NEWSBRIEF: With Canada, Australia, Britain and New Zealand already barring people with chronic fatigue syndrome (CFS or ME/CFS) from giving blood, an organization is now calling for a similar ban all across Europe.
Esme, the European Society for ME, says it's urging the ban for two reasons: the first, like the other countries with bans, is to protect the blood recipients from XMRV, the retrovirus that may be linked to ME/CFS and prostate cancer; the second is that donating blood can increase symptoms in people with ME/CFS.
XMRV research is in its earliest stages and we don't yet know whether it plays a role in human disease, but some agencies overseeing blood supply believe it's better to be safe than sorry.
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Hi:
Just wanted to say hello to all of you out there. I have joined this group because my partner has CFS. We have been together for the last 4 years and I can almost pinpoint the time when it started getting worse – we thought that he had a bad case of flu. He also suffers from prostate cancer which is under control and being treated so we are not concerned with that issue but we are very concerned with quality of life issues . It hurts me to see him suffer so and just wanted some good advice from you “old timers” out there-anything at all will be helpful-I try to do my best supporting him but I am sure that you would have some good advice and point me in the right direction. Greatly appreciated and good health to all of us. Anita
I’ve had CFS or CFIDS for almost 30 years now (I’m 44). Every doctor I ever saw told me that it a psychological or depression. Whay are they now not allowing blood transfusions from us??!! Do you think maybe WE were right all along and these quacks have no clue?
I have absolutely no faith in our dr.s and health system anymore. They have been corrupted and brain washed by the pharmaceutical companies that don’t want to find a cure for CFIDS.
Watch this link and a Nobel Prize nominated Dr. will tell you the truth about this.
http://www.youtube.com/watch?v=7W4tu5qgaWA