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Adrienne Dellwo

Poll: Do You Like Your Doctor for Fibromyalgia/Chronic Fatigue Syndrome?

By August 20, 2010

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Those of us with fibromyalgia or chronic fatigue syndrome can have almost as many doctor complaints as we have symptoms. Good docs are out there, but they can be hard to find.

Do you like your doctor? Take the poll, and share your doctor-related stories below!

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Comments
August 20, 2010 at 6:20 am
(1) Moneca says:

I like my doctor for the most part. He was the one to send me to the right people to get a diagnosis. But he’s so concerned about prescribing strong/addictive pain meds that the strongest I can get from him are either Tylenol 3′s or Aleve. He just doesn’t get that they really don’t touch the pain.

August 20, 2010 at 7:50 am
(2) Gary Fredrick says:

I’m pleased with my doctor. He’s treating my pain with Tramadol, Lyrica (which I can only tolerate at middling doses) and he prescribes Pamelor (nortriptilene) which works really well but turns me into a zombie at what he feels is a therapeutic dose, so I use 2/3rds. He’s in Hackensack, NJ and his name is Gilbert Kepecs and he’s associated with The Hackensack Medical Center; if you’re looking for a good doc.

Good luck all ;-)

Gary

August 20, 2010 at 1:42 pm
(3) Sufferring says:

I have still not been able to find a doc in San Diego :( . I think I have CFS but the local doctors here are like, what a moron.

August 20, 2010 at 2:26 pm
(4) Kathy says:

Some of us like our doctors, but as a whole it appears that doctors do NOT like us. Have you ever read “Fibromyalgia Controversy” by M. Clement Hall? It’s a book, mostly for practioners, about dealing with fibromyalgia patients. Ewwwhhh…we’re all whiners and complainers and nothing the poor doctors do for us is ever good enough. Lovely, isn’t it? People don’t like dealing with situations that they have no hope of winning…same goes for doctors. Generally fibromyalgia is not fixable and doctors just don’t want to do deal with that. Generally.

Is it any wonder that even though I moved from the pacific northwest to southern California, I still fly up to see my doctor? He knows he can trust me and I trust him. I’ve tried, with no success to find a doctor down in San Diego and they (I went to four) were all pretty patronizing.

Another thing, while I’m rambling on…the Fibromyalgia Network sent out their quarterly magazine recently and there was an article in there written by a couple of doctors, supposedly giving advice about what to do when you have to change doctors (due to insurance change or retirement). Basically said that if you want to stay with the same treatment plan you are out of luck. Even if the treatment plan is working for you?!!!

…no wonder I keep flying back up to Seattle!

August 20, 2010 at 4:24 pm
(5) Donna says:

I LOVE my Dr. She listens to everything I say. She will prescribe whatever I need (within the same limits). She understands that I am overweight but that I don’t eat a lot that it’s because I can’t move around the way I used to. I cut down on my pain meds myself and she said if I need to increase again just let her know. She doesn’t want me to be in pain.

August 20, 2010 at 4:37 pm
(6) VAL says:

Kathy, would you mind giving me the name of your Dr. in Seattle? I had a great Dr. in Alaska but since moving to the Olympia area 6 years ago I haven’t found a good one. I’m planning on moving to Seattle in 9 months so it would be great to have good care so close.

August 20, 2010 at 4:47 pm
(7) Mary Seroski says:

Depends on the doctor. I have a PCP who is awesome. Unfortunately, he likes Urgent Care and is going back to that. So now I have to find another PCP.

My rheumy is OK. Doesn’t have the greatest bedside manner but does know fibro. He does give me Norco. And I get other meds I needs as well. But time spent with him is rather short unless I need shots in my knees or shoulders.

Boise ID is good for fibro support… I oughta know, I run the group! LOL I try to provide up to date info to all my members and keep all the info fresh.

August 20, 2010 at 4:59 pm
(8) Rani says:

To the folks looking for a good pain management doc in San Diego: Mine is AWESOME! I adore him!

His name is Christopher Chisholm, and he has two offices: one in Poway and one on the Scripps Memorial campus in La Jolla.

He’s young, he listens, and he *gets* it. He believes in using various methods of treatment from traditional and non-traditional (e.g., acupuncture) methods, and he takes you and your pain seriously. He’s very kind and low-key, and is considered one of the top pain-management physicians in San Diego County.

Dr. Chisholm was the one who diagnosed my fibro and my myofascial pain syndrome, so he won’t blow you off.

I picked him because I liked the treatment philosophy he had written on Sharp’s website and because he had a friendly smile in his photo (yeah, I know, sounds dumb), but I really lucked out this time. A couple of his nurses are kind of dippy, but Danielle (his office manager in Poway) rocks.

Like I said, it was luck of the draw that I ended up getting one of the top pain-management docs in SD and that he turned out to be so nice and so capable.

Good luck to you, and I highly recommend him. :)

August 20, 2010 at 5:38 pm
(9) Lois says:

I can’t find a decent doctor for much of anything in Fresno, CA.

My PCP thinks the cure for a weight problem is the Auschwitz Diet. He won’t treat fibromyalgia and pretty much blows it off. He spends most of my visits complaining about government interference in health care.

The so called pain management specialists in this town only want to cycle people through their offices like a mill and basically just want to prescribe Vicodin. No matter that too much acetominophen in it kills your liver and it doesn’t do squat for pain.

I’m beyond frustrated with the medical system in this town. I just curl up in bed when I hurt too much.

August 20, 2010 at 7:49 pm
(10) Chris says:

I have tried 4 doctors in the Houston area, not having any luck. Either won’t prescribe anything for pain, or keep switching meds around, ot not really listening. I feel like I am on an assembly line at a factory when at the doctor’s office. I live in the Sugarland area and desperately need a doctor. Anyone know of some good ones?

August 21, 2010 at 6:30 am
(11) NubbleTheCat says:

I live in the St. Louis metropolitan area and in five years, I am on my fourth Doctor. The first one I had to change because of insurance reasons. I wasn’t that thrilled with her anyway. Another one moved out of the area-again not thrilled, one was a brand new Doctor and I was her only patient with Fibromyalgia. The current doctor is “alright”, but Fibromyalgia seems to be a taboo word in her office, or just about anywhere you go in the medical field.

She wants me to see a rheumatologist, I think because she doesn’t want to deal with it, but I was turned down as a patient for the Doctor I wanted and it was because of my fibromyalgia. I think “Kathy” is correct in saying that Doctor’s don’t like us.

At this time I have boycotted all doctors. I am tired of making appointments and nothing is done, or I am not taken seriously. I am keeping the PCP I have, only for when I need prescriptions for the medications that I take regularly. Pain medication is totally out of the question for any Doctor in this area that I can tell.

So, I just live with it and deal with it the best way I know how to, although I do harbor a lot of anger because of it all. I feel like nobody cares………

One last comment though as to not run all doctors into the ground. I lived on the East Coast and had a great PCP. She was the one that diagnosed me and she listened and we kept trying new things until we found what worked at that time. I had no choice but to move out of state, but honestly she is the best doctor I have ever had and I am 49 years old and was diagnosed with Fibromyalgia about ten years ago, although I probably have had it longer than that.

August 21, 2010 at 8:24 am
(12) Taliba says:

I’ve had a big struggle in Toronto finding a decent family physician, having moved here 7 years ago. I do a lot of research into various treatments, and recently figured out that my adrenal glands are pretty much shot (my problems are more fatigue related than pain). So I take articles to my doctor to read that support the treatment and the tests I needed (which of course differed from the treatment she wanted to give and the specialists she wanted to send me too), and two weeks later, after first threatening to change one of my meds (that works fine and poses no risk) she fired me. Nice care, eh? Like someone said, I’ve gone through times where it made more sense to avoid doctors so they didn’t do me any more harm!

If anyone in Toronto has a good doc, I’m all ears! Right now I’m consulting with a specialist in integrative medicine, and he is helping, finally!. Now I just need a family doc who understands these illnesses who won’t foist their ignorance upon me. Sheesh!

August 21, 2010 at 11:48 am
(13) TammyR says:

I gave up on doctors for the most part. I see a nurse practitioner that will prescribe me the two meds I take and I do the best I can on my own.
I learned that most doctors can’t handle the list of symptoms I have and think I’m a hypochondriac. And I also learned that I seem to know more about the disease than a lot of the physicians do. If there’s a good one in SW Missouri, please let me know. Thanks!

August 21, 2010 at 2:13 pm
(14) Marilyn Bloomer says:

I too would like to know Kathy’s doctor. I live in northwest Washington. I have a good PCP but she is uncomfortable with the idea of treating XMRV. I checked with infectious disease folks. So far no one will admit to having heard of it. When this opens up who will treat us?

August 24, 2010 at 4:44 pm
(15) eleener says:

Kathy, could yu tell us who your docotor is in Seattle? Thanks.

September 24, 2010 at 5:09 pm
(16) Maggie says:

I too am having a difficult time finding a doctor that is sympathetic to FM. I haved had to move twice in the last year, first from Phoenix, AZ to Portland, OR. In Phoenix I had a great PC and Rheum dr. Both helped me come to terms with this illness and my rheum helped me find the right balance of meds, exercise and therapy. His name is Joseph Nolan and he is not known for his beside manner but he knows FM and treats you as a person. In Portland I was fortunate enough to find another rheum who treats FM and he helped me immensely. Also referred me to a psycholgist who worked with people with chronic pain. She was awesome and really helped me to pace myself and work at getting restorative sleep at night (two things that are especially hard for fibro-mites!) Then the second move came from Portland, OR to Bakersfield, CA andit has been down hill ever since…Arggh! So I am on the hunt again, have a pc that at least lets me stay on my meds but doesn’t have much of a clue otherwise. Any help from anyone that lives in this area would be most appreciated:-) Oh! The names of my rheum and psych in Portland,OR are: Dr. Howard Gandler and Dr. Susan Rosensweig.

October 19, 2010 at 7:25 am
(17) Wendy says:

Looking for a doctor that understands FM in Grand Rapids Michigan. My doctor that I have now doesn’t even know I have FM, she just comes across very harsh, so never even told her. I deal with all my systems with vitamins. But there are times I would like something stronger but not sure how to go about finding a new doctor that will understand FM.

January 26, 2011 at 4:56 pm
(18) Linda Valine says:

Have you read “What Your Doctor Doesn’t Know About Fibromyalgia?” It’s a great book – the first I’ve ever read that is totally sympathetic. It really explains why doctors blow off fibromyalgia patients and how to handle your doctors. Did you know most doctors learned about fibro from their drug representatives? So guess what they recommend most? The author is not against drugs, by the way. She is just worried that doctors don’t keep up with new research.

February 7, 2012 at 1:43 pm
(19) Rick says:

I’ve been thru many docs. I finally found a rhuematologist that I really like. Others attempted to help, but seemed lost as to my ailments. Part of the problem is that I’m a male. And now have diagnosis of Fibromyalgia, Sjogrens, and a few other problems.
And wouldn’t you know, that my latest doc, is the youngest! She’s the only one that sent me for a lip biopsy!
So, while all of my symptoms are difficult to deal with, at least I FINALLY found the right docs for treatment!

June 12, 2012 at 6:18 pm
(20) Surgery Center in Athens TN says:

Thanks for every other informative website. The place else could I am getting that type of info written in such an ideal manner? I have a mission that I am simply now operating on, and I have been at the look out for such info.

March 11, 2014 at 7:06 pm
(21) For Lois says:

Lois,

HELP ME! I need a doctor in Fresno who WILL prescribe narcotics. I used to take other meds for pain and my liver got all screwed up. Now I take Vicodin, my liver is perfect and my pain is under control. I’m moving TO FRESNO and so far I can’t find any doctors who get that sometimes narcotics are the best solution. They do come from nature afterall!

Please refer me to a decent doctor who will listen to me.

Thanks!

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