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Adrienne Dellwo

Foot Pain in Fibromyalgia & Chronic Fatigue Syndrome

By August 12, 2010

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When you have fibromyalgia and chronic fatigue syndrome, pain can hit anywhere, at any intensity, for any length of time. Sometimes you can foresee that a certain thing will trigger a certain pain, but it's largely unpredictable.

While all pain is unpleasant, some have a bigger impact on your life. Chief among these is foot pain -- something I've dealt with and also heard about from several readers, who say things like:

  • "The bottoms of my feet felt like they were on fire. These pains come and go, sometimes [lasting] for months."
  • "[I] can't wear a flip flop or any kind of shoe."

During my bouts of foot pain, just resting my foot on the floor causes a burning pain.  Shoes can hurt not only the soles, but the tops as well.  Walking?  Agony.  A stepped-on electrical cord can feel like a razor blade.

What triggers foot pain?  Who knows.  It's not likely to be an over-reaction to injury, since it typically strikes both feet at the same time.  For me, it doesn't seem to result from tired feet, either -- it can strike after several sedentary days.  Sometimes, I'll wake up in the morning and my feet will hurt like I've been standing for hours.  It could, theoretically, stem from aggravated myofascial trigger points in the legs, sciatic nerve problems, or a tight iliotibial band (ITB) -- then amplified by the hyper-excitable pain regions in our brains.

What works for foot pain?  It's likely to be different for different people, but the best thing I've found is a pair of memory foam slippers, covered in ultra-soft terry cloth.  I wore those almost continuously for a few weeks when I had my worst episode because I could walk with much less pain.  Extra cushiony socks, in shoes that don't have too hard a sole, also help me get through it.  I get some relief from very gentle foot massage with soothing lotion as well, or an Epsom salt bath.

If foot pain is caused by trigger points, sciatica or the ITB, acupuncture or back-and-leg massage could help relieve it.

Do you get this kind of foot pain?  What seems to trigger it?  What helps?  Leave your comments below!

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Comments
August 12, 2010 at 7:42 am
(1) Milissa says:

What actually started my whole diagnosis was foot pain that could not be attributed to anything in particular. I had MRI’s, physical therapy, xrays… “nothing is wrong with your feet” was the response from the foot doctor. It wasn’t until I started developing other symptoms and doing research on fibromyalgia and found more symptoms that matched up with things that people were talking about. I wear slippers most of the time—although my arches are too high to wear the memory foam ones. Thank you for providing your posts which always make me feel ‘less crazy’. <3

August 12, 2010 at 8:04 am
(2) Michelle jadaa says:

At the moment im thinking a lot of my pain is caused by stiffness of muscles and tendons with muscle spasms not just the large ones you feel but im thinking many tiny spasms.

August 12, 2010 at 8:22 am
(3) naomi says:

for me my feet feel like they are being crushed with a vice..its especially bad at rest… the cheap flip flops or barefoot is really best way for me to walk…whenever i wear closed shoes or heels or especially sneakers the pain afterward is unbearble… at times i cant even walk the next day at all …plus that pain triggers other pain…its just wiser not to wwear shoes unless i have to or want to go someplace cause then i can wind up in a worse flare up of pain all over cause it brings on other symptoms

May 31, 2011 at 12:14 am
(4) teresa says:

My symptoms exactly.

August 12, 2010 at 8:38 am
(5) naomi says:

if i wear any kid of shoe..even flip flps at times ( which are actually what I prefer cause its most like being barefoot …cheap rubber ones…it hurts … especially at rest. Feels like something is crushing my feet..like they are in a vice or something…and my bones are being crushed. Whenever i feel well enough to go somewhere and maybe wear shoes or sneakers…i seriously pay the price later on …so i try not to wear anything closed and try to be bearefoot ..or at least just wear flip flops… its horrible cause in winter my feet cant take the cold ..but wearing closed shoes hurts..even socks hurt especially if they are tight…and cant put on more then one pair either cause then its too tight and hurts & numb feeling it can be very stressful… In the morning ..i cant even walk on my feet ..especially if i actually got some sleep and hadn’t moved much during night…feet hurt so much that i cant even walk … kids laugh at how funny im walking in am … have to crawl to go to bathroom.

September 27, 2011 at 7:16 pm
(6) kat says:

I have been going through the same thing. I havent talked to a doctor about it mainly because i dont have insurance, but I just stumbled upon this site. Has you symptoms gotten any better? :( im in so much pain, i have also crawled to the bathroom in the morning. I cant go on like this anymore. Im 29 years old with 2 small kids.

October 10, 2011 at 11:30 pm
(7) Julie says:

I too have fibomylagia. The pain in my feet have gotten worse over the last 2 weeks. After reading the post this evening, I put it on my feet, oh what a difference. I will tell you that it is 90% better. They still hurt but much better then they did. I was diagnosed with Fibro about 15 years ago and never did I know the feet could be affected to this degree. Try it I think you will be pleased. I haven’t tried it yet, but was just thinking that soaking your feet in epsom salt might be helpful because of the magnesium, which is also good for fibro. Good luck.

August 12, 2010 at 8:43 am
(8) Nancy A. says:

I’ve had fibromyalgia for 24 years. My body hurts all over but my feet have always been the most painful part of my body. I also have Raynaud’s disease with poor circulation to my feet, so that doesn’t help either. Keeping my feet warm is very important.

I’ve found a very helpful website:

http://www.footsmart.com.

They have lots of comfortable shoes and slippers and also socks for diabetics and people with circulatory problems. They also have wide widths which I need. The prices are a bit high but worth it. You need to pay more if you want your feet to feel good. Cheap shoes just won’t do if you have chronic foot pain.

August 12, 2010 at 9:30 am
(9) Dama says:

For pain in my feet I like to wear Crocs clogs. They support but don’t crowd the foot and the holes on the sides keep the feet from getting too hot.

August 12, 2010 at 10:50 am
(10) Dave says:

My foot pain is unbelievable, it feels as if the bottom of my feet have been beaten with a cane. Sometimes it’s so bad it wakes me up at night, and it’s difficult to walk.

August 12, 2010 at 12:41 pm
(11) joann says:

My feet sometimes are so sensitive that I take my sandals off at work and leave them under my desk! Some day I dont want any thing touching my feet not even sock because they will bother me.

August 12, 2010 at 3:37 pm
(12) abotbensussen says:

the only thing that helps my foot pain is Voltaren-gel, it’s a life saver, a foot saver. that and when my plantar fasciatis starts in I use some foot stretchers that i got at Footsmart, and wear them at night. this stretches out the long muscle from toes to heel that gets irritated and painful sometimes. I also do foot exercises in pilates and yoga.

November 7, 2011 at 2:27 pm
(13) R says:

I was diagnosed with plantar fasciitis several years ago and received a shot that was worse than the pain in my foot. I did research and discovered that taking calcium and magnesium totally solved the pain! Try it–whenever I have that pain in my heel again I just take additional doses of calcium and magnesium and it goes away. I now take 1500 mg. of calcium and 1,000 mg. of magnesium every day. (You do need to take both or you will exhibit deficiencies of one.) Hard to believe that podiatrists have no clue about this! They’d rather charge hundreds and hundreds of dollars for their solutions that don’t really work.

August 13, 2010 at 3:13 pm
(14) Rachel says:

Orthaheel flip flops that are worn ALL day long has been helping (or shoes with orthotics). I bought them on amazon. Adiitionally, some of my foot pain has gone away with low-dose naltroxene medical treatment! I have gone from a 5-6 in pain daily to a 1-2! Bio-Freeze is lovely on bad days!

August 13, 2010 at 3:36 pm
(15) Kay says:

I get foot pain on and off and never really associated it with my Fibro. Now I know that it is just part of this condition I have.

I find mine hurting in the evening the most. Does not matter what kind of support shoe I wear in the day. Walking or standing on the cold floor makes them feel better.

August 13, 2010 at 4:12 pm
(16) lynne says:

Thank you so much for talking about this!

August 13, 2010 at 4:38 pm
(17) GERRY says:

I have been suffering from feet pain almost a year ago and it is not just my feet, but my fingers too. My feet hurts so much that I can only wear trainers to be comfortable. When I’m at home I wear socks but each time I stood on my feet, I always get the pain. As for my fingers, the pain is also constance and I am unable to hold a tight fist. My doctor has sent me for bone scan for the whole of my body and yet nothing showed abnormal. I am ok said my doctor. But why am I in such pain I asked. He could only put it down to my faibromyalgia. What type of an illness is this?

August 13, 2010 at 4:42 pm
(18) Susan says:

I’ve recently been fitted to orthotics using NAOT shoes. They are awesome!

August 13, 2010 at 5:02 pm
(19) Kristy says:

In my case my fibromyalgia was caused because of problems to my feet in particular my right foot. I had gone to the Podiatrist for what I thought were minor problems going on. After seeing the Podiatrist (and have been under his care for 2 1/2 years now) I found out that the problem went deeper than just the minor problems I thought I had. The biggest problem with my feet in particular my right foot went back to a problem that I have had since I was a child: having Cerebral Palsy.

When I had surgery to take care of the problem in my right foot (a shortened, contracted Achilles tendon) my fibromyalgia went in to remission. That was 2 years ago. I have been able to work toward getting my life back on track which now includes going back to school. I will be starting school on the 23rd to become a Medical Assistant.

I urge everyone to consult a Podiatrist just to make sure that there isn’t something more going on. When I went to the Podiatrist dealing with my fibromyalgia as far as making it better was the last thing on my mind. I was just there to see the Podiatrist to see what was going on with my feet to take care of those minor problems.

When my fibromyalgia went in to remission after the surgery I thought it was because of the massage I had 2 days before the surgery to prep for the surgery to keep the flares to a minimum. Three weeks after the surgery I knew that it wasn’t about the massage and knew that it was that surgery.

But the reason that I urge everyone to go to the Podiatrist to make sure that it’s not something more is because it is so easy to assume that this is just a symptom of fibromyalgia when it may not be. I also bring this up because even some of the pain of some of my other health problems went quiet as a result of the surgery, but the issue of the fibro going in to remission was a big deal for me.

Not only was it a big deal for me but a very nice surprise and one for which I am very grateful to my Podiatrist for helping to make happen.

There is a Podiatrist that has written a book on the issue of Fibromyalgia and trying to come up with an answer to it and he strongly feels that foot dysfunctions such as the one I had corrected can be a contributor to Fibromyalgia and Fatigue.

When there is a problem with the feet the pain may not always be felt in the feet themselves but in other parts of the body too. Why other parts of the body? Because pain can radiate from the original source to other parts of the body such as the knees, neck, and even all the way to the head.

The final surprise I got as a result from this surgery is that I now have normal sleeping hours. Something I did not have for 2 years also because of the fibro. I never had a problem sleeping good, just a problem with going to bed at normal times like everyone else. And now I am able to do that and for that I am glad.

I am not sure when the book that I just mentioned will be out but it should be interesting to see what others think about this book when they read it. I found out about this book from a friend which is how I know about it.

August 13, 2010 at 5:06 pm
(20) jacquie golburgh says:

I have fibro. and have been dealing with ball of the foot pain for years. I went to a foot doc. and she said she didn’t understand this, as i have thick tissue coverage. there. (thick pads)…Obviously most Docs. don’t know anything about fibromyalgia.. The haven’t the slightest idea, and have not read the info. you posted!

August 13, 2010 at 5:17 pm
(21) Kolbrun Gunnarsdottir says:

Now i know that I am not the only one ((-;
Mine is more of a leg pain, very stiff muscles, difficult to stand up from a chair, even my special chair.
I feel that my leg/feet bones are aching. it is always bad then it gets worse and then you get used to it.
I have Restless Legs Syndrome as well, which does not really help. For the last weeks I have put this pain and restlessness to some use. When I am well awake early between 05:00 and 06:00 I have made very good bread and marmalade. Not every morning but some. so there is a positive side to it, I would never make bread in the afternoon. Standing up, getting out of bed the Feldenkrais-way on the whole keeping the Feldenkrais idiology in mind makes moving easier. enjoy kollagunn

August 13, 2010 at 5:25 pm
(22) Kelley says:

I have crazy foot pain! Went to the doctor several times he said it was my back and discovered that when I have a flare my feet are the give away…they hurt so bad I can’t walk, talk or think. I have often thought that it would be less painful just to chop them off! UGH! Yep, fibro foot pain, not a walk in the park!

August 13, 2010 at 5:47 pm
(23) julia says:

Soo good to read about others foot pain, leg pain etc. as have been having problems for a number of years and finding no solutions – the GP said last time I saw him that ‘the figures were nromal and he was looking for enlightenment’
Sometimes my feet will accept any shoes – other times any shoes are unbearable – was very bewildering till I realised that all the symptoms ‘come and go’ – regardlesss to a great extent what I was or wasnt doing!
Have been on the ‘toning tables’ 3 times a wk for the last 4wks and this is helping – passive movements of body that I dont have to expand energy on – coinciding with a ‘good period’ so life is – at long last – getting enjoyable again.
Julia

August 13, 2010 at 8:07 pm
(24) Paula Driver says:

My foot pain is the worst.. no triggers…just hurt.. when they are at their worst i can’t walk no matter what I wear or even barefoot… This was how my final FM diagnose came to be.. I had pain all over and after going from Dr. to Dr. the RA finally explained and diagnosed my Fibro…

August 13, 2010 at 11:17 pm
(25) Zella says:

Sometimes I feel like my feet are screaming — that’s the only way to describe it. Legs ache all the time. I feel every little bone as I walk. My feet feel like they are on fire and worse.

I’ve tried all kinds of things. Parafin Wax Treatments have helped – the deep heat seems to quiet things down– but it is very short term. A big bonus was finding Draper of Glastonbury slippers (many many styles available:http://draperslippers.com/). I get immediate relief as soon as I put them on. I also find that wearing “Crocs” has helped. But whether all this will work tomorrow is anybody’s guess.

Thanks for the tip on seeing a podiatrist — I started seeing a chiropractor again recently and am seeing some positive changes.

Good luck to all!

August 13, 2010 at 11:45 pm
(26) Kathy says:

My feet hurt all the time!! Sometimes my feet become very swollen look like loafs of bread with to much yeast! lol numbness, pain, warm and it is fibro!

August 14, 2010 at 12:15 pm
(27) Kim says:

I started getting sporadic foot pain in the past year, usually just a day of stiff, achy feet, then it would clear up. In March of this year it started up again but stayed for 2 weeks straight. I went to a podiatrist and after x rays diagnosed with tendinitis. Also was given Voltaren which I think helped. I was given Zipsor, oral anti inflammatory but I started getting itchy the 2nd day on it. Pain sort of cleared up for a while but now it’s back and even worse as of this week! Went to see my pain management doc on Tuesday and I was ok, then later in the day the vibrating sensation started in my feet. Now it’s painful to walk barefoot. I’m so frustrated I feel like crying all day. I went to bed at 9:30 last night and stayed there until after 8 this morning.

August 14, 2010 at 12:20 pm
(28) Kathleen says:

omg this site and information was so shocking to me. I was thinking something was wrong with my not associated with my Fibromyalgia. A very good friend forwarded this information to me. I am so glad she did.

August 14, 2010 at 5:40 pm
(29) Judy P says:

I have foot pain, too. It’s worse in the morning so I do foot stretches before getting out of bed – sometimes it helps,sometimes not. Now I have very painful back of the heel pain. I also get what I call “fly bite” pains on the top of my foot – tiny sharp pains that feel like a fly is biting. In rural areas, like where I live, biting flies are a real possibility, but not through shoes and socks! Does anyone else get this type of pain?

August 14, 2010 at 7:02 pm
(30) Angela Manus says:

I’ve had foot pain and problems for years. In fact, the foot problems began before I was diagnosed with fibro. I won’t go into all the problems. The most troublesome for me many days are the tingling followed sometimes by numbness. I get frustrated, too, that I can no longer stoop (like when I need to get down low to put air in my tires) because I get that awful pins-and-needles sensation in my feet. If I do have to attempt to do something like this, the following day I’ll have terrible aching in my feet the entire day. Also, the tops of my feet are incredibly sensitive. (I have difficulty wearing any socks that have looped material on the insides.) But, I have found some wonderful diabetic socks in Footsmart catalog. They are somewhat pricey, but you can save $1 by buying 3 pair at once. Believe me, you’ll love them once you feel them…and probably won’t go back to standard socks. Here’s the link to the product: http://www.footsmart.com/P-Therasock-SmartKnit-Seamless-Socks-60348.aspx

Soft hugs!

April 21, 2011 at 2:55 am
(31) L Mclain says:

I have found diabetic socks, 2 prs for $3 at walgreens. They are great! aLSO buy :NEURAGEN” there…$$$$ but worth it for nerve pain….
Anyone used it yet::::

August 15, 2010 at 8:21 am
(32) Shelly says:

I have had bouts of foot pain for many years now. (diagnosed with FMS in 1998), and it does come for no apparent reason. I have found the same as Adrienne, soft soled slippers. Also, there are theraputic socks with aloe and essential oils that are very nice on my feet. Shoes are horrible, have to get very loose fitting ones, and prefer an open toe slip on if I must wear them.
When the tendon on the bottom of my foot begins to tighten, I take a tip from my foot doc., fill an empty soda bottle with water, freeze and roll my foot over the frozen bottle with that pain starts. Seems to help ward off severe pain. Little foot exercises while sitting with feet up, bending, forward and back, side to side, also helps battle the pain. Hope this helps someone, it’s definately not fun!

August 16, 2010 at 3:05 pm
(33) Dena says:

Like most of you said, my foot pain never seems to need a reason to start and it can start up whenever. Although I have noticed that when I’m out in the heat all day, they seem to hurt even worse. Besides Fibro, I also have RLS, but it doesn’t always seem to coincide with that. Very baffling.

However, I agree with the analogy of feeling as if your feet have been hit with a cane (or as I say: a baseball bat). I do get the burning pain on the bottom of my feet, but the painful part is on the tops of my feet. It feels as if all my toes are broken, as well as the tops of my feet.

I have slip on shoes with 2 memory foam insoles in them that I wear year round. They are a full size and a full width bigger than I’d normally wear. They are not the most attractive shoes, but they work. However, whenever possible, they are off and I’m barefoot.

November 7, 2011 at 2:31 pm
(34) RM says:

You might try taking extra magnesium for pain on the top of your feet. It helped me for quite awhile. Try taking 500-1,000 mg.

August 17, 2010 at 7:31 am
(35) Sheri H says:

This may sound strange but i get some relief from the burning foot pain by putting on footies then spaying the soles with cold water, sometimes i put the footies in the freezer. Unusual maybe but it helps enough for me to get to sleep.

August 17, 2010 at 2:22 pm
(36) enela says:

Thanks so much for talking about foot and legs pain! I’m diagnosed with FM about one year ago. Now I understand that the terrible leg pain during nights, that doesn’t let me have a deep sleep and wake me up during sleep, is associated with fibro. Taking little doses of amitriptiline helps a lot to relief the pain. Also frozen stuff helps alleviate the terrible pain…

August 18, 2010 at 12:45 am
(37) ANN says:

.i had all tile/fakewood floors they were crippling me the hard surface aggravated old foot sprains, tears
i had to use a cane to get up the stretching bootie at footsmart.com or something from the doc to hold the foot in neutral will help

what helped temporarily: the ‘fake’ crocs at CVS, along with those sheets of packing bubbles!! i folded the packing bubbles over to get more support. i placed it against sole of foot, slipped a thin sock over, then put on a cushy sock, then the ‘fake’crocs
The fake croc at cvs seems to fit better than the real thing
CVS also carries other rather comfortable, cushy slip-on slides , again, good against hard floor
the other help: VOLTAREN GEL from the podiatrist…be sure to follow directions inside carefully…and rub it in well 4x daily..GOOD FOR OTHER SMALL JOINTS

August 18, 2010 at 12:52 am
(38) ann says:

VOLTAREN GEL is an anti-inflammatory med
My question is: Where has this med been hiding all my life??

August 19, 2010 at 6:45 am
(39) viky says:

We all have got used to materialistic way of lifestyle (surrounded by all gadgets with magnetic energy all around )which unfortunately has negative impact on our body.

I had similar problem of burning feet and its completely cured now .I would like to share remedy for burning feet which worked for me.You just need to devote maximum 1/2 hour a day for yourself ….please do try this …no investment at all ..its all free :)

1.Remember to drink one glass of warm water as soon as you get up

2. Let there be a gap of min 2 hours after dinner before you sleep and dring glass of water before sleeping

3.Walk BAREFOOT for at least 10-15 min a day on mud or grass or lawn …the ground will absorb all the extra energy in body….the main problem is we are always wearing shoes all the time and our feet never touch the ground (do it either in morning or evening)

For countries where it smows heavily , you can place mud in flat container and place your feet in it for 10-15 minutes

4.Apply cocunut oil to your feet(you can literally feel the heat in feet while applying and leave for 5 minutes ) Thean place your feet in warm salt water for 5 min daily before sleeping

5.Do pranayam , breathing exercise for 5-10 minutes every day wihout fail

Do this for min 11 days and see the difference it makes to your life.

August 20, 2010 at 4:03 pm
(40) anita says:

thanks for talking about foot pain in fibro I thought it was all in my head and so did the doctor. I also wear the cheap crocs that was the only relief I got from my foot pain.

August 25, 2010 at 1:24 pm
(41) Bridget says:

I have been doing some research on foot pain which I have been experiencing lately. But what I have been experiencing lately is also what Judy P seems to be experiencing. I will be just about asleep at night when suddenly I get what feels like a really sharp “bug bite” on the top of my foot. I turn the light on, jump out of bed, pull the covers off and there is nothing there, ever! This has been happening almost nightly now for the past few nights and you would think after awhile I would accept that it is not something biting me, but no, I still jump and check. I have never had any similar pain in my life. Sharp biting pain and that’s it, no lingering pain.

From Your Guide: I get that too, but usually on my back or abdomen. It’s like a bite or a quick poke, and then it’s gone. I think it’s basically a random nerve sending a pain signal for no apparent reason, but that’s just my best guess. ~Adrienne

August 29, 2010 at 12:33 pm
(42) Annie Sisk says:

Wow, certainly looks like this post touched a nerve – pardon the pun. I’ve had almost every single one of the types of pain mentioned in the comments and the post. The worst is plantar fasciitis – such a horrible pain, and worse when I put any weight on it. The best relief I found was a frozen bottle of water, and rolling my foot along it. Also, stretching in the morning, and throughout the day.

November 7, 2011 at 2:45 pm
(43) RM says:

I had severe plantar fasciitis and went to a podiatrist who gave me a shot that hurt even worse. He recommended an expensive orthotic but I decided to try something else. I did research and tried calcium and magnesium and it totally cured my plantar fasciitis! I have no heel pain at all. If I do have a little I will increase my dose and it goes away. I take 1,500 mg. of calcium and 500-1,000 mg of magnesium. Please try it –and good luck!

September 8, 2010 at 10:57 pm
(44) Susie says:

My feet hurt so badly and I had no idea my fibromyalgia could be causing this. I’ve been told it’s neuropathy and feel like I should find a new foot doctor for a better diagnosis. My toes burn and it feels like ants are biting me. I also get sporadic shooting pains in them. I’m so embarrassed because I’ll flinch. When this first started I thought I was being shocked by my computer at work because I was taking my shoes off while working. I also get pain under the toenails. My feet also feel very numb and I sometimes get pain, as though I’m going to take one more step and break my foot.

My treatments: Biofreeze works incredibly well, but it doesn’t last. I take Neurontin and it isn’t doing the job. I just had neck surgery and still have Percocet and that helps a lot, but I’m ready to quit taking it for fear of getting hooked. This is affecting my entire life. I can’t even take my shoes off for long periods of time because the feet turn numb. Any ideas?

September 9, 2010 at 8:23 pm
(45) Lynda Armstrong says:

I have had chronic foot paid for a long time, mainly th bakk of my feeet and toes. Was diagnosed with Mortons Neuroma whic apparently is common with fibromylagia. My Podiatrist recommended shoes called Fit Flops and they have been fantastic, can walk forever in the, now have 4 pairs for different occassions – even wear mine to work when feet are bad, but god help me if I wear normal shoes for too long.

September 20, 2010 at 1:35 pm
(46) Julie says:

I have no answer to helping the pain, and haven’t run into it too much (unlike some people), but the other day I was trying to walk on my treadmill and I could have sworn I had blisters on the bottom of both my big toes. I stopped walking and checked and I didn’t have any blisters. It was weird.

The other type of foot pain I get, I usually get on top of my feet (as well as in my legs – calves and thighs) and it feels like I’m sunburnt (but I’m not), almost likely my legs and feet have a fever. It usually just shows up in random spots.

September 20, 2010 at 1:38 pm
(47) Dana says:

I have constant extreme foot pain. Nothing helps-the only shoes I can wear are birkenstocks and the high end number new balance shoes. I have had 3 neuropathy tests and they have all come out negative, but the Dr.s all said obviously the tests were wrong. I’ve tried creams, pain killers etc. nothing helps. All the other fibro pain is nothing compared with but having my feet hurt all the time its draining.

September 20, 2010 at 2:06 pm
(48) Kathy says:

My feet feel like they are burning a lot. I will get leg cramps in the middle of the night and then there is a place on the top of my foot that will just burn like fire! I use biofreeze or aspercreme and sometimes heat or ice to try and deaden the pain. I get up, start doing stretches for my legs. I have been diag. about a year with Fibro and my GP says she thinks I have had this a long time. I have an appt with a specialist this week, so hopefully I will be getting some answers!

September 20, 2010 at 2:16 pm
(49) Kelly says:

When my feet feel this kind of pain, I wear my Crocs and/or my sheepskin slippers. they do help and at least I have something to wear that doesn’t make the pain worse.

September 20, 2010 at 2:22 pm
(50) charla keranen says:

Well it’s hard for me to tell whether I’m discussing fibramyalgia or diabetic neuropathy because I have both. My feet hurt all the time. From approximately the balls of my feet to the tips of my toes are constantly numb and tingly. I just recently found that having someone rub them actually helps a lot. There are days when just putting my feet on the ground is a chore. I feel like one step is too many. I also have lupus which makes it hard to decipher which disease is attributing to the pain.

September 20, 2010 at 2:29 pm
(51) Luanne says:

Epsom Lotion sold at CVS. It is 9.99 and has become my newest, bestest friend ! The cold toes, the burning pain in my feet was terrible. Over with the Espom Salt CVS sells Epsom Lotion. I put it on twice a day, first thing in the morning and when I go to bed. My feet are not 100%, they still feel swollen most of the time, however the cold toes and the burning pain is so much better I can’t even explain it. It also has cut back on the muscle cramps in my legs, just from putting it on my feet. Also, my hands had been hurting, but I thought it was arthritis and not related, however once I started putting the lotion on my feet, I noticed that my hands were feeling better as well.

September 20, 2010 at 2:48 pm
(52) Renee says:

I have occasional foot pain that feels like my soles are on fire. I do have bouts of sciatic back problems along with the FM/RA. But it is unusaul because only one foot has ever had the burning feelings. I have read numberous comments about messages for FA pain. I personally rather have a pin stuck in my eye. I can’t stand messages. On any part of my body. It is way too painful.

September 20, 2010 at 3:12 pm
(53) phylor says:

For me, the problem is my toes. At first it was only one toe with particular shoes, then all shoes, then barefoot as well. Now, the toe next to it is doing the same thing. When I walk, the toe hurts (on the underside), but I can take off my shoes, and squeeze the toe and it doesn’t hurt. In bare feet, socks or large slippers, the two toes will feel numb. When hurting, the pain is somewhat burning, but also deep.
My doctor just started treating my constellation of symptoms as fibromyalgia. I’ll see if this alters the problem with my toes. Walking is the only kind of exercise I can do as a result of problems with my neck, osteoarthritis, and osteoporosis, so I would hate to have to give that up due to toe pain!

September 20, 2010 at 4:44 pm
(54) Michelle says:

I have foot pain almost all the time and when I get up out of bed in the morning I can barely walk. I haven’t really found anything to stop it. I do have a pair of shoes called TrimStep put out by Target and they are like the Skechers shape-up shoes only alot cheaper and when I do wear them it seems to take the pressure off my feet some, but I only wear them if I go to church or if I know I’m going to be doing a lot of walking somewhere. I have tried foot baths and it feels good while your doing it but doesn’t last very long afterwards.

September 20, 2010 at 7:17 pm
(55) gracia says:

I am so happy to see I am not alone.
I also was diagnosed by a podiatric surgeon with fibro.
I do have plantar fasciatis but the pain that I had all over my body is fibro. I wish someone had and explanation for correlation because obviously there is a strong connection.

Tried bootie @ nite temp fix.
Ice feet works best but temp relief.
Flector patches help.
Aleve at night helps.
Wearing good boots when standing or working helps.
Found Ariat Paddock boots the Cobalt technology awesome!
Also were diabetic socks and theraputic socks.

When I have to stand for long periods I use a saddle stool with wheels to roll around. Salli stools.
If you do have plantar fasciatis a heel is necessary.
at least two inches
Also use orhtotics.
Have had cortison shots severa. time in different places

I will try anything as yoo can see.

September 20, 2010 at 8:43 pm
(56) kathy wright says:

When I have a flare in the morning
when I first wake up and try to
walk it feels as I’m walking on
broken glass that’s on fire. I have
found nothing that helps so far. I
fibro, cfs, rls, toxic levels of lead,
& extremely bad lower back
issues.

September 23, 2010 at 1:12 pm
(57) Pamela Swope says:

When I have foot pain, I have to rotate the shoe I wear every few hours. If I don’t I start to feel like my feet are on fire. I can pretty much wear any shoe, except heels, as long as I don’t wear them too long at a time. I have plantar fasciitis and it kicks in when the fibro pain does. My worst pain is in the joint of my great toes. Sharp, sudden, stabbing pain.
I did discover Epsom LOTION. I’ve only found it at CVS. It helps quite a bit but doesn’t completely alleviate the pain. Does anything??
Thanks for your post.
Pam

November 1, 2010 at 12:13 am
(58) Gloria H says:

I was diagnosed with FMS/CFS/Sjogren’s Syndrome in the 80′s. Many injections, tears and doctor’s have passed and yet I still suffer with the unexplainable pain. For years my family couldn’t understand and I’ve lost friends because of my inability to “keep up.” It doesn’t really matter what kind of shoe I wear, so the Birkenstock’s are my “go-to’s”. Like some of you, the cool floor is my best medicine (unless my feet are freezing). I am now suffering with a numbness that seems to be going up my legs and a rash on both calves that even the dermatologist can’t explain. So, I took him my documentation and he’s now trying something new for me. Wish me luck.

I lost my job and believe it or not, tried for my SS Disability before FMS was deemed a disease. Because of the documentation and doctor’s notes, I was approved without having to go to court. So, keep up with your documentation, doctors, hospital visits, etc. It will matter!

I am so happy to find all of you. Sorry you are suffering, but it sure helps to say it and know that someone understands.

I am checked every 3 mos for lymph nodes, lab work to include lymphomia, lupus, and thyroid (I had thyroid cancer in ’91). Jekyll & Hyde shared that disease with me. ;-)

Thanks for being there and warm hugs to you all.

November 28, 2010 at 2:03 pm
(59) Donna says:

I have suffered with fibromyalgia for many years. Every time I went to the Dr. they would just look at me and roll their eyes. But a couple of years ago I was finally diagnosed with fibromyalgia. That was in Jan 2008, but in Dec 2007 my children gave me for a Christmas president some new stainless steel pots and pans. I started using them and stopped using any Teflon pans. After a couple of months the pain started to diminish and the frequency of the pain. Over time my pain and that goes for my foot pain that all most made me a cripple has diminished. I all so found that for me alumina touching my food will cause me pain. I have two friends that have Lupus and they have help me with more things like no artificial fats or sugars. I use only clear glass eating dishes and bowls. My tea cup is clear glass. I found that eating off porcelain plates or drinking from a porcelain cup would increase my pain. I don’t use eat any sugar if I can help it. That has helped the all over body inflammation. I drink a lot of water and when my feet get to hurting I just lye down for about twenty minutes and get my feet even or a little elevated, that seem to stop the pain cycle. I all so make sure that I take my calcium and potassium. I hope this helps someone else.

November 29, 2010 at 1:08 pm
(60) Gloria H says:

Hi Donna,

Thanks for sharing your comments and suggestions. Most I have tried…I’ve had it for over 20 yrs., but you are so right about the sugar. Any artificial sugar causes severe pain and the same pain in my stomach. Another thing I have found is, if I eat a hearty steak or any kind of red meat, I have severe pain all over. The doctor explained that since the fibromyalgia and RA usually run in a “pack” the red meat causes the RA to be inflamed (in some people)…thus, pain of fibro. It’s just another thing to think about.

I’m so glad you have found a way to aid in controlling your pain. That is very important. As long as we feel like we are in control, it helps. Fibromyalgia will make you think you’re losing your mind.

As I have gotten older and my body weaker, it seems that my mind is giving in. I fight it every day, and if you believe in prayer, it helps. Good luck and pass on any more info you might run across. So many of us are seeking to just get through the day.

November 29, 2010 at 4:03 pm
(61) Bette says:

I thought I had posted this once before and now don’t see it. I had recommended those cheap Chinese slippers you can buy in some dollar stores.

First of all…they are light and I wear a size ten. The fabric on top actually molds to your top foot. The soles are slightly elevated in the heel but they are made with a strong sole and hardly wear. It is like walking barefoot but the little bit of give you get from the soul makes all the difference.

I agree changing heels helps. I got an insight recently of my ailment. I had hit the side of my hand slightly. It did not swell or become black and blue. There was some pain at the site though. Now a normal person might feel the pain for like a day, if they touched it. It took three weeks for the pain to subside. It is like when the nerve endings getting irritated, they keep radiating the pain for longer than they normally would. Is there a site for Fibro that anyone can direct me to to share experiences…thoughts. I really want to know what has caused this in me. I have read all the theories but no one seems to be certain. Other than this, I am pretty healthy…strange. Blessings to my fellow sufferers.

December 7, 2010 at 12:25 pm
(62) Mo Merrell says:

my foot pain is the most annoying thing ever because just as you said I an wake up in the morning and feel as if I had been walking for hours or days or years nonstop. Nothing seems to help..i wear foot braces and ankle supports but that js annoys the hell out of me. I can’t really wear any shoes without pain so I end up walking on the sides of my feet until I can get somewhere and sit down. I run hot water on my feet but that does nothing..i am at a loss. I get coritsone shots which of ourse is not the greatest thing to get but they help because what I feel in my feet I also equally feel in my wrists.

January 17, 2011 at 1:39 pm
(63) SHIRLEY says:

I have intermittent top of the foot pain. It usually happens to the top of my left foot. Sometimes the pain is sudden and then is gone. Sometimes I can tell it is coming and I will try to massage the top of the foot to prevent it from coming.

February 1, 2011 at 12:58 am
(64) Gloria H says:

Hi Shirley:

Understand! I have constant burning pain, crushing pain and the bottom of my feel like they are going to peel off. At times, the bones in the top of my feel (especially just after getting out of bed, or standing) feel as if each bone separates and the ache is horrible. I try to continue to walk and, like you, massage and rum them for a while. One thing I have found that eases it sometime is genuine lavender oil. It is quite soothing.

Good luck and ya know we are all in this together.
Gloria

January 30, 2011 at 11:52 pm
(65) mike says:

i now how you all feel i’ve had 9 surgeries the last 7 years. they have relieved some of severe pain but now my feet just feel like their in a vise. i’ve been to numerous dr’s they can’t figure it out, the worst of it as i lay in bed or on the couch the worst they become. my ped. says try pot, haven’t gone that route yet but i’.m about to. he tells me it;s the best thing for arthritis cause you all now they won;t give pain killers. just a thought and good luck i feel your pain

February 1, 2011 at 1:02 am
(66) Gloria H says:

Mike. I have pretty good doctors who understand my pain and I’ve had no problem getting the pain meds I need. Haven’t been given the option of “Pot” and I think I’ll hold off on that since I’m already on 20 medications. Good luck to ya and we’re all thinking of ya.

February 21, 2011 at 10:03 pm
(67) Bren Hamilton Groom says:

Hi :) I just thought I’d let you guys know that there are a couple Fibromyalgia groups on Facebook if you are interested in sharing, chatting, etc to others with Fibro. One is called Fibromyalgia Be Gone and the other is Fibromighters. You can just do a search by name and you should find them. They are great for just having a little whinge when you’re having a crap day, but it’s also good for sharing tips, etc and of course making friends :) There are more, these are just the two I’ve joined :)

I can so relate to the foot pain! Sometimes when the tops of my feet feel like they have been burnt to touch, it even hurts to go walking on the beach and have the water lap over them, it’s ridiculous! I also get the “crushed in a vice” pain, mainly my right foot; the feeling of someone tightening a screw in my big toe while I’m trying to get to sleep is really annoying, lol; and I also the burning pain of the soles of my feet! I too kick my shoes off at work under my desk because most days my feet are too sore to keep them on. I must get myself some nice soft squishy slippers for around home though :) they sound divine! ;)

March 2, 2011 at 2:13 pm
(68) nancy says:

wow I can’t believe so many people have the foot pain like me. I thought it always had to do with the vitamin B12 deficiency my drs diagnosed for me in 2004.
I usually have to wear Easy Spirit shoes, or Dr Scholls, if I find a style that doesn’t hurt my sensitive feet. A few
times I have been able to wear Sketchers but only
certain styles as I have really painful feet. I soaked my feet in vinegar and hot water for a few yrs, then I read somewhere to try Epsom salts, and those are about the best remedys I have found. I have a Homex massager that works quite well to ease the foot pain at night. This pain is horrible at first, but I am thinking foot pain is something you get used to. Leg pain is worse when I have it. Maybe the Epsom salts soaks help,, they say your feet absorb the minerals, and I have certainly had a lot less pain since I started using it. I also massage my feet with olive oil. Olive oil seems to help better than any other lotion or creams I’ve tried.

March 2, 2011 at 3:53 pm
(69) Teresa Thompson says:

I have been suffering from foot pain for a year now, still trying to figure out what is causing all the swelling in my feet and ankles and legs. I have just discovered diabetic socks when I have to wear shoes. going barefoot and I am a country gal, is out of the question now. I like to wear slippers with the memory foam in them. I also like those silky fluffy terry like socks from JCPenneys to wear around the house. I just went from a size 8 1/2 to a 10 shoe trying to find a shoe that is not painful. I suffer from Fibro, Osteoarthritis and degenerative bone disease. Clothes and shoes are such a problem trying to find what works that does not add to the pain that I live with every day. I need all the help I can get.

March 2, 2011 at 6:28 pm
(70) Cindy says:

Hi, I woke up 11 yrs ago with a stiff left ankle. Day later same thing. This continued for a week or so. Then my right foot went full blown with this pain I have in my left foot. This pain is so ungodly its so hard to describe. Knawing aching pain as if someone clubbed the tops, bottom and side and around the back (achilles, ankles etc.)I had to go on total disability. Total. I have NO QUALITY OF LIFE. Its drained my entire self and could not ever recover life as it is with my husband and kids,grandkids etc. My mind is never without “pain feeling” going there.No concentrating etc. Always pain. Knees,Legs,wrists, thumbs.top of hands, back of arms,front of arms,hips,thighs,back,fingers and neck and believe me I know I forgot some parts. ALWAYS IN PAIN WITH FEET ALWAYS BEING WORSE if thats possible. I have been all over on the computer for someone to say extreme pain in feet is part of fibromyalgia. Is it ? I need to be free from this and I need my LIFE back. Someone give me positive news..Please !! Thank You for telling the story of your feet. Yours was the first I have read about in 11 yrs of trying to find out “where did this come from?” Cindy

March 4, 2011 at 9:14 pm
(71) Gloria H says:

Hi Cindy:

You sound just like me. I’ve had it since the 80′s…also had to go on total disability. The quality of my life really sucks.

YES! It makes your feet hurt. Sometime mine hurts, sometime they BURN, sometime they freeze. I’ve even had numbness…and the pain was horrible. How could that be, if they are numb?

I’m always sorry to hear of someone else suffering with this mess. Also be sure to check with your doctor that it does not go into neuropathy. They parallel and symptoms are similar. Good luck and hand in there.

March 9, 2011 at 5:16 am
(72) carol says:

I’ve had fibro for 15 years and have many issues attributed to it. But, regarding the foot pain, I felt like I was walking on rocks. Being a nurse and my feet being in shoes and walking for hours a day, you can only imagine….I was changing into different pairs of shoes daily, rotating them to try to get some comfort. I finally told my md who increased my neurontin. It has made my foot pain much less. I wear good shoes which is also helpful.

April 8, 2011 at 9:39 pm
(73) AlaskanWindsong says:

I had one foot swell with so much excruciating pain it felt like my foot was going to blow up and I could not walk and was in bed for a week, after an ambulance ride to the ER. I also had Cellulitis in my arm and leg, so I thought it was connected to that.
One week later, it hit my other foot, and I went down unable to walk, for another week. I am just getting up again today, after two weeks in bed with horrible pain, with the aid of a walker.
The second week my dr was called and he said it was a Fibro flare in the feet and he has two other patients that it usually knocks them down and can’t walk, abt 2x a year; this is the 4th time this year it has hit me. It was such excruciating pain that morphine didn’t even take the pain away. A feather touching my foot would send me into an agonizing pain fit. When my Dr told me he thought it was related to the Fibro and not Cellulitis, he put me on a large dose of Gabapentin/Neurotin, and 6 hours later, I was able to stand – still with pain, but able to stand.
WHAT CAUSES THIS????? WHAT CAN BE DONE TO PREVENT IT?????

April 12, 2011 at 5:18 pm
(74) L Mclain says:

Sounds like my plantar fasciitis! And “peripheral neuropathy! It’s terrible pain and I’ve had it for years. Recently found “neuragen” (for feet pain) at Walgreens. It woRks! It doesn’t keep the pain gone, but it sure relieves that “lightening, stabbing pain in m y feet. Check your shoes and see a podiatrist. Good luck!

November 7, 2011 at 2:39 pm
(75) RM says:

I mentioned earlier that my plantar fasciitis was “cured” by taking calcium and magnesium. I discovered this cure by researching and looking at the ingredient in Epsom salts–magnesium. The pain in my heel is completely gone! I take 1,500 mg. of calcium and 500-1,000mg of magnesium. Try it and see if it helps!

November 27, 2011 at 3:02 am
(76) Mary says:

I am having trouble viewing your comments about magnesium and calcium, please send me the info thrum email at marycborel@yahoo.com. Thank you very much.

April 13, 2011 at 11:20 am
(77) Gloria H says:

Hello L McLain:
It’s never good to hear another person complaining with the horrible pain in their feet. I also had the PF and my mother has neuropathy..but trust me, a podiatrist doesn’t even know what to do with the Fibromyalgia pain and the other pains that go along with it. All the auto-immune diseases rolled into one pain is unbelievable.

My podiatrist, sent me to a rheumatologist because he didn’t understand the pain in my body that was related to that in my feet. As far as shoes…I’ve spent $$$$ trying to find a pair I could wear more than a week or so, and if you change shoes–on my gosh, the pain is so bad the next day I’m in bed.

Sure hope you don’t reach that point and are able to manage the pain. So far, I know for me, I just have to live with it. You can’t tell if the pain is coming from muscles, nerves, bones, or like many doctors say…”you can’t hurt all over at one time.” Therefore, we try to SUCK IT UP and try to get up the next day.

They now have added Cymbalta to my Lyrica and 13 other meds. I take daily.

Good luck Everyone and keep the ideas coming. Hugs.

April 16, 2011 at 9:07 pm
(78) L Mclain says:

I was diagnosed w/ fibro in Mar ’89. Fortunately my orto surgeon recognized it and no one I knew ever heard of it but I’ve been disabled since…many things like I’ve mentioned above. The only time I saw a podiatrist was to have my PF operation, which didn’t do any good. In fact, my Orto Surgeon (a different one) coulnd’t even find the scar!
I found a terrible pair of shoes at QVC.com They are CLARKS bendables, open toes, cup heel. They are wonderful! No more athletic shoes…duh…no wonder, they were suffocating and keeping pressure on my feet. don’t wear them anymore!
Take care!

April 16, 2011 at 10:35 pm
(79) Gloria H says:

Hey: Didn’t mean to sound like I was the only one who knew what FMS feels like. I was also diagnosed in the 80′s and went to everyone and was told they had no idea what was wrong. I had to file for my disability and was told by SS that with all my documentation that if we went to court, they would lose…and FMS was not even recognized as a disease at that time. I know that you know, if you’ve been along this road.

Clarks are good but my favs are Birkenstocks (also from QVC), thank goodness for home tv. I don’t go out and shop anymore. Even better (when I can) I love going barefoot on the carpet.

Good luck and keep any ideas coming. It helps us all.

April 21, 2011 at 3:02 am
(80) L Mclain says:

MISTAKE!!!! THe Clark shoes, bendable and awesom…open toe, supportive arch and heel cup! It’s awesome. fIRST PAIR OF REG SHOES SINCE1992!!

June 30, 2011 at 12:37 am
(81) DeDe W says:

Hi Gloria,

I’m new to all of this but I’m so thankful that I found all of u.I have been searching to see if anybody else was having horrible foot pain.I can’t even find any shoes to wear anymore!I mean I literally don’t have any shoes!I’m so sad.I to hurt all over and have to SUCK IT UP!I wish people would be more understanding.Gloria you did make me laugh! I also try changing shoes and I’m bed for a week!I found out that I have one leg shorter than the other and will have to wear a shoe lift.now I have to deal with that!I guess all we can do is get up everyday and act as if everything is ok?and keep on,keep on smiling!

April 22, 2011 at 11:34 am
(82) Bette says:

I am trying DMSO…seems to working some. I also am trying not to put my laptop directly on my lap since my thighs hurt. I am so grateful to all of you for posting. The person who wrote about getting out of bed and their feet hurt so. this is how my Fibro started..looking back. I could hardly put my feet down on the floor. I wish we could get an idea of what brought this on.

April 25, 2011 at 8:47 pm
(83) Gloria H says:

Hi Bette: It is good to share how we feel and not be judged. I remember receiving a new computer system at work and bringing all the thick packing foam home with me. I cut it and placed it in my shoes and just couldn’t explain the pain to anyone else. That seems like a lifetime ago, but the pain…still here. They say you need 9 “spots” on your body that are excruciating when pressed…I think I have maybe 9 that doesn’t hurt, when pressed. They sure can’t blame it on “Old Age” cause I wasn’t old when it hit me…now, I am (and still in pain). Send us any ideas you may have and how you are feeling. Good luck!

July 3, 2011 at 5:08 pm
(84) Theresa says:

I have a serious questions concerning my feet. They feel red, hot, tender, shooting pain, and very discomfor. I sometimes even hate to think of putting a shoe of anykind on my feet. When I put them on bag of ice to cool them down it starts to feel releif. Like I don’t want to have anything on them. I have extremely hard time wearing niolons, socks, or thin footie socks. Sometimes I wish I could never wear anything on my feet. If I feel the floor extremely cold all I want to do is walk on it to releive the discomfort and pain I feeling. Can anyone help me out. On the bottom of them they are dry, itchy, skin peeling off where I stratch on them, Feel hot sometimes and now the toes are starting to get tiny sores where I rub to much. What can I do at home to take care of this matter before winter comes this year. Been like this everytime warm weather gets here.

November 7, 2011 at 3:33 pm
(85) RS says:

Have you asked your dr. or read about gout? I was reading about the symptoms today and they sound similar to what you’re experiencing. Good luck!

July 5, 2011 at 11:20 am
(86) susan says:

Yes I have this pain, like you when I’m at rest I’m in pain. When I’m at work it is really painful, enclosed shoes make it worse, I come home in a lot of pain, its on the top and the sole. Doctor is trying to help me with my discomfort. What helps you?

July 12, 2011 at 12:03 am
(87) Anna says:

My symptoms exactly, both feet are on fire have not been able to work for a month. Can’t walk to far nor stand too long it is very very painful. I am looking for anything to calm the nerves I believe this will make a big difference.

August 19, 2011 at 8:33 pm
(88) bonafidemonkey says:

Whenever I wake up every morning I wake up laying on my back with my feet facing up and my toes pointing toward the foot of the bed. Half of those times I wake up and slightly move my left foot and severe pain hits the top of my foot and it’s tender to touch and also burns when I touch it. Movvving my foot makes the pain worse as well as sittting still. The only thing that helps the pain is time. It has to go away on it’s own. It also slightly hurts during the day when i lay with my foot facing up. Does anyone know what this is?

November 27, 2011 at 5:26 pm
(89) Gloria H says:

Hey everyone. I’ve been away from computer for a while…just lost interest. I have kept up with all your comments, though. Me, my feet are still burning, feels like knitting needles (or a 300+ lb line backer has stepped on my instep with cleats), aching, limping, going barefoot, and taking PILLS! Some days I just don’t care and stay in bed…but guess what, that doesn’t help either. I think this is just another cross to bear. Like some of you say, the summer seems worse and that has been the case with me for many years now. I tolerate the cold weather much better than the hot. Go figure. Thought “heat” helped anything but a sprain or break. Hope you all were able to enjoy your Thanksgiving and are looking forward to a beautiful holiday season. Be back later. Thanks for being there.

November 28, 2011 at 12:55 pm
(90) Bette says:

I saw an ad that foot, leg, hand and hip pain can also be caused by poor circulation to the extremities. I am going to have a test to see if this is also what I have. I think what they do is to put a BP kind of cuff on your ankles as well as both arms. If the difference in the reading is too great, this indicates a circulation problem. Will let you know what happens. I have attributed all pain to my fibromyagia and it may not be.

November 29, 2011 at 8:55 pm
(91) Gloria H says:

Bette: Good luck. Keep us posted. I’ve had a similar test and they will repeat it later. Mother had it though and found out that a lot of her problems are not just FM, but neuropathy. She is losing the feeling in her feet, legs and now in her fingers. Makes ya wonder, what are we breathing, eating and where is it coming from. Seems EVERYONE is being diagnosed with a nerve or muscle disease. I have really suffered today. Maybe tomorrow will bring a better day for all of us.

December 9, 2011 at 5:44 am
(92) nikki says:

When waking up in the mornings or getting out of bed during the night and put my feet on the floor I am unable to walk properly as I get sharp tingling pain running through my toes. I have to wait a few mintues before the pain disappears and I can walk properly. I find it easier to walk with my cushioned slippers. when sitting down driving or generally i feel a numbness in my feet, then it subsides. As a teacher i am never sitting down for long and am on my feet all day! I fell on my coccyx over a year ago and have had physio treatment for it so i don’t know if there is a link there? When running i sometimes get a pain that goes through my left knee. Not sure if all this is linked.

December 9, 2011 at 10:09 pm
(93) Gloria H says:

I have a question??? Does anyone have a severe “ringing in the ears”? When I complained with it, my doctor said it could be one of the FMS side effects. It gets so bad at times that I can’t hear beyond it. So, now I guess I’ll be seeing ANOTHER doctor. Still got the feet problems and with the intensity of holidays, etc., I have been in bed a couple of days. This crap really sucks.
.

January 17, 2012 at 10:26 am
(94) Martin Nielsen says:

For a short period of fourteen days, I had burning sensation on the bottoms of my feet too. It was back in 2007 – And I have wondered since what caused it.

Im pretty sure what triggered it, just not what medically happened.

I started working out at the gym and made some backmuscle exercises, when I suddently got some pain in my lower back, when I walked home later it began to burn under my feet, and before I was home, I had to turn my feet inward to walk on the outer edge of my feet.

It lasted for fourteen days, and I wondered if it would ever go away – but thank god it eventualy did :)

January 17, 2012 at 9:09 pm
(95) Gloria H says:

Hi Martin:

Glad your pain went away, but it sounds like you had a muscular spasm or sprain in your lower back, that involved the sciatic nerve. Sometimes that will take a couple of weeks to feel better. Hope it stays gone ’cause when this crappy disease, FMS, gets ya. You know you’ve been got. There are places on your body that you didn’t even know you have and trust me, they NEVER stop hurting and NEVER allow anyone to touch them without feeling like you are black and blue. The feet are just one area that hurts. Keep us all posted on your recovery.

January 19, 2012 at 12:52 am
(96) Mary says:

The last formal job I ever had was a holiday retail position, never more than 25 hours a week. I had worked in retail on and off over almost 20 years and had never experienced pain like I did over this brief period. I hurt all over all the time, but it was the constancy and intensity of the pain in my feet that shocked me the most. I mentioned this to my doctor and got the usual noncommittal answer the rest of you are probably familiar with. Seeing the article and your posts makes me feel a lot less “wimpy” and crazy, too! I am now working with a disability atty. to try to get a diagnosis, probably either fibro, CFS or both. With no money and no insurance it won’t be easy, but I’m not going to give up or be lulled by any more MDs telling me it’s all psychological. Thanks again for some affirmation!

January 19, 2012 at 6:47 pm
(97) Gloria H says:

Hi Mary:

Good luck to you. I did exactly what you are doing. Talk to the doctor and have him test you for Sjogren’s Syndrome at the same time. It is also an autoimmune disease that goes alone with FMS. I was able to get my SS benefits and a letter from their attorney that informed me that with my diagnoses, if we went to court, they would lose. So, hang in there and remember you will be paid from the time you applied for the benefits. Don’t feel bad about it but GO FOR IT.

Hope you feel better and remember if you’re “crazy” you’ve got a whole lot of company.
Fondly,
Gloria H

February 19, 2012 at 10:37 am
(98) anne says:

i have had fibro for many years but i have terrible pain in my feet with or without shoes its like walking on sharp glass ,its agony .i was diagnosed last year ,do you have this problem please as the pain is unberable ,thank you anne

February 21, 2012 at 10:00 pm
(99) Gloria H says:

Hi Anne:

I, personally, am constantly aware of my feet. They burn, hurt, ache, and nothing helps. Right now the bottom of them feel like I am holding them to “hot ice”. They freeze and they burn, all at the same time. I have made the statement before that sometime the top of my feet feel like someone is walking on them with cleats. My doctor is now sending me to a neurologist to test for neuropathy. I can’t tell you when my feet didn’t hurt – with shoes or without. Good luck and keep us updated on how you’re doing.

Fondly,
Gloria H

February 23, 2012 at 10:40 pm
(100) Barrie says:

I came across this blog site as I have suffered Periphial Neuropathy and feet on fire for 4 years. I could only sleep a couple of hours before cramping and associated feet on fire. I play golf and it was so debilitating my H/cap shot out 10 shots, Now back down to lowest ever by 3 shots. I couldnt walk. I eventually found a natural med called Legsense. https://secure.magnoliahealth.com.au/documents/Leg%20Sense%20Info%20Flyer.pdf. This product has changed my life , I also take LIPOEC capsules and recently CoEnzyme Q10 which is great for blood energy levels and reducing cramping. Give teh legsense time to work , may take a week or 2 , but stick with it. Good luck.

February 23, 2012 at 11:53 pm
(101) Gloria H says:

Barrie: I am all for “natural” and will definitely look deep into this. I am already on the CoEQ10 but the others (and website) have somehow slipped by me. Thank you for the insite and I will let you know how I make out in a few weeks. Congrats on the updated Hcap. I used to have an 11 – but broke my arm and developed a dystrophy in it, so I won’t share my NEW Hcap. Enjoy! Gloria

April 12, 2012 at 1:14 am
(102) Cheryl says:

Hello, I just happened to come across this site. I was told I had Fibro about 4years ago. At first every doctor I went to kept telling me it was all in my head. It made me so mad ! I knew I wasnt going crazy and I knew all this pain I was feeling wasnt in my head. Finally after seeing upteen doctors and having all kinds of tests run, my family doctor told me I had Fibro. Now I knew I was right, it wasnt in my head.
Every single day I hurt so bad that I just think I cant go on. I hurt all over and my energy is completely gone. I am 50years old and I feel like Im 90years old. My feet burn so bad and when I wake up in the mornings I can barely walk. I feel useless. Im single and my kids are all grown up. Sometimes I just want to lay in the bed and never get up. Sometimes it is so bad that I feel like Im gonna pass out, My feet burn so bad, my lower back kills me, I get lightheaded, my whole body aches, my knees hurt so bad and my family tells me that there is nothing wrong with me. I wish they would be able to feel the way I feel just for one day. Then they wouldnt keep saying it was in my head. When I wake up in the mornings(that is if I got to sleep) I feel like I havent slept. My energy is gone.
This burning feet stuff is really taken its toll on me. I cant handle it anymore. Im sorry I kept going on and on but I just couldnt stop. Thank all of you for writing about the way Fibro makes you feel. I pray that they come up with something that works for all of us suffering from Fibro.
Thank You for Listening,
Cheryl

April 12, 2012 at 7:44 pm
(103) Gloria H says:

Hi Cheryl: I’m so sorry you are going through all this pain. I could just feel it in your text. But, as horrible as it sounds, all of us have either been told it’s all in our heads or hey, there’s no way you can hurt all over at one time! One thing I do know is that God only gives this stuff to the tough ones, cause the wimps couldn’t handle it. Keep trying. Enjoy the “good days” and if you feel like staying in bed on the bad days…do it. That’s the only thing that will get ya through it. Don’t listen to those who critize…like you said, if they could have the pain they wouldn’t believe you’ve made it this far. Right now, I’ve taken a Vicadin, and I’m laying in the bed with little “bean” bags warmed in the microwave on my feet and to my back. I’ve had it since 1986 and I’m also single, with grown kids…but I’m 69 years old. It hurts, but the alternative is not so good. Hang in there and write when you feel like you need to. Someone is listening. Fondly.

April 22, 2012 at 9:18 pm
(104) MollyB says:

Although I do not have fibro, I have foot pain. I am 62. Have watched my father and now my mother suffer horribly with the pain of neuropathy. I am curious if fibro at times manifest symptoms of neuropathy as so many comments here remind me of the suffering my parents have and are going thru. The medical field has no answer for this…just masking of pain with heavy pain meds which cause other issues. Anyone know of a connection between fibro and neuropathy??

April 23, 2012 at 2:05 pm
(105) Gloria H says:

Hi MollyB – I definitely feel there is a connection. My mother was diagnosed w/ fibro several years ago and now is suffering with the neuropathy. It is horrible to see her in such pain. My foot pain is not as bad as some of those who write in, but the muscular pain and chronic pain of the fibro is unbelievable, whether it is in the feet, shoulders, back or all at once, it hurts. A GOOD Rheumatologist or Neurologist is definitely a friend. Good luck.

April 28, 2012 at 7:03 pm
(106) Bette says:

Good news!! The doctor gave me samples of a new drug they use for fibro. The name is SAVELLA. I have been on it for almost three weeks and it actually works. Check it out on the Internet and ask your doctor. I also had tried Cymbalta recently. Not only did it not do anything but make my BP skyrocket. So much for the TV ads for it. The Savella has limproved by pain by almost 95 percent. I know it is working cause I do not experience any pain when I do something strenuous whereas before, I would be almost crippled when on my feet for any length of time or have done anything physical. My BP is actually great on it and it leaves me with no side effects. The doctor told me it is a new drug that they have been using and have had major success with it. I did not have PAD which was another test I had…in fact, my circulation to my extermities is 100 percent. I also take 50 mg of Zoloft for years which did not help with the fibro at all but I can say on the Zoloft with this new drug. Thank you all for taking the time to write on this site. God bless.

April 28, 2012 at 7:26 pm
(107) Gloria H says:

Hey Bette: Sounds like you have hit the jackpot. I have also tried the Cymbalta and as you, my BP went up and they even put me on 2 meds for it. I see my Rheumatologist in a couple of weeks and will definitely ask about Savella. In the meantime I’ll check it out on internet. Thanks for sharing…I’m willing to try almost anything. My pain in increasing – even with Lyrica and Cymbalta. Nothing has helped me…I’ll check out Savella. Thanks again.

May 12, 2012 at 9:27 am
(108) Lynda Armstrong says:

I have had fibromylgia for many years, mainly causing chronic upper back and neck pain as well as the fatigue and everything else. When my feet started to get incredibly painful, regardless of whether I had been on them much or not my first thoughts were that the fibro was affecting my feet and I was devastated. I talked to my doctor who sent my for ultrasounds of both feet and I found out that I had Mortons Neuroma and that this is what was causing the pain.This is not uncommon in people with Fibro. I had to go and see a Podiatrist and they recommended that I change my footwear completely so I have been wearing Fitflops instead of thongs or Crocs as casual shoes, not wearing shoes that bend across the ball of my feet and small heels. This has helped enormously with the pain in my feet. So I recommend if you have very sore feet that you maek sure your doctor refers you for ultrasound to eliminate this issue.

May 12, 2012 at 2:48 pm
(109) lorraine says:

Lately, late at night in bed, I get in one or both feet in the area just above my toes, an excruciating cramp like pain. I get up and try to walk it off. It takes a few minutes before I get relief and afterwards I have a gentle sorelike feeling. I need help to find the reason for this very intense pain.

May 12, 2012 at 6:22 pm
(110) Bette says:

The Salvella is still working. No longer do I wake up with that awful foot pain and I have no “new” pain. I did damage my elbow doing a lot of weedwacking and it’s been almost three months of pain there….that the med did not help with. It is equivalent to a frozen shoulder that I had once. I have an appt with a neurologist/psychotherapist in June. Did hot and cold therapy on my elbow today. I had done it once before and it helped put it on the mend but then over taxed it again. I do not have arthiritis at all cept in my top right pointer finger joint. That is why I know it is not arthritis in my elbow. No swelling, no joint pain..but I cannot lift anything. Will keep you informed. I still have no adverse reactions to the Salvella which is great. God bless

May 13, 2012 at 8:22 pm
(111) Gloria H says:

Hey Y’all:

Lorraine, so sorry about the foot pain. It is something that some of us has had for a long time. The sore-like pain after the muscle spasms is also very real and can stay sore for several days. Right now, both my feet are burning and aching like someone has put a nail through the top of both feet. There are also times that the palm of my hands feel exactly the same. The doctor has said that it is the muscles spasming – you’d think I’d get used to it…NOT!

Bette, I am glad the Savella is still working for you. I plan on discussing it with my dr when I see him next week. Right now, I’m still on the Lyrica (2xda) and Cymbalta 90 mg (1xda) but also still in pain I tried to set out some tomato plants today that had gotten to large for the pots and tonight my body feels like someone ran over my butt, backed up and got it again. Vicadin helps cope with the pain and they gave me some Oxycotin but that crap is rough on my body. Gave it back to them.

Good to hear from you guys and it helps to know that someone understands what it feels like. Take care of yourselves and write again soon…it helps. Ya know?

June 2, 2012 at 8:47 am
(112) Liz White says:

Hi

I have ME and associated pain that was diagnosed as fibromyalgia. I frequently have manageable pain in my feet but this week pain was so bad ended up being driven home from work because couldnt even walk down corridor. I couldnt find any comfy position where pain would ease. having come across this site it was great to find that somebody else could describe symtoms and the fact that it struck both feet at same time. At minute pain is still about after 2 days but I am beginning to manage it. Would TENS machine help. Normally pain stick to hands and face.. feet is relatively new option… well of tis intensity

June 3, 2012 at 6:57 pm
(113) Gloria H says:

Hey Liz:

Sorry to say “welcome” to this group but I’m glad you found us. We have all felt the way you are. Its really one of the hardest crosses to bear. TENS doesn’t help mine, but it did seem to help my mother, who has neuropathy in her feet and hands. It’s up to you…and worth a try. Anything is worth a try. If it doesn’t help, then you’ll know. Most of my pain is constant hard pain; burning pain; pain that would only come from someone putting a large spike through the top arch, nailing it through my foot/feet. It’s a pain that unless you have it, you cannot sympathize with it. Good to hear from you and I hope you will keep us in your prayers and in the loop of what’s going on with you.
Fondly
Gloria

June 6, 2012 at 1:07 pm
(114) Sally says:

My right foot is in agony right now. It feels like it’s in a clamp & is burning! I had a chest pain the other month & have been getting pain on the bottom right hand side of my back. I’ve also been told I have plantar fascititis too. Could I now have fibromyalgia as well? Guess I should try magnesium & calcium + voltaren gel too. Can you buy salvella over the counter? Has anyone tried using a magnesium oil spray? Thanks for listening….

June 6, 2012 at 9:36 pm
(115) Gloria H says:

Fibromyalgia is always a possibility. The right side of my right foot (right this minute) feels like someone is holding a hot coal on it and at the same time, it feels tight and it hurts. Sevella is by prescription only. I can’t take the magnesium/calcium, since my parathyroid is overactive and produces too much calcium…but one thing that does help (but not heal) is nitroglycerin ointment (Prescription only). It helps cope with the pain. Also, my mother uses pure lavender oil on her feet. It helps her neuropathy. Fibromyalgia, you just have to find what works for you and hold on to it. I’m on 14 meds and thankful for every one of them. Good luck.

June 7, 2012 at 12:44 am
(116) Bette says:

SALVELLA is an prescription drug. Your doctor may have samples since it is a new drug.

June 7, 2012 at 12:47 pm
(117) Gloria H says:

Hi Bette:

Thanks for correcting my spelling of Savella. I did see my doctor and spoke with him about it. Because of other problems I have, and medications that won’t mix with it, I am unable to try Savella at this time. Sure was hoping I could…but I’ll have to continue on what I am on. Thanks for bringing it to my attention, though. Hope you are continuing to feel well and having less pain. Good luck. Thanks again.

June 17, 2012 at 11:57 am
(118) julz says:

Hello everyone,
I can relate to practically everything that everyone has said on here, as i have battled fibro for the past 11 years now.
However, I’ve noted that not many people seem to mention massage as a way of relieving the pain. I believe that much of my foot pain came from tight muscles in the foot and lower leg, so initially I used to massage my feet whilst in the bath, which helped my feet, but caused pain in my hands after a minute or so!!!!
Then I discovered a fantastic little thing called a PEDIROLLER which I bought at my local chemist. It’s basically a piece of ridged hard plastic, which is placed on a hard floor, whilst you roll your bare foot back and forth over it. I started with a few seconds at a time, and now do about 5 minutes per foot per day. The ridges massage the soles of the foot, so doing that, in conjunction with massaging the top of my feet whilst in the bath, means that I can usually walk around a mile with very little pain.
Massaging both my entire legs, 2-3 times a week also helps, as this contributes to keeping the muscles relaxed.

Hope this helps, with hugs to all.

July 1, 2012 at 1:46 pm
(119) asmaa says:

i actualy always and every day feel that my left leg was standing for hours alsow my foot sometimes does this

July 14, 2012 at 11:21 pm
(120) Asil says:

I have terrible foot pain. I’ve been diagnosed with fibromyalgia after having breast cancer in both breasts 2 years ago. I had 5 months of chemotherapy, then a double mastectomy, then radiation, and breast reconstruction surgeries. I have peripheral neuropathy (nerve damage) from the chemo and a laundry list of many other bothersome ailments.

The pain I experience in my feet and other parts of my body on a daily basis has left me with little to no enthusiasm for life anymore. Doctors are no help whatsoever. I am chronically depressed and constantly fatigued. I never, ever feel rested anymore. My life is a daily struggle with pain and fatigue.

July 16, 2012 at 7:54 pm
(121) Gloria H says:

Hi ASIL: Your symptoms sound like FMS but without being diagnosed by a doctor, it could be a number of things. The depression definitely goes along with FMS and a lot of people have neuropathy who have FMS. It’s strange how one thing brings on another.

My pain is not just my feet…I suffer with constant and complete body pain, including my feet. There are several new things that doctors are giving for it, so you need to see a Rheumatologist and get checked. If it is FMS, it’s only going to get worse, causing the depression to increase. So if they can get your pain under control you could feel better and less depressed.

I sure hope you can get to feeling better. FMS really sucks. I spend a lot of time in bed, and I take a lot of meds. That’s what keeps me going. Good luck and keep up posted on how you feel.

Fondly,
Gloria H

July 17, 2012 at 8:49 pm
(122) Pam says:

My left big toe has been hurting for three weeks now, and then a few days ago the big toe on my right foot started hurting. It’s been mostly in my toes, but about 1/2 of each foot hurts on top the past week. Today I have felt better than I have since my feet started hurting. I woke up stiff as a board all over two weeks ago, but have started stretching and that has really helped me. I have hypothyroidism, so I’m not sure if my pain is caused by that or am I getting fibromyalgia. My mother had extremely bad rheumatic arthritis for 50 years before she died four years ago. I have had just a slight puffiness in my big toe and hot to the touch when my pain first started. Can someone help me with this. Thanks! So glad I found this message board. Hope everyone feels better soon.

July 17, 2012 at 10:17 pm
(123) Bette M. says:

Hi everybody, been wanted to ask about what kind of mattress you use. I have a hard one with a lot of foam on it. I think maybe with Fibro you need a super soft one. I use all down pillows and use them inbetween my legs and feet. I did stay at someone house’s for awhile and slept on a very soft mattress and it did help.
Yes, it sux we have to live with this. I have found tht if I hit myself ever so slightly, the pain on that area will last for weeks sometimes. It is like the nerves do not know when to quit even after the original injury was weeks ago.
I appreciate all of you that take the time and effort to post here. God bless.

July 18, 2012 at 10:04 pm
(124) Gloria H says:

Pam

RA and FMS definitely show up in the same person, a lot.

But with your big toesbeing swollen and maybe showing redness…especially with your hypothyroidism, go let the doctor run some bloodwork. You could easily be showing signs of Gout. That definitely goes with RA. While you’re having bloodwork run, they can also check out to see if you may be getting FMS. Hopefully, it’s not. I hate to hear of anyone finding out they have FMS.

Good luck. Keep in touch with us.
Gloria H

July 18, 2012 at 10:17 pm
(125) Gloria H says:

Hi Bette M,

Don’t know about everyone else but I have a med/firm mattress. I do have a down filled mattress cover (@ 1″ thick) on top of my mattress. Like you, I have to sleep with pillows between my knees (can’t stand for the bones to touch at my knees/ankles), and I have 2 microwave (bean-like) pads that I warm and put to my side and to my upper shoulders/waist (I’m a side sleeper) and have 2 soft pillows under my head. When I’m able to sleep, it’s blissful…but never before 1-2 AM. Just can’t wipe out and go to sleep. Having FMS you know what it is to get a good nights sleep. Good luck on the mattress. I had thought the next one I buy may be a Sleep Number.

Take care and let us know.

Gloria H

July 19, 2012 at 12:21 am
(126) BETTE M. says:

THANK YOU GLORIA FOR YOUR INPUT. I AM A SIDE SLEEPER ALSO. I FORCE MYSELF TO KEEP MY LEGS STRAIGHT AND NOT BENT WHEN I SLEEP. I TAKE TRAZADONE SOMETIMES. I STAY UP LATE AND DO A COUPLE OF SUDOKUs WHICH MAKE ME SO TIRED. I ALSO HAVE A RADIO IN MY BED…SHORTWAVE .LISTEN .TO BBC A LOT. I KNOW THAT STRESS MAKES MY FIBRO WORSE AND I AM LIVING IN A STRESSFUL SITUATION. I REALLY THINK THAT THE PRINCESS AND THE PEA HAD WHAT WE HAVE…HAHA.. GOD BLESS

July 19, 2012 at 12:49 am
(127) Gloria H says:

You laughed about the Princess and the Pea. It reminded me of oodles of years ago, a co-worker and I were talking about our night’s sleep and I said that I couldn’t sleep if there was even a wrinkle in my sheets (even then I had pain) and he laughed and said that I reminded him of the Princess and the Pea.

Now, I’m so much worse. I can’t sleep at all without meds. I take 2 Klonopin about an hour before I think I’m ready for bed and then an Ambien when I lay down to try and go to sleep – every night. I,too, work puzzles (easy ones – no challenges that late) to try and get my mind clear. It just won’t shut off. So, pills, pillows, slick-tight sheets, and anything else I think will help, and off to bed I go. Not always successful, but I try. Good luck to you, as well. Keep in touch.

July 20, 2012 at 7:50 am
(128) bronze evening shoes for women says:

It’s going to be end of mine day, but before ending I am reading this great post to improve my know-how.

July 26, 2012 at 8:11 pm
(129) Bamby Sheridan says:

After sleeping or working is the worse pain. My feet feel like fire and I walk a toddler just starting to learn for at least the first hour. Stress makes this a whole lot more painful. I’m a concierge and the crap you take is unbelievable leaving me limping like I sprained my ankle. My right foot is the king of pain and numbness is worse. Dr’s roll their eyes like I”m faking it. I live in Hawaii and the Dr’s out here are worse than vets. I just moved to a new island and they won’t even take me as a patient or I haven’t found one that will yet. Running out of meds so I need to find one quick. They were so swollen a few weeks ago I spent the night in the ER and everyone thought I broke it until they talked to me. I haven’t found anything to help the foot aches but salt water which living on an island is plentiful it’s just getting there that the trouble. I have to wake up three hours before my 6am shifts just to function. Fibro sucks.

July 28, 2012 at 7:11 am
(130) Michelle C says:

Diagnosed with fibro, I have lots of pain in my feet too. The soles of my feet feel like they are bruised. The pain radiates up into my foot around my bones. I have sciatica on my left side with burning pain running from my lower back, through my left hip, down the back of my thigh to the outside of my knee and down to my pinkie toe. That is a much different pain though and isn’t on my right side at all. I don’t do a lot of walking when I’m in that kind of pain. I try to just stay off my feet altogether.

July 30, 2012 at 1:02 pm
(131) nicole h says:

So I have told my husband over and over again my feet feel like they have been crushed. I have explained to him the scene out of Misery- when she hobbled him to keep him from walking. Evey morning for the last 3 weeks has been agony. I have to walk sideways down our short flight of stairs each morning. My feet feel as though they are fractured on the top above each toe. I can only explain the pain as ricocheting across the top of my feet. I am in most pain in the middle of the night and first thing in the morning. I immediately become stiff when i stop moving. There are two things i shoule mention, i have fibromyalgia and a fractured L5.

July 30, 2012 at 10:03 pm
(132) Gloria H says:

Nicole H. Sounds like you have been diagnosed, yourself. Sorry you are having pain and discomfort. That is something that all of us who have spoken here, are feeling. I can only say for myself that it’s not just my feet. It’s my entire body, and most of the time it’s my entire body all at one time. They say there’s no cure for this crap, so we try different meds, different diets, very moderate exercise, and different anything that might help. Keep us posted and let us know how you are. Good luck.

August 1, 2012 at 5:18 am
(133) asad says:

My shin and feet burns while sitting when feet are on the floor whereas when i lay on the bed i feel no pain. When i walk i feel no pain but after an hour or two pain becomes worsen while sitting.

August 7, 2012 at 12:32 pm
(134) eveallease says:

Celiac’s disease causes neuropathy and myalgia. My pain stopped once I stopped eating foods I was allergic to. Get a good medical doctor who respects the value of wholistic medicine and who will listen, then get a comprehensive food panel done, candida test done, and celiac test done – and go organic and processed food-free whenever possible. Go outside and soak up some sun and stick your bare feet in the ground for a nice D Vitamin charge from the sky and a B vitamin charge from the Earth.

Humans are getting weaker and weaker because we are forgetting our connection to the planet.

I have been cured of all sorts of pain, including beginning symptoms of heart problems. Eat good food, you will see the difference!

August 19, 2012 at 10:55 am
(135) F. Mitchell says:

I was diagnosed with fibromyalgia in 1996, then three years ago diagnosed with peripheal neuropathy in both arms and feet. Been taking tramadol (100 mg. in A.M.) for the last six years, and Gabapentin (started with 800 mg, then increased to 1600 mg @ P.M.) for the last three. The foot pain is by far the worst. Most of the same as people here have indicated. The VERY best shoe I’ve found are Sanuk flip flops. They have yoga mat soles and help more than anything I’ve tried. I had to have a bunionectomy last year and my foot still isn’t back to normal…..add to that arthritis in feet, and I feel like I’m a 100 years old sometimes…and walk like it too. I’ve run the gamut of meds for the fibro and so far the tramadol works best.

August 19, 2012 at 11:03 pm
(136) marilyn malone says:

I have been looking and trying to explain my pain to doctors.I came upon your post and finally.what i have been going thru has some name to it!I thought maybe it was lubus,or maybe MS,because not being able to walk much with stiffness.So now I will make a copy to take to for my Doctor to read.thanks for posting,I now know I am not crazy.and alone in this weired cronic pain.

September 5, 2012 at 9:50 pm
(137) Brenda says:

I have had four surgeries on my right foot and it still hurts all the time. It feels like there is a lump the size of a large grape at the base of my toes into the ball of my foot. I have tried many things, I was diagnosed with fibermyalgea five years ago and have not been able to find anything that helps. I work at a public school and I am on my feet all day. I don’t think I can work much longer.

September 22, 2012 at 10:01 am
(138) Cheryl says:

My foot pain is unbearable! I have fibromyalgia but never knew it could cause this intense pain in my feet. I am a teacher and I can hardly stand to work. Even when I try to sleep the pain in my feet won’t stop. It feels like my feet are curling up in pain. Does anyone feel like that? My doctor has me on Lyrica but it is not helping my poor feet. Sometimes I feel like I can’t live like this because people do not understand the pain! I look normal on the outside but inside my body is hell. I wonder is it really fibro or could it be something worse. The doctor makes me feel like I am crazy that of course it is just fibro.. It is ruining my marriage and I don’t know where to turn.

September 22, 2012 at 8:51 pm
(139) Gloria H says:

Cheryl: No one knows how it feels unless you have it. The feet is only one place it zeroes in on but when it does it makes you feel like it’s the end of life as you know it. Please see a reputable rheumatologist. He/she will know what kind of tests to run to verify what you have. Since Neuropathy also has symptoms of FMS, you need to be correctly diagnosed. Initially, I was even told I had Lupus. Thank goodness they ran tests and found it was a “cousin” of Lupus called Sjogren’s (showgren’s) Syndrome, but it is compounded with FMS. I have had pain in places of my body that I never knew could hurt, since pre-1983. You are in a job that requires so much time on your feet that it stands to reason that it would attack there…even in your sleep. While sleeping, our bodies are really most vunerable. We don’t realize it, but that’s when our brain is so open to pain and suggestion. Relaxation exercises work for me (sometime). Focus on something pleasant, and breathe. It will also help your blood pressure.

As far as your feet. I think there are those of us on this page who have tried every shoe on the market, from slippers to Birkenstocks. Whether it costs $5 or $205, when you are in pain, you’ll try it. If you luck up and find something that feels good, stick with it.

Your doctors will encourage you to “exercise and walk”, but that’s 2 things I can’t do. There are days, I stay in bed all day. There are nights that I cry most all night, because my life has changed so much and I have lost most of my friends because I “won’t push myself” to do what they think I can do (if I really wanted to). You have to do what YOU CAN do.

But, again, please get to a Rheumatologist or a Neurologist to have the proper tests run. Good luck and let us know how it is going. We do care and feel the depression, pain, and uncertainty, you are feeling.

Fondly,
Gloria

September 30, 2012 at 8:37 pm
(140) Claire Gallegos says:

Gloria,

I am very grateful for these postings. All of a sudden I was wondering if what I have is Fibromyalgia even though I had NO Clue what that was. Several months ago, perhaps even a year ago, I saw the Podiatrist because of excruciating pain in my big toe on my left foot. I thought I must have a broken toe but x-rays said no and she gave me Steroid pills that took the pain but I was speeding like crazy. Then I completed the medication and the pain returned and within the last 5 or 6 months when I get up in the morning I can hardly walk on my feet. The challenge is that I also have to get up several times for those tinkle breaks and each time the pain is unbearable. During the course of my day the pain lessens. Strange? I have orthopedic looking shoes and running shoes that helps me – I feel better with those shoes but can’t wear tight enclosed shoes even with small heals at all. Went to my 50th High School Reunion last weekend and tried to wear attractive shoes with a short heal – no way Jose!! I will be going to my Dr. to confirm whether or not I have Fibromyalgia – it will be good to have it identified.

Now, I said that to say that I believe prayer works! I believe God can heal me and all those other dear people who have been battling this severe pain. If you will allow me, I want to pray for all those who posted – Father God, I pray for each individual who has posted on this site and I ask that your miracle working power can touch each and every one today! May the healing balm of Gilead touch them and me and that by Jesus’ stripes we are all healed. In Jesus’ name I pray! God bless you all – I will continue to pray for you!

September 30, 2012 at 9:38 pm
(141) Bette says:

Hi Everyone, I grew up on the Jersey shore and then lived in PB County by the ocean for ten years. So all of my life, I was in the sun. I moved to Tenn and have not sat in the sun for years. But last week I dog watched some dogs for my friend. I sat on their porch and exposed my feet and my legs to the sun. It seemed to really help…especially my feet. I also went barefoot a lot. I am going to try exposing my feet to the sun again this week and see what happens. I am so grateful to have this site cause I can relate to so many that post here. And stress difinitely makes my fibro worse. I am going to buy a thick mattress cover and try that God bless all of you.

October 1, 2012 at 1:57 pm
(142) frank villagrana says:

Foot pain it’s been with me for the past 33 years…it happened when i was 17….i fell into a grain auger….for those that don’t know that equipment…i’ts like a gigantic drill bit that you use on your drill…i feel into it while working at a farm…god…i wish it never happened….anyway…i have consistent pain…walking or not…some times i do have a little bit of relief and i fall asleep at night…all of the sudden starts pulsating…then burning…needless to say i am awake..i’ve possibly taken any medicine available to the public out there…there is a form of relief…nothing permanent…i, and my general practitioner…decided to amputated…the insurance doctor’s dicided not to….the decision was to increase medicine…i say fine…but is never enough…..so what are you going to do….give me your opinion…..pacogilsner@gmail.com….they may be right….amputation can cause other unknown issues….love all…frank

October 1, 2012 at 8:08 pm
(143) Gloria H says:

Hi Y’all. I saw your comments and man, I can feel your pain. Claire, I personally, appreciate your prayers. I don’t know what would have happened to me if I didn’t know that God is with me. We struggle each day to make the best of what we are given and without prayer, I’d be flopping around like a fish out of water. Glad to hear you are going to the doctor and get a diagnosis. Just remember that you may have to be referred to a Rheumatologist for final results.

Bette, you are a fighter, I can tell. You are willing to try anything that may help. Sunshine is definitely full of Vitamin D just don’t over do it and get burned..then you’ve got another problem. Hang in there and keep trying.

Frank. Your accident sounds horrible. I know what a grain auger is and if your feet were caught in that, man you’had some serious injuries. Sorry to hear that you are having the undecisive accounts from your doctors. It’s hard enough when they agree. I am in no posiition to give any advice about amputation; that has to be a decision between you and your doctors. Think long and hard and above all, pray.

Obviously, none of us understand what’s going on in our bodies but I know that ANY kind of STRESS makes mine worse and sends me to bed – sometime for several days. Take your meds (whatever and whenever necessary), take time for yourself (meditate), pay attention to your diet (red meat is my enemy) and eat healthy foods. And, if you do believe in God, pray. If you don’t, and you have another belief, turn your thoughts there. We need each other and we need that higher power (mine is God).

My thoughts and prayers are with you all. Keep in touch. Something you say may help someone get through a horrible moment. Until later, God Bless.

October 3, 2012 at 10:55 pm
(144) Missy says:

Omg that is exactly how I feel, even after sleeping all night I wake up and feel like I walked all night in my sleep. Burning and aching so bad it’s unbearable to walk some times

October 4, 2012 at 12:49 am
(145) Gloria H says:

Missy: Don’t jump to conclusions. See a doctor and study up on your symptoms so you can talk to your doctor. Keep a journal, so you can know what makes it worse or what might just be the wearing of the wrong shoe one day. I certainly hope you are not diagnosed with FMS because it is certainly something that will test your physical, mental, and emotional body to the limit. Good luck. Let us hear from you.

October 4, 2012 at 6:56 pm
(146) Gloria H says:

For me, it’s almost a selfish effort. It offers an opportunity to vent, to hear suggestions, but most of all to know that you are not alone. We all experience pain, whether feet, back, neck, arms, etc., but more in our muscles and nerves than bone, which makes us all unique in our quest for something to help us rest and have just one day that we can say was a good day.

October 13, 2012 at 12:39 pm
(147) J Welch says:

I am 65 and have had FMS/CFS since I can remember as far back to the age of 5 but did not know it nor was I diagnosed until 1996 when I developed Memory Impairment according to three years of Neurologists and many other doctors and MRI’s of my brain with different stimuli for three years to see if there were any changes and was finally told that there was nothing I could do about it that my brain was permanently damaged.. This FMS/CFS/Memory Impairment has knocked the socks off me since 1999. With a lot of cognitive training and learning how to deal with the pain the best you can I can tell you until now I did not know what was wrong with my feet. They felt like they were on fire on the bottom most of the time and I have had diabetic testing so many times it is not funny because the doctors thought maybe that was the problem but NO it was not. I have numbness in both little toes at all times and I feel like I have a small small small pinhead gravel in the top of the arch of my left foot on the bottom of my foot but there is nothing there that you can see. I wear Birkenstocks (they only help my feet to be able to walk more comfortably they do nothing for the burning and numbess in my little toes and rock feeling pain in my arch) shoes all the time for bedroom shoes, work shoes and dress shoes but now I know why I suffer with my feet now too. I never knew that FMS/CFS could affect your feet as well other that I knew in the joints it could but thank you for this information I just stumbled on while searching for answers. Keep up the good work.

October 13, 2012 at 3:23 pm
(148) Gloria H says:

Hi J Welch: I also stumbled onto the website. A lot of comments have helped me understand some of what is going on with me. But, there are a lot of things going on with me that are not mentioned. I just try to fill in the blanks. As far as the information, you’re as much a part of this as we are, anything you can add may help one of us. Just like you mentioning the memory impairment, I just assumed it was all the medications I have been on and off of since the 80′s. And, I have more muscular pain than joint pain, even though I have RA and had Rheumatic Fever at the age of 5. It seems to all tie in together, but why does our body fight itself? That is so strange to me. My foot pain sounds like yours and most everyone elses. Burning and discomfort. Shoes that won’t work, so I try another kind. A lot of people frown on the Birk’s but that’s all I can wear. So, even tho’ we’re alike, we’re also different. Keep us posted and let us hear from you. Welcome to the group. Fondly

November 7, 2012 at 8:12 am
(149) Vanessa says:

A new and almost debilitating manifestation that I have developed is intense pain to the bottoms of my feet but predominately to rt. heel. The pain is constant even at rest. EACH and EVERY step is painful but the pain becomes less intense after several steps. The pain is also very intense after removal of my shoes with no support as in the foot not touching the floor. I have tried wrapping the heel with a stretch type bandage with MAYBE some relief. Pain med does not relieve the pain ( I take 120 mg of morphine every 24 hours plus tramadol or Demerol for breakthrough pain) so I am at loss of any other things to try. I wear good shoes, Dansko or Asics usually. Also I am an18 year R.N. so have a few resources though I am no longer able to work, of course. If anyone has any ideas or suggestions I welcome them. Thank you.

November 7, 2012 at 1:30 pm
(150) Gloria H says:

Boy, that has a familiar ring. I went through that and remember wrapping, rubbing, soaking and even packing my shoes with foam filler from packages that came to the office. They thought Plantar Faciatis, even put me in a cast (which was wrong) and I needed the mobility. Anyway, from that it went on and became a part of my life. Dealing with it is horrible. Sounds like you’ve got a lot of meds at hand, that are not working. Have you seen a Rheumatologist? If so, go back! If not, please start there. He may send you on to a neurologist, for the nerve endings in your feet, but whichever, they are aware of this type of pain and will know where to begin. I see mine every 3 mos if I need to or not. Good luck and keep us posted. Fondly, Gloria

November 13, 2012 at 8:45 pm
(151) JoAnne says:

I go throuhg bouts of pain in my feet also- Right now they are flarring up pretty good- I find the best comfort in Crock shoes–also i have a wide foot so have found stylish, wide shoes on Shoes.com–They ship free and returns are free– I have gone from one store to another willing to pay almost anyting for a comfortable pair of shoes only to find none–I was elated to order three pair knowing none would be to my liking and I kept all three!! It’s so nice to be able to tolerate dress shoes now when I have to- also for my fibro–I read a book called What your doctor may not tell you about fibromyalgia and I almost cried all the way through the book realizing others suffer with the same symptoms and I”m not crazy or wierd- Eliminating drinks with carbonation, chocolate(which I think it’s the caffiene in it) and a few other foods has helped enormously–I have also foudn that I’m affergic to something in toothpaste- I sing at our church and was struggling with constantly clearing my throat from phlem- i was seriously thining of quitting because I could never predict my voice–One day I remembered what a pharmacist that I worked with was telling me about different chemicals in our foods ect- so I thought maybe it could be the toothpaste ingredients (most probably sodium laurel sulphate) and sure enough- My throat cleared up almost immedicately– It’s so nice to not be clearing my throat constantly- I’m stillk hunting the culprit though for my burning feet– I’ve had this burning problem since I was a child– I’m sure it’s food related– but what???

November 20, 2012 at 8:17 am
(152) Tarlina phillips says:

My feet hurt so bad like every day need pain killer
Sometime they dont work help please?

November 20, 2012 at 8:14 pm
(153) Gloria H says:

So sorry to hear you are having such pain. Most of us here are experiencing the same. Right now, my feet are on fire yet they are cold to the touch. The pain reaches to the core of your body. The top of my arch feels like a knitting needle has been thrust into it. God it hurts.

But speaking of body…my pain is not just in my feet, it is over my entire body. My lower back is having spasms and my shoulders feel like someone has put a backpack filled with rocks on me. I was told today that mine has actually gone all throughout my body. Don’t know if there is enough pain medication to help me.

The only thing we can do is see a good doctor and rely on his tests to find out how much damage has been done to us. Please see a Rheumatologist or a Neurologist to get these done before it consumes you.

Praying for all. God bless.
Gloria

December 10, 2012 at 3:57 am
(154) Don says:

Diabetes, Neuropathy and Vascular Disease are my medical conditions. Can only sleep 3 hours before the pain of burning numbness along with a blowing up sensation of my feet awake me. It is getting worse day by day and I am at wits end. Pain meds do not even work anymore. 8 yrs. with no end in sight. Quality of life is eroding to the point where not waking up is the only solution possible. But not being suicidal will keep that from happening. My doctors have no answers but increased dosages of medications which leave me in an unconscious state of mind. So I just live with it and suffer in unbearable pain. HAGD

December 10, 2012 at 9:04 pm
(155) Gloria H says:

Don: I am so sorry to hear what you are going through. You’re in the right place though…all of us seem to know how you feel, even if hearing somebody say, “I know how you feel,” doesn’t feel real good. I live with pain and like you, the meds are my only resort. I am also trying to be the caregiver of my Mother, who is 89 and has neuropathy really bad, has had a stroke, and several other things that the doctors can’t control. So I see her and can see what is probably ahead for me…that really sucks.

Glad to hear that suicide is not an option. We can’t let this overwhelm us and make us reach to that darkest place. I am speaking from experience, as well. I don’t know how you feel about God, but I do know if I couldn’t pray I would totally lose it. The strength to endure is what we need. Our doctors are only human and yeah, they can write those prescriptions, that sometime seems like just drinking water, but I’ve had mine tell me that I’ve made him go back to the books on a few issues. Don’t be afraid to ask questions and demand answers. I’ve really learned to be a bitch about my body…afterall, it’s mine.

Hang in there and know that I am thinking of you and sincerely pray that they will find something to help you have better days (and especially nights). Keep in touch, you’d be suprised how talking about it opens new avenues to answers. God Bless.

December 10, 2012 at 9:20 pm
(156) Bette says:

Well, I had to get off the Savella cause it made me gain weight, my BP skyrocketed, even tho the pharmacist told me it wasn’t that at first, and my heartbeat went way up. Stopped theCoke, and everything went back to normal. It took a few weeks for the hypertension to show up and a couple of weeks to get it all back down, including my weight gain.

I have stopped drinking Coca Cola altogether, and my fibro is much, much better. I was really addicted to it.

I try and make myself lay down for an hour in the afternoon and that helps also. If i sit too long, my legs, butt and thighs hurt and if I stand and walk too long, my feet hurt.

All the best to all of you for the coming Holidays. God bless.

December 27, 2012 at 4:16 am
(157) kenny says:

Got fm 15 years ago via ross river virus while doing ironman triathlon, dont waste your time with doctors find a naturpath who knows his stuff heaps of calcium magneisum potassium, sun exposure , force yourself to keep exercising albeit in moderation and any alternate therapy that works for you… in my case oz bush flowers and spiritual healer!
Now 60 plus back doing half ironman without problems, keep your system from getting too acidic and your halfway there!!!

Cheers Kenny

December 29, 2012 at 9:57 pm
(158) susie says:

hey everyone! just found this site accidently, I’ve been having so much pain in both feet , I can hardly walk today! The pain in my feet is somewhat new, but the fibromyalgia has been a part of my life now for about 10 years. Chronic Fatigue is no stranger either! The last 3 days I have spent mostly in bed , due to part pain, part depression , part chronic fatigue etc.etc. This life totally sucks! I’ve had to work hard all my life, and now at the age of 52 I’m beginning to feel my life is pretty much over; 4 of my children are grown, and my last child is 13 and still needs me to be much more active and a part of his life than what I feel I can do. I’m a single mom, my children don’t seem to understand any part of what I suffer. My 6 yr. old grand-son seems to be most understanding! The meds I’ve tried haven’t helped so I don’t take them anymore. I’m a full-time custodian at a middle school and every night I come home totally exhausted, in horrible pain, and so stressed because there just is’nt much left of me to give to my 13 yr old son! Life now is starting to suck for him just because of me!!! No, his father is not in his life. I feel like I’m done, there seems to be no answers, no help, no relief, just pain and more pain!! People tell me I look great for my age, they just can’t imagine how I could possibly be in as much pain as I say I am, not that I go around announcing whether I’m having a bad day or a good day. I really do try to put on a happy face as much as possible, I’ve fooled many, just not sure how much longer I can keep it up. I’LL shut up now, but promise to keep you all in my prayers. Have a healthy New Year is my wish for all of us!

December 30, 2012 at 12:47 am
(159) Bette says:

Susie, I don’t know about anyone else, but stress can really make my fibro flare. Like I said up above, not drinking Coca Cola has helped a lot but I still miss it. It is the holidays so you are feeling a little blue,..it will pass. I have a son that is bipolar and has been causing me a lot of strife and grief for years. Hope you keep coming back. I have learned much just from reading this site. God Bless all..and Happy New Year, Hugs

December 30, 2012 at 7:54 pm
(160) Gloria H says:

Hi Susie:

When I read your post, it made me remember all the things I have gone through. Fibromyalgia (FM) sucks! There is no way to explain how your body feels and how it makes you feel. Stress is definitely a huge factor and the more you stress the more your pain excels. I was fortunate enough to get my disability approved even before FM was considered a disease. I know of several people who have since, been able to get theirs. This is one avenue for you. The only thing is the wait-and-see.

Diet is another thing I find to help me. Cola has been mentioned and personally, it doesn’t bother me. My worse enemy is red meat. So, I plan my diet w/o red meat. I am unable to exercise because of the muscle spasms and because of that and the meds I am on, I have gained weight. (which is against me).

I hate it when people say that you look great, you don’t look like you’ve been sick a day in your life, why can’t you go with us tonight, etc. No one understands. I lost my husband to Cancer in ’99 but before he died he had gone with me to my doctor’s and heard about the disease and why I hurt. He was very empathetic, but I don’t have that support any more. I know how being alone feels.

You really need to take your meds and see a good rheumatolotist that knows about FM. I am so sorry to hear that you are suffering. I know what it’s all about and have suffered with it since ’84. It’s only gotten worse as I get older. You have a lot on your plate with a 13 y.o. and the fact that your older children don’t understand, hurts. See if you can find the book, “Fibromyalgia and Chronic Fatigue Pain” for them to read. It has a lot of insight of FM and CFP. It might help them. You may find it at the library. Good luck and keep us up to date. Fondly.

January 1, 2013 at 6:35 am
(161) Tina says:

My feet pain are so intence, when I go to bed at night and when I wake in the morning. They burn,ack and are tigilly. I have not found any thing to help them

January 1, 2013 at 12:55 pm
(162) Bette says:

I sleep with a big pillow between my legs,making sure my knees are kept apart, and I put a smaller, soft pillow between my feet which helps tremendously. I always sleep on my side. I have to make an effort not to sleep in a fetal position and put my legs straight..not bent.
I once read that they think fibro appears after you had either suffered a bad case of the flu or had surgery with anesthesia. I had both.

January 1, 2013 at 7:05 pm
(163) Gloria H says:

Hey Y’all. Happy New Year. Hopefully, this will be a better year for all of us. Seems we have so very much in common. Fibromyalgia is sometime brought on by a trauma that your body has experienced. But it also is a form of rheumatic problem and usually attaches itself to Rheumatoid Arthritis or some other rheumatoid disease (Also those we hear as auto-immune disease). This could be something as distructful as Lupus, Sjogren’s Syndrome, and even Neuropathy. Neuropathy affects the feet more than FM or any of the other diseases. It is diagnosed by a neurologist and tests that show how badly the nerves are damaged. Sometime is it even brought on my being a diabetic.

The things we do and the meds we take to keep the pain down is all different for each of us, because we are all different. I, too, sleep on my side with pillows between my knees, if I wear a different shoe today, tomorrow my feet just kill me. Sometime to the point that I am in bed for a couple of days. I recently fell, and now, after 2 mos. I am still feeling the spots of soreness. Our mucscles are like sponges and won’t tighten. The doctor said my muscles are ‘lax” and can’t tighten like a normal muscle. Is that why I have pain? Who knows. I just know I live with pain 24 hr/day. I cope with it by taking meds and staying close to my bed. I have fewer friends than I have ever had…because I’m not as active as they are and I say “no” to their invites. I live with my adult daughter and mother; It’s the 3 of us, but I feel alone. They see and understand, but no one else does. Why? I cry and I pray, and somehow, I get through each day.

This is my prayer for me, and for each of you, during this beautiful start of a new year. Please keep the posts coming. It helps to know that there are those, like you, who understand. Thanks for being there.

January 3, 2013 at 4:50 pm
(164) vivian says:

my name is vivian
can anyone help me i also have fibromylgia but i dont know if thats whats causing the top of my feet to hurt all the time day and night weither sitting sleeping or walking they hurt and now on the bottom of one of my feet is starting to hurt can anyone tell me what this is i can hardly sleep hurts so bad and to walk also.
thank u vivian

January 16, 2013 at 11:42 am
(165) Beth says:

the tops of my feet hurt down into about the middle of the foot. Feels badly bruised like someone stomped them repeatedly. I, too, have Fibromyalgia. We started a rainy period a few days ago. I think the barometric pressure is responsible for a lot of my pain. Can’t control the weather :(

January 24, 2013 at 6:53 am
(166) A PATEL says:

I IAM A PATIEN T OF FIBROMYALGIA FOR 20YRSAND TOUCH AND SCRATCHING DUE TO ITCH HURTS TOO MUCH.
IBOTTOM SPECIALLY BALL OF FOOT HURTS WHILE WALKING ON TILE OR CARPET OR SLEEPING IN THE NIGHT.TRIED SO MANY SHOES
WITH ORTHOTICS AND OTHER PAIN GELS ETC BUT BALL OF FOOT PAIN NEVER GOES AWAY………………I AM LOOKING FOR HELP IN THAT AREA

THANKS
ANNA.

February 4, 2013 at 12:21 pm
(167) ally says:

I am laughing so hard, I’m crying! I googled: “my feet feel like they’ve been beat with a baseball bat.” And, this site popped right up. I began reading each entry while thinking yes, yes, yes, to each person’s description of their own foot pain. Personally, I identified most with the people who penned, “my soles feel beaten with a cane.” But, when I got to the writer who admitted putting their footies in the freezer, then spraying with cool water, then going to bed, I began laughing uncontrollably! Foot pain is unbearable and WE DO ANYTHING that might help! ANYTHING! My very best regards to each of you. Thank you for giving me such a hearty laugh: I “feel” your pain… Or, at the very least, I do feel my pain.

February 10, 2013 at 2:47 pm
(168) PainCenter says:

My bilateral foot pain is excruciating and feels like my bones are breaking along with a burning and tight, sore muscle pain. Sometimes, I feel like I must have fractured both ankles and to limp on both feet is so difficult. Not only do the soles of my feet and my ankles hurt, but also the tops of my feet. The only thing that helps is if I just lay in bed and soak in the bathtub. I have tried all kinds of meds without relief!

February 19, 2013 at 8:39 am
(169) mwaka says:

Going through the comments here reminds me of my pain. My heel feels so sour especially in the morning of if I have to wake up at night. My soles are so painful such that stepping on them its a night mare. Some time ago a friend advised me to use Dr Scholls shoes, which I must say really helped but they are scarce to come by in Kenya. Can the manufactures do something.

March 7, 2013 at 8:32 pm
(170) Penny says:

I have the same problem with my feet, like someone beat me with a baseball bat and out them on fire. It radiates up my legs to my hips. So, rest if I can, hot baths nightly, husband massages them. Then hope the will feel better the next day.

March 25, 2013 at 4:01 pm
(171) lynne says:

I was diagnosed with fibro about 2 1/2 years ago , but it has been about for many years before that. Its only recently that i realised my foot pain was probably caused by it.
I cannot walk barefoot at all. Constantly live in slippers with a thick spongy sole. During the day though i work so slippers aren’t an option! Any kind of heel on my shoes is a no. The joints at the base of my big toes are the worst. And it just seems to be getting worse. I can only walk for about 5 mins before the pain becomes almost unbearable. I am very thankful for a sit down job!
Warming my feet helps. A hot water bottle or wheat bag on them when sat at my desk. Have had to start wearing slipper socks to bed so my feet stay warm enough.
A little worried about possible arthritis in the joint. Possible why its so stiff and achy. So appointment with docs booked.
Although im pretty sure they’ll give me the look that seems to say “here we go again. ” and i will get nowhere. As this seems to have happened for the last
7 years.
It does amaze me how many people have fibro considering how hard it is to convince the doctors you aren’t lying, there is something wrong!

March 25, 2013 at 9:35 pm
(172) Gloria H says:

Hi everyone:

This Fibromyalgia crap sucks. I’ve had it since 1983…even before it was considered a disease. In 1994, it was finally determined that Fibromyalgia is an autoimmune disease. It attacks the body immune system and causes such indescrible pain. So many people have different symptoms, but listen up! It is your body and you are the one who lives in it and with this pain/discomfort. Do not let a doctor demean you when you are trying to explain what’s going on with you. Be firm, make a list, act like you are tired of this feeling and you need his help. Again, do not allow him to make you feel like it’s impossible to have pain all over you body at one time. You can! I’ve had to grow with this disease and I’ve learned a lot about it. Look it up (not on the internet) go to the library and it’s there … so many books about it and what it does to you and how it makes you feel. You will think every one of those books were written about you. See a Rheumatologist first…if he has no answers, go to a neurologist. There are doctors who know about this disease and they can help…The pain…you will have, but you will be able to learn to cope with it.

Take care and God bless.
Gloria

March 31, 2013 at 5:15 am
(173) James says:

I recommend doing these exercise videos. Keep doing them and you should notice improvements and less pain.

http://www.heel-that-pain.com/heel_pain/heel_pain_exercises.php

:)

April 3, 2013 at 2:55 am
(174) June says:

Thanks all, what an amazing find. My big toe feels like it is in a vice. My chiroprator always told me I have a magnesium deficiency and I haven’t taken my calcium for a while: the toe is so annoying. I have FM but the worst of it is the burning sensation in the left thigh, especially when in bed. Thanks for the info I’ll get back on my tablets

April 3, 2013 at 5:52 pm
(175) Gloria H says:

Hi June:

Please be careful with the amount of magnesium you do take. It and calcium can really do a number on you if your body is producing enough. I found out that I cannot take calcium at all because my parathyroid is producing so much. The magnesium works with calcium and it will cause dehydration and you are not aware of it. I know you trust your chiropractor (as do I, mine) but you should have some blood work done to actually see where you stand.

Don’t mean to butt-in but it is one of my personal problems and I know what it can do. Good luck.

Fondly,
Gloria H

April 11, 2013 at 7:16 am
(176) Emilia says:

Thank you so much for this article – it answers my doubts and questions about my foot. I have ehlers-danlos syndrome, type III. I wasn’t diagnosed with fibromyalgia, but be honest my foot are killing me – burning, swollen, i cant stand, even in the morning leaving my bed i feel like after whole night working on foot. yeah, flip flop shoes hurt, hard insoles hurt, thighs, socks, actually everything hurts. Now i know how to seek more information and how i can help to myself. Thank you again!!

April 11, 2013 at 10:49 am
(177) Cheryl Beachem Yavorsky says:

I have Fibro with pain all over and yes my feet hurt terribly…it happens even when I am sedentary but is worse when on my feet..when I get up in the morning feet hurt as well as every thing else.
I have to wear shoes all the time and I also have degenerative changes in my feet as well as Plantar Fastitis..
I have had custom orthotics made (paid out of pocket since I am not diabetic) and will be going back for wide width shoes from my doctors office this month and hope I can go outside to walk even if only for 5-10 minutes.
I use Bengay Cold Therapy for the pain in my feet and also for the back of my neck.

April 19, 2013 at 6:37 am
(178) Gary says:

In 1995 after 3 years of unexplained aches and pains I was diagnosed with Fibromyalgia, mysteriously these aches and pains disappeared until I had a bout of Flu in 1999, and they reared their ugly head again this time fortunately within a matter of months the symptoms settled down. I then went 13 years with no more problems, this is where it gets weird march 2012 i suffered a from persistant sore throat,then tonsilitis and then a bout of conjuctivitus all following each other over a period of about 6 weeks. After numerous weeks of antibiotics and eye drops all was well again. then in july of last year while at work I bent down to pick up a crate from the foor and the muscles in my back stiffened up to the point where i could hardly twist from side to side, within 2 days of this all the aches and pains I had been free of for 13 years were back again. Then one night as I was laid in bed I felt a sharp stabbing pain in the arch of my left foot which over time has worsened. after visiting a rheumatologist in november last year I was shocked to be told that the diagnosis nearly 20 years ago of Fibromyalgia was incorrect. according to the consultant (and I stress according) I was merely a little sensitive to certain viruses, and the pain in my foot which is now in both feet was Plantar fasciitis. Xrays were promised on my feet but didnt materialise. 3 months later i decided to see my GP to see if I could have these xrays done they were along with a ultra sound scan and later referred to a podiatrist who tells me I dont have plantar fasciitis, I have infact early stages of osteoarthrits in my navicular joints. What I find amazing is that the aches, stiffnes and pains i suffer in my feet are due to osteoarthritis but the exact pains that i suffer from in the rest of my body are because “you are a little sensitive to certain viruses”. Do consultants diagnose on the basis of tests carried out or on what means less effort and work for them.

April 19, 2013 at 8:22 pm
(179) Gloria H says:

Gary: Sorry you are having such pain. I have also been told about the plantar, the infections, and osteoarthritis. I was just down right ashamed to complain to any doctor because they acted like I was crazy…even sent to a psychologist for testing. So, trust me, I have been there. I have foot pain, but my pain is over my entire body (it is so much worse when I have a known infection of any kind). My thighs ache like I have run for miles and my back muscles spasm up and I can’t even sit. I walk the floor and cry. So, after seeing several doctors, incl rheumatologists, neurologists and my pcm, I was “tagged” with “Fibromyalgia compounded with Sjogren’s Syndrome.” Because they are both auto-immune diseases, it lowers your resistance to any kind of infection and if you get sick…you have what they call a “Flare”. When I have a flare, I am in bed, sometimes for 3 solid days.

I do have Osteoarthritis and Rheumatoid Arthritis. I have pain in my feet like I am being nailed to the floor, through the top of my foot. My hands sometime feel like I am being nailed to a cross. It is one of the most puzzling, aggrevating and dilipidating diseases I have ever heard of. It is akin to LUPUS and can go into LUPUS. It’s horrible.

The true test for some of these are a tissue test being taken from under the tongue. Other tests are blood tests and urinalyses. But to answer your question, I can’t. They just don’t want to ‘fool’ with those of us who can’t be diagnosed with a deadly disease. I was told that I would learn to cope with it, but believe me, I have managed that yet. I wish you well and hope that someone can help you with your pain. Good luck.

April 20, 2013 at 7:40 pm
(180) sharonking says:

Up until this week, I had had one incident only of right foot pain so excruciating I could not put my foot down anywhere. The only solution was a trip to the emergency room, where after the usual involved exam, I could get no diagnosis. The solution was 1 Percoset and 800 mgs. of Motrin. It did the trick: an hour later (5 hours total), I walked out and went home. This was 4 years ago.

This past week, same symptoms – other foot. I was driving home, and I became so faint due to the pain, I had to pull in to a supermarket around the corner of my house. I felt that if I used the bathroom and just sat down for a moment, I could drive home. They would not allow this; called 911 even though I asked them not to; and same procedure as 4 years ago: ER. Ex-rays again, blood tests, everything they could possibly charge for; then same solution: Percoset and Motrin. 1/2 hour later, ready to walk out.

My message: I feel that I need to take charge of this by having the proper solution WITH ME. If it happens again – forewarned is forarmed.

May 6, 2013 at 3:28 pm
(181) melissa chaya says:

Most of my fibro pain is in my legs and feet. the only thing that really helps is lyrica.

May 26, 2013 at 9:34 pm
(182) Gail says:

My foot pain is always the worse when I get off my feet. I have tried Neurontin helped the first two weeks and that was it. helps my sister a lot. I have taken Requip I also have restless legs syndrome doesn’t help my feet. Any suggestions appreciated.

May 26, 2013 at 11:46 pm
(183) Gloria H says:

Hi Gail:

My Fibromyalgia is not just in my feet. It causes severe pain all over my body. And when I go into a ‘flare’ it can really be bad. But, I also have restless leg syndrome and it is treated separately with Klonopin 1 mg tablet 2 x day…or 2 an hour before bedtime. Then I take a sleeping pill (Ambien) and between the two I am able to relax enough that I get to sleep. I have decided that between the FM, Sjogren’s Syndrome, Restless Legs, and Myofacial Pain Syndrome, I am not going to have very many days w/o pain…I take Lyrica, Cymbalta, and Vicodin (as needed), but I can cope. That’s all I ask for now. The pain is constant.

I wish you well and hope that you can get some help with your pain.

But, you asked for suggestions and I thought I’d offer you what I have to do.

Fondly,
Gloria

June 23, 2013 at 1:02 pm
(184) Vanessa Fasanella says:

Thank you for this great article! I was diagnosed with Chronic Fatigue Syndrome 20 years ago, and it seems to be flaring up now. I just started having this burning foot problem, and in addition to plantar fasciitis in the past 8 months, it is awful! I now have special insoles and shoes from The Walking Company, and a special foot stretcher from ProStretch by Medi-Dyne, and they help a lot. But nothing helps when the burning painful soles start…except removing my shoes and sitting with my feet up. I am going to try all of these suggestions above, and get a pair of terry sandals for the summer.

June 23, 2013 at 3:35 pm
(185) Gloria H says:

Hi Vanessa. Sorry you are having problems right now. Seems that with every weather (air pressure) change I tend to have a ‘flare’. It’s something you just can’t get used to. Chronic Fatigue Syndrome is not something anyone can enjoy. Good luck trying the ideas given and and I sincerely hope you find some relief. We’re all in this together…so if you have any ideas, please pass them on to us. God Bless.

July 1, 2013 at 12:55 pm
(186) Juliana saftchick says:

I tought I was just working too much and that was the cause of my pain.I decided to go to the doctor and like many other was a little nervous to talk about my overall physical pain…I didn’t want to sound crazy…but the pain is overwhelmed and I was told I have fibromalgya…I left my job and only wanted to rest…but when I rest the pain mostly in my feet worsens…it’s hard for anyone to understand unless they are going thru the same thing…if you see me you will never know…I m a young pretty girl…full of life when not in pain…

August 2, 2013 at 5:36 pm
(187) Tina says:

Hi everyone
I have been having crushing pain in my right foot
For over a year now. Cant seem to get my gp to
Help in any way can anyone tell me how to get
Help . This pain makes sleeping very hard and I finds
Wearing shoes makes it worse it comes on without worming and it dose not seem to make any diffaces whether I am resting foot or working please help I feel
Like I am banging my head agaist a brick wall with my
Gp as he dose not seem to find any thing wrong with my foot

August 11, 2013 at 1:43 am
(188) Deborah says:

YES!,

I do have the same pain daily on the soles of my feet. I just cannot take it sometimes.

My arms also have that same feeling.

The tops of my feet seem ok, but from my ankle up the outsides of my shin really ache. I do ankle pumps but it doesn’t seem to help and sometimes when pumping it will cause severe charlie horse or spasms. Very painful!!

The pain seems to start at my feet and then like a wave it continues up my body and back down my body. When I go to bed of course this is when I feel pain the most. This happens when I try to rest my body and mind.

I have a great PCP, Rhuem. thank the Lord.

My advise find doctors that understand Fibro, and what you are feeling. Not satified with a doctor move on right away and seek help elsewhere.

Deborah

August 13, 2013 at 3:28 am
(189) Myra says:

I suffer this sort of foot pain and leg pain together and its worse at night .I have chronic lower back pain all of the time and am a Fibromyalgia sufferer.

September 4, 2013 at 12:00 am
(190) Sharon Holden says:

HI I was diagnosed 3 years ago but never given any advice on treatments or ways to relieve the symptoms. I have had rheumatoid arthritis for the past 11 yrs so thats where the treatment was concentrated on. I never until this year experienced foot pain like this and never imagined it would affect my life as it is doing, I have changed my job twice and I am struggling in my new one. The burning is unbearable at times but I haven’t found anything that helps to relieve it so any suggestions would be helpful? I too struggle with footwear, trainers are easier on the underfoot sometimes but hurt the top of the foot and mine are extra cushioned soles. Socks are too restricting, sandals hurt and make my feet swell in between the straps. I haven’t wore heels for years. If only people knew the sacrifice us sufferers make just to mop the floor, make the tea or walk the dog, It is hell!

September 4, 2013 at 4:21 am
(191) Linda says:

Well, all I can say is that I’m not CRAZY, because up until now, I thought was.. I was diagnosed with fibromyalgia 2 1/2 weeks ago and as many of you have stated, it is very painful. I started experiencing pain in my right foot 3 weeks ago then I was diagnosed with FM. Since then both of my feet have been very painful. I was pushed down at work which caused me back pain upper and lower back, then neck and shoulder pain. Lastly feet pain. I need to discuss with my GM Doctor about seeing a neurologist about my feet pain. I’m so happy I found this blog. Good luck to you all.

Linda

September 4, 2013 at 7:52 pm
(192) Gloria H says:

Hello Everyone. It’s been a while since I have written anything on the site, but it sounds like everything is normal for those of us with FM. Also happy to hear that some of you have found the site, and are able to share your pain/problems with the rest of us. I’ve had this wonderful disease since 1983, and it has progressed to many days shared with my sheets and bed. The Chronic Fatigue Pain Syndrome that usually comes along with this disease is also devastating. Just make sure you have a GOOD Rheumatologist and a Neurologist that has an understanding of the nerves. The nerves are a really interesting element of our body. For instance, I also have Sjogrens (show-grins) Syndrome and my body is ‘drying’ out.

The pain in our feet is only one of the symptoms. There are 9 points on your body that a Rheumatologist can ‘press’ and it will bring you to tears. Please, be sure you are seen by a reputable Rheumatologist and he can at least offer meds that can extinguish some of the burning pain in our feet. He may advise you to see a Neurologist. It’s not unusual to feel like you are alone, or that you really want to be alone. I have lost most of my friends over the years, because I am unable to do the things that I used to do. I can’t play my guitar because the muscles/nerves will spasm when I try to tighten my hand around the neck. I’ve given up everything but my faith and family. It helps to have them understand what’s going on. MAKE them read your material and visit the library and study what is going on with you. It’s the only way that some will understand. Others will Never understand and you may feel like you’re crazy…You are not. Your body is yours and you have the right to refuse to do anything that you don’t feel like doing.

September 23, 2013 at 8:54 am
(193) Foot Pain Symptoms says:

The best way to deal with all these situations is consult the best physician nearby you and tell the exact problem you have and each and everything like from how long it is happening, at which time the pain is worst and all the problems you are facing. Then listen to your physician what he/she has to say and ask about all the possible treatment options and then go for the option you feel you are more comfortable with.

September 23, 2013 at 11:54 am
(194) Bette says:

Been awhile since I have posted also. I have discovered that what happens to me is that when I, let’s say, hit my foot, the pain on the spot may hurt for over a month even tho it wasn’t severe.. It is like the nerves keep radiating the pain long after they would on a “normal” person. Also, if I wear a shoe that hits certain spots on my feet, they will ache for weeks afterwards. I have taken to wearing loose socks at home (I wear white men’s socks) instead of even slippers. Once I sprayed painted two cans of paint, and my index finger swelled up and hurt for weeks. Once a long time ago, I went bowling and was talked into bowling three games. Needless to say I was in so much pain that the first three days I could not even walk. I am most interested in what caused me to have FM. I read that some think it occurs after a severe episode of the flu and also, after having surgery from the anesthesia, which I had both.
In trying to stay positive, other than the FM, I am relatively healthy and am thankful for that.
God bless

October 18, 2013 at 8:08 pm
(195) honda says:

Wow, I had never heard of foot pain being associated with ME/CFS or Fibro. I have CFS, sciatica as well as a heel spur on one foot. Some of the posts I’ve read here say those could be related.

I have been wearing orthotics since getting a heel spur 3 yrs. ago but find I have other foot problems as well. I always wear men’s sneakers for their wider widths that can’t be found in women’s wide wear . I only wear them when out and depending on how long I wear them, usually 2-5 hrs, the bottom of my feet either feel like I’m walking on gravel or walking on glass when I take them off. Like Dave’s post (#10), at times it also feels like someone beat the bottoms of my feet with a cane. My feet feel as though there’s no cushioning left on the bottoms while I walk. When barefoot, I can only walk on carpeted areas.

I use cushioned slippers inside but because of bunions and problems with my baby toes. I tend to get sores in those areas and have to go barefoot at times no matter how much it hurts the bottom of my feet because it’s better than having my sores get bad enough to bleed.

Add to that my increasing balance problems (CFS related), walking any distance makes me wonder if others think I’m a staggering drunk!

October 21, 2013 at 11:17 pm
(196) Stephen O'Curran says:

OSIYO’,
Similar pains concentrated no longer in my feet from diabetes 2 and chore-ts feet but has settled in the left arm upper bicep muscle.
My exercises limited due to the terrible symptoms of burning, needles and red biting ants on top of my toes and under, keeps spreading !
I take also GABAPENTIN 600mg. X 3 a day. This added to other vitamins and creams & oils. I’ve desperately bought anything that was suggested and badly in pain not found the help like miracle I want.
I’m searching and will experiment with homemade remedy’s from passed down Cherokee herb healing tips. I wish good luck to all fellow persons in torment and may we find and share help to each other !
WA’DO, Steve Hushlizard O’Curran

October 22, 2013 at 12:23 am
(197) Gloria H says:

Steve: Some of your symptoms sound like those of neuropathy which affects many diabetics. My mother is also suffering from these pains and the stinging that you described. She has been on a blood thinner for many years and cannot take a lot of meds, even herbs/vits. The only thing that brings any relief to her is NATURAL LAVENDER OIL. I can rub her feet and legs with it and for a while she will be w/o pain. Pain medication (Vicadin, etc) no longer even touches her pain.

I have FMS and have suffered with it since 1983 and it is over my entire body. There are many days that I have to stay in bed. But, I keep on trying.

God bless you and please continue to try the things you think will help.

I don’t know the language, but we are also of NA heritage (Cherokee I know and we are still searching).

Fondly,
Gloria H

October 23, 2013 at 11:55 pm
(198) Donna says:

I was diagnosed with fibromyalgia about 8 years ago, after five years of being dismissed by every doctor I went too. The foot pain at times can be unbearable. The only shoe I have found invaluable is a croc type shoe called Nothing-Z. They are similar to Crocs but for me are the ONLY shoe that does not cause me pain. They do not have many styles. I have lost most of my friends and some of my family from not being able to do things. Fibro is invisible so people don’t always have a lot of empathy towards those who suffer from this debilitating and complex thing called fibromyalgia. I have a wedding coming up I would have loved to attend, but cannot find shoes that I can even tolerate for a few hours, sometimes I can’t even wear shoes for 5 minutes.

I am currently trying the S.H.I.N.E. protocol as outlined by Dr. Titielbaum. Only been about two weeks. It seems to help the fatigue some but the pain has not diminished.

Love and hugs to all here and understand!

Donna

October 24, 2013 at 12:27 am
(199) Gloria H says:

God bless you Donna. We do know what this horrible disease has done to each of us. As you say, I also have no friends and only a few family members who understand, because I “look so good”. I wear a lot of the new Birkenstocks but I’ve heard a lot of people say they cannot wear it, so it’s also an individualized disease. Keep us posted on how you are doing and if you come up with something “wonderful”, let us know.

Fondly,
Gloria H

October 28, 2013 at 12:27 am
(200) Cindy E says:

I am having the burning in my left foot and it seems to be worse at night and when I put my left foot on the floor it seems to get worse. I ran across this video on you tube and I am going to try this guys suggestions.
It cost nothing but time and a tennis and/or baseball according to which one works best for you and your situation. Below is where you can find video. If anyone has any other ideas please share and I will let you know how this works out for me. It will be a little while before I can dedicate the time for it due to recent surgery.
Go here or to you tube.
http://www.do-it-yourself-joint-pain-relief.com/burning-feet-sensation-relief.html

Youtube
Burning Feet Sensation Relief – Video 1 of 4

November 16, 2013 at 2:52 am
(201) SAAJIDAH MOHAMED says:

my feet usually pain anytime.mostly at night though.could it be restless?a massage usually only helps while im having it or i put my feet under my husband’s legs and say he must put more pressure on it.weight usually helps to relieve it but also short-term.i sometimes want to scream to relieve the pain.i do footrolls,i stretch my feet.is it maybe my age?im soon to be 48yrs.i tried numerous kinds of gels,oils, like arnica oil.i gave up already.i sometimes take some mild
sedative or sleeping tablet just to fall asleep because it disturb my sleep too.

January 4, 2014 at 9:14 am
(202) Erwin Purugganan says:

Hi there!<br />Others have voiced my confusion above, but it’s awesome sometimes to add into the melee. I have been signed up since the middle of January, but have three letters. They’re good letters! But similarly, I’d like to know if this is just the process with the dust settling or if this is to be expected?<br />Thanks!

January 4, 2014 at 3:33 pm
(203) Gloria H says:

Erwin: If the dust hasn’t settled for me since 1986, it ain’t gonna settle. I was diagnosed then and it’s still raging. Summer is usually my worst and most painful time of year while others seem to hate winter. This year WINTER really sucks! My pain has been a lot worse. Oh well, I’m also getting older, yuk! So hope you are having a good start to your New Year and will find it a much better time.

I think most people just wait and like to read and compare their symptoms…even though they do not change. It is a ‘process’ but of what, I’m not sure.

Happy New Year Everyone. God bless you all and remember it ain’t over ’til the fat lady sings. (I don’t remember singing), so keep trying new things and if something works for you. Do it.

Love, Peace, and Light
Gloria H

January 4, 2014 at 10:13 pm
(204) Kiwi- says:

If anyone has a left-over angina spray – try that on the soles of your burning feet. Many of us probably got one while our rib and chest pain was worrying the doctors. My doctor said to try it. Also I get help using a gel-pack, keeping it in the freezer. Wrap it in a hand towel before putting your feet on it. It is summer where I live and I think it is much worse when we have higher temperatures.

Found great exercises under ‘Burning feet sensation relief” but too many possibilities for a fibro body to try! Trying one or two a day may be an idea – every stretch hurt painfully and the next few days would be really bad seeing EVERY muscle is tight and sore . They are very well presented and demonstrated and free with pain relief for most parts of body.

January 7, 2014 at 11:44 pm
(205) carol j says:

I have had fibro for over 8 years n my feet hurt in the morning like 3 to 4 times a week. I was also diagnosed with benign hypermobility syndrome and severe hyproparanation(I think that’s how its spelled) which both cuz more pain but the hypro is a condition that causes foot pain because ur feet are changing n starting to get flat. I can’t walk barefooted at all and I always have to sleep without socks on. I can’t wear flat shoes I always have 2 wear shoes with a wedge or heel. What I do at night before I go to bed is a wipe my feet down with baby wipes which are cool and they stop the burning then I use foot cream from avon its called Foot Works Lavender Overnight Cream which also keeps my feet moisturized and feeling cool. I really noticed how much the cream helps after I ran out for a couple days. My foot pain has calmed down quite a bit in the evening so I sleep better and when I use the cream they don’t hurt as much in the morning as they used to. I’ve tried lidocaine 5 %ointment in the morning and that eases the pain faster then anything. I wish everyone better days and thank you adrienne for all the information yoy provide us. It really helpsand thanks to everyone for the comments. It nice when we can learn from one another

January 13, 2014 at 6:52 am
(206) Tracey says:

Hi I have been on the site reading about foot pain, I have been suffering from this for years now I am 52 now and still in pain my feet is burning and in pain 24/7 and nothing helps it is worse at night time when I am going to bed they are on fire and the pain on the top and bottum is terible I get it some times in the parm of my hand and wrisks as well I go through deep heat every day day and night the worst is I battle to walk because of the pain I have now tryed something when I go to bed or sit i play with a patoto ander my feet in bed i put the patoto between my feet and it help for the first time in years I slep through.In the day I put a small patato in my pocket and it seems to help.

January 20, 2014 at 10:25 am
(207) Professor/Dr Brian A Rothbart says:

If you’ve been futilely searching for a resolution to your ever worsening chronic pain and have been disappointed time and time again, the reason is because there has been no therapy – traditional or alternative – that is able to permanently eliminate chronic muscle and joint pain.

That is – until now.

Professor/Dr. Brian A. Rothbart has spent over 40 years in research and clinical practice and has discovered two inherited, abnormal foot structures – the Rothbarts Foot and the Preclinical Clubfoot Deformity – that predispose over 80% of the world population to chronic muscle and joint pain. If you live with debilitating or disabling chronic pain, one of these common foot structures could be the source of your problem.
In this book you will learn:

Exactly how your feet may have created chronic pain throughout your entire body

How to tell if you may have a Rothbarts Foot or PreClinical Clubfoot Deformity

How Professor/Dr. Rothbart’s ground breaking therapy – Rothbart Proprioceptive Therapy – will effectively treat your foot structure and PERMANENTLY greatly reduce or completely eliminate your chronic muscle and joint pain.

For a free chapter from my book – The Foot’s Connection to Chronic Pain, go to: http://curingchronicpain.com/the-foots-connection-to-chronic-pain

Enjoy and I hope you find the answers to your questions on how to resolve your chronic pain.

Professor Rothbart

January 22, 2014 at 1:57 pm
(208) Diana says:

Anyone know why my feet feels like someone took a sledge hammer and beat the bottoms of my feet.

January 22, 2014 at 2:49 pm
(209) Gloria H says:

Diane: If you find a reason…please let all of us know! Mine and my mother’s have been feeling like this for many years now. We have tried EVERYTHING. Taken a lot of meds, tried many, many products, and other things that have not helped–in the least.

It is horrible and there are days I can’t get out of bed for any length of time. They call it Fibromyalgia, but then any doctor will tell you that, “Fibromyalgia” is a ‘catch-all’ name for when they don’t know WHY???

March 26, 2014 at 10:38 pm
(210) Donna says:

Hi all,

My feet are the worse! I have had a flare-up now for the past two weeks and the pain is unbearable, cannot walk, tolerate any shoes. I have purchased 3 different kind of inserts, lotions, gels specific to this problem, take anti-inflammatories and nothing touches the pain. It endures. I find when I have that kind of flare-up and severe pain, the fatigue is worse. Maybe its because your body is trying to deal with the pain. I have tried everything I could have. Some things help temporary but then it comes back. Any help would be appreciated. I am currently taking Vitamin D, Magnesium, Calcium, MSM, and medications from physicians.

I pray the find the core of the problem and can treat it one day. It has ruined the lives of many people. It takes your friends, some of your family, your independence, your job, and sometimes your happiness because if is depressing to live with chronic pain.

Through it all I smile, because i know I am blessed. I have a beautiful family whom I love dearly, our health, but the pain saddens me because it keeps me from doing all the things I love to do the most.

Love to all, Donna

April 23, 2014 at 7:49 pm
(211) Bette says:

Happy to report some foot exercises have helped me tremendoulsy. What I do is stand on the balls of my feet as I hold onto something..kind of like when I was a kid..and would pretend I was a ballerina. At first I could not hold the stand that long but it has gotten better. I even try to walk that way a bit. Even when I am sitting I can do it somewhat. All I can think of is that am stretching my tendons. ALWAYS HOLD ONTO something when u try..like a kitchen counter or chest of drawers. Miss seeing some of the people’s posts. God bless.

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