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Adrienne Dellwo

Pain Relief for Fibromyalgia & Chronic Fatigue Syndrome

By August 17, 2010

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"What will get rid of my pain?" is generally the primary question for people with fibromyalgia, and it can be near the top for those whose chronic fatigue syndrome involves chronic pain. The conditions share 2 prevalent and debilitating forms of pain -- hyperalgesia (amplified pain) and tactile allodynia (pain from light pressure on the skin) -- so methods of pain relief are generally the same.

The first 3 things you need to know about fibromyalgia pain treatments are:

  1. Nothing works for everyone,
  2. You'll probably always have some pain,
  3. And those who are most successful generally combine several types of treatments rather than relying on one.

You have multiple options for pain relief, many of which are outlined here:

My pain regimen includes daily supplements (vitamin D, magnesium, rhodiola, theanine), regular acupuncture and/or massage treatments, pacing techniques, moderate activity, and, when necessary, medications (Vicodin, Flexeril, Relafen.)

What helps lower your pain levels? Which aspects of your regimen are most important for you? How many treatments did you try and discard as ineffective? Leave your comments below!

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Comments
August 18, 2010 at 2:27 am
(1) Patti says:

This is my first time replying to any post, regardless of subject. Iím a female Colonel in the Armed Services who has been recently diagnosed with Fibromyalgia. Since the end of Gulf War 1, I have pushed through the pain, but I have reached an age where I just canít take the pain any longer.

For me, Lyrica and Tramodal have really helped, although I have periods where even these meds donít help.

August 18, 2010 at 7:05 am
(2) lloyd says:

To begin with, there are so many different kinds of pain with fibromyalgia. Most people think of the tender points or the generalized aching, but there is the discomfort of being off balance, brain fog, headaches, bloatedness (like with the flu). There is also the pain of a fatigue as if one is being poisoned.

For tender points, I frequently use a near infrared device. It is time consuming and tedious, but it does temporarily (5-6 hours) remove the pain. For more generalized aching, vitamin D3 usually helps (not always). Sometimes, lyrica helps when there is pain from a weather change; usually, lyrica does nothing and actually makes me feel worse. I use a small dose occasionally, not the way the drug company says to use it (tried that and it was a disaster). Sometimes, when I have overexerted, I use a small piece of a vicodin; it seems to help bring me down and relax me. Generally, vicodin doesn’t even touch fibro pain.

Lysine sometimes helps with brain fog and being off balance, but not always. Generally, it tends to activate. Too much is counterproductive. As with all these supplements, I usually use only a portion of a capsule or tablet and then repeat later as needed. Too much is often as bad as too little.

For the morning “run over by a truck feeling,” I use some b complex (doesn’t always help), vitamins c and E, and apple polyphenol. Am also trying ribose.

MSM helps me relax at night (half a 1000 mg. capsule) and helps soothe the joints then and other times. So I think does hyaluronic acid, but I am still experimenting with it.

Living with fibro, one is constantly thinking “What helped relieve this the last time?” and “What should I try taking to relieve this now?” Sometimes, nothing seems to help.

Too much activity exacerbates symptoms, but so does too little. Having regular activity is certainly important . Osteopathic manipulation helps when my upper back and neck are especially painful and tight. Stretching, of course, helps somewhat, but sometimes I think that it is exaggerated as a treatment for fibro. Acupuncture gave me very short-term pain relief and sometimes made me too hyper. Tended to overstimulate me, but for those with mainly chronic fatigue, I would think it would be beneficial.

Am always looking for something else to try. I don’t like anything that makes me hyper or causes stomach problems.

August 18, 2010 at 9:04 am
(3) mj says:

I find that Lyrica helps, especially with fatigue. I also take Tramacet at night to reduce the number of times I’m up because of pain. I also take it occasionally during the day, usually when trapped in a situation that has caused a fast flare-up, such as very loud noise or a cold draft.

Although pain relief is a high priority, my primary concern is maintaining my ability to function and continue to work. The Lyrica has made that far less of a daily struggle, particularly in the winter. In addition to reducing my overall level of fatigue, I find that the sudden ‘off a cliff’ exhaustion is less likely to overtake me in the middle of an engaging passtime (like the middle of a lecture).

I know all meds don’t work for all people, but I’m quite happy to put up with the side effects of the Lyrica because it makes life a bit easier for me! I’ve tried various other supplements and also Cymbalta – some helped, particularly the latter,, but the effect size wasn’t sufficient for me to be willing to put with the side effects.

August 19, 2010 at 2:39 pm
(4) CAROLE says:

I was diagnosed in 1983. I still take medications, and they seem to change and rotate over the years as meds stop working or new ones come out to try. After 14 years a 2 year respite and a change in job situations, the pain gradually lessened by a huge amount. But it took a LONG time. I live in dread of it coming back as bad as it was. However, I am disappointed emotionally when pain comes back even though I should know it will and/or recurrs or pops up in a new area. Living with fibromyalgia is life-long, full of adjustments and daunting emotionally because of lack of a concise definition(buy the medical community) understanding and support.

August 20, 2010 at 2:09 am
(5) Patti says:

The Army has come a long way in the last 2 years. For those Army people out there, if you can get a referral to the “pain clinic,” a new field in the Army medical community, they are really understanding as oppose to the normal, live with it. The kicker…..the “pain clinic” is a well kept secret…..some doctors don’t even know about it.

August 20, 2010 at 5:54 pm
(6) Spike says:

For pain I use Methadone & when that is insufficient, Oxycodone.

For Sleep I use Trazodone (Desryl)
to replace the Testosterone I lose because of the Opioid medication: once a week I’m injected with either 100 or 160 mg

I also take 8000, IU’s of vitamin D each day as I was seriously deficient and this maintains a normal level.
As needed, I take a small dose of Xanax (about half a tablet a day)

August 20, 2010 at 6:01 pm
(7) Debbie says:

When I have a few days (that’s all it ever is anymore) of feeling pretty good I start believing that maybe I’m getting better…..then I’m surprised when a few days later I’m crying from the pain and so frustrated once again….even though I’ve been dealing with this since 2004!

August 20, 2010 at 6:46 pm
(8) kim says:

I am on 1200 mgs of neurontin a day not to mention flexeril, amitryptiline and buspar, nothing works, I feel like im goin crazy

August 20, 2010 at 8:11 pm
(9) lloyd says:

Kim, if those drugs aren’t working, I suggest you try the supplement route. Buspar helped me a little at an earlier stage of my fibro, but makes me feel worse now. Amytryptiline is one of the worst drugs I have ever taken; well, welbutrine is up there too. It may have relieved pain, but made me feel like I was lit up in hell.

But some people have sworn by these drugs. My point is, if it doesn’t work, try something else. And don’t be quickly taken in by the advice that you need to up the dosage of the drug. Try a combination of supplements; most are quite harmless and nonaddictive, which the prescription drugs aren’t. I wish you well. I have learned never to assume that someone else’s experience is just like mine, as I have seen many different degrees and variations in the fibro experience (even though the basic symptoms are quite consistent).

August 20, 2010 at 8:45 pm
(10) Cormacky says:

I use low-dose methadone, and baclofen in the late afternoon. For sleep I use a combination of a little trazodone and some klonopin. I’ve used these for a long time.

Luckily I have not had any flare-ups in years. Rest is essential and not over-doing. Coming to terms with my limits but not feeling like a deficient person because of it.

August 20, 2010 at 10:54 pm
(11) kim says:

Tramadol was great for me until I developed an allergy 2 months in. I tried Lyrica, swelled up 10 lbs. in a week with water weight gain, Cymbalta made me wake up at 3 am, wide awake neurontin made me super depressed after just one dose. I’ll stick with beer therapy for now.

August 21, 2010 at 12:37 am
(12) Belinda says:

My tried and true method of pain relief is a combination of Irish Cream and ibuprofen. The IC starts to works right away (it relaxes my attitude, too), then when it starts to wear off, the ibuprofen kicks in. This works about 80% of the time.

When that doesn’t help, I’ll take a muscle relaxant, cyclobenzaprene, or generic Valium, which was originally developed as a muscle relaxant. It, too, relaxes my attitude as well as my muscles. Bonus!

August 21, 2010 at 10:37 am
(13) Kate says:

I have had minor fibro symptoms since about 1995, but never felt the need to medicate for it. I even went back to school and in 2004 completed my BSW and got my dream job. In February 2004 I had a gall bladder surgery that resulted in someone clobbering me with the fibro hammer. I never really recovered and my PCP sent me to a rheumatologist. I really could not function and took my last semester of classes on line.
The rheumatologist was great at first. He explained that his theory of fibro was that there were really three forms: genetic, traumatic, and idiopathic (no known cause)with mild, moderate or severe levels of severity. Since I had had so many problems during and after the gall bladder surgery, he determined mine to be severly traumatic.
Then the cycle of over medication began. After taking very few pain meds in life, I was started on what was later determined to be massive doses of morphine, methodone, Vicodin, and Percocet. I was so doped up that I don’t remember my dad’s funeral.
Finally, I found a wonderful pain management doctor and things were pared back to a minimum.
I have tried Lyrica, Cymbalta, Celebrex and several other drugs that were supposed to improve my fibro pain and symptoms (which was unbearable at this point). Nothing worked. We finally decided to try Neurontin, a drug designed for diabetic neuropathy.
I have been on it for two years, with a modicum of pain meds I can function. I still can’t work – I will never pass a drug test – but things are bearable.
So, I guess my message is don’t give up! Keep looking for the right doctor who cares about what you think and what has worked in the past. Look for someone who is interested in what you have to say and will look into the current research. Don’t stop – they are out there!

August 22, 2010 at 5:45 am
(14) Delene Jonker says:

Do you find that not just sounds, music or noise cause frustration, anxiety,and pain, but even when the house, yard of kids rooms are in a mess, I have more or less the same experience as with loud sounds. It feels as if something in my brain pains.I cannot stand chaos.When everything is neat again, then I feel as peace. I sleep on summer sheets, in light summer pajamas in winter, cannot stand a blanket, jacket or clothes made from wool. It scratches me.I remove all the labels from clothes and often go without underwear.I am happiest naked in the pool and in the sun!!Doctors over years told me that it is all in my mind and I must stop this nonsense. SO,I AM NOT MAD, AND NOT ALONE?

August 22, 2010 at 6:52 am
(15) Sr Sharon says:

My FMS crept up for about four or 5 years and then hit me like a hammer. I am now a retired nurse because I just cannot work anymore. I now have a carer. I take 75mgs Dothep – try going off it for weight and and neck pain is unbearable, so keep going. Tramadol 2oomgs bd and Neurontin 600mgs tds. I prefer the Neurontin after trying Lyrica. Lyrica put 20kgs on me in 18 months and I am fanatical about 3 meals and small calories. On Neurontin I lost 6 kgs in 2 weeks. A dietician has put me on more food than I am happy with but she says I need better nutrition for helping my body with healing. She is not so worried about too much weight loss.

I take Naprosyn 750mgs daily with Nexium to counteract it and HRT as I have low Eostrogen levels. People wonder how I function. Well I tell them I was virtually bedridden before the medication and I have a wonderful Family Doctor. God bless her. I continued work for 4 years with Mothers and Babies in Maternal and Child Health but it became a problem to hold the bigger babies as if went to hurn holding one I could get stuck so it just happended that I had my day in my wonderful years with mothers and babies. I am older now, 61, so I feed so sorry for young people, especially young mothers who deveop the condition. I get some phone calls from the FM group so I try to help with a prayer or some community information or a suitable Doctor or just listen, so it is a new life now for me. Bein in religious life, I say to people, there are worse things than death and pain is one of them, so take the medication that helps and have a good Doctor.

August 24, 2010 at 12:05 am
(16) Carolina says:

When I read what Lloyd said about welbutrine, I had to laugh! (much needed! :0) One of my Dr.’s wanted me to try that and I couldnt even begin to explain to him what it made me feel like, but refused to ever take that again. You summed it up very well! I take Lyrica, Tramodal and was on Flexeril (until I complained to my rheumatologist about this constant pain in my neck and left shoulder, come to find out it has something to do with my spine being straight in my neck instead of curved) so he put me on zanaflex. That isnt working, I am still in allot of pain! I dont know if its the zanaflex but since I started taking it, I am always hot and have some very horrific dreams. Nothing helps with my fatigue, I STAY sleepy!! And as far as my pain, nothing has helped with that either, to date.
My comment probably hasnt helped anyone, but it sure felt good for me to write it out to people that understand. Thanks!

October 1, 2010 at 5:14 am
(17) Dan says:

Does any one else feel like you’re being judged by every single person in the world? As if it’s not bad enough that I suffer in agonising pain & lacking energy most of the time. I really don’t need to be questioned every time I buy pain meds from the chemist. I came off the prescription meds because I didn’t want to become addicted but I would rather use the prescrition meds than be judged by the chemist staff every time I buy over the counter meds.
I feel so depressed by this dibilitating condition as I am getting out of shape because I am in too much pain to exercise, I am too sore to be a happy smily person, I can only work a few hours per day so am not reaching my earning potential, and I have decided not to have children as I can’t believe that I would be able to carry a baby without suffering for it.
In the past 5 years I have gone from being a super fit, super capable young woman to a miserable, useless, sorry excuse of a person. I feel like I have aged 30 years.
It seems I am lucky as when my Dr diagnosed me with fibromyaligia he prescribed me with all the meds I need and continues to do so, but for me that is not a solution – just a bandaid.
Well thank you to all of the previous comments, at least i feel I am not alone now. Although I feel no better about my life or my future.

January 23, 2011 at 2:12 am
(18) Nouli Laz says:

HI all I understand how you feel, I have been through it now for 9 years and have experienced all your symptoms, I just did not want to be here anymore, I had to have help to shower… it was so debilitating, frustrating, anxiety set in, depression around the corner and fear that I would never be well again.. I have had so much pain it has been unbearable from CFS and Fibromyalgi, tried everything, , all alternative therapies, vitamins, IV, pharmaecuticals. etc.. I tried some therapy from someone in Australia, and I can not even explain how much better I felt, I felt pain relief from the session, even though the therapist said it can take some time to feel relief, but after about 6 sessions, I started to feel like my old self, I started to be able to think, and concentrate, the stabbing pain was not so bad, my sleep was better, after 2 months NO MORE NANA NAPS in the middle of the day, I have been pain free for 6 months.. the therapist had chronic fatigue and fibromyalgia and found this treatment worked for her .. so she is now helping others.. she was booked up for 3 months and only saw me as my mother knew her mother and she fitted me in on her day off… Sunday! and continued to help me.. she is a saint.
thank you
Nouli xx

May 23, 2011 at 6:13 pm
(19) pjrutten says:

Nouli,what is this treatment? Help! P.J.

August 17, 2011 at 7:39 pm
(20) Miranda says:

I’m in Australia and really interested to find out what the treatment is that you’ve had and where you got it. Please contact me.

April 2, 2012 at 4:59 pm
(21) iceskate mom says:

Hi this is my first comement to a fibro forum so please be kind. I have had ill health for the last 20years and thought I was becoming a hypocondriac . Among other things I fell in 20o9 and hurt my back , I was put on strong meds to help with the pain but following an epidural I came off all the other meds. Thats when I knew something was wrong ,after a few weks of pure pain free bliss everything that I had put down to side effects came back with a vengence. Even though I have gone back on the meds – Butrans patch , amitryptaline 30/500 co codamol and occasional diasipam. I still feel as if I have been hit by a bus.I have pin every part of my body not only my back, I am trying to keep working as I am the main bread winner but never seem to cope with a full week and if I do I seem to just about make it through the day and then come home and collapse. My work is suffering because of fibro fog and my relationships with family members are disintigrating before my eyes. My husband has been so supportive for all the years I lurched from illness to illness now he doesn’t seem to want to know. My semi adult children don’t seem to care and I just feel so tired of the pain and isolation I feel. any suggestions of how to cope would be welcome.

April 11, 2012 at 10:33 am
(22) Lisa but Lola in pain says:

Hi Lisa here but Lola when in pain! Which was my roller derby name/ other personality..lol but my b** tch..which when in pain I become. I am just at beginning of fibro bs!Been 4 months and now I am at point I cant get up in a.m. My fingers r sausages, my joinys hurt so bad feels I got beat up by 50 huge derby.girls! I cant do the things I use to. Burlesque, roller deeby,martial arts, or just even the gym. Right now I just take percoset which is for an old injury, waiting on appt w new dr.s old dr in Tx says he recc 2 things cigarettes n pot! I dont do either. I feel theres no hope after reading tjhis n many other.blogs, my friend has it and i know what tjis is is identical..but why? and why arent we taking action? ppl raise money for all kinds of diseases..why dont we make this more known? more understoood? Right now I steam shower n pop a pain pill n rub tiger balm on me but I have a good job I cant lose…im a single mom and Im depended on..wtf can we do?? please tell me there ia relief n life w this dabilitating crappy issue..and someday a damn cure pleaseeeee! I wish u all relief and light at the end of your tunnel.

April 21, 2012 at 11:05 pm
(23) Sue from Down Under says:

Hello from South Australia! I’m a nurse wth a fifteen year history of Fibromyalgia. I’ve been to multiple rheumatologists, physios, chiros, acupuncture, massage therapists over the years, without success (or very short relief). I have a wonderful GP who has supported me for the past ten years or so. I am currently taking Tramadol 200mg SR twice a day, Cymbalta 60mg daily, Panadiene Forte at least 8 per day. Plus I have Indocid suppositories 100mg daily or twice daily.

The Tramadol is a life saver, as was the Cymbalta when I first started it. Over the years I’ve tried Endep (amazing for the first few years also, stopped working), Dothiepin, Celebrex, Lyrica, Gabapentin you name it.

I am currently going through another rough patch, hurting ALL OVER and SO TIRED all the time. In the mornings I can bearly walk to turn the kettle on. I have to take my meds and then sit and wait for an hour for them to kick in. I am still working as a nurse to support myself as Irecently suffered a marriage breakdown after 28 years.
Sometimes I feel like I should be able to retire or be pensioned off and not wreck myself going to work, but I do enjoy being a nurse and once I get going at work I am generally ok until I get home and sit down. Then I’m in trouble!

Good luck to you all who are suffering with this debilitaing condition. I have no idea why I have been blessed with Fibromyalgia, but it’s good to know that I’m not alone in the world and there are others that understand. I never talk about it with my friends or even my new partner. Because you can’t see pain, it may as well not be there according to the onlooker.

If anyone is interested in someone who understands, and would like a bit of a penpal from down under, please feel free to email me.

Cheers, Sue

June 29, 2012 at 2:30 pm
(24) Susan Tomkins says:

I would like to email Sue from down under, who wants a penpal, as I have had fibromyalgia as long as she has and I understand exactly what she is going through, can also relate to everything Sue mentions.
How do I get to email Sue, do I need to put my email in the news letter box at the top righthand corner of the page. Please let me know, thanks!

July 7, 2012 at 10:24 pm
(25) karen says:

I suffer with fibro myalga every single day if it is not cfs is pain in the hands and boby nothing seems to work on pain coping with it has been a hard as depression set in and I went so low well I wont go their it is terrifying but harder to fight back up on top again battling with this is awafull I can not work anymore and go out very little any more the hand and feet pain stop me cold from driving america has the right idea legal marijuana for medical use I do not understand if it is a pain blocker why can we not have the same thing out here quality of life is so important if only I could bloody get ride of it.

November 19, 2012 at 6:36 pm
(26) Joy says:

My whole family (Mom, Dad, brothers, sisters, aunts and cousins) has fms and some of them started having trouble as young children. I feel blessed that I made it to my late 30′s before I had significant problems. I suffered from chronic back pain before that but I did not realize it was the fms. I wanted to comment because, even being related, we all use different methods to control our pain. We all have different reactions to different medications, too. I am able to keep mine under control with cymbalta, high doses of vit. D and tramadol or Tylenol. I use trazadone to sleep at night. If I am really unable to sleep, I might add a small drink of alcohol. Getting enough sleep with fms is, as I am sure you all know, very important. If I let my cymbalta lapse at all, I am pretty much unable to function, so it is the greatest help to me. My Mom lives in a medical marijuana state and has terrible side affects with cymbalta. She is able to manage her pain fairly well with brownies and fudge she makes with the medical marijuana. She also uses trazadone and tramadol. I have not kept up with all of my brothers and sisters, but know they use diet, exercise, acupressure or acupuncture and different medications. I recently decided that losing my extra weight would help me and I was feeling good enough to do it, so I gave up sugar, wheat and fake sugar.

November 19, 2012 at 6:38 pm
(27) Joy says:

I have a sister that controls her fms with diet. She does not eat sugar, wheat, chocolate, caffeine or acidic fruits and veggies. I am not able to give up the coffee, tomatoes or grapefruit, but have lost about 20 pds. Surprisingly, losing weight has not reduced pain, but I can exercise a little easier and I feel better about myself. I also do not see much of a difference in pain with diet, but that is just me. I did try going off the cymbalta after the weight loss and change in diet and was in terrible pain within a few days. As a side note, I once tried Calorad to lose weight and found that it makes a noticeable difference in fms for me. It is a high dose of protein. I think people who lack protein may benefit from it. It is expensive and tastes terrible, but I am putting it in because it may help someone. I do want to state that I did not lose any weight on it!! Most of all, I want to say-don’t give up! Find a doctor who will listen and try different combinations of things for you until you find something that works.

November 30, 2012 at 9:33 pm
(28) Darlene Vo says:

it is so heart-wrenching to listen to you as i read these comments. i am suffering from fibro,myofacial pain,mechanical back pain,,ive also had a cervical diskectomy,among othe problems,,copd,ptsd,major depression. i ssoo understand how family members and friends just do not understand..im only 40 and i feel so messed up in the head that i feel like 60..i wanna just give up. i take cymbalta,,lyrica,ametryptaline,flexiril,ibuprofen,and oxycodone. oh,,and i agree bout the wellbutin,,i stopped smoking but had hallucinations from it while i was pregnant with my fourth and last child..she was born wth preliminary pulminary hypertension..she is okay now,,but it caused her birthdefect when she was born four weeks early. i also get cortisone injections to the base of my skull because of the terrible pain felt their along with migranes..they will not give me migrain meds because im on so many other things. and i agree about the lyrica making people gain 25 pounds in a couple weeks and stays there the higher the dose you take..i used to weigh 100 and after my last baby i kept in on for a couple years till i started walking everyday for 20mins and reduced the amount of lyrica..it is a control battle with my brain and my body..stress is a big factor too.all i wanna do is sleep and rest but i cannot do that having four kids the youngest is 5 and boy does she let me know how young used to feel and i hate not having the energy to do the things i used to do..fibro is a joy stopper and its is hard to happy even when life in general seems pretty good. the pain overcomes me. i pray for us that there will be a cure or something that actually can get us through with more better happier healthier days. amen it helps just knowing you have someone to talk to that understands. as for now..im sticking to what my doc says for therapy,,but maybe i should ask about new studies or something. thank you all for being here and i hope to join you again soon.

November 30, 2012 at 9:38 pm
(29) Darlene Vo says:

i shared my comment and i do not see it.

April 9, 2013 at 10:23 am
(30) littlemomma says:

I was diagnosed with fibro 2 years ago. After talking with my doctor about symptoms I have had over the last 12 years, he determined that I was suffering from it from age 19. I’m 31, single mother of 2 and work 2 jobs. My fibro kicked into overdrive after my daughter was born over 2 years ago. There are days I can barley pick her up due to the pain in my shoulders and arms. Even my hands hurt and I’m unable to hold a coffee cup without pain. I’m currently on Cymbalta, amitripilyne, flexiril, mobic and robaxin plus I take vitiamin D3 daily. I can’t take most of my medication like prescribed because it makes me grougy or knocks me out and I have my children to take care of. It feels as though I can’t win for losing. I keep asking myself “what’s it going to be like in 10 years?”. I cry at night because of the chest pain and arm pain. It’s starting into my hips and legs the last few weeks. I can’t play with my children near as much as I use to, work is almost unbearable. But I force a smile and say I’m alright because it seems no one understands. I work at a hospital, you would think my co workers would understand, but they don’t. The cymbalta worked great for the first year, then it just stopped. My dose was doubled at that point, but it still isn’t working. The side effects are horrible but not near as bad as the withdrawls. There are days where it feels so hopeless. If I do too much, I hurt. If I sit too long, I hurt. I can’t drive more than an hour or so at a time because of the arm pain. I tried massage therapy and cried the entire time from the pain. Knowing I have to live like this for the rest of my life is so depressing. Even on my “good” days, my pain level is still a 3 or 4 constanstly. On my really bad days, I can’t barley move. Stress seems to make things worse. My doctor advised me to stay away from stress as much as I could. Umm single mom of 2 kids who works 2 jobs……..yeah sure, I’ll stay stress free Doc. Something has to give!

April 14, 2013 at 7:13 pm
(31) Iceskate mom says:

Hi again, have been off work since last May (just re read my last post ..can’t even remember posting it)

HAve recently been to see works doctor with the idea of leavin gwork on grounds of Illhealth retirement (IHR).
HR suggested it , my union guy and I discussed it and the welfare department came to make sure I was ok with it …given all of the above the work doc is now talking about making adjustments to my job to help me stay at work. These have already been discussed in my previous meeting and found to have flaws. teh same guy told me that he couldn’t go with IHR as I was only 50 and I might get “cured” .
I have trawled the net & the local uni science library since getting FM and have never heard of a Cure.

Anybody else know of anybody being cured of this awful illness. I am in a massive flare since having the meeting with this guy as its not just getting back to work its staying in it with out sick leave for the next 10 yrs. HR have already said if he doesn’t agree to IHR (which they though he would) I will be dismissed on grounds of inefficiency as per the work handbook/contract.

July 17, 2013 at 3:59 pm
(32) SARAH says:

I WOULD LIKE TO BE A PEN PAL TO SUE AND PERHAPS
LEARN SOME NEWER WAYS TO COPE DAY BY DAY
THE BRAIN FOG IS HIDEOUS AND YOU WANT IT TO PASS
SO FAST AND IT HANGS ON AND ON
I LIVE ALONE AND THIS REALLY FRIGHTENS ME AT TIMES
FOR I CANT GET THINGS CLEAR ENOUGH IN MY BRAIN
AND I AM THOROUGHLY DEPRESSED FOR I AM 83 PLUS
YEARS OLD
THANKS

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