Having a diagnostic test for chronic fatigue syndrome (CFS or ME/CFS) could change a lot for people with this disease. (Read about recent major breakthroughs, including a self-test kit.)
Having a diagnostic test should help legitimize ME/CFS in the eyes of the medical community (this won't be immediate -- other tests will need to verify Dr. de Meirleir's work). It should also help millions of people show their family and friends that yes, they really DO have a real medical condition. It may, in time, also help with insurance, disability claims, and other legal issues.
Do you plan to order the test? If not, why? Take the poll, and leave your comments below!
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The test is not very expensive and I think it’s worth a try – anything that can help me feel better I will welcome!
Hi,
I am a patient of Prof. De Meirleir and took the urine test last week which came back positive. It was such a relief to finally have some answers as to what was causing all my problems. Hope it goes well for the ret of you!
I have no interest in taking this test whatsoever.
I have had a diagnosis for years.
The relationship between a test & feeling better is nonsense as far as I’m concerned. I know I’m sick.
The billing code has been provided. forstatistical reasons, I’ve been numbered in the millions ofpeople who’s live have been devastated by me/cfs/or whatever one want’s to name this phenomenon.
And, being one of those millions of Americans without medical insurance or without any kind of access to health care whatsoever, this test may help those richer or those with Medicaid, but it won’t help me.
I say stop moaning and moping a researcher is having a go it might prove to be a red herring but then it could well reshape the whole research process on me/cfs.The test is cheap and secondly sufferers have been crying out for some kind of cfs indicator for years someone comes up with a cheap test and still negative feedback.Many thanks to the researcher and to all sufferers take the test and have some faith
great comments from above,ime with you all the way this could well be the test were waiting for.
While having a test to see if you have CFS or Fibro is great, what good will it do if I have already been diagnosed with the diseases. Also, they have not been able to see if taking certain meds change the results for this test, nor have they been accredited yet.
I would advise people to hold on to their 21 dollars and wait a few more months so that more info can come out on this test. And now knowing that a retrovirus might also cause CFS, does this mean there are several reasons why we get CFS and Fibro. Does it mean that if we are truly stressed and burned out that our bodies break down and pick up several viruses that cause our diseases.
And what happens if you do not get a negative result on this test, yet you have been diagnosed with CFS? Does it mean you don’t have it.
Again, wait, lets get more data on this first before spending money.
They don’t know exactly what causes it otherwise they could put it right yes?
So how on earth can they possibly have a proper diagnostic test?
If it is mito failure they already have a test for that.
There is a list you should go through and sort out if you have either of these things. Free T3 should be in top third of b/test range. Vitamin D optimal. Ferritin optimal. Adrenal saliva test taken and physiolical doses of hc taken if not on the button, Magnesium should be very well supplemented. Salt wasting seen to if applicable by taking sea salt in water daily (or florinef if needed). All these things running well will take you to a much better place. One alone won’t do it.
God Bless