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Adrienne Dellwo

Health-Care Reform for Fibromyalgia & Chronic Fatigue Syndrome

By , About.com GuideMarch 26, 2010

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Is your head spinning when it comes to the new health-care reform legislation?  I know mine is!  It's all I can manage to stay on top of fibromyalgia and chronic fatigue syndrome issues, so I'm at a complete loss on this one.

Fortunately, I have some brilliant colleagues here at About.com who are on top of health-care reform.  Here are a couple of places where you can learn what it all means:

Let's hope the changes will help the millions of people whose health is compromised by their ability to pay for the treatments they need.

What do you think health-care reform will mean for you?  Leave your comments below!  (Let's keep the discussion to health-related matters, not politics, OK?)

Learn more or join the conversation!

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Comments
March 26, 2010 at 10:01 am
(1) AW says:

The absolute number-one most important thing that HCR does for those of us with chronic illness: stops the practice of preexisting condition exclusions. Now, none of us can be denied coverage for sickness because we dare to be sick.

There are goods and bads in this bill, from the funding directed to innovative researchers to the way that people with insurance that actually covers things are punished for it (”Cadillac plan tax”) — it’s a mixed bag of “OMG, I can’t believe how amazing this is!” and “What were you thinking, Congress??”

But the most relevant to people with FM, CFS and other chronic illnesses: we are no longer excluded from the market altogether.

November 9, 2011 at 12:03 pm
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March 26, 2010 at 10:42 am
(4) RoxyGurl says:

I am a follower of yours on Twitter. I’d like to say a few things regarding this. On the surface, the healthcare reform bill looks like a Godsend. I assure you that it is not though! I too have Fibromyalgia & am currently uninsured since I was divorced in October. I am not one of those who looks to the government for a handout though, because the government typically screws up everything it touches. I also work in insurance & know a lot about business, so I have looked deeper into this whole issue.

While I agree healthcare should be reformed, I don’t think this is the way it needs to be done. This is not healthcare reform, but is a tax wrapped up in a pretty little package. Everyone will be FORCED to buy insurance or pay fines. Pre-ex will be covered…. but under what conditions? I highly doubt the government will want to pay for my weekly bladder treatments & acupuncture. Think about it. All the people with pre-ex conditions will bankrupt the system. They are cutting Medicare costs when baby boomers are beginning to age into the system.

They are now sticking their noses into the private insurance industry. If they can do this, what else will they then try to regulate? Many jobs will be lost, and many already have because of this bill. Catepillar had to lay off thousands of people on Monday b/c this new bill was going to cost them too much. This bill will have a HUGE economical impact that people aren’t even paying attention to.

Healthcare needs to be reformed, but why don’t we start with the insanely high costs of medical malpractice insurance for one? I don’t want the government having access to my medical information. I don’t want my care determined by anyone except myself & my doctor. I’m off my soapbox for now!

March 26, 2010 at 1:51 pm
(5) Chris says:

As someone previously denied health insurance due to my Fibromyalgia diagnosis, I couldn’t be happier about the health care reform bill. It’s been hard not to take it personally when people speak out against the bill.

Don’t get me wrong, I’m happy there are people with great health care that don’t worry daily about what will happen to their health insurance if they lose their job but what about the rest of us? It’s sad that as a nation we’re so willing to turn a blind eye to so much suffering by our fellow Americans.

March 26, 2010 at 2:13 pm
(6) gwen hanson says:

I am tired of the “if they(the goverment) can do this, what else r they gonna but their noses in” and that” companys have had to due lay offs cause this is GONNA cost them” GONNA? there is so much scare tactics going on, I hope n pray this works out well for the poorer people whom havent had ins. and have been going to the er for ear infections, and athletes foot.. I had amazing health care thru my union for 20 yrs, then became disabled from chronic pain n I got our states basic health plan with was a godsend at $34. a mo. and $10. co pays. It was’nt as good of coverage, no glasses or dental, I had to go on methadone instead of my morphine whitch was my biggest concern.. we needed to do something I hope this addresses the er’s being used as doctors offices, that the poor can b helped b 4 they have to go to the er thatis. I know canadians whom come here for doctors because their system is / has such long wait n unless u have $$$ its basically like or free clinics here (my friends were born here in wash. and became canadians thru marriage etc) all i can do is pray it works as i said I’m disabled n on medicaid or care whichever itis so I’ll b at whomevers mercy, if it’s at all like wash. basic health plan for the very poor, I had no income / very little while waiting for my disability hearing for two yrs, i had all my needs met, doc, hosp, and meds.. glad to hear that they will b paying the doctors more in my case because what my doctor got to care for me the last two yrs was emberrasing to me, actually made me hold back from going in a few times for cortizone injections etc, he wasnt paid for them only the visit! actually he wasnt paid for several things I needed done , massaage I could go on, the piont is more doctors can now take more pationts with medicade due to the pay increase

March 26, 2010 at 4:57 pm
(7) caroline says:

. . . we need massages, help with dental appliances for sleep apnea (which many of us have) acupuncture — all suggested as very possible help for fibro . . . I doubt that I will live long enough to see this happen . . . . at my present age it’s possible, it’s quite possible I won’t live as long as I might have before we arrived at this wonderous, massive, we’re going to take care of all of you —- if all govenment agencies don’t go broke first —- someone has to pay for this wonderous help . . ..

March 26, 2010 at 7:04 pm
(8) Marcella says:

I am Medicare age and I am happy this Bill passed. I see it as a gateway for hopefully, a Public Option and eventually for Single Payer. Good healthcare should be everyones right to enjoy without going bankrupt. As a country growing in size and wealth we cannot expect to not pay taxes. It is only right that we pay for the health and welfare of our citizens across the board. A healthy country is a prosperous and hopeful country. I am tired of insurance companies and pharmaceutical companies holding our lives captive. I would rather a government agency made sure we were covered medically than a For an ‘all the profit we can squeeze out of Americans insurance company.’ At least we can have some say with government. Try to ask the insurance company or any large Corporation for help. Most of them left the country leaving a critical jobless situation here. In fact they are now in countries where they do not have to pay medical care for their employees because those countries have national health programs for its citizens. I’m hoping that people in this country will eventually see that we need what other countries already have, and what they have had for years, good solid healthcare for all.

March 26, 2010 at 7:59 pm
(9) Nitalynn says:

I was for it. I know it is not perfect but no plan is going to be especially before it gets tweaked after they find out what the problems will be.
I have lived under the British system for a while and it is not nearly as bad as certain people and political entities want to make it out to be.
Also I checked on Caterpilar and found nothing related to health care in any informatom about layoffs.

March 27, 2010 at 4:55 am
(10) Robin says:

I don’t believe for one second that this “reform” is going to do anything for anyone with a chronic or pre-exsisting condition. What this bill does is make it possible for you to BUY substandard medical insurance while violating your privacy and giving access to your financial information! The government HAS federal healthcare. It is Medicare and Medicaid. IF they were truly interested in Healthcare Reform and providing Good Quality Healthcare for those who cannot afford it or cannot get it because of their pre-exsisting or chronic conditions that is where it would have been logical to start. The infrastructure is already in place and all it would have taken is a good overhaul that would have done good. Instead we have a “package” that we will have to generate income for it by way of higher taxes and we will have to Pay out of pocket for it anyway. In addition, these higher taxes start almost immediately and the benefits for us who have a condition like Fibromyalgia will not benefit until 2014! AND financial analysts anticipate that it will be out of money before the end of 2011! Something is wrong here. It does nothing to help us really. Just another way for a politican to say “We tried to help” and take control of yet another industry in our country.

March 28, 2010 at 8:37 am
(11) Thankful Mom says:

It is too late for the HealthCare Reform Bill to help me when I needed it the most – when the ’80’s never produced trickle down anything but higher prices, stagnant wages, and less benefits. The doctor I worked for stopped covering employees and suggested we buy unaffordable insurance from one of his golfing buddies. By the time my child reached college, I was working 3 jobs – 1 FT & 2 PT – with no insurance. I was not a lazy do-nothing wanting to live off the gov. like so many claim. I and many other single Moms worked hard. The stress of not having coverage and trying to stay well was high. Now realize that I worked with ME/CFS for years! Am so thankful for the Moms and kids who will benefit from this bill which, of course, will be tweaked, but it is a great start!

April 1, 2010 at 3:42 pm
(12) lynn says:

Let me say this…..the government got involved in this country’s biggest corporation splits ever in the early 1980’s. It was the biggest mess that they ever could have gotten into and the judge who sat over the entire thing has stated so many times since then that they, meaning the govenment, should NEVER have gotten involved. What am I talking about? Well, I am talking about the split up of Ma Bell and all her little companies. I worked for AT&T for years before this, during this and after divestiture and let me tell you…the government should NEVER be involved in anything like this or anything new like this plan. I agree with the person who stated about the meidcare and medicaid plans that they should have really been left alone and something could have been started from there. But I think this country is heading toward soicalism and facism and hopefully not communism but we all better pray it stops soon. This is America, we are a capitalist country and for some reason we are allowing the government to change that and I am just sitting back and waiting for people to wake up because it seems like too many are asleep. We all are allowed to have our opinions which is another advantage of living in this country. So be grateful alone for this. I have had no insurance coverage for over 2 years now since being laid off and have had to go through the state/county for help. I am not happy about this but it is what I have and it is working. My father told me a long time ago, if it isn’t broken why are you trying to fix it? This new plan is going to make it so every person with have to pay for insurance whether they want it or not and just wait and see how much your taxes are going to go up. And I am also interested in seeing just how wonderful this plan is going to be for me. I have many doubts and like has been said, it is going to take many years before many of us can take advantage of it anyway. By then there probably won’t be any money left there either. We will see. And as another stated earlier in her comments, I will now get off my soap box and would appraciate no nasty or smart comments back about anything I have said as we are all just saying what we think. Thanks

April 21, 2011 at 1:56 am
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April 25, 2011 at 7:49 pm
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May 19, 2011 at 12:44 pm
(15) 885363 says:

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February 21, 2012 at 11:22 am
(16) Frank Meyer says:

My wife has been diagnosed with chronic lyme desease, she is in constant pain. Medicare will not cover this. From August 2010 to 2011 we spent $22,000 out of pocket. The monetary outlay continues. Our medical system has hung her out to die. Obviously most of us cannot continue to financially survive. We are aware of several young people who have committed suicide due to pain and
the helpless feeling because of this, one of fastest spreading deseases. If you are interested please read the book Lab 257.

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