XMRV Triggers Urgency, Flurry of Interest in Chronic Fatigue Syndrome
The XMRV Research Series
The discovery of a possible retroviral connection to chronic fatigue syndrome (CFS or ME/CFS) isn't just stirring up the ME/CFS community -- it's getting the attention of the entire scientific community.
That's quite a feat, considering how ME/CFS research has languished due to lack of funding and interest. Now, however, XMRV is changing things.
- 75 XMRV researchers are getting together in Ohio this week to share information.
- Pharmaceutical companies are asking for samples of XMRV so they can see if their existing anti-retrovirals (HIV drugs) can be adapted to treat ME/CFS.
- The Whittemore-Peterson Institute, which conducted the XMRV research, is anticipating trials of a vaccine sometime next year.
While all XMRV research is in its earliest stages, not only does it look like it could be tied to aggressive prostate cancer and ME/CFS, studies suggest it could be infecting about 4% of the public and that it's transmitted through bodily fluids. That adds a possible public health concern, and that ball is apparently already rolling.
While this is far from the first virus to be suspected as a major cause of ME/CFS, it's certainly generating a lot more scientific interest than earlier discoveries have. That interest could help speed up the processes that have been dragging on for decades, toward getting better diagnostics, better treatments, and possibly even a vaccine to prevent future cases.
There's been a lot about XMRV in the media, and here are a couple of excellent, informative articles I've come across:
- Medical breakthrough puts Reno in spotlight
- Top scientists to meet at Cleveland Clinic on trail of XMRV
Also See: The XMRV Discovery Series index
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Yeah, I bet there will be more interest as people think, “Oh ****! You mean *I* could get it?” It was much easier for them to keep their heads buried in the sand when they thought we were just a much of malingering women.
I do see the importance of and need for a vaccine, but in my opinion, all immediate resources should be put into diagnostic testing and treatments. There are too many millions of people who have been suffering too much for far too long, many of them who’ve had ME/CFS for 20+ years. All those people, all those years being absolutely desperate for help, and very little help has been found.
Transmission is definitely a problem, but as with AIDS, can be managed by educating the public, using protection and not donating blood. A vaccine isn’t as urgent a need as is the alleviation of suffering for millions of individuals. We need our miracle sooner rather than later.
@perpetualspiral
Hopefully it doesn’t have to be either/or!
I for one would love to have a cure or even a treatment, but I can wait a few years for that if it means coming out with a vaccine so that I don’t pass this on to loved ones like my husband. Hopefully it isn’t too late!
And, unlike AIDS/HIV, we don’t even know how it is transmitted yet! The standard HIV precautions might not be enough – though they are definitely a start! I can’t help but wonder if it was a blood transfusion that first gave me CFS. My mom and a brother seem to have it as well, but I don’t know who gave it to who if we do all have it.