all it’s symptoms. I don’t think I can tolerate this for the rest of my life.

January 26, 2013 at 7:03 pm
(241) Veggie says:

Wow, i thought i was the only hot blooded soul around, everything i do i sweat, Literally i can just be watching TV the temp in the house can be set at 73 and I am so uncomfortable hot and sweaty, Its truly miserable. I get out of the shower i start sweating and you wouldnt believe how bad it gets when i actually work or even step outside. I live in southeast Teaxs so the weather here is probally not the most suitable for me but I love it here. I have been like this for as long as i can remember. I used to live in Nebraska, The winter time was my favorite time of year, Believe it or not. I never wore a coat unless i was gonna be in the elements for a long period of time. There is nothing worse then sweating when its below zero, well I did. I wish i could stop sweating and being so hott all the time. It really compromises my life style and its just plain irritable and depressing… I sure could use some help….

February 1, 2013 at 9:04 pm
(242) Mags says:

Well I am pleased to find these comments because I could not understand these terrible symptoms and I cannot seem to find any real relief. I get these sweating episodes without warning. Especially in my face. Upper lip and under. I was diagnosed with FibroMyalgia about 20 years ago. I have since contracted Ross River Fever which is a form of Malaria and Glandular Fever, so this has left my immune system very compromised to say the least. I also suffer from Chronic Fatigue. About 2 months ago I went to see a Naturopath who was highly recommended. She put me on a detox diet and I have lost 10 kilos. Yet unfortunately, I feel even worse now than before. So disappointing! I am also a Celiac, which does not help. So now I feel absolutely depleted and my energy is non existent. So now I am trying to replenish my system of basic nutrients. It is so discouraging when you try to seek help from this source or that one. Anyway, thanks to all for their input and experiences! It certainly helps to know that we are not alone in our struggles.

February 26, 2013 at 9:55 am
(243) annique says:

I too have CFS/Fibro/ME or whatever it’s called these days. I’m chalking it up to ANS dysfunction. One of the annoying symptoms is profuse, and I mean PROFUSE sweating, like my body is raining. It is actually the worst when my temperature is low, like 96F. I just can wear cotton, don’t tolerate anything polyester or so. It is a challenge to be with it, to allow it to be what it is. It gets worse if i resist the fact that it is happening. Meditation has helped me a lot to deal with it.

March 4, 2013 at 10:37 pm
(244) jezebelsmom says:

I have the sweats too. Even in the coldest of months, i have to leave my coat open so I’m not soaked. But here’s something you might want to consider. I did an elimination diet and some of the things I stopped consuming were sugar and grains. I have to say, my sweating reduced. Once I started eating them again, among other things, my sweats returned, but I really think it’s either sugar or grains (am leaning toward sugar). I’m planning on eliminating both again for the next few weeks. Has anyone else tried this?

March 5, 2013 at 5:54 pm
(245) donna says:

I know this is an unusually older post but I just found it.I too, found it helpful! I also thought it was only me or menopause. The head sweating is just weird!! I’ve never been a sweat er before and have no idea how to deal with it. And my hair is very porous, which makes it worse! It is awful because sweat all the time and freeze. It’s awful!!!

March 6, 2013 at 9:52 pm
(246) tired of sweating says:

I am glad to have found this thread, too, and more glad to see these recent posts. I’ve never been diagnosed with anything specifically causing the sweating I experience on my scalp, forehead, and neck. I just turned 50 and have had this problem for about 5 years now. My gyn told me about 3 years ago that these sweating episodes were hot flashes but they are nothing like what I’ve heard hot flashes described as. Like many of you, I experience them more so in the morning after showering and while putting on makeup, fixing my hair, and dressing. Also, the most minimal of activity, such as cooking or anything moving my arms or bending a few times can bring it on. I think sometimes that it’s worsened by anxiety. I don’t have fibromyalgia or CFS though I’ve taken Levothyroxin for hypothyroidism for at least 15 years. I thought it might be something hormonal related so went to a nurse practitioner for biomedical hormones. She couldn’t give them to me because I’m still using birth control pills and the hormones could counter their effectiveness. Likely that I won’t become pregnant at my age but I’m sure as heck not taking that chance. What is so frustrating, besides the mere fact of the embarrassment that goes along with sweat rolling excessively from your head for no apparent reason, is that health professionals seem to not really care. Therefore, little is known about this condition. This thread, however, has offered some hope to me tonight through the comments about Oxybutynin. I found information on the study of this drug for hyperhydrosis online and am going to print it and take it to my doctor. I hate taking medicine but I’m desperate. http://www.sweathelp.org/pdf/Munia%20study.pdf

March 9, 2013 at 12:46 pm
(247) Rebecca Johnson says:

I had all of the symptoms, night sweats, day sweats, red flush, stiffness in joints, slow to heal, tingling and numbness in hands during the night. After 5 years a endocrinologist called for a glucose fasting test. I was diagnosed with Diabetes Type 2. I was told I most likely have had this for a very long time but was passed off as menapause. Diabetes undiagnosed can lead to many of the diseases I’ve read about in this forum, such as fibromyalgia, arthritis, neuropathy, etc. I am currently on Metformin for the diabetes and Neurotin for neuropathy and sleeplessness. These meds have helped but I strongly encourage a fasting blood glucose test to rule out diabetes. I did not have the typical signs of diabetes such as thirst and frequent urination.

March 11, 2013 at 5:34 pm
(248) MRAM569@ says:

i used effexor

March 13, 2013 at 9:04 am
(249) Melissa says:

Nice to read and find out so many have the same problem!

Has had me worried something much more serious or a mystery, before just figured had a natural higher body temp but now know is that mixed with two kinds of medication an anti depressant plus other that is also at the root of it, although like mentioned in the article can’t give them up.

My limbs usually normal temperature cold if is cold, but entire face palms, feet absolutely pour swear that make up runs and stain neckline of top,

full body sweats at night also occur as well as ‘hot flushes’ where will be sitting doing nothing and all of a sudden begin to what others seems like a fever.

This condition is horrible, but nice to know so many others out there to share stories and information

Mel

March 28, 2013 at 11:45 am
(250) Jason says:

I am on anti depressants and a drug called Epilim which is a drug used to treat epilepsy as well as bipolar, which I suffer from.

Since I’ve been on the anti depressant tablets called Effexor and Epilim,
I sweat heaps which I never did before I was on the medication, and I have these hot flushes one or twice a day, which can make me feel nauseous as well.

I also suffer from felling very lethargic which my doctor says even though the tablets can make you feel a little tired, it the Bipolar that makes me feel tired through day.

April 1, 2013 at 1:02 pm
(251) Jo says:

It was so interesting to read all the comments. I have always been a heavy sweater during exertion, having to cool down after. I’ve been sweating profusely, from my head and face, for several years, but it’s much more severe now. If I’m not standing directly in front of a fan, I sweat.The person commenting about having a fan on while trying to do hair or makeup,sounds like me as well. I’ve had to stay in another room, beause I have to have the temp so cold. My husband says it’s freezing. I have no need for a coat, even when it’s very cold outdoors! I carry a “sweat” rag with me, so I can keep my face wiped off. Hair? forget about it! I’ve had extensive bloodwork done by an endocrinologist, I’m under neurologists care due to fybromialgia, and Osteo Arthritis. I’ve also read that spinal stenosis of the spine, is also a cause, due to damaged nerve endings. All I know is,I am so tired of being imprisoned by this condition!

April 4, 2013 at 1:12 pm
(252) Sonder Twyful says:

I could cry! After suffering with indescribable sweats for a decade, I have across this group to see – finally – that I’m not the only one!! The best news is that I see MEN suffering from the same problems. Good news because I have been told for TEN YEARS that it’s all “just menopause”; not good news for the men who suffer.

I have not worked in 10 years, have not been able to get disability due to the arcane and restrictive rules, and have become a hermit; hiding in my home day after day, because I find the stares, the comments, and the embarrassment too great to handle. I always look as if someone had just dumped a bucket of water over my head. It doesn’t matter if it is hot or cold out, I am always sopping wet. Thank you all for letting me know that it’s not all in my head and that I’m not crazy.

April 9, 2013 at 4:09 pm
(253) Diane says:

All these sufferers but no help, no answers. I don’t want to be in any social situations due to this embarrassing condition. If you have fibro you must be on some type of sleeping medication. I am on ambien and wonder if this drug is the cause. If I am not on it, I do not sleep, period, and miserable. I am going to try and get off of the drug and find out if the drug is the cause. I have had fibro for 30 some years and the last 4 I have had this problem with excessive head sweating.

April 30, 2013 at 7:46 pm
(254) Colleen says:

My 74 year old mother has had this sweating problem for just over a year now. It is terrible and she has such a hard time. Anything she does she sweats purfusely. Just walking a short distance she is soaked. Every day she will have to change everything she is wearing several times a day. She had been to the doctor about this problem and the doctor does not seem to know what is causing it. She is going out of her mind and I cannot believe that there is no help for her.

May 13, 2013 at 12:39 am
(255) Judy says:

I literally pour sweat from my head. My hair gets wringing wet. When I blow my hair dry it takes forever because my head won’t stop sweating. Usually I try letting my hair air dry for a while before I blow dry it but sometimes it remains wet underneath from sweat. I don’t sweat anywhere else usually but my head and face are drenched. I have just been diagnosed as diabetic. I take a light high blood pressure pill which controls the HBP great. I also take an anti depressant and cholesterol pill at night. This is so annoying because others around me are comfortable or cool (70-72 degrees) and I am pouring sweat. Not too cool – I am not going through the change – am 61 yrs old, hysterectomy 10 years ago, do need to lose 40 pounds. Is there anything I can do other than lose the weight which I am trying to do???

May 15, 2013 at 4:59 am
(256) ED says:

I am a 60 year old male
I have had a severe case of excessive sweating of my head, face and neck area for the past 20 years
in the winder my car windows fog up from the cool air outside and the heat from my body.
The Summer is brutal, my clothes get soaked in minutes.
I can actually soak 5 or 6 super absorbent king sized towels. Is there anyone out there that can suggest a cure
or a spspecific field of medicine? Please

May 21, 2013 at 10:12 am
(257) Vicki says:

OMG – this is almost fabulous to find out – I seriously cannot take anymore people & doctors telling me it is just Menopausal hot flashes – I have been having them since I was 35 – meno did not happen for me until I was 45….. so I really am not crazy …. yay~ Mine are worst first thing in the morning…. my housecoat sliding off and coffe cup slipping out my hands as the sweat drips off me …. awful to work thru while getting ready for work along with cognitive issues combined…. I am so distracted in the morning i wonder how I make it to work A/C on then back to heat in the car……… there’s gotta be something that helps….

May 24, 2013 at 4:20 pm
(258) Beverlyb says:

until last week when I was searching hard to find some relief from the water I was pouring out, like the others on this post there was nothing that would help me so I was told and also thought it was menopausal related, but I know I didn’t have an enemy that I wanted to suffer like I was suffering, it is so much I could say here, I am diabetic, high blood pressure, high chlorosteral, fibromyalgia etc, so my body was really taking on issues that I did not want to deal with and making me think I was going crazy, bottom line after reading every blog here and I mean every one of them, I would have missed my help just reading a few. just Monday I went to my doctor and request the Oxybutynin 5mg tabs 3 times a day like it was posted here, they told me it was for bladder and urinary issue, yeah I know…my report after taking my 2nd bill of the day, I saw and felt the difference. I have been taking them now for 4 days, please if you are tired give them a try they helped me and I believe they will help the next sufferer, the directions stated known to decrease sweating, that was all I need to hear and glad I found this God send blog, out of the 256 blogs, I did not see my answer until around reading with the 90th blog, so again I would have missed my help had I not read how this was effecting others that was suffering along with me. Thank you for sharing your relief and I will be telling everyone I know about Oxybutynin.

May 24, 2013 at 4:48 pm
(259) Beverlyb says:

Get the Oxybutynin 5mg 3times a day and watch the difference even in you spirit

May 27, 2013 at 2:13 pm
(260) shoppgirl25 says:

I dont know if anyone has ever heard of this but every few months I see my dermatologist because of my sweating issues. I have had fibromyalgia (diagnosed) for around 13 years. It wasnt until after being diagnosed for 8 years that my dermatologist made a suggestion. He said that on a lot of parts of the body sweating can be reduced by simply injecting botox into those areas. Most insurance companies will approve it but your doctor has to clarify its for medical purposes and not cosmetic. They offer a numbing medicine so the injections wont hurt so much but I dont ever use it. Beware though some areas require lots of pricks of botox such as under the enderarms I have 30 injections in each armpit all at once. But in my opinon its well worth it.

June 1, 2013 at 7:52 pm
(261) Becki Royce says:

It is nice to know I am not alone. I sweat so much that my hair is wet. I now wear it short so it is embarrassing when it is apparent that it is as wet as when i got out of the shower. However it doesn’t end there, my sweating extends to every part of my body. My clothes are drenched and I am always freezing. I used to sit at home under three blankets in a bathrobe and sweats trying to get warm and wonder how I would deal with it when I went back to work. So now I sit like an idiot, sitting at my desk dripping and freezing. I now take a towel to work and dry off, change my clothes, take them to the car to dry out in the heat while I freeze.
I feel frumpy and most of the time like i need another shower…I hate it.
And, when the attack is over, I am in pain like crazy. And then it starts all over again. Does anyone know how to get this to stop….OH I forgot, its fibro!?

June 5, 2013 at 6:24 pm
(262) Going to Dr. ASAP says:

So glad I found this page,I thought it was the meds I take for fibro or pre-menopause hot flashes ,but now I know it is my fibro flare that has made my sweating out of control,thought I was going crazy! I will be calling my Dr. in the morning to try Oxybutylnin(I think I spelled it right but if not look on earlier post) and I will post again to tell you if it works. If I can help just one person like me it would be a blessing!

June 9, 2013 at 12:37 am
(263) Barbara says:

I went from 60 years of internal coldness to a sudden change of heat in 2012. unbearable! . my head. and hair sweats in cool rooms. my face have broken out in rashes. from sweat. I wear short sleeves and no coat in below. freezing weather only to endure strange looks and comments. I sleep with no cover and a fan. now I know what it means to fear ” spontaneous combustion “. my insides are on fire! . .my doctor gave me a low dose of effector (normalLy for anxiety …which I do not have).. it has mildly helped for tge hormonal imbalances. the post…mental pause has been interesting! … glad to see this blight and that I am not alone. in this apparent common but untreated issue. ( also have the fibromyalgia)

June 15, 2013 at 11:34 am
(264) Duty says:

I have head, face, and neck sweating during the summer when temps get above 80, Primarily after a lukewarm shower. The sweat streams down my face and hairline is soaked. Funny it doesn’t happen in the winter. The sweating drives me crazy. Don’t think it’s meds because it doesn’t happen year round. For sure the shower starts it off. I use a fan and air conditioning and still doesn’t help. Might as well skip the makeup and hairdryer. After my sweating spell, I’m exhausted. I drink a lot of water all day long. Did I mention I live in the desert – dry and hot, hot, hot. I let my hair grow so I could wear it up and off my neck, but found when I took it down my scalp was still wet under the french roll. My doctor said my internal temp gauge just can’t take heat over 80 and the sweating is it’s reaction to try to cool me down. Don’t fight it. Leave it on your skin over may have heat stroke.

June 23, 2013 at 10:25 am
(265) Dipendra says:

I am facing this problem since 1½ yr. before it was very lite, but as the time passed by it went heavy and it goes excessive while I am working on something, during cooking it goes very heavy. If I work on something that I know very well I sweat a lot.

I wish there is a cure or at least someway to stop for sometime with medicine.

June 29, 2013 at 11:16 pm
(266) Sis says:

Ladies your not alone! I take at least 3 showers a day, but before I get out of the shower I make the shower as cold as I can , for about 10 mins. This really helps. But as I drip from sweat from the waist up my legs are like ice. So there I sit with sweatpants on my legs and a ice pack on my head. I do have fibro and anxiety issues.Remedy…..I think we all should meet at the pool (pool temp 70 degrees) with a nice cool drink and relax a few hrs. Well its the thought that counts. Have a great and cool 4th of July………………….Sis

July 3, 2013 at 6:35 pm
(267) Dawn says:

I too sweat ALOT and have had fm for 20 yrs. The sweating has worsened, affecting my daily life over the last 6-7 yrs. It’s horrible, ppl think something’s wrong or your on drugs. Then there is the increase in pain from wet hair and clothes. 5 years ago I started getting itchy sores on my scalp. Almost as if an allergic reaction to the sweat, my Dr said it’s folicalitis. Now with a daily prophylactic antibiotic, the sores are controlled. The sweating still occurs and now my GI symptoms are more severe because of IBS and taking antibiotic s daily.

July 4, 2013 at 7:16 am
(268) annique says:

I have CFS/Fibromyalgia, and sweat a LOT. I can only wear cotton, as things like polyester immediately make me burst into rain. At times rayon works. I find that I sweat especially bad when I switch activity levels, or switch temperature zones (like from a.c. to no a.c. or vice versa) or eat a meal, or for no reason at all; literally like I’m raining from my body, especially my head. When i go out i wear a black top so I don’
t walk around looking soaked. It’s a drag, but I try to be sort of Zen about it.

July 12, 2013 at 2:46 am
(269) aquasana promotion code says:

RT Another disaster. I’ve always been advised you can’t kick a pigeon.

But in front of some now v upset small children, I just discovered you can.

July 19, 2013 at 1:22 pm
(270) Angie says:

So happy to find this site! My sweating is so disgusting! And it makes me stink! I was diagnosed with fibro this past September after years of pain. Today is my 3rd day this week calling off work because it’s just too hot out! Anyone else have severe heat sensitivity? I went into work yesterday, for a whole 2 hours before I started to feel horrible. When I got home I had lost 3 pounds from sweat (a lot for a 90pound girl). Any tips for relief? This sweating is ruining my life!

July 20, 2013 at 5:32 am
(271) dermstore Eyebrow says:

Check out BCO (Bargain Catalog Outlet) for plus sized clothes,
furniture, lotsa stuff. They don’t always have every size in every color, but there is a filter that lets you choose your size, so you’re not
wasting your time looking at things you can’t have.I got a washable suede coat there last year for $12! (I was shopping off-season, but still…)It’s
a pale maroon color, but who cares?

July 22, 2013 at 2:01 am
(272) Beth Griffin says:

My head sweats like a freaky thing. All night, all day regardless of the room temperature. It literally drips down my hair and cheeks and neck and face constantly. I put on make up and its gone in an hour. I curl my hearts and it’s dripping straight in 20 minutes. It it my thyroid pills? My Effexor xr for antidepression 300 mg per day is it from years of tomaxifan from breast cancer I had 10 -12 years ago. Does it have to do with my lymph nopdes being removed? If there any blessed thing I can do to stop or control it? Please help!!!

July 22, 2013 at 2:54 am
(273) Dorothy says:

I have had Fibro and CFS for 28 years. Break out in sweats all over with increased pain, weakness and stress. This can happen when I am in a store and it takes to long at the checkout.Then I get cold, because I am wet, which aggravates the muscle pain. Also had a problem getting out of the shower because the chill aggravates the muscle pain. Only use warm water to shower, never hot and wrap myself in a large terry robe when I get out. This keeps me warm and also absorbs the sweat if I get to hot. Don’t think it is the meds, because I have been off and on so many and the head and neck sweats remain. It is embarassing, don’t even have to be moving. And once it starts it takes a lot of ice cold water and towel drying of the hair. Keep my hair really short and now that I no longer work, keep trips out of the house of 2 to 4 hours.Dosen’t sound like a solution, but it works for me most of the time. I also use a headband to keep the sweat from my eyes and dripping off my nose.

July 23, 2013 at 11:13 pm
(274) babsie says:

I relate with the person who posted: fluid build up behind ears,degenerative disc disc disease, hypothyroid, hypertension, depression, and hysterectectomy.

Now which is ? The auto immune factor *hashimotos, hypothyroid,
thyroidectomy, post hysterectomy, anti=depressant effect, fibromylagia,

I don’t know but I sweat dripping from my head and have had people come up and ask me if I am okay. I keep a small towel in my car and purse. It is scary !

July 25, 2013 at 5:28 am
(275) Julie Mcgregor says:

I am so glad to hear that I’m not the only one that sweats. I thought it was hormonal or the kids used to joke around and say that mums thermostat is broken. I have had trouble since 2001 with sweating. I have been to doctors, specialists dermatologists and no one can tell me why I sweat so much. In summer if I am in the supermarket I get that hot I have to stand near the freezer compartment, but then I get to the checkout and my hair is wet from sweat, it is only very short. I always carry face washers with me and Chinese fan, to keep me cool and wipe my face and neck. I only sweat from the head, if you put your hand in my hair to the scalp it is hot. In summer I have cold showers then I get out and have to get dressed in front of a fan to keep dry. Same in winter, I have warm showers and still get dressed in front of a fan. I have fibromyalgia as well as subcutaneous lupus. I have had symtems for over 30 years before the doctors gave it a name, and I broke down and cried when they did because I thought I was going crazy. Same with the Lupus it took them 25 years for that one, after I had all these scares all over my arms from scratching the hell out of them for years. People always think because I get hot all the time that I don’t feel the cold, but I do and I love the cold. In my home I have to have air on in the main rooms and in the others I have fans because the smallest jobs cause me to break out in a big sweat, summer is the worst but even in winter I still have the fans on. That’s why it makes it hard for me to ever form any relationships with anyone. So I stay on my own, that way I don’t have to put anyone out. Oh we’ll that’s enough of me complaining. I’m just so happy to have other people going though the same as me. For those ladies that have trouble with sweating at night an soaking there pillows, I always put a folded towel over my pillow, it’s easier to change a towel.

July 27, 2013 at 10:15 am
(276) blog emusic says:

I know this site provides quality dependent articles and other material, is there any other site which
gives these information in quality?

July 27, 2013 at 12:50 pm
(277) Sara says:

Hi all, this page has been so useful so I would like to thank all who have contributed. I too sweat profusely and it’s no joke. Luckily for me the dri-clor that my GP prescribed is brilliant for under my arms although she also prescribed a cream to use first, this definitely helps with the itching/burning sensation. I was first told I had CFS/ME about 4 years ago but now I’m told its polymyalgia with fibromyalgia. Maybe the diagnosis is still incorrect; I have raised inflammatory markers which is why I’ve had the polymyalgia diagnosis. I take a small daily dose of prednisolone as well as medication for anxiety. Unless you have this excessive sweating people do not understand and I find it really embarrassing. My face drips with sweat as does my neck and back. The hot weather, as nice as it is, does not help, as soon as I attempt to do any housework or gardening or exercise my face just pours. It would be really brill if there was a body temperature switch we could just turn down!

July 30, 2013 at 10:28 pm
(278) Sue says:

I am so thankful to find and read this. I really thought I was the only one in the world this happened too. Not that I am glad this happens to other people, I am so sorry it happens to others. I was getting so depressed about my situation, I only go out, when it is a necessity, and am very upset when I am forced to be around people. Maybe there is some hope now that I realize I am not alone with my problem. I have been this way for years, I’m 66 and overweight and am just so tired of dealing with this as it is only getting worse. Thanks for listening. Sue

July 31, 2013 at 11:49 pm
(279) mjs125 says:

I also suffer from excessive sweating, usually from nothing whatsoever but sometimes from very light activity that shouldn’t cause sweating at all. I can have cold feet, and yet my head and upper body are sweating. I did research on fibromyalgia and chronic fatigue, and discovered that many alternative practicioners feel that fibro and CFS are closely related to low adrenal function. One of the many functions of our adrenal glands is to help regulate temperature. Interesting, right?

August 3, 2013 at 5:10 pm
(280) Chey Cobb says:

*** I FOUND A DIAGNOSIS AND A CURE! ***
I have suffered from this socially-limiting condition for 8 years. I have been researching like crazy and think I have the answer: We all have “Craniofacial Hyperhidrosis” and the treatment is a drug called Oxybutynin. I have been using Oxybutynin for almost a month now and my face and head are DRY.

Craniofacial Hyperhidrosis is the rarest form of hyperhidrosis. Therefore, it’s not too surprising that most doctors do not make the connection. What this has to do with Fibro or Chronic Fatigue, I don’t know. Maybe there is no connection. I don’t know.

I have been using Oxybutynin for a month now. I noticed a slight difference the first day. By the third day I was dry all day. It’s not just a placebo effect, either. (I’d tell you why, but there is a character limit to this comment section and I can tell you my whole story.)

Here are the links you should read and share with your doctor:
1. Medical paper on using Oxybutynin for facial hyperhidrosis:
http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0365-05962011000300005
2. Hydrosis information (includes pics of wet heads/faces):
http://www.hyperhidrosisuk.org/home/affected-areas/other-areas.html
3. Medications used to treat hyperhidrosis:
http://www.hyperhidrosisuk.org/treatment-options/medications.html

In closing, I hope I have helped at least some of you to find help and to be able to lead a normal life again!

August 4, 2013 at 5:52 pm
(281) vanda says:

I am 69 yo fem diagnosed w/fibromyalgia 10 yr ago, and Sjogren’s Syndrome and Rheumatoid arthritis 23 yrs ago, and chemical sensitivity. I and my daughter noticed around 6 yr ago sweating, especially around head post shower/ tub bath. Since that time I’m frequently very warm then cold, or warm body and cold feet. I came across your comments and have been enlightened. I also have been researching my many symptoms and began to believe, on my own, there was a connection to the adrenal/ cortical pathway. I am currently trying to talk to my primary to allow an endocrinologist appt. # 15 Elizabeth-get another Dr. You are paying them to listen to you. If they don’t agree with you, they need to provide you with a reasonable explanation why they disagree. It’s YOUR body. As a nurse of 37 yrs ,retired, I also to advise have diabetes

August 8, 2013 at 6:46 pm
(282) June says:

I’m a 71 year old woman with Fibromyalgia for many years. But at the beginning of this year I began having sweats and chills all the time. One minute I am freezing and then I am sweating. It’s like waves of cold and heat. My doctor says he has done everything he can and doesn’t know what it is or what to do for it. I really need help. This is exhausting and I am unable to accomplish my daily activities.

Hope someone has some information.

August 9, 2013 at 9:11 am
(283) Emma Santoro says:

I was in so much pain, & sweating so badly, my husband took me to a Walk in Clinic. Much to my surprise, I had a “COMPLETE BATTERY” OF BLOOD TEST.
As it turned out, I had 0 Vit. D ( which causes pain) & -2 Progesterone.
These are vital vitamins for anyone. It appears our Fibro bodies EAT UP our necessary vitamins.
Once I was put on 50,000 units of Vit. D3 & PROGESTERONE 200 MG. THEY HAVE SUBSIDED.
Please, tell not ask your doctor to test for this. It is not within the regular blood testing.
Had it not been for this Walk in Clinic, I would still be suffering. It just so happened, the clinic is owned & run by 5 former ER Doctors. They were awesome.
I even had an MRI & brain scan before they would order the medicine( vitamins).
Good Luck & God Bless. Thank you so much to my HUBBY for caring enough to take me seriously.
xx

August 9, 2013 at 2:17 pm
(284) Heaher says:

I have sweat all my life. Just dripping under arms, under my breasts, forehead, and my neck where my hairline is my hair is drenched. I have to take a shower when I wake up because in my sleep it’s like I had been in a pool of sweat for hours. I am constantly tired and moody to people. I also find myself sometimes dizzy while I’m at work. The odd thing is is that with all of this I have the chills and I’m always cold to the touch. I have bad anxiety and I’m on medication for it. I don’t know if it’s a different from this. If anyone knows what I’m talking about and goes through it please let me know what this is.

August 16, 2013 at 5:45 am
(285) james gottgetreu says:

I have major sweating problems I sweat when I eat warm or hot foods I sweat when I do any physical activity or sometimes when just sitting in the chair doing nothing I’ve always been a heavy sweater but not like this its very annoying I have to carry a rag with me when I got any where just to wipe the sweat off my face and I soak my shirts too I hate it passionately

August 18, 2013 at 2:55 am
(286) Jodi says:

I am so glad I came across this discussion! I am a 50 year old fem. I hadn’t related the sweating to my Fibro. I also have Rheumatoid Arthritis. Upon any activity ( shopping, cleaning, cooking, laundry) I sweat on the back of my neck and hairline, under my breasts and groin area and sometimes my upper and lower back. It is so awful! I sometimes wake up all sweaty and I can feel the beads of sweat coming out of my skin off of my chest. Very weird feeling. Like some of you, when I sit down too long I get cold so I get up and move around and I’m hot again.I am sometimes hot and yet have the chills. I have a very hard time regulating my body temp. I am either too hot or too cold. I was always a shower in the morning person but I shower at night also to avoid the hot sweaty alternative of showering in the morning. I sweat when I have caffeine. I had a total hysterectomy and am on progesterone. I have been to a specialty Dr. and my endocrine system is normal. I am going to check into the Craniofacial hyperhidrosis suggestion by Chey Cobb #280. Let’s all hang in there!

August 26, 2013 at 12:09 pm
(287) Melanie says:

I thought I was a total oddball. I sweat everywhere, am soaking with sweat as soon as I step out of the shower. My skin will be cold but at the same time
I’m sweating so hard I look like I just climbed out of a pool. Seems stress, med, and hormonal are contributing. A $365.00 prescription (not covered by any insurance) helps me live a somewhat normal life. I’ve literally lost 2 years of my life to this, and a relationship. Hair plastered to my head, makeup dripped off, sopping clothes which I can change up to 5 times a day or night.

August 26, 2013 at 12:19 pm
(288) Melanie says:

Mine starts between my legs and then works up and my whole body is involved, from my hands to toes, it even drips in my ears. Drips in my eyes, I thought I was the only one… My anti depressant adds to it. But I need that. A 5 mg Femring ($300) seems to help a lot. I had to fight for he femring, most drs. never heard of it. i also carry bandanas to wipe myself with. Sometimes I carry several. And I had to stop going places. It is a very lonely symptom which drs. dont really acknowledge. THANKS FOR THIS ARTICLE!

August 26, 2013 at 12:24 pm
(289) Melanie says:

It took 20 years for the drs. to figure out. I spent more days crying than smiling, for sure. And the funny thing is, oral HRT s DID NOT work, while the Femring (a vaginal ring, at the correct dose) stopped the sweats almost completely.

August 26, 2013 at 2:27 pm
(290) Juanita says:

I have excessive sweating – always have! And because I have a chronic illness, I am under the impression I always will.
What I do: I put my pillowcase in the freezer the morning I get up and take it out just before I go to bed. This cools my pillow and this helps to avoid night sweats.
During the day; I take an icepak and place it on the tail bone (it usually stays in place if I am using a belt around my waist. This helps to cool my body temperature. If I have an event that requires me to move around a lot, this comes in handy – I don’t sweat as much. When I am home, I also place a shower towel like headband (bought at walmart for 6 bucks) in the freezer and in a few hours its nice and cold. I then place it on my forehead and this too helps with scalp and face sweating. Although it does not cure the excessive sweating, it slows it down.

August 26, 2013 at 10:55 pm
(291) Alexandra says:

I’ve cried over this so many times… people don’t understand why I don’t go outside very often, why I don’t have a job, don’t go to school but I don’t know what to say. I have pain all over all the time for no reason at all, and I sweat profusely all over all the time for no reason at all. I can just be sitting there, enjoying a show on Netflix or something, except I can’t FULLY enjoy it because there’s sweat dripping into my eyes and making my shirt stick to my back and everything hurts and I’m just so tired, so fatigued… and I’m so sad because of it, not to mention that I’ve been diagnosed with depression and anxiety. But how much of that is because of possible physical health problems? How much of the sweat is because of my anti-depressant (the answer to this one is I think, not much)? I don’t know how to get a doctor to listen to me. I don’t even have health insurance. But once I do, then what? Every time I go to someone they chalk it up to me being overweight even though I’m overweight BECAUSE of all these things. I LOVE exercise, moving around, adventures… not even my asthma could stop me, unless it was really bad.

I can’t take this much longer. It’s ruining my life.

krabbyallie@gmail.com

August 30, 2013 at 4:00 am
(292) Linda says:

I do not have fibromyalgia, but I do have multiple sclerosis, and I’ve had a terrible time with my forehead, cheeks, and chest going cold and excessive sweat pouring down my face, neck, and head. I, too, have this problem at night, and sometimes I get very little sleep from being either too hot or too cold, and sweaty. I thought I’d look up a little info on this subject tonight, and found this posting. All of you who have this problem and have posted your comments herein are in my thoughts and prayers. It is comforting to know there are others out in the world who understand what this is like~~but at the same time, I feel sad that we all are stuck with very few answers on how to rid ourselves of this annoyance. I find that when the sweat starts pouring off me, as soon as I can, I will sit in front of my air conditioner, remove my wet clothes, and drink a tea over crushed ice to cool off my body core. Before long, I’m dry and comfortable again. I avoid the heat of the day whenever possible, and I rest whenever I can, especially when I start to overheat.Chins up, everyone! There is some reason we are all having this symptom, and someday someone will discover why.

August 30, 2013 at 6:28 pm
(293) Martha Tillman says:

My sister has Fibro and for years she sweats heavily. I am beginning to think I have it too. At times I sweat from head and face. Feels cold and clammy and night sweats in the head are common. I keep the A/C down at night and a floor fan on to help. I’ve taken Tramadol for a few years and thought it might be the reason but this started some years ago after menopause. Yesterday evening I went to a party and could not stop sweating in my head and neck. Once I left and got into my car with A/C blowing it went away but my joints ache and knees too. Muscles feel weak and I’ve been resting/sleeping a lot. Don’t feel like going back to work as it is difficult to stay on focus. Tramidol makes me relax and sleep good at night but not good to be on too long. I take the cold show at the end and let it run over my head.

September 2, 2013 at 3:59 pm
(294) Mike says:

When I was first diagnosed with Fibro, my rheumatologist put me on Prednisone starting with 2 10 mg tabs each morning. After a couple of months we started slowly decreasing it by 1/2 tab. One of the side effects of Prednisone is excessive sweating. It was terrible. Made worse by the fact that I am in VA and it was in the summer. As we slowly deceased the dosage the sweating also decreased.

September 3, 2013 at 8:36 pm
(295) GiaK says:

Hi just reading thru comments. I have just started the excessive face, neck, hairline sweats, so embarrassing! Have RA & on Cymbalta. Am wondering do I have fibro too? My feet are freezing too, and my nose in bed in winter.. Ugh, it’s miserable, but good to know I’m not alone, but now to figure out what meds to ask my Rheumy to prescribe, as I’m sure she will look at me blankly when I mention the sweats.

It’s not the same as the bed soaking sweats with oestrogen drops , it’s a clammy ness and passes off,

Which meds work best have we concluded?

September 7, 2013 at 11:37 am
(296) Jenn says:

I can’t stand the swet I also have Fybromyalgia, I swet from my head, neck chest and back constantly. I get home and I strip as soon as I walk in the door, then I sit in front of a fan in an air conditiond room. After that I’m freezing and get under blankets, but not long after, I swet perfusly again, Its like a constant battle. If anyone finds a deodarant that works and or a spray on Please let me know.

September 8, 2013 at 1:42 pm
(297) char says:

Monkey butt powder is wonderful at stopping g sweat

September 10, 2013 at 3:28 pm
(298) Pat VonFeldt says:

I find that any exertion will cause me to sweat profusely. Taking a shower even and then blowing my hair dry is a joke! My scalp, face, arms, legs and even especially under my breast sweat right through the skin pours. I guess I wanted to know if this was a fibro thing and it seems it is, of course, with no real cure or course of action. I find after a great deal of sweating, I am tired, more tired than usual. I hate it, but I guess it beats the alternative…

September 11, 2013 at 11:22 am
(299) lisa v says:

I have fibro and a lot of weird symptoms-one of them, ‘OVER THE TOP, RUIN MY LIFE SWEATING” And I want all of you out there to KNOW that a lot of these meds that are made for fibro cause sweating. I absolutely know this for a fact-from much personal experience. I just will not take them. Also, glucophage (metformin)-when I stopped that, my sweating improved so much. Elavil=sweating. A lot of antidepressants=sweating. Right now I am on pain meds and I am pretty sure they are a cause of my sweating. I honestly think that almost any medication-if taken long enough-can cause severe sweating. Maybe your body becomes so dependent on it and it creates some sort of cycle. Maybe it affects the neurotransmitters in our brain. I’d like to know IS THERE ANYBODY OUT THERE THAT TAKES ABSOLUTELY NO MEDICATION, YET HAS THIS SEVERE, DRENCHING, SWEATING EVERY SINGLE DAY FOR NO APPARENT REASON?

September 16, 2013 at 11:10 am
(300) Tracy says:

its something that has only really hit me over this last year. I can get it in the winter when really cold yet sweat is running like a river down my back.
AS soon as I exert myself even only slightly my face goes bright red and all over my face and neck again is rivers of sweat!! its very disconcerting especially when i continue the activity and feel like i am going to collapse! And having a shower is no relief as i sweat as soon as i come out i sweat so much i feel like i need another no matter how cool I have the water. I carry a travel sized deodorant with me everywhere and baby wipes so i can give myself a quick wipe down. Even at work. I was going to discuss it with my doctor on my next visit.

September 24, 2013 at 2:58 pm
(301) Berti says:

The reason for profuse sweating could be Histadelia. Check it out to see if you have its other symptoms; it is present often in fybro, or maybe it’s even the underlying cause for that, too

October 4, 2013 at 4:23 pm
(302) nathalie says:

hi I was diagnosed with sever fibromyalgia, chronique fatigue, stress synfrome. I have diffused pain, been like this since the age of 28yrs. I am exhausted no matter what I do.this past year but more so the last 6 , the sweating, is after I do a light chore like sweeping my tiny kitchen floor here comes the drops of sweat,it’s really nasty for my hair smells very bad, I can say it’s very embbarasing, when ust have washed my hair then do a little chore ,breack out again.the sweat go in my eyes, it’s like I jjust towel hair my hair just a little . so is this new and true that fibro is the cause of this? i’m so danm tired I feellikei’mgoing to die, crazy u think? but i’m not I just know my body that well.well anyway could go on, just one thing left to say, fibro has distryoyed my life it’s a never ending story of living with acute pain. i’ not the same person anymore.am not a vcitum either,i fight it , but the past 6 moths i’m hanging by a little thin wire, about to breack
I wish all who are fighting with some type of illness to hang on.

October 6, 2013 at 5:37 pm
(303) Kathy says:

I am 60, have fibro and other problems. I would sweat under my arms when I was younger, but got it under control witha prescription antiperspirant. But now I have started sweating all over worse areas are back of my legs, groin area, middle of my back and my head. It is so bad I do not go anywhere that I have to sit because it is so embarrassing to get up and your chair wet with sweat, if I have to sit I sweat all over I’m so nervous. I don’t leave my house except to work (I wear jeans and tee-shirts and stand all day). I never go out with friends, I’ve stop going to church very much. If I have to sit I try to get on a back row. I stand when I go to the dr when it’s possible. Can someone please help, my life is just as good as over!

October 7, 2013 at 2:54 pm
(304) Jo Parsons says:

Hi Natile, I have been exactly the same over the last 6 months – I went to the doctors last week and she saw my sweating and said that it was not normal and does not know what it is! I am only one of a few in my surgery to suffer from Fibro. Then today I found this site – I will be taking this information to my doctors so they can log it as a symptom. Also from reading other stories I will see if there are different drugs that might suit me better. Hang in there I am

October 18, 2013 at 3:29 pm
(305) Chris says:

I thought it was just menopause out of control but it may be more than that….I notice it after eating and a lot just “out of the blue.”

October 18, 2013 at 5:54 pm
(306) Pamela in Victoria, BC says:

I too suffer from excessive sweating…it makes me feel sooo uncomfortable. My arms and legs can be freezing and covered in goosebumps, but I’ll have sweat pouring down my face and the back of my neck.

Some things I’ve found that help include: carrying a fan with me…the type you’d see fancy ladies with that when closed, are long and straight, but then open up into fanning shape. You can buy them in some dollar stores but they’re more easily found in Chinatowns in your city. Other fans include the portable ones that use a battery. The only problem with those is they do make noise, so they’re probably not good in church or other “formal” events.

Many stores now carry neckerchiefs that you can soak in water to activate crystals that help you stay cool. Lee Valley carries some types, and often travel stores do too. I’ve also found that wearing a hat can help catch the sweat on the forehead before it drips, but it seems to be at the sake of your hairstyle.

One other thing I’m looking into are clothes designed to keep you cool. I typed in “clothes that prevent sweating” in Google and got some results so it’s worth an internet search to see what might work for you.

Good luck to all…I certainly empathize!!

Pamela

October 20, 2013 at 11:23 pm
(307) Jessica says:

Well, I’ll be dam. You mean to tell me I never realized my stone cold butt cheeks, sweating more than any other girl playing working out, and inability to EVER have dry armpits are actually related to having fibro? All this time I just thought I was unfortunate for no reason.

October 21, 2013 at 8:50 pm
(308) Sinajj says:

I wake up in the morning drenched with sweat! Before fibro, I hardly ever perspired. Occasionally it happens during the day also. I thought it was a side effect of the Cymbalta. When it happens, I’m not even too warm! Crazy!

October 22, 2013 at 12:22 pm
(309) Stephanie says:

Anything triggers my sweating, from drinking a hot drink, having a shower, eating, walking, everything and anything! Using a hand fan helps to cool me down but I feel constantly hot, very over-heated. The sweating is worse on my face and head, it looks as though I have stepped out of the shower. It also covers my arms, chest, back, well everywhere! It is so bad at night and I can’t bare to have covers on me and after just half an hour my bed and pillows are soaking wet! Sleeping on a towel helps and I have a fan on to try and keep me cool. I’m clammy to the touch and my skin feels cold to touch yet I’m burning up! I’m on so much medication including morphine as I am in constant excruciating pain. I have Osteonecrosis, lupus, migraines as well as quite a few other things which gets me down and very depressed! I am constantly so tired and exhausted, I wake every half hour to 2 hours at the very most because of being too hot and sweaty, being in chronic pain and needing a wee, and being so incredibly thirsty all the time!

October 25, 2013 at 11:32 pm
(310) Judy Johnson says:

I live in Texas and sure it is hot and humid in the summer and people sweat here, but I have never sweat so much in my life as I have the past few years. It has only gotten worse. In order for me to go outside to do any watering of the plants or do anything outside, I usually have to go early morning or early evening before dark. The sweat pours from my head, face and neck. It is like I am one of those bubbling fountains that constantly flows. Once I get heated up like that, the only way I can cool off to where I do not continue to sweat once I am inside the air conditioning is to strip ALL my clothes off and hang them to dry and I get right over the A/C vent while it is blowing (a fan is not cool enough) or I take a cold water rinse in the shower. NOTHING else helps. I cannot tolerate wintertime heaters either.

October 25, 2013 at 11:32 pm
(311) Judy Johnson says:

I live in Texas and sure it is hot and humid in the summer and people sweat here, but I have never sweat so much in my life as I have the past few years. It has only gotten worse. In order for me to go outside to do any watering of the plants or do anything outside, I usually have to go early morning or early evening before dark. The sweat pours from my head, face and neck. It is like I am one of those bubbling fountains that constantly flows. Once I get heated up like that, the only way I can cool off to where I do not continue to sweat once I am inside the air conditioning is to strip ALL my clothes off and hang them to dry and I get right over the A/C vent while it is blowing (a fan is not cool enough) or I take a cold water rinse in the shower. NOTHING else helps. I cannot tolerate wintertime heaters either.

October 31, 2013 at 5:02 pm
(312) Noa says:

For me the sweating was really bad and started the moment I raised my head in the morning and only seazed when I was lying flat.
Now I wear compression stockings to stabilize my orthostatic trouble and it has prevented me from sweating. It seemed to be just me always on the brink of a circulatory breakdown.

I still have hot flushes though… but it is much easier to stand them without lying in a pool of sweat.

Good luck to all of you!

October 31, 2013 at 10:03 pm
(313) Clara says:

Thank goodness to find this feed! I’ve been going crazy with these sweats , it takes no exertion at all hardly to bring them on and like others are saying showering is a nightmare also drying hair, I have to dry myself again after it and feel so dirty. I have had all blood tests showing nothing and have constant temperatures the highest on Tuesday being 38.5 C. I feel like all health professionals think I’m nuts or a hyperchondriac it’s so depressing. Had a bad flare up last week woke up like I had been doing squats pain so bad I could hardly walk down he stairs, am now wondering if this has been linked to the high temps and the really bad sweats. So relieved to read that others no how I feel, we can’t all be imagining it, thank you all xxx

November 26, 2013 at 4:09 pm
(314) ashley says:

I sweat sooo bad and feel sooo hot that it can be 20 degree’s outsided and I cant wear a coat cause im so hot and the min I walk into a building I start profusely sweating, head, face, neck, breasts, down my backline. I feel discusting and it has put such a damper on my life! I have to come immediately home and whip off my clothes and take a shower. its really really bad. I can just be doing every day normal activities and it happens. I have fibro and im on a mess of meds for depression, bipolar, fibro, also I have hypothyroidism and take meds for that. I keep asking my drs but they either say its my weight or thyroid, which has been fine and im not too much overweight. I need help! Ive never heard of this being associated with fibro or antidepressant meds, and my drs are not too helpful. I keep getting rashes under my breasts and abcesses under my armpits, I cant take this anymore!

December 17, 2013 at 3:04 am
(315) Donald C. Phillips says:

Fantastic post but I was wondering if you could write a litte more on this
topic? I’d be very thankful if you could elaborate a little bit more.
Kudos!

December 20, 2013 at 12:25 pm
(316) Bobbie says:

I sweat a lot,especially on the face and neck. Has anyone noticed when you bend over to pick something up, sweat will pour out even more?? Example… If it is going to take longer than a few seconds to find my shoes in the closet, I have to sit rather than bend over because I would be drenched.

December 23, 2013 at 5:05 am
(317) Janette says:

I never in a million years thought that there were this many or if any one sweat like I do.. I have for years and years and it’s getting worse. The hair is like I just stepped out of the shower. Sweat rolling down my face. U go to hug someone and they act like u have some kind of something. ( ugh) it’s very embarrassing I just dye in side . I’ve had people come up to me and ask if I’m ok. Do u want a chair a drink us to call 911 wonderful caring people and I just cringe. No I’m ok. No I’m not ok it’s horrible. It’s so frustrating and when u talk to ur docs they say menopause. How long can one be in menopause. I’m so glad I looked this up today ,cuz today I was just so upset over this. 3 of our children plus 2 if our grandchildren came for a visit and there I sat in a pool of water. My own grand kids didn’t even want to touch me. What’s wrong nana y r u wet. :( all I wanted to do was cry.. I haven’t gotten a straight answer to y this is going on and I have never seen or heard of anyone else doing this til now. What do we do. We need those answers. We all can’t be nuts like people have thought of me.. I’m so sad just feel so alone and my body just aches with pain. I’ve ask y and get no where. Thank u all for sharing ur stories we all heed someone and after reading all these stories I found many someone’s. There is a group on fb for fibro but haven’t really got anything off there about this sweating. In making a docs appt and now I will not testily I get it figured out. I just found out I have low sodium. Umm what’s that Neanderthals. It helps ur heart pump better. U need to drink less. I am thirsty for God sake. 2 months ago I spent 7 hours in the ER on an iv becuz I was dehydrated and had such pain in my stomach. I sweat more then I drink I don’t understand this. I’m heading to make focus appts I will keep u informed if I get anywhere. U all r brave to speak out and for that I thank each one of u.. :)

January 2, 2014 at 1:38 am
(318) gibbo says:

I recommend that anyone with CFS, fibro or pots with excessive head or face sweating consider getting a QSART test or skin punch biospy. Small fiber neuropathy van cause loss of sweating in limbs, trunk or anywhere really while less effected areas may experience ‘denervation super sensitivity’ – alpha 1 receptors in small fibers are involved in sweating, microvascular autonomic control, cold and heat sensitivity, etc.

January 2, 2014 at 1:52 am
(319) gibbo says:

Btw Small fiber neuropathies were recently found to be present in a large portion of a cohort of fibro patients and at least 33% of Pots / OI patients have patchy sweating abnormalities in their legs with regional hyper function of sweating.
Autoimmune diseases like MS, Rheumatoid arthritis, sjorgens and Ankylosing spondylitis can cause small fiber neuropathies – sarcoidosis as well.
symptoms of small fiber neuropathy where pain reception small fiber damage predominates including burning sensations, tingling, hands abd feet feeling unusually cold, hypersensitivity to touch and pain and impaired temperature sensitivity. Symptoms of autonomic small fiber damage can include excessive sweating or loss of sweating, abnormal veinous blood flow, mottled skin in legs, loss of Goosebumps.

January 12, 2014 at 5:47 pm
(320) chasity says:

Wow i thought i was alone! my sweating and other symptoms like nausea, headaches, severe muscle/body aches and even vomiting which at that point i feel like i am dying from being poisoned! these symptoms have now begun to jeopardize my career as i just got out of college and am in my externship and i have had to cut my hours down to 5 or 6 hours a day 4 days a week because when i do anything physical i start to sweat and then after i sweat for a short time then the other symptoms start and i get so very sick like the worst flu ever and i cant continue and need to stop and lie down or i get violently ill with migraine and massive body aches and severe vomiting!!! last week i worked only 7 hours and i had to leave from feeling so sick and had a bad headache and nausea and about 5 minutes after i left i was on the side of the highway vomiting violently out of my car door and it was so much vomit i just couldn’t stop until it was all out and it was so bad I actually felt like i was going to DIE! i don’t know what is wrong with me and i am now desperate, i have some blood tests to do but the natural doc i went to doesn’t take my insurance which was supposed to and now i cant see her again, however i am seeing a Chinese acupuncturist regularly now and a few days ago i went in feeling like i was doomed from the symptoms after a 6 hr work day and the acupuncturist took me back and by the time she put the needles in and then walked out i had relaxed and tried to sleep and i fell out for maybe a few minutes and by the time she came back in i felt better! i don’t know if it was due to the acupuncture or the rest but i was so relieved that i was not feeling like death anymore! any help would be a huge blessing!! thanks , chasi. kaegic7@gmail.com

January 14, 2014 at 7:02 pm
(321) Helen says:

ever since I took CYMBALTA for fibro (and later discovered I didn’t have fibro) I sweat five times as much as normal. And my armpits stink like something died there. It is nasty. I use clinical strength degree and sweat right through it. The sweating doesn’t bother me, it is the smell. Is there any thing I can do?

January 15, 2014 at 10:36 am
(322) Paul says:

All these illnesses are symptoms of modern diseases brought about by by a modern diet. None of them existed in Africa 80 years ago or so until Africans started using processed sugar and wheat in their diets. the same can be said of any pre-modern cultural diets. [Read books by Western Price who did studies in primitive diets]

We were designed genetically as hunter gatherers, designed to eat fruit, nuts berries, meat, tubers, etc… we were not designed to eat the amount of sugar and grain-based foods that we do. in addition… supermarkets put products n shelves with load of chemicals to give them extra shelf life. These chemicals are detrimental to our organs, tissues, cells etc. They’re also detrimental to the good gut flora that aids good digestion.

in addition, don;t forget that since fluorides were introduced to drinking water, the first generation of kids to grow up it then developed allergies that we’d never had in those numbers at any time in human history. its all because water companies demanded it of governments because its cheaper to use chemicals in water than to add extra levels of purification in other means. Nearly all rich people with loads of money feed their kids bottled water…. guess why. they know.

January 15, 2014 at 6:16 pm
(323) soaking all the time says:

I am sooooo happy I found all of you! I thought I was CRAZY! I can have a thought and start to sweat! If so many people have this problem, WHY can’t a damned DR. figure us out? They want to act like I’m nuts!!

January 17, 2014 at 6:13 am
(324) gngnee says:

I am feelin so sad right now to read about how many people are going through the ghastly pain,embarassment and suffering etc from the severe sweats! I was diagnosed with CFS/Fibromyalgia in 1974 and have experienced all sorts of different symptoms but the sweats have been a constant problem-soaking hair ,red face,sweaty but cold clammy body. This was all put down to menopause or hormones by Doctors(went through early one at 38-now 60) A very stringent anti sugar/carbohydrate diet has helped .due to a chronic candida overgrowth in my system, Doctors have been unhelpful and don’t believe that yeast infections can be in the gut etc-will only give anti fungal meds to immune compromised patients(M.E and fibro ARE immune disfunction of some sort!) I have tried nystatin and cutting out sugars plus carbohydrates(broken down into sugar by the body) and this has helped with the sweating a bit. All I know is that I feel really bad the next day after sugar intake,potatoes,bread and wine etc, I hope that this might help somebody else out there-good luck and thanks everyone for your input!

January 20, 2014 at 2:08 am
(325) Cy says:

All I could say, just hold on and never lose. It is a battle between you and you. No matter what happens, don’t lose. I have this sweating in odd times like I was in a room where it was so cold and suddenly I will start to sweat, how odd is that? Just stand up and say, “I can do this!”. :)

January 21, 2014 at 6:12 pm
(326) glenda says:

Thanks everyone. Among the myriad symptoms that I live with I find the anxiety attacks and the lack of thermoregulation to be the most debilitating. I also suffer with restless limb syndrome and a few other things. Sugar sets off some of my symptoms so I avoid that and I also follow a gluten free diet which is very helpful. Previously excess body weight had not been an issue for me however since the onset of fibro that has changed. I recently reduced the amount of carbs in my diet , which was by no means excessive to begin with, and have noticed an improvement in wellbeing. Knowing the triggers and avoiding them is obviously effective to a degree, however, as I’m sure many of you have found , this doesn’t work for all the symptoms. The panic attacks that spring from nowhere and the instantaneous overheating that creates nausea and a feeling that I’m going to pass out are by far the worst for me. As someone else here said ” good luck to all of us” .Here’s hoping we’ll all find release from these symptoms one day.

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February 25, 2014 at 2:53 pm
(328) sally wallis says:

I always carry a can of 4711 eau de cologne body spray and spray on the back of my neck, wrists chest etc for an instant cooling effect. also handy to keep a spray bottle of water in the fridge and spray face.

February 25, 2014 at 2:56 pm
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(330) Http://Insigniasteamshowerinstruction.Wikispaces.Com/ says:

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March 6, 2014 at 6:20 pm
(331) LC says:

I have excessive sweating on my forehead. Mostly on just the right side of my head. I found Drysol to work for just a few weeks… now when I apply it it doesn’t seem to be as effective? It is extremely annoying.

March 7, 2014 at 12:18 am
(332) Sharon K says:

I am so relieved to find this thread about sweating. I’ve mentioned to my doctor but he didn’t seem to pay much attention till one day I was sitting there with sweat pouring off me and I let it pour, he was shocked when he saw me. But he said it was hormonal so put me on low dose of premarin, which made me have a period (at 65 years old). I stopped taking them and he gave me something different, it was worse, had one for 9 days and such bad cramps, then he said to stop them and go to an OB/GYN. I haven’t yet but I think I know what’s wrong now, I’ve had fibro for years. I’m also on Cymbalta, sweated before but it is worse since I started it. But it helps the pain, so….

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March 8, 2014 at 2:41 pm
(334) Leslie says:

I’m so glad I found this site and all your comments. I was diagnosed with fibro a few years back. I sweat profusely from the scalp and forehead..and on my cheeks right below my eyes just from doing mundane tasks. Take a shower and try to apply makeup. Slowly sweep the floor, look for a document in a file cabinet. Forget it.. Can’t tell you how many times I’ve watched running drips of sweat shoot down my hair strands and hit the floor. If I do any real physical activity my hair is saturated along with every piece of clothing, right down to fingers dripping. It’s embarrassing and ridiculous. I don’t tend to sweat to the extreme in any other area of my body. When I become anxious or self conscious it also flows like Vesuvius. So I know anxiety also triggers mine. Oddly, as fast as it can hit, it sometimes dries up extraordinarily quicker than other times. I would love for others who have commented here to come back and say what they’ve found out after visiting their doctors.

March 10, 2014 at 2:25 pm
(335) mucka says:

I sweat under my balls when this one chick gives me a waah waah yippety yip weeeee! It’s very weird to me and her chin hates me.

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(336) tungaw.com says:

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April 10, 2014 at 10:14 pm
(337) Gainor says:

I’ll be 69 in 3 weeks. My profuse sweating has been increasing annually for about 6 years. I had been taking hormone replacement for 10 years for menopause, but the sweating continued to increase. I stopped the HRT two years ago, but didn’t notice any change.

With the least activity, the sweating begins on head and goes out to whole body. All my clothing gets wet, and I have to change. The only way I can stop sweating is to sit very still, watching TV, using the computer. Sometimes I have to go get a fan for the kitchen while I cook or wash dishes. Showers/blow drying hair start it up. I keep the house at 74 degrees in summer, 70 in winter.

My hands are hot all the time. I live in Florida, so the summer heat has been excruciating to me. My friend with MS has the sweating problem as well. I have had Fibromyalgia for 23 years, and the sweating predated the meds I take for it.

Daily, I have to stop what I’m doing and sit down to cool off many times. Even sorting paperwork, making calls starts it up. I sweat at night, waking several times, with wet nightclothes and sheets. I guess this is all due to my autonomic nervous system being deregulated. I don’t know how to control it. Everything becomes a major effort to do, and I get discouraged, having to sit or lie down several times per day.

I run the AC so cold in my car that others shut their vents while I’m sweating. I become a hermit in summer. If the house gets too warm, I turn on the window AC in bedroom to augment the house unit. Is there any state in the USA that is cool in the summer? I may have to move there!

April 14, 2014 at 12:42 am
(338) james says:

I have a major problem with sweating so insainly, any physical activity or any stove hot foods or spicy foods and in hot wear Omg its worse my doctor put me on pills to control my insane sweating which helps but I still hate the insane sweating and its from head to toe I can just be sitting in a chair and I break out

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