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Adrienne Dellwo

Painful to Touch: Fibromyalgia & Tactile Allodynia

By March 7, 2009

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It's another one of those fibromyalgia symptoms that just doesn't make sense - pain, sometimes severe, from a simple touch. It's almost like having a sunburn all the time.

This kind of pain is called tactile allodynia. "Allodynia" means a painful response to typically non-painful stimulus, and "tactile" means touch. This is what makes your clothes hurt when they touch or brush your skin, what makes a sheet feel like sandpaper, and turns a light touch into searing pain.

While some types of pain (like muscle or joint aches) are very common, tactile allodynia is rare. It's associated mainly with pain conditions including neuropathy, postherpetic neuralgia and migraine along with fibromyalgia. It comes from a malfunction of specialized nerves, called nociceptors, that sense information about things like temperature and painful stimuli right at the skin. For some reason, our nociceptors start telling our brains that just about any sensation is painful. Researchers believe is part of the central sensitization associated with fibromyalgia, chronic fatigue syndrome, and a handful of other conditions.

So what can we do about tactile allodynia? Drugs that work for some people include:

Some people also get relief from topical pain creams (capsaicin, Tiger Balm, Aspercreme, BioFreeze).

In my case, I only have tactile allodynia in a few areas (mainly my waist, chest and feet) and it needs to be set off by something, like scratching an itch or stepping on a power cord. I have to be especially careful about how I dress, because a too-tight band or scratchy fabric can cause intense burning pains that start at the skin and then rip through my whole body. (If this sounds like you, read How to Dress for Less Fibromyalgia Pain.)

Do you have tactile allodynia? Have you found anything that helps? What makes it worse? Share your experience by leaving a comment below!

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Comments
March 7, 2009 at 10:18 pm
(1) Jerrard says:

Warm water therapy, I am very grateful for a jacuzzi tub. Find the temperature that is right and suspend. In line heating for jacuzzi tubs will regulate temperature for extended periods.

March 8, 2009 at 11:30 am
(2) Missy says:

Thanks for this article. Both my mother and I have fibro, and it’s always nice to know that out issues have names :-)

Now I have a name for why it hurts so much to have people touch my feet lightly!

March 8, 2009 at 1:51 pm
(3) Cort says:

Great post – very informative about this strange condition- thanks!

March 9, 2009 at 5:06 am
(4) Ben says:

My waist band bothers me. When sitting at my desk, I use a microwaveable wheat bag as a heating pad. You can order them online at http://www.wheatbags.com.

March 9, 2009 at 11:17 am
(5) Joanna says:

Yes! Wearing a bra or pantyhose with elastic waistbands is so painful that I have had to stop wearing both. I can tolerate a camisole with a non-binding support layer, but that is it. Once I made the change in clothing, it was a great relief.
I have to cut the tags out of all my clothes because the little nylon threads they use to sew them on poke me and trigger an itch that quickly turns into pain and a kind of adrenaline response that makes me nervous and irritable all over. This is especially bad with those tags in shirts or jackets.

No wool, too itchy to bear.

March 9, 2009 at 6:35 pm
(6) Jodith says:

Wow, I consider myself very well educated about FMS, and I never heard of this. It would explain a lot, though. I thought the problems in my feet were caused by my diabetes, and yet, my blood sugar control is near perfect, and the pain comes and goes. I found it’s the worst after wearing my shoes all day, which are a bit tight around the instep. But they don’t bother me when I’ve been home wearing my loose houseshoes all day. Hmmm….might have to go back to wearing lace ups again.

I’m wondering if extreme ticklishness is a sign of this? My husband has always been very ticklish, but since he’s been on Lyrica, that has gone away (along with much of the fibro pain). We’ve started wondering if the ticklishness is actually a pain type of signal. Would certainly explain my ticklishness, which is pretty extreme.

March 13, 2009 at 2:32 pm
(7) Jesse says:

Thanks for giving this a name. I can usually keep the pain at bay with 800mg ibuprofen, especially when I am at my physically challenging job, but some days, not even that helps. It seems much worse for me in the evenings, when I am exhausted from work, or when the weather changes.

March 13, 2009 at 4:11 pm
(8) Sue says:

I’m 63, & have had Fibro since I was 18. I have very sensitive skin that causes actual pain when my arms or back are very lightly touched; water tricking down my back from a shower hurts really bad but a heavier blast doesn’t; I know, sounds crazy. Also, even in hot weather, I can’t stand cold or cool water on my feet or body-it hurts too much. Guess now I finally know why. I’m very sensitive to clothes, too,especially when
there’s any pressure from them at all.
Sue

November 8, 2011 at 5:27 pm
(9) Ashley says:

My pain is veru similar! Loose fitting clothes and light touch sends me almost into tears. But, firm touch and tight grips make the pain go away. My dr. just prescribed me Lyrica, i’ll let you all know how it goes!

March 13, 2009 at 4:58 pm
(10) joni says:

medical hypnotism works very well.

March 13, 2009 at 5:09 pm
(11) Kathy says:

Thanks for the ID on this problem. I thought ‘crazy’ was added to my list of symptoms.

Some days I can wear my sports bra all day & others I might last 10 minutes. I live in stretch pants (sweats, maternity…like yours, light weight ‘jammies’, etc.); with loose tops, short gowns or even long gowns when my legs just won’t get warm.

I love the spa my hubby got me for our anniversary in 2007, but will have to leave it with the house when we sell, or sell it before then. Our new home is gonna have a jetted tub in the master bath for my long, hot soaks… I also love long hot showers.

I worked at a spa (as a massage therapist) before my FMS & OA took me out of service. I loved the tanning beds & heated pool.

Heat of any kind is wonderful.

May you all have more good days & less bad days. God Bless & keep you. Kathy

March 13, 2009 at 6:05 pm
(12) Kathy says:

I forgot to say that in massage school, they taught us that a tickle is the first pain sensation, so I guess it is a pain response.

March 13, 2009 at 11:26 pm
(13) Mary Ann says:

Aqua Therapy, gentle Tai ‘Chi and Gi Gong movements help me. I’m on an herbal maintenance program which is gentle on the system. Narcotics and a myriad of medications for numerous conditions, not the least of which is fibromyalgia, rendered my body and mind toxic. I struggled to come back from that hell. Still struggling.
Grateful for this site. It’s very helpful.

March 14, 2009 at 7:58 am
(14) Berta says:

Has anyone ever read the book, “Too loud, too bright, too fast, too tight”? The book contains some retraining suggestions for tactile disfunction that seem to work. One of which is called Body Rolling. It is uncomfortable at first but gets better. Look for a certified therapist in your area. However, there are not many of them.

March 14, 2009 at 10:31 am
(15) Jean says:

I’m sensitive to certain things in clothes. I have to cut out all tags and as someone mentioned, those plastic threads. I have found that wearing certain things inside out, especially outer garments such as sweatshirts does help. I also wear underwear inside out so the seams don’t hurt as much and I wear terry socks inside out so the smooth side is against my skin. I hate wearing a bra but really do have to except when at home. I’ve made bra liners of smooth cotton quilting to put under the elastic bands of most bras. Much elastic contains latex which is an allergen for many people. Goddess makes a sports bra that has no elastic against the skin.

March 14, 2009 at 1:59 pm
(16) Bev says:

Capsacin is the worse thing to try in my experience. The pain was INTENSE when I tried it. Wearing a Very soft fleece nightgown and nothing else is my coping strategy. Warm bath helps sometimes but not always. As for bras, I refuse to wear regular bras. I get a pull over bralet from “Barely There” available from onehanesplace.com that works better than anything else.

March 14, 2009 at 2:49 pm
(17) Frances M. says:

When I remarried, I had to explain to my new husband that a playful touch on my arms caused severe pain. Also bumping into things, stepping on cords, causes extreme pain. I am glad to finally have a name for this.

March 14, 2009 at 6:46 pm
(18) Diane says:

I read all of the comments before mine and all of you are related to me. Ha Ha.
I am soooo uncomfortable in my own skin and anything that touches it. Tight waistbands, turtle neck shirts, elastic wrist bands, tight socks ( or shoelaces tied too tight ), panty hose, bras……. a tight hug, strong handshake………no wool, nylon threads, shirt tags or berber carpet. Just try and explain all this to someone who DOESN’T have FMS.

March 16, 2009 at 7:59 am
(19) Jenny Dolan says:

Have Ankylosing Spondylitis and always thought that the pain around my waist that is so sensitive to having clothing around it was just part of A.S. Mentioned it to my rheumatologist and found out it isn’t related. So thrilled to find a name for it and to know that there are others out there with similar symptoms. I change my clothes throughout the day. My neighbors are used to seeing me in pjs.

March 17, 2009 at 7:12 am
(20) shoshana says:

i have found MY wonder help. it is emu oil or cream – from australia, and this works for me like magic. when i wake up and cannot move – on it goes- and half an hour later i have forgotten about it. also for all fibro pains however good or badc

October 29, 2011 at 2:54 pm
(21) shosh says:

I too use emu oil and it is a lifesaver. I now manage to go to pilates and yoga for the over 60′s and I use the emu oil before I go and then have a long sleep on returning home and put on more emu oil and then I can carry on with my day.

March 20, 2009 at 3:54 pm
(22) Mary says:

Well good. Now I can SHOW my husband why it hurts to touch me. He sometimes thinks I’m crazy or over exaggerating the facts. Ummmm, no.

March 20, 2009 at 9:20 pm
(23) sandra says:

NO ONE HAS MENTIONED ABOUT YOUR “HAIR AND SCALP”HURTING…VERY PAINFUL…ANYONE ELSE???

February 11, 2011 at 7:19 am
(24) sarah harris says:

I suffer with a sensitive scalp, it feels like my hair hurts. I used to wash my hair and the pain would go but after the last week even washing my hair didn’t help. I find that it comes on when I’m due my period but seems to be getting worse and for longer periods of time. I did go to my GP and he said he had no idea what it is, he sent me for some blood tests but they came back normal. So I’m left suffering with no clue what to do. This site is great, nice to know I’m not the only one!

October 4, 2011 at 1:17 pm
(25) Patty says:

In the last week I have developed this. My hair hurts, my upper arms, back and chest. My family luaghs at me. I’m glad I found this sight, now I would like to know wht I can do besides take Motrin

March 24, 2009 at 3:13 pm
(26) Jenny D says:

I get sensitve scalp along with migraines. When I am prone to migraines, my glasses or anything touching my temples will cause one. It seems I go through cycles when I’m more prone. My scalp will feel like my hair is standing up.

March 24, 2009 at 8:41 pm
(27) Michelle Leali says:

Wow! As all of you, my symptoms keep piling up. When I first became ill (5 yrs ago), I developed a dent in my head (about 1 inch long). If I am going to have a flare of one of my illnesses, it hurts like heck. I can’t even brush my hair. Also, went to a new physician and he doesn’t believe in Fibro. So now I have to travel 250 miles to my old doctor(s)). Oh well!

May 2, 2009 at 1:33 pm
(28) Dan Guzman says:

The doctor that I work for traines other doctors on a technique he developed called Quantum Neurology. Some of the doctors he has trained have had very favorabable results with Fibromyalgia after attending the Sensory Seminar he teaches.

You can find a list of trained doctors on our website: http://www.quantumneurology.com/findadoctor.htm. When looking for a doctor, make sure they have attended the Module 2 seminar as that is the Sensory seminar.

Good luck to you all,
Dan

May 22, 2009 at 8:21 pm
(29) Kendra says:

I have constant extreme sensitivity to anything that touches my body, especially to my head, neck, shoulders, all over my backside, hips, behind, etc. (sometimes even my eyeballs hurt when I put in and take out my contacts). I also cannot tolerate variances in temperatures, so ice packs or heating pads are out of the question. All clothing that touches my body, tags in shirts, showers, wind blowing on me, the sun shining on me, anyone touching me…anything and everything that affects my sense of touch, it is all very painful for me. I also have frequent “electrical type” of shocks all over my body when it gets really bad. I cannot have massage therapy because that means someone has to touch my body and that’s “painful” for me. I have been put on all types of pain drugs, no help (I currently am on my pain meds). I have had Fibromyalgia and Chronic Fatique Syndrome for 3 years now. It is true from one of the other postings, explaining this type of pain to someone who doesn’t have it (most everyone I know) is difficult at best. They all think this is the craziest thing they’ve ever heard of. Thank goodness for a loving and supportive husband.

July 22, 2009 at 10:26 pm
(30) kt says:

it is my gums that have am abnormal response. it is only the left side of my mouth that is involved. brushing my teeth doesn’t hurt, but breathing through my mouth is agony!

October 17, 2009 at 8:19 pm
(31) Marta says:

I’m one of the unlucky ones that suffers from fibromyalgia. When I’m in real pain I sit in the sunshine for about 15 minutes and it really helps!!! Unfortunately not everyday is a sunny day.. As for pain killers, Excedrin extra strength is the only one that really helps me. I take 3 caplets when I can’t take it any longer.

To Sandra: Yes!! I get scalp pain. It’s just terrible!! I hate it!! Nothing seems to help for that.

May 12, 2011 at 5:43 am
(32) John says:

Try vitamin D3, it’s the “sunshine hormone” it really helped my pain. Have your doctor test for a deficiency, it s very common in people who live ABOVE South Carolina. Most of us DON’T get enough sun to keep us healthy. My leg twitching, and much of my “phantom pain” disappeared with Vitamin D supplementation. Good luck, John

October 27, 2009 at 12:52 pm
(33) simon day says:

I have had contact allodynia for a few years now. In my case it seems to be the result of various operations and accidents that have joined forces against me. My pain is very localised but recently has started to spread. I’m beginning to wonder now if I might not have an undiagnosed underlying condition.

November 19, 2009 at 7:24 pm
(34) Debbie says:

I really thought I was losing it. I’m a nurse and couldn’t figure out why my skin was hurting like it was. I asked co-workers and no one could remember a name for it. My problem is the pain is in my buttocks and upper hamstring area. Just wearing pants is a problem, including underwear. A hot bath helps some, I guess its time for pain management. Thank you for this article, I’ve been looking for answers for over a week now.

December 8, 2009 at 9:36 am
(35) barbara says:

so i’m not crazy? i’m a nurse and wouldn’t even consider mentioning this to my dr. because even I think it sounds nuts….my pain is very sporadic and feels like a terrible sunburn, but no redness, rash or breaks in my skin. it can start one place and travel to another for no apparent reason, leaving the first area without pain! it helps reading these accounts so that at least i don’t think i’m imagining all this….frustrating!!!

March 19, 2010 at 2:55 pm
(36) Shari says:

I can’t tell you how much better I feel knowing that I’m not the only person who experiences painful skin! I’ve taken articles to my doctor and explained to him how many symptons of FMS I have. He said they are also symptoms of sleep apnea. While I don’t disagree that I may have a sleep disorder, I also have at least two thirds of the other symptoms of FMS. (I can remember having symptoms starting as young as high school.) Fatigue just defeats me somedays, and my painful skin can be in just a few spots, or can go from head to toe. I never know when it will happen, or how severe. The only medication that truly helps me when this happens is vicodin. My hands and feet are constantly stiff and sore first thing in the morning . . . . after that, I just never know what the day will bring. Sensitivity to light and noise drive me crazy as well. Anybody else?

I feel like I’m babbling here, but it’s just so refreshing to share with people who actually know what I’m talking about! Does anyone else have weight trouble along with everything else? I’ve become alot less inactive over the years just because of increasing symptoms. Thanks so much sharing all these comments!

March 27, 2010 at 12:58 am
(37) george says:

its primarily my legs that are effected and it sucks because i cant skleep for 3-9 days at a clip. light touch is excruciating burning like pain in my peripheal nerves but yet if i scratch my fingerlais hard enough to draw blood its a relief or using sandpaper but i wish i knew something that worked longer and better

April 12, 2010 at 10:27 pm
(38) Jan says:

This is for Sandra. Yes, my hair and scalp hurt. This was my first symptom. I have postherpatic neuropathy secondary to a Shingles inoculation. I have also be diagnosed with Fibro. I never had chickenpox and therefore had no immunity when given the live virus. I had a short outbreak of blisters above my buttocks that traveled up my spine. I have all the painful sensations others here have described but my scalp is very sore all the time. I have been checked by dermatologists and they say its part of the pattern.

April 13, 2010 at 8:37 pm
(39) Gail Flakes says:

I have had skin pain on and off for some 30 years. At 53, I have it more often now. It is usually in the same spot on both arms, or both legs, or both sides of my rib area. Tomorrow it may move to both elbows or both calves. The pain changes areas but it is a mirrored pain on each side of my body. Does that sound like fibromyalgia?

April 27, 2010 at 10:24 pm
(40) coleman says:

I am thankful to learn that there is a diagnosis for this skin pain. I can attest that women are not the only sufferers of this condition. Although vary infrequent, 4 or 5 cycles per year, in my case, other than the scalp, there are no consistant areas that are affected. In the past only one area at a time, however, now I have upto 4 areas affected at the same time….not fun!! Will try Tramadol next, tylenol does not help.

June 8, 2010 at 6:19 pm
(41) judy says:

Iam seventy years ols and have had psoriasis since I was fifteen. I developed fibromyalgia when I was in my fifty’s. I have always had sensative skin but in the past ten years it has worsened to where I can not wear the same clothing for more than a few hours. Trying to sleep is the worst. I change the sheets daily, as any pilling sends me into spasms. My husband has always called me princess with the pea and it is true. Trying to watch television or read while sitting in a chair is sometimes so painful that I spread a sheet on the floor and try that. A change in temperature helps. My Doctor diagnosed my condition and perscribed the ultracet. I just wish there was a cure for this problem.

June 26, 2010 at 1:48 am
(42) Pristine says:

I am just 28 few years ago. I am a Chinese who developed fibro last year. People here have never heard about it and I felt like an alien when others heard of my case. They would think I act like crazy! I really want to know is this terrible pain when being touched will be carried on in our lifetime, which means forever…..

I am always afraid of losing my boyfriend since I would scream to pain whenever he touched me. I wonder how women can marry and get pregnant with such kind of pain.

June 26, 2010 at 9:49 pm
(43) Stacy says:

I don’t know if what I have is tactile allodynia or not. It started in my mid 20s and comes on for no apparent reason.

Its like a sunburn … and its only on one side of my body or the other. It never crosses the spinal column. I went to the doctor once and he said it sounded like shingles but he had never heard of someone not breaking out in that characteristic rash that people with shingles have. He didnt’ know what to diagnose me with … he said it was kind of like reverse shingles … like maybe the rash was on the inside ?????

There is absolutely no change to my skin when this happens ! It looks like the same as it always does. Its really ridiculous. But it hurts like heck !!!

July 23, 2010 at 9:57 pm
(44) vicky says:

For Stacey:
Like you, I had sensitivity in my skin, especially if I had an infection or the flu. After years of this, I finally had a breakout of Shingles. My doctor things it was developing over the past several years and finally erupted.
You may be in a similar situation. Good luck.

July 26, 2010 at 11:11 am
(45) Horace says:

My wife started having Pain to touch in bicepts-upper arms and back. She’s in her mid 40′s.

Question – Those that suffer from this, do you drink a lot of soda that has Sodium Benzonate (spl?)?

My wife drinks a lot of Mt Dew and has for most of her life. Just wondering if there is some link to the perservitive and these symtoms.

Thanks

August 9, 2010 at 6:16 am
(46) Victoria says:

I am 24 years old and my husband thinks I’m crazy because just a poke can make me cringe. He calls me a hypochondriac all the time. It’s so good to know I’m not the only one who does weird things in the name of comfort. Like wearing your socks inside out. I feel better knowing that there is a reason why it hurts for my husband to massage me. It’s awful and I hate it, but at least its real and not just in my head.

August 11, 2010 at 2:14 pm
(47) harrison says:

I’m lucky in that I get the tactile allodynia occasionally. But when I get it, it’s either in my scalp (my hair hurts), along a butt cheek, the ankle, or the bottom of a foot. It can be in more than one place at a time, but rarely anywhere other than these places. The butt cheek and bottom of foot are the most annoying since it’s very hard to avoid having things touch those areas. I also get a deep ache underneath the allodynia. So, while I sit at my desk at work, I feel like I’m sitting on a bruise.

I use Lidocaine cream and tramadol and tylenol. Nothing really knocks out the pain completely, but this combination at least lessons it so it’s tolerable.

The good news is that more and more research is being done and they are learning more about what Fibro is and what causes it. Hopefully this will result in some better treatments and possibly a cure!!! I’m currently participating in a clinical trial at NIH for a new pain killer. Hopefully it will be something that works.

August 20, 2010 at 11:46 pm
(48) Teresa says:

I have read from the internet about a surgery for fibromyalgia and allodynia invented by a professor in Switzerland which helps to cure fibromyalgia pain. Have you heard about that or from anyone or any patients operated by him in your side? Or what is your opinion on it? Can we save by him?
The link is : http://www.fms-bauer.com/gb/

The allodynia drives me crazy everything. I feel like being unable to touch things or being touched.

August 24, 2010 at 9:22 am
(49) Kathleen says:

I have the same problem as Stacey (38). Pain in my skin is terrible. Travels daily to different spots but is always on one side of my body. It hurts through layers of skin actually and even bothers me just sitting here. Feels like a burn that has cold air blowing on it constantly. Very frustrating and I have no idea what is wrong with me.
No diagnosis yet….
Stacey, did you ever get any more information or a diagnosis?
What is going on with me??

September 5, 2010 at 8:35 am
(50) angela says:

I am relieved to hear others describing what I am feeling – and the cold air blowing on a burn is incredibly accurate! My left shoulder, top of back and left arm to the elbow are affected with the most awful sore skin. Every day I have been looking for the rash, but after a week there’s absolutely nothing to show!

I also suffer occasionally from pain associated with an old injury to my upper back, and find that when I move my neck to the left I get a pain all through the sore places. I now wonder whether this is actually associated with a trapped or pinched nerve. Really beginning to get me down, and if it gets cold it’s excrutiating.

September 7, 2010 at 12:12 pm
(51) Lisa says:

I have been suffering from fatigue, depression, migraines, panic attacks and sore skin and achy joints for years. Probably all started happening arounf the late nineties. CFS and fibromyalgia werent big soo I have always been diagnosed with depression and anxiety disorders. Now I wonder… Right now my waist is sore to touch and I am soo tired. I noticed my symptoms get worse if I eat alot of sugar or corn or canola oil or sybean oil. If I eat lots of fish ,, rice, fruits and veggies, I can ALMOST feel normal again. But I honestly havent felt normal for years. My suggestion is to look up information on diets that you shoud eat with fibromyalgia.. and info on gmo crops. Ive been eating natural and organic as much as possible and Whe I do I feel bettter, but sometimes I go on these sugar binges and chips and stuff and It takes me weeks to recoup, so I know the diet is very important in recovering. I have lived it and live it everyday. Good luck to all and to me!!!

November 22, 2010 at 10:59 pm
(52) Tracy says:

I have been experiencing painful forearms. Painful to touch with no rash. I have had it between my shoulder blades and skalp before too. I have not gone to the Doctor for fear of not being taken seriously. I also suffer from Raynaud’s Syndrome ( thats what they told me anyway) and geographic tongue. As we speak I am experiencing the burning tongue sensationa and painful skin. I wonder if its related? I really hate going to the Doctor and just know if I do I will get looked at strangely or sent for a berage of costly tests resulting from no answer. I just went through tests for a supposed gall bladder issue and it turned out ok. They wanted me to go for another test, but I can’t do it . Too costly. So exhausting.

November 28, 2010 at 4:40 pm
(53) Ritch says:

I am a guy, and I hear this is a womans thing. I can assure you, i have the same thing. Right now, it is the worse it has been, thats why I found this site. It usually just affecting like one part of my body (thigh, forearm, either sided of my face,or my shoulder) But since Friday it has been hurting from my spine to my sternum. I still don’t understand why it dont “cross sides” anyway, right now its hurtin bad and it had spread to the top of my shoulder and down my arm. It is particularly sensative on and around my left nipple. I missed church this morning because it was uncomfortable to wear a shirt. Mine is sensitive to heat (sunlight) and air blowing on it. If I get chills(goosebumps) it is really paiful. I get this off and on but this is the longest it lasted. most OTC meds for pain don’t work so I don’t know what to do. I have a DR appt tomorrow and I hope she knows what to do and not think I am crazy.

November 29, 2010 at 6:36 pm
(54) AphraB says:

Thanks for this information! I always wondered what the heck was going on.

December 8, 2010 at 8:48 am
(55) Rumz says:

I was diagnosed with CFS 5 years ago and the rheumatologist told me i had Fibro a year ago, my body hurts to touch and it feels like the pain gets worse before it eases like when someone playfully pokes me on my arm or when i scratch I am left in pain which intensifies then wears off. I feel exhausted and sleepy all the time and do not know what to do, what painkillers apart from Ibuprofen work?

thanks guys, hope everyone feels better .

June 14, 2011 at 12:17 am
(56) Terry says:

About 10 years ago, I was on a trip and the skin on my right arm at the elbow started to hurt. I stopped at the drug store and ask for something to put on it. 10 years later and i have found nothing to stop it. I have tried over 25 meds that are used for depression to try to stop the pain transmission. absolutely nothing and i mean nothing has any affect on it. you can diagnose until the end of time but it doesnt help. I have been on oxy contin, oxy codone, hydrocodone, and a host of others for 9 years. all i get is partial temporary relief. i will continue to test and try until i die because my mother has it and my children have it. I would like to figure it our for my kids.

December 15, 2010 at 10:03 am
(57) Paula says:

I’m not going insane! I’m so glad I found this post. Painful butt, thighs, inner arms, feet. Clothes seams HURT. I definitely found out NOT to take hot showers that can burn the skin. Unfortunately cool ones are just unpleasant. Am currently adding more olive oil and fish oil in my diet to see if this helps. Has anyone gotten relief this this yet? Any suggestions on clothing brands with oh-so-soft seams?

January 18, 2011 at 1:37 pm
(58) Kelli says:

The skin on my back underneath my armpits ALWAYS hurts. That is my most painful area. If anything touches it I go absolutely crazy. Do any of you have terrible pain when you scratch an itch on your skin? The intense pain seems to last for atleast 20 seconds afterwards. Kind of like if you bumped your leg on the corner of a cabinet. I take pain meds and none of them seem to help at all. Very frustrating.

February 1, 2011 at 2:34 pm
(59) Jsmith says:

I was surprised to hear of so many other people sufferring like me. My neuropathy causes all the nerves under my skin to hurt with such intensity that nothing really helps. The pain can be reduced with certain drugs – that lose their effectiveness over a short period of time. Natural relief that helps to some extent include sitting in a pool (it is the cool water that seems to help), sitting in a dry cool area or with a small breeze, no clothing which seems to just irritate by entire body. I avoid any thing that constantly rubs on my skin, avoid heat and sweating and try to avoid stress or becoming angry.
Do these options help anyone else? Have you found anything else that seems to trigger the pain or help reduce the pain?

February 10, 2011 at 5:16 pm
(60) Sarah Harris says:

I was so glad that I came across this site, my pain is on my head it’s like my hair hurts! I’ve just had my worst ever case of this lasting over a week. Before I could wash my hair and the pain would go, this time I had to go have my cut and thinned out which has at last eased the pain. Do you think this is Allodynia????

July 4, 2011 at 11:31 pm
(61) Angela says:

When it is in your hair, on your face, or on your neck, it could be cutaneous allodynia caused by migraines – if you have migraines. Same thing basically as tactile allodynia. If you have FMS and not migraines, then it is probably just the tactile allodynia. I have migraines , but do not have the cutaneous allodynia. I have tactile allodynia very badly on my back making it very difficult to wear a bra and panties. I basically wear a soft cotton gown or beach cover-up around the house and I wear a loose dress with a half slip out and a loose bra with an extender when I go out.(I sometimes put tissues underneath the bra to protect my skin.)I can’t tolerate anything too tight on me. The trigger for me was wearing a bra that was too tight and some panties that were too tight with trim that was irritating my skin.

February 16, 2011 at 2:33 pm
(62) Gail says:

I am so glad to finally put a name to what I am feeling. My doctor diagnosed me with Fibromyalgia one year ago, fairly mild so I don’t take anything stronger than ibupropen. I am a nurse and was embarresed to mention to her that I have virtually stopped wearing a bra in the last year. The metal hooks at the closure feel like barbed wire. I have other symptoms but only on the left side under the bra strap and down the scapula and under the back left panel of the bra. It isn’t exactly painful all the time but I get a sensation that the bra is “riding” up my back. It causes my shoulder and left side of my back to “twitch” as if trying to move the bra back into place. No problem on the right side. I saw my doctor this morning and finally mentioned the symptoms to her. She had no answer for it. I just got on the internet and did some research on my own and found these postings. Has anyone else experienced what I am experiencing?

March 12, 2011 at 10:36 am
(63) Lori says:

I’ve had skin that hurts, sometimes from the very least stimulation, for some 10 yrs.! Drs. do not SEEM to understand and have never offered a name for my condition. I have never been diagnosed with fibromyalgia, but definitely have ALLODYNIA! Sometimes I cannot get to sleep as my body touching the mattress sends “electrical” sensations through my skin – sometimes just breezes or slightest touch sets it off – it’s absolutely miserable! I take Gabapentin for this – it helps me get to sleep at least! I’ve had Shingles but dr. tells me “nerve pain” would result only in area I had shingles…not widespread as I have it???? It is “comforting to know I’m not alone in this! Thank you.

March 15, 2011 at 8:28 pm
(64) Bre says:

Wow I have been suffering with this for about 4yrs
My pain is always on the back of my legs my
Calfs and groin and private areas . It comes
And goes all the time if my pants are to tight or
If my clothes is to loose. . I use heat to clam it down or
I get intothe hot tub to clam down my symptoms
But I could never figure out if this was sumthing that I was
Making up or was really happing to me. The pain
is sooooo bad that sometimes I can’t let anything touch me
But I’m so glad that I found this article n I made a doctor apt
Tomorrow and now I’m not scared to tell my doctor what’s
Going on . This is a real problem

March 30, 2011 at 2:34 am
(65) Melissa says:

I have had things like this occur going back to as far as 12 years old. It started out with my right thigh…super painful to the touch and would last for days. Now it seems to attack random areas and is really painful. Thankfully it is pretty rare, but when it happens it definitely grabs my attention. I have it right now spanning from my right thumb down to my wrist.

April 8, 2011 at 8:08 pm
(66) BreAnna says:

I don’t know if this is related to it ,
but I feel severe pain almost like sunburns ,
Mostly on my shoulders down to my lower back area , my arms , the back of my neck , and my thighs.
I only get this pain when I don’t feel well.
I don’t know how to take care of it either. :(

November 21, 2011 at 9:37 pm
(67) Sonja says:

Have you ever received help and anything that worked? I have been suffering in the same areas and the burning sunburn feeling…please let me know if you found anything that helped – my doctors have been useless. thank you

April 12, 2011 at 12:06 pm
(68) Vicki says:

I get the painful skin all down my thighs and on the backs of my arms. Its awful because its usually in areas that generally rub together. My boyfriend might playfully grab my thigh or arm and it feels like hes trying to bruise me, even though he’s being gentle. Cold has ALWAYS hurt me, as far back as I can remember. My sister would put ice in my shirt because I always threw a huge fit and she thought it was funny. I dont think she knew how much it actually physically hurt. Im currently 33 and I have also had swelling in my legs during the summer months. Im not diabetic, all blood tests were normal, I dont salt things, I drink caffeine maybe 5 times a week, and I cant explain the swelling. All I know is that the bottoms of my legs get that same pain a day after a swelling episode. The skin hurts, and the tissue under it feels bruised. I dont feel like this all the time, it comes and goes. I’ve noticed it getting worse near my monthly period. I dont take any medications. I’m very against all meds. It would be nice to be diagnosed, because I thought everyone got this way. I had no idea it wasnt normal for years. Its been the past 3 years that I have really tried researching the odd pains.

April 16, 2011 at 12:50 am
(69) Toni says:

Kelli….I have, in the last two weeks just experienced the pain under the arm and my side and it has spread to my shoulder blade. I thought initially that my bra was rubbing me raw because that’s what it feels like but my bra doesn’t move around on me. For the last year or two, once every few months my right or left leg from the hip all the way to the bottom of my foot gets the same kind of pain. It hurts to walk, it hurts to sit on the toilet, even my private area hurts on just the one side, which means it hurts to wipe. I always thought it was a hormonal thing because it would happen around my time of the month. But now I’m experiencing it above the waist. This first instance above the waist has become really painful. My husband has convinced me to see a doctor but to be honest after reading things online, I’m kinda scared that I’m going to be misdiagnosed or told it’s a pulled muscle. I know it’s not a pulled muscle and I workout 6 days a week. Nothing intense, so excercise doesn’t necessarily make it better, like I’ve read in some posts. Anyway, I’m calling monday to make an appointment. I’m the kind of person that if I feel like I’m not being taken seriously by a doctor, I’ll just live with it instead of going through the circus of appointments. I’m so glad thought that I have terminology to take with me to my appointment.

April 27, 2011 at 2:01 am
(70) Tara says:

I am 28 and have been formally diagnosed with FMS recently. I have been told that FMS is usually kicked started by an episode of illness like that flu/glandular fever which I had when I was 18. My skin pain is significantly bad today as I sit at my desk battling not to go home as I refuse the illness to dictate my life. I noticed that most people in the posts ask about drugs to help but as I was told when diagnosed… there is no cure, only lifestyle management choices that can help. I have found the diet is probably the biggest contributor to my symptoms. On seeing a naturopath (weight loss attempt) I was put on a restricted diet eliminating sugar and carbohydrates. I have never felt like a million dollars in my life whilst being on that diet!! It significantly addressed my horrific IBS symptoms and my skin pain. The sensitivity to the cold remained but lesser and my clothes did not bother me at all. I take ‘fibroplex” – a concentrated powder form of Magnesium, twice daily. The only problem I am now finding is that because I have eliminated the sugar and carbs from my diet, my body doesn’t tolerate them at all. I ate some bread and chocolate over Easter and I am paying for it big time today. This is something that I find different to the other posts…. I think I have found my pains TRIGGER in food. If I can sustain a strict diet of natural food (meats, eggs, cheese, vegetables and fruit) I feel amazing. My pain started under my left arm. I was convinced it was some type of breast cancer and have had two ultrasounds because of these fears. It now spread to my sides, back, arms and neck. I am constantly cold and have a heater going at my feet at my desk all day. Others think I am nuts and my boyfriend finds my fragility frustrating. I have been through sooooooooo much testing and feel emotional and drained by my symptoms today.  Others thoughts or advice welcome… PLEASE.

May 12, 2011 at 5:49 am
(71) John says:

Try vitamin D3, it really has helped my pain. Most people are deficient because it is created in the skin by sunlight. Every one of us in Northern latitudes (above south Carolina) are deprived of sunlight. Have your Doctor check for a deficiency, my “restless legs” have ceased, and I’m now just about sleeping through the night! I haven’t in 3 years!

John

May 16, 2011 at 5:30 pm
(72) bex says:

I think i have this now, everything on my top half is sore to touch, clothes hurt putting my bag on my shoulder hurts. I have had to take migraleve today as i have a migraine, but i never realised this could be due to that.

June 6, 2011 at 11:59 am
(73) Lori says:

I’ve had fibromyalgia for over 15 yrs now, It started with what I thought was cold spots on my back many of them. Dr’s told me it was from a back injury nerve damage it came and gone all the time. So now without insurance and no extra money i deal with mine as much as possible.My pain is never in the same area.. it travels from my scalp, arms, waist, legs, back inner thighs is the worse for me, etc etc.. never in one place long. it comes and goes but when it hits its burning to the touch. So this drives me nuts. I try my best to eat right. I have asthma, and beginning of copd. So everything is hard for me. trying to keep fit is a big deal here in hot atlanta. Any help would help me I rather not take anymore Medication. thanks

June 8, 2011 at 8:43 pm
(74) Jackie says:

i have had this skin pain for as long as I can remember….I monitor it, and found a pattern…if I am getting a cold the skin on my arms hurt. If I am getting a fever the skin on my entire body will hurt. I cannot even stand for my husband to stroke my hand, it feels like someone is using a grater over an open nerve. It comes and goes and sometimes is accompanied by quick sharp shooting pains, kind of like an electric shock that can originate anywhere in my body. I understand it is a cause of chcken pox or shingles.

September 18, 2011 at 8:11 pm
(75) James says:

I have had this pain in a very localized area just below my left ribs in the front for a few weeks now. the chronic fatigue started months ago before the sensitive skin symptoms. cold sandpaper when the clothing brushes across it is a good description of it. I was stumped for a cause until i found this thread, thank for all the info and for sharing.

October 7, 2011 at 10:21 am
(76) Jen says:

I have had painful scalp for as long as I can remember. I’m 32 now and I feel like my entire leg (both sides) is completely bruised. Just the lightest touch makes me grimace! My kids crawling into my lap is excruciating. This is the case for my shoulders, low back, and neck as well. Crawling into bed is painful, and I never feel rested. Recently, I have become overly sensative to mosquito bites as well. A single bite after 24hrs becomes hot, red, horribly itchy, and swollen to the size of a silver dollar. Anyone else have that?

October 9, 2011 at 5:34 pm
(77) amy b says:

I dont know if i have the same as everyone else but ever so often i keep getting a wierd sensation pain on parts of my body not to poke just sensitive to touch or wen i have clothes on it its sore, it feels warm, the pain iv got at the moment is on my knee i got my boyfriend to put some cream on it to sooth it but it hurt so much and the cold sensation from the cream made it worse..can some one help me please…and to top it off i have headache and all of a sudden feel like i got flu symtoms?? :(

October 14, 2011 at 3:18 am
(78) Amie says:

I have had Fibromyalgia and Chronic Fatigue for 17 years, but this tactile allodynia just started a few months ago. Thank you for the information, at least I know I am still dealing with the same’ol stuff. I may have to move to a nudest colony if this keeps up. ;-)

October 24, 2011 at 5:11 am
(79) ALISTAIR says:

DOES ANYONE ELSE GET THE THE PAIN AT THE BACK OF THEIR HEAD.ITS WORSE AT THE BOTTOM OF THE HAIR LINE.EVERYONE SEEMS TO GET IT AT THEIR FEET

October 29, 2011 at 2:51 pm
(80) shosh says:

I have to cut off all the labels from all my clothes. I cannot sleep in a bed where the sheets are tucked in – ohhhhh far too tight for me. I need a very loose duvet to cover me. I have to sleep with earplugs and a sleeping mask to hide out all the noise and the light. then the sleeping mask bothers my eyes.

Oh you lucky lucky people who do not know what I am talking about and have never had any of these symptoms.

October 30, 2011 at 2:48 pm
(81) Red Leslie says:

I’ve been dealing with this condition for 15 years and now I finally have a name for it! I found something that works really well for making the skin pain stop but you have to be able to tolerate excruciating pain for the first minute or so. (I didn’t read all of the comments so I hope this isn’t a repeat.)

Briskly rub a rough textured or scratchy cloth over the affected area and once you get past the initial shock of pain, the nerves seem to get over-stimulated and “rebooted” in a sense. Keep rubbing the area until it is no longer painful. It only takes a few minutes! This usually makes my tactile allodynia pain stop for a few hours or go away completely until the next bout, which could be days, weeks, or months.

I hope this helps someone!

November 3, 2011 at 11:50 am
(82) Lindasue says:

I have had this for years and always thought it was a weird virus jumping from place to place, usually on one side of my body. Often if my skin hurts, my eyes hurt too. Right now I have it all over my left upper torso, the armpit being worst. I am sorry to hear others have it but glad for all the suggestions. I work at home and wear sweats most of the time which does help. I have almost no tickle response and have had FM and CFS since age 20 or so when no one knew what it was. I take a lot of coconut oil, ginger, cinnamon and organic cider vinegar as anti-inflammatories and they help a lot but nothing cures it. Does anyone else have the eye problem?

November 28, 2011 at 11:14 pm
(83) penny says:

Stacy & Barbara,

I have the same sensation as you two. Maybe 5x a year, my left forearm on the underside feels like I have a sunburn! No redness, rash or anything! I just finished an episode this morning! Had it for 2 days. This time it also went to my elbow. I told my husband it felt like a bad sunburn, couldn’t stand any clothes or people to touch it. So is this for sure a fibro symptom or something all its own? I am soon seeing a rheumatologist bc of my joint pain and muscle pain. Im convinced I have either fibro or lupus.

December 6, 2011 at 11:23 am
(84) Lynne says:

I’ve had M.E for 20 years. In 2009 I developed this ‘burning/seneitive skin’ thing. It sent me half demented. I couldn’t dress at all. I thought I would never ever get better. Fortunately in Feb of this year (2011) and since then I’ve been fine. Don’t know how it improved (although I am happier in my personal life and therefore happy mentally/emotionally and physically which I put down to alot of it!)…alot of mine seems to be related to anxiety too as the burning gets worse when I’m anxious.

Thought I’d ‘kicked it’ but in the last week, after a particularly stressful time and having been sick with flus etc…my skin has started to burn again. GRRRRRRRRRR!!!

Totally freaking out. Have no idea what to do, what it is or how long it will last. But at least I can say that it DID get better and maybe this 2nd outbreak is just a ‘reoccurence’ and not a major setback like the first time…its just my body is rather run down.

So there is hope folks. Any feedback useful. :)

December 12, 2011 at 10:23 pm
(85) Sonja Christine says:

I have been suffering with this since May 2010. Woke up feeling like an intense raw sunburn across my upper back and shoulders. Now 19 months later both arms and hands,upper back, shoulders, neck, and thighs burn nonstop every day. I feel like I am going crazy from the pain. Luckily Ambien gets me to sleep and a cool fan and that is the only time I am not burning and in pain. Have tried Lyrica, Neurotin, guarbetin and Cymbalta and none have made it any better only bad side effects. No life- I make it out of the house once a month-to a doctor’s appt. – wearing clothes is like having a severe sunburn and wearing burlap or a robe made of star thistles. Any advice or help from anyone would be a godsend. I miss being able to wear clothes (all I can tolerate is the satiny pajama material and then I have to wear even those inside out because it is softer- the inside is more scratchy) It is ridiculous and I am exhaused looking for help. Please help.

December 23, 2011 at 9:39 am
(86) Amy says:

I looked this up because I’m going through a bout of this right now. I first experienced skin pain when I had the flu back in 2000 or 2001. The skin on my upper arms, thighs, ribcage, and upper back felt like it was on fire. No rash, no redness, just PAIN. Clothing of any kind made me want to cry. I lived for a week wearing nothing but a very light, thin nightgown because anything else cause excruciating pain. Thankfully, since that first time, the pain isn’t as intense, but it almost always comes on when I run a fever. The problem is, I am not running a fever right now. I keep checking, but nothing. I’ve been taking Excedrin and ibuprofen to try and dull the pain enough to get through the workday, and it is barely enough.
I read a comment here that suggested shingles.. I’ve always wondered that, but the absence of a rash made me dismiss that possibility. I had chicken pox twice when I was a child, so I know Shingles is a possibility later in life (I’m 38 now). Anyway, I’m glad I found this – I’m not the only one :)

January 15, 2012 at 4:37 am
(87) nicki says:

Hi. I found out I had fibro 2 yrs ago. I have a bunch of weird symptoms and my docs just say I don’t know a lot to me when I ask them about it. So I am wondering if anyone out there has the same issues too. I have the really bad pain sensitivty too but its on my face torso and armsif I scratch an itch it feels like the skin is ripping off and it comes and goes it always seems to happen when the real bad cold sweats hits I wake up soaked but bone chillingly cold. But I also have problems with my feet swelling up and popping noises in my ear and jaw. I also get real itchy at night sometimes it hurts to move my eyes. At night my feet feel like they r on fire but other nights they r ice cold. My hands swell up too my scalp hurts also. I also get dizzy a lot around the same time every evening but that comes and goes too. Another weird 1 is and my doc thinks I am nuts but for exmple 1 day I had to tell my husband something about the door but for the life of me I couldn’t figure out the word for door when I finally figured out it was a door I spelled it out. It didn’t sound like I spelled it right so I asked my husband to spell it figuring I spelled something so easy as door wrong but I. Spelled it right but it sounded weird then bout 5 mins later it sounded fine and this happens every so often with simple easy words. But I feel like I am going nuts not knowing what’s wrong with me all my tests come back fine also. I have had fibro since I was 25 and now am 31 just diagnoised 2 yrs ago but as I get older everything seems to get worse all the pain and weird things that r going on so I figured I would give it a shot to see if any1 else has some of these problems too. Any insight would be wonderful. Thank you for reading this.

January 28, 2012 at 1:39 pm
(88) debbiej says:

Nicki,
You are not crazy. Welcome to the world on Non-sense medicine. What works for you may not work for me. That is why we post what does help and hope for the best. I have Migraines, Fibro, Spondylitis and this allodynia. My MD has put me on 25000 mg of vit D(prescription only) 3 times per week. I am finally seeing some help with both the allodynia and fibro. This is definately where Doctors are “practicing” medicine. I also have sleep apnea so not getting enough sleep elevates my pain. I sleep whenever I can. even if it is naps because I don’t sleep through the night. Read all info you can, then try things suggested. Try them for 2 to 3 weeks before you give up on them. For me the cold things drive my skin crazy but the warm things really help. Everyone thinks I am crazy because I hate any kind of massage. It feels like I am bruised and beaten when I am finished. It is not relaxing but very stressful. I love a good hot whirlpool or spa. Also a good steam room. Good Luck and find ways to be positive. You will get through it although there are days you want to give up. Make it about conquering the symptoms, not letting them conquer you.

February 7, 2012 at 5:08 pm
(89) ckeedwell says:

I think I have this all I can describe it as is painful skin feels like sun burn and hurts like hell especially when you touch it what is it? How is it caused and what are the treatments please someone help me thank you xx

February 8, 2012 at 7:16 pm
(90) Susan Jones says:

Hi, ive had this weird pain for about 1yr now, it started under my right arm, then down my right side including my foot, everything was half numb and felt like i was not really here! I could hardly brush me teeth, or apply my deodrant due to the coldness of the toothpaste and the deodrant, the feeling made me cringe. I also had this awfull sensitive feeling which was mainly in the inside of my right arm to the wrist, but included my elbow as well. The sharp stabbing pains make me shout out, they are in my shoulder too. I started to walk like a disabled person, i couldnt control my LEFT leg???? i ended up having neck/back surgery to replace 4 worn out discs, and untrap nerves, we hoped the op would solve this problem (allodynia?) the op was mid november and by mid december i was in agony again, I am still in recovery and hoped to be free of all this pain after such a big scary op but no im back on the list to see my neurologist again. I am taking amitriptylene which block out the pain, itch and some of the sensitivity
and allow me to sleep far too many hours, i am now praying for some
other relief when i get an appointment through, i cannot even stand my
own breath on my arm and wear a worn out (loose) tubagrip so that nothing touches it. I think this is one of the worst pains and irritation
ive ever experienced, i am 55. Hope you all find some relief, good luck

February 9, 2012 at 2:04 am
(91) Mary says:

I have this but I have it ALL OVER my body. Like my entire skin is covered in bruises and sunburnt… I CANT wear a bra it’s gotten so bad and of course I can only wear very light soft clothing. Is there such thing as a lidocaine cream? That seems like that would be very effctive because I would need to covered in lidocaine patches for any relief and don’t wanna have to go to the hospital every time my skin hurts….

February 11, 2012 at 11:34 am
(92) Danny says:

Can this type of tactile pain be isolated to one spot on the body?

I noticed a few days ago that my left hip is so sensitive to the lightest touch. The sensation is almost like touching a sunburn. I can’t imagine that something like this could literally develop overnight, but it hasn’t subsided one bit since i first started feeling it. There are no visible differences in the area – everything looks exactly as it did before. No one understands what I’m going through, it hurts to wear anything around my waist – especially elastic bands that sit right on top of the spot that hurts most.

I have tried taking pain medications (advil and aleve) but neither of those helped. How long should I allow this symptom to continue before finally seeing a doctor?

March 3, 2012 at 11:43 am
(93) Lin says:

I burn all over, head to toe with concentration in my palms and from the knee down. This is so distressing to me cause it does not make sense…I can have nothing touching my skin, and it still feels like I am on fire (but always cool to the touch)!!! The more hip and back pain I have, the more intense the burning and headache become. I have tried the above remedies, but anything I put on my skin seems to make it worse.

March 5, 2012 at 9:10 pm
(94) Zona says:

My first flare up from fibromyalgia was seven years before I was diagnosed. It “featured” the burning skin as the over-riding symptom with all the other aches and pains moving at random around my body for about a week. I thought I was losing my mind (or already had)!

That was more than 25 years ago. I have managed to learn a lot about fibromyalgia…mostly through trial and error.

If anyone has found clothes with soft fabric, comfortable seams, no labels, and loose lines, I would dearly love to find your source. Finding comfortable clothes has been the hardest part of the journey for me.

If I can find a reliable source for truly comfortable clothes (underclothes as well as regular clothes), I will begin carrying them on my website to help people with fibromyalgia find what they need more easily.

March 10, 2012 at 12:47 pm
(95) poppy says:

I read a lot of the posts here. I have the same condition and what is the worst is that it is painful for me to sit! I just put up with the pain and try to go on. My skin hurts all over, too.

I just want let all of you know that I am sending you hugs, no, that might hurt! I am blowing wishes of wellness to all who suffer from painful skin!

March 13, 2012 at 5:56 pm
(96) Deano says:

My pain started 9 months ago when one day i lightly brushed the side of my head just above my right temple and felt an electric shock pain shoot into my head, only lasted a second but every time i lightly touched the area it would do the same thing, area is only the size of a small coin! Triggers for it are putting clothing on over my head, showering and having the water run over it, when sleeping i can feel pain when my head rubs on the pillow, even having wind blowing on the area triggers it! I’ve had it every day for 9 months now. I went to the docs they gave me Amtripylin which did nothing ,also taken prednislone, gabapentin these did nothing also. One suggested it could be temporal arteritis i had a biopsy done which came back negative, I have had blood tests done for various things all of which came back fine. I had an MRI scan on my head and am awaiting the results. I was wondering if other people that have had this condition for a long time have had it start out as a little patch of sensitive skin that over the years has spread and got worse? Any suggestions as what can ease the pain or even get rid of it would be a great help. I sometimes feel a throbbing in the area on odd occasions also but other than that the pain only arises when the area is lightly touched. One more thing is over the last 4 months i have a throbbing aching pain in my right leg which can hurt in my thigh, knee, shin and foot. It is not there during the day when i am walking around and doing general things, but when i stand and straighten my leg and twist it i get a pain that radiates in my thigh and down my leg. It usually occurs when i am resting on the sofa with my feet up or in bed at night, sometimes the pain wakes me up. I have it now while i am sat here typing this it is throbbing in my shin. Note that this does not occur when touching the area but i was wondering if anyone else has also had this problem with their pain symptoms? I would be grateful for any replies.

March 22, 2012 at 12:14 pm
(97) Deano says:

Does anyone ever have really bad throbbing leg cramps at night, not when touched just leg aches when resting in bed or with feet up on sofa. Pain is in thigh and around knee and in shins and foot. Mine is only in my right leg.

March 27, 2012 at 12:53 pm
(98) Joan says:

Try Calmare therapy !!! It worked for my 12 yr old and it seems to work (giving zero pain or at least lessening the pain) for about 80% of neuropathic pain.

March 28, 2012 at 3:10 pm
(99) Tonya McDade says:

I am sorry for you all, I have been living with this for two years at times I can not even pull myself out of bed. I will get flare ups in the sun, when it is cold I wave to control the temp around me at all times. In the last few months I developed very sensitive skin only in the upper and lower waist that does feel like a sun burn. I am relieved to know I am not the only one suffering from this weird pain ontop of the FB. It is really hard due to the fact know one around you understands what you are going through and do think you are crazy. My sudden onset was from a simple injury a bump to my leg than I swelled up and it has been an up hill battle ever since.

April 13, 2012 at 1:11 am
(100) third watch episodes online says:

You can certainly see your skills in the paintings you write. The sector hopes for more passionate writers like you who are not afraid to mention how they believe. Always go after your heart.

April 17, 2012 at 11:34 pm
(101) George says:

My right arm started bothering me a few years ago and has gotten worse and worse. I have tried everything Including vitiamins, supplements and topicals like Emu Oil which helps a little at best. I finally had to purchase a “Copper Sleeve” from Tommie Copper which helps me when I have to wear long sleeve shirts. I light touch bothers me and is painful but a firm pressure does not. I have just accepted I have to live with this painful condition.

April 20, 2012 at 4:21 pm
(102) Cheryl says:

This site is informative. I read a lot of the comments. My experience started when I thought I pulled a muscle in my right hamstring in December 2011. The sensitivity lasts a day to 3 days and goes to another area of the body. Mostly, in my buttocks, hamstrings, and even in the private area and rarely in my feet and ankle. However, I seem to be able to tolerate the pain and just wait it out to go away and hope it won’t come back. I have no problem with wearing bra and clothes. But when it’s very close to the private area, sitting down can be uncomfortable. What helps for me is to have a shoulder, neck and upper back massage and I sleep very well. I am a Christian and I pray about it, that God help me to restore my body and take away the pain and illnesses that I have. I am 61 years old, goes to the gym, pretty active, positive, and married to my one and only husband who is also a practicing Christian. To all of you who are suffering, try praying and ask for God to help.

April 23, 2012 at 6:54 pm
(103) Tom says:

SAD BUT TRUE! MOST DOCTORS TODAY REALLY DO NOT HAVE CLUE WHAT IS F/M. i`VE HAVE ETXREME PAIN & SKIN SENSITIVITY & MY SMELL ISSUES R OFF THE CHART! I SMELL ANYTHING THAT TOXIC (CIG SMOKE OR ANY TOXIC) I BECOME VERY ILL…SAD !!! CLOTHING: NO BELTS OR ANYTHING TIGHT …OH I FORGET 2 MENTION I HAVE CANCER (NON-HOPKINS LYMPHOMA) PLEASE IS THEIR ANYTHING THAT I CAN TAKE OR DO TO HEL MY F/M ISSUES.

April 27, 2012 at 4:26 pm
(104) Sampsonite says:

Thank’s for the article. For some time now I’ve been getting wierd pains that only hurt from light contact instead of intense pressure, which is the opposite of what I’ld expect from a bruise or fracture. They happen mostly around my ribs and on the opposite sides on my back. I also have absolutely terrible sleep patterns; I’m so very tired all the time. After reading a little about this I wonder if I have fibromylagia, but I honestly don’t know. So many of the symptoms mentioned here have happened to me at one time or another, while others have not. The scalp pain is very familiar, the sleep problems, the pain symptoms (but chest area only, nothing in my feet or limbs), the depression, lack of concentration and memory problems, etc. However, how can I be sure that this is what’s happening to me? The ratio of male to female incidence is something like 1:9 [wikipedia] so that would put me in the more unlikely catagory. Also, what can my doctor do to help me? I really, really want to stay away from some prescription I’d have to take for the rest of my life if I can’t help it. Not to knock the miracles of modern medicine, but the last thing I need is a ketamine addiction or another monthly bill.

May 5, 2012 at 9:04 pm
(105) Richard says:

Thanks for this article, like so many others I feel a sense of relief in discovering this site. My issues have been around for years and seem to be getting worse as I get older, I just turned 60.
The pain I predominately experience is in a band around my belt line, I have been jokingly calling my condition “cancer of the pants line” for years. I have irregularly attacks but once a month would be a fair average. An attack will last two or three days and I have not been able to isolate a trigger for them. I have had the same stupid looks from doctors so gave up there after an xray of my spine didn’t show a nerve issue.
I too can’t stand tags on clothes or loose nylon threads. I can’t say it is debilitating yet but it goes close when apart from the sunburn sensation I get the shooting electric shock pains that make my scream. I will try the emu cream as there seems to be some consensus that it does give relief. I live in Australia so I might just go out and hug an emu and see if that helps.
Regards

May 7, 2012 at 10:00 pm
(106) Ashley says:

This question might be stupid but when I touch something cold or freezing like a can drink or a frozen food I have severe pain in my finger tips. Like a horrible burning feeling and my fingertips turn bright red but I’m usually not holding it for long at all so it’s really weird to me! Could this be related? It just kinda freaks me out sometimes because i can’t hold anything cold for a long time.

May 20, 2012 at 5:25 pm
(107) Christi says:

I have the “sunburn” pain too from fibromyalgia. I have sisters that have had shingles and they describe the same feeling when they have a breakout. I seem to have the pain after stress in my life like someone could have when a shingle outbreak is triggered. My pain is on my butt, around my thighs and on the pads of my feet. Tramadol helps and Lyrica has controlled it quite a bit. I know others that have the same skin pain and have fibromyalgia.

June 11, 2012 at 10:57 am
(108) jennifer says:

thank you for this site. my legs have burned like a sunburn whenever i touched them or put lotion on them or put on leggings. I have had atypical trigimenal neuralgia for 9 years and taken lots of different meds for it. now I am on 600 mg of topomax a day. but it is nice to have a name for what is going on with me.

June 19, 2012 at 6:25 pm
(109) Linda Bryant says:

I’ve been to a doctor years ago to find out why my skin pain was happening. He ruled out arthritis and put me on an antidepressent. I went back to him later for something else and I told him the antidepressent was helping. He did mention fibromyalgia years ago but denied he told me I had that. In fact he came in the room and said, “I heard you have strange symptoms.” I just gave up. I can hardly stand any clothes on my legs. My bra drives me crazy and the tightness causes extreme discomfort. If my granddaughter gets a cut, I get a sudden shock of burning pain on the skin of my legs. I sit in front of an airconditioner because the cold eases my skin pain. The pain is like a sunburn. I’ve never seen anything like it. I thought I was crazy like everyone else does. I really felt like I wasn’t going to be able to live. That is until my granddaughter happened on this website. Thank you all for your input. By telling about your symptoms, I am able to cope with the unusual pain. Neurontin helps me sleep and helps relieve the pain. I was given that medicine last year by a nurse practiioner because I complained about the unusual pain. But they still don’t diagnose me with fibromyalgia.

July 12, 2012 at 4:42 am
(110) Amanda says:

And another visual Allodynia: The cubism era of Picasso (and other artists) feels like razors to my eyes which causes me some trouble in my art class as a Fine Art Major, but I wont look at them any more than I have to and I wont say I like them.

July 12, 2012 at 10:26 am
(111) Amanda says:

Where is my first post?

July 12, 2012 at 10:50 pm
(112) Craig says:

About 4 months ago my left hand between thumb and first finger started having searing pain whenever slightly touched. At about the same time both elbows started having same symptoms. Now right under my kness I have it also. If I even slightly bang these areas, there is a searing pain that lasts maybe 30 seconds. Then it goes away. Any sudden distinct pressure seems to make it occur, like waking up in the morning and putting pressure on my elbow as I get out of bed. My pain goes away quickly, so I feel for all of you who have persistent pain. But for those 20 or 30 seconds, it is mind numbing. I am thinking that it is a prescursor to Shingles. I guess I will wait and see. Also, rubbing my hand makes it feel really better. It is almost like my hand is begging for attention.

July 30, 2012 at 9:41 pm
(113) Terrie says:

Wow! unbelievable! I just thought i”d google what causes skin pain and I couldnt believe my eyes! Iam not alone! my skins been hurting for awhile off and on so I didnt read to much into it until yesterday and today when the pain seemed almost unbearable I’am feeling a little scared cause it usually seems to go away but not this time, feel like I should go to the hospital? How can I work like this?

August 1, 2012 at 11:43 am
(114) Vinsere says:

I’m so glad to see that I’m not the only one with skin that hurts. When I try to explain it to my family they give me the deer in headlights look – they just don’t understand. I have Fibro and arthritis. I am fortunate to not have to work so I usually wear loose pajamas most days, and I only put a bra on if I have to go out. I take Tramadol, Flexeril, and Nabumatone…those don’t even take all the pain away but they help take the edge off. I’m only 45 and wonder if this is going to get worse and worse. I do notice that the times that I can exercize (carefully) and soak in a hot tub it really helps. I agree with the person who talked about eating healthy…it does make a difference sometimes when I eat healthier. I was almost in tears reading everyones comments on here because I see that I’m not alone, and it’s not in my head. I am also sad for all of us..hopefully someday they will find something that really helps all the pain. God Bless you all.

August 1, 2012 at 10:27 pm
(115) Katrina says:

Like all of you I suffer from extreme skin pain but was thankfully diagnosed with it approx 7 years ago and I also have fibro and osteoarthritis, diagnosed about 15 year ago. I have tried many medications over time but NONE seem to work at most they take the egde off but do not really help. Like most of you I have trouble with wearing certain article of clothes ie bra, tight fitting tops, jeans or trousers, my solution is to wear loose fitting clothes ( tags removed) or if possible stay in pjs as much as possibe.

My mother and sister were diagnosed with fibro we were told that it was triggered by an extremely stressful event that we suffered through.

I am lucky that I have a very supportive doctor, as for family the only one that understands is my sister, mother passed away, everyone else thinks I am crazy.

I also find that I have trouble with words, you can be talking to someone and either forget what word you want, or you say what you are thinking only to have the person you are talking to look at you funny, you have actually said something totally different to what you thought you had.

As for sleeping – what is that? For months now I have had trouble sleeping.

I have had an increase in weight gain,I have put it down to lack of exercise, medication and the chocolate I take for stress ( my own prescription).

Unfortunately I have been told the allodinya, fibro, arthritis will never be cured and one can only expect it to get worse with age. My pain is getting worse with age, the body is getting less mobile to the point that I have trouble cleaning my self after passing a bowel movement.

Some days all I want to do is stay in bed, but that does not achieve anything, body is still painful.

So to all my fellow suffers I am thinking of you and hope that today is one of your ” good” days.

August 12, 2012 at 12:39 am
(116) Kelli Wright says:

I appreciate all the information. I wish my insurence would be active so I can get my medication’s for my chronic fibro pain,anxity,chronic fatigue…..etc :( I’m so tired of being sick &tired!!! I want my life back!!

August 28, 2012 at 5:16 am
(117) Maureen says:

I have experienced this for years and never knew what it was. I find that a hot bath soothes the pain and touching anything cold is very painful.
I normally feel it in my legs.

August 29, 2012 at 10:04 pm
(118) sabrina says:

This is my first succesful search on what this pain is my doc wasn’t even sure. I startetd having symptoms in 2008. Since then a steady decline in physical comfort. I have a flare every 6-7 months or so and each time I am left with a new complaint. Its hardfor mr to explain my pain to my hisband my family and friends its also frustrating with anyone but my doctor! I never know what I’m going to feel like when I wake in the morning….bad oR really bad. Some mornings I can just barely walk. My husband will have to hold me up tho we do sneak in an extra bear hug. It is such a betrayal of ones body as it gives out. one area at a time. I currently take oxycodone 30mg 4 times daily
norco two 3x daily
Neurontin 3x for a total of 1800mg daily
Soma 350mg three xs daily
Ibuprofen 600mg three times daily
Ativan 1mg prn up to 4x daily.
Iam seeing a pain management dr on Friday for the forst time. I’m scared but I hope its for the good. The pain meds I listed above reduce the pain but not enough. Also we have neber addressed my skin pain/sensetivity issues so I hope he will act on it my husband and I are those touchy feely people and he can’t rub my shoulders and back(the first place one reaches for to comfort another). I’m heart broken and long for my life back I realize its gone but id like enough pain relief to begin the next chapter. Good luck out there…
On a wing and a prayer

September 2, 2012 at 4:40 pm
(119) Lisa says:

Hi
I have recently developed these symptoms over the last couple of days. It started on the one side of my back and went partly round my middle so I was convinced I had shingles. I saw my doctor who wasn’t convinced but he also offered no other explanation. SInce yesterday it has travelled to my shoulders, arms, groin and upper thighs and feels like I’ve got sunburn. I’m wondering if the condition is linked to stress as I have recently separated from my husband (through choice) and have since been experiencing a lot of trauma and negativity. I’m wondering if this is going to leave as quickly as it arrived or if I am stuck with it for life. I’m taking Ibuprofen to try and calm the symptoms but don’t want to pop pills for ever. I’m not sure if it’s linked but I also suffer from Coital cephalalgia (sex headaches) and have had a few of these/migraines recently. I’m just glad I’m not the only one going through this as I was starting to feel like I’m going mad or suffering from a really serious illness. I’m going back to the docs in 2 days but am not holding out much hope for him to understand the problem. Thanks, Lisa

September 7, 2012 at 1:10 pm
(120) Gail says:

When I went to bed last night I was fine. Upon rising this morning, my upper left thigh (the skin) has a patch (no rash or redness) that is so painful and I have a shooting pain that shoots through this area to my groin. It also hurts to walk, similar to muscular. I have been searching on-line for some explanation and this is the first site that I’ve come across that has continuous postings from people with similar symptons.
I just now returned from the restroom and there is no rash nor redness. However, the area is warm to the touch and hurts like crazy. I am perplexed. Some of these previous posts have been helpful…any others? Thanks.

September 18, 2012 at 12:43 am
(121) Shannon says:

Wow, so glad I found this post. Ialso have fibromyalgia didn’t even think my skin feeling like it was on fire was a symptom. Ever since I can remember I haven’t been able to touch my own skin or anybody else, I seriously feel like rogue on x-men lol. I’m going back to my doctor in a few days to have him look into this, I hope they can find a way to make the burning pain go away, I miss touching my hubby and kiddos.

September 23, 2012 at 2:00 pm
(122) Linda Mason says:

This site is fantastic. I’ve been experiencing bizarre symptoms for about a year and I’ve tried to ignore them, thinking that eventually they would go away but, of course, that hasn’t been the case. It started with pain at the site of my bra clasp. I would continually ask my husband to check my bra to see whether a hook was sticking into me and I eventually started cutting off the tags. Since then I’ve experienced pain in my thighs, stomach, entire back and shoulders. And–of course the pain is always a result of very light touch. I often have itching on my back and when my husband scratches it, I’m fine. But–if anyone gently brushes against my skin, it’s awful. Also, as others have mentioned on this site, I have periodic difficulty remembering simple day to day words. I have a doctor appt. next month and I’m afraid that she will think I’m crazy as so many of you have mentioned was the case when you saw your doctors. But–if she has any words of wisdom, I’ll certainly share them with all of you.

September 24, 2012 at 12:09 am
(123) bobM says:

doctors say mine came from Lyme. They treated me 3x for Lyme over 3 yr. period. The pain started as burning under my arms and worked it’s way down my back, around my hips and into the groin areas then into the butt and down the back of the legs to the back of the knee. The pain consumes me. I’ve had 4 nerve blocks performed in the groin areas and lower spin with very little success. Burning skin gets worse if I get in the sun for ten minutes or so. Sun makes my eyes hurt. Only Hyprocodine seems to knock it enough to stand it at all. I take it with ambiem every night and usually fall asleep but if the pain is to severe and gets ahead of me there’ll be no sleeping that night. The pain causes my heart to rate and skip causing me to go into A=FIB. Been hospitalized 5 times now because to get the heart back into a sys. rhy. they have to first get the pain levels lowered. Sometimes, usually at night, the skin feels like it’s being burnt but it mostly feels just like a really bad sun burn. I somethings get redness in the arm pits and in the groin which I use cool water or ice on to ease the burning pain. The muscles seem to weaken significantly as if it’s all in the same accord as would be with only one diease. They say the Lyme is dead but it damaged the nerves covering and will likely not be repairable especially at age 59. The pain causes the heart beat to get mixed up making the whole thing terrilby wrong. No one can take being kicked and burnt in the groin all day long. I sure can’t. I read all you folks write hoping for a miracle. My miracle.
thks. God bless us all
bob

September 24, 2012 at 9:48 pm
(124) Sarah says:

I never knew what I felt had a name until a friend researched this for me several years ago. I am already on venlafaxine so it was not as bad as when I was growing up. My sensitivities are hair/scalp pain, arms, shoulders, back, sides of my torso, and thighs. I also bruise incredibly easily. A related thing that comes and goes is a sensitive stomach. Sometimes for weeks I cannot keep much down, nomatter what the food type. Then it goes away for a few months. But it recurs several times a year for the past 7 or so years. I simply explain to my friends to hug me lightly, and please don’t pat me on the back/arms or play around physically with me. Although its embarrassing to bring up, my friends are quite understanding and don’t try to tell me I’m just making it up, which seems is a common response to unidentifiable pain. Clumsiness on my own part seems to get me in more trouble than anything!

September 30, 2012 at 7:06 pm
(125) Houston Mason says:

I wake up every morning feeling the onslought of flue. My muscles ache and my skin hurts. I have been under the care of two very thorough MD’s for the past 20 years. I have had every test they can think of. No solution except Hydrocodone 10-500 6 times a day. If I take two of these at 6:00am and another at 10:00am I can be a normal person by noon, but after 4 hours they wear off, so I continue taing them until 10:00PM.

No other pain medicine works at all. Vicodin, Morphine, Demerol, etc. have no absolutely no effect on me except to make my mouth dry, which (Thank God) Hydrocodone doesn’t..

Please don;t ask if I have taken any particular test. The answer is yes. Does anyone have any ideas. I would like to get off these pills.

October 7, 2012 at 2:25 am
(126) Linda Mason says:

I hope that I’m not getting excited prematurely but for the last two weeks my skin sensitivity problems have greatly diminished. I wrote a few weeks ago and discussed the bizarre symptoms that I had been experiencing over the last year. Well, a few weeks ago, my husband (a retired pharmacist) suggested to me that I should cut down on the dose of Niacin that I’ve been taking and that perhaps I would see a difference in the way that I’ve felt. So far it’s been like a miracle! I had been taking 250 mg of Niacin every morning and 500 mg of Niacin every night. I cut out the morning dose completely and within two days after I stopped, my skin sensitivity/pain were almost gone. Again, I might be getting optimistic too soon but I couldn’t wait to mention this in case others on this site are taking high doses of Niacin and might benefit by cutting down the dosage. I’ll write another update in a few weeks to let you know if the lowered Niacin dose is still working. I hope and pray that this easy possible solution will help others suffering from this terrible problem.

November 5, 2012 at 5:04 pm
(127) sunnyflowernz says:

I get the pain on my skin every day, I had a heart attack in aug and was diagnosed with diabetes so on insulin, I get this pain my skin is sensitive all over, worse from about 4 pm and as the day wears on gets progressively worse, can feel my clothes against my skin and I crawl into bed early as I cant stand it anymore, I am going to tell the dr when I go but are they likely to listen, this is wearing me out I am exhausted all the time, sleep in the afternoon always exhausted. :(

November 13, 2012 at 10:39 am
(128) how to talk to girls says:

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November 18, 2012 at 6:10 pm
(129) Donna says:

Wow, I was diagnosted with Fibro 5 years ago and recently I have noticed that my skin hurts to the touch very much like a sunburn. I thought it was my imagination but I am tired of the pain so I looked it up to see if something would cause this and I was shocked it was part of the Fibro. How much more is there to this disease? How much more do I have to go through?

December 11, 2012 at 7:48 am
(130) evette says:

oh my gosh! i had been in hospital for a couple of weeks with other problems, when i started to get the symptoms of fibro, spesh in my legs. Docs called it neuropathy but since ive been home and googles it, I will be mentioning this condition when i see him next. I also thought I was going CRAZY and it was so hard to explain to people what I was going through and the way they look at you when you try, but now I have a diagnosis, Im hoping I will not have to go through the agony I have been experiencing all these years!!!!!

December 19, 2012 at 9:06 pm
(131) Vincent, Singapore says:

i’ve been diagnosed with tactile allodynia and have finally found out why my lower left ribs running along to the side was sensitive to the touch.

symptoms: over 1 year of unbearable pain that felt like sunburn whenever i touched or when my T-shirt brushed over my lower left ribs, the feeling of ants crawling… what feels like muscle ache, tender and ‘bruised’ as if someone had struck me. there is no rash, no visible skin condition, no swelling. just painful and tender to the touch.

i was lost and frustrated like all of you as i didn’t know where to seek help.

i finally went to a Pain Management clinic to sought medical attention.

After ruling all other possible underlying conditions like shinges etc, the doctor (an anesthesiologist in the field of Pain Management) told me i had intercostal neuralgia (http://www.localhealth.com/article/intercostal-neuralgia)

He did an intercostal nerve block jab to determine if the nerve root is causing the pain. The result was immediate. i feel between 85-90% better.

I’m so relieved! Now at least i know what’s causing the pain… possibly a damaged nerve or a pinched nerve in the spine. I’ll be seeing the doctor again in a month’s time to determine next steps.

December 30, 2012 at 12:30 pm
(132) louise says:

Hi finding all the comments so helpful. I think my family think I am making it up as there is nothing visable. I have exper
ienced the hair hurt (actually more like the parting) Before Xmas the skin on my jaw and my ear were sore to touch then recently my upper back was so irrited as if there were mites in it. My clothing was uncomfortable and now the skin on upper right back around to under right breast. I was afraid it might be internal shingles as I get very painful shooting or stabing pain which gives no warning . Is this familiar to anybody?

January 6, 2013 at 10:02 am
(133) Amanda says:

I’m being monitored to see if I have Fibromyalgia. One of the symptoms I’ve had for years is this sensitivity to touch. It’s not a constant problems, I have what I call flair ups.
Sometimes if I’m feeling really ill, or excessively tired then my arms and sometimes legs will be extremely sensitive touch.

If someone was to run a finger lightly across my arm I would get this pain that almost feels like burning!

Unfortunately I’ve not found any way to ease it yet, just have to wait til it fades :(

January 19, 2013 at 6:37 pm
(134) glenda Winkler says:

started to have pain on the first area above the knuckle middle finger from the back of hand. only hurts when i touch both sides along the area but not it I touch the top or bottom of the finger.. The pain is sharp and burning, have not injury the area. It is where a ring would sit if you put one on. Any ideas????

January 28, 2013 at 7:00 am
(135) Kelli says:

OMG, this is amazing!!! I’ve experienced a sensitivity as well, while mine doesn’t feel like sunburn, I do feel very sore and like I have bruises….I’ve had every blood test under the sun and nothing…all normal…I have been on cymbalta for a little over a month now and haven’t gotten the pain….I missed my dose yesterday and have a ” bruise” pain all over my body..linked??? Maybe…I’ll take my usual dose today and see what happens, I think it’s due to the nerve damage in my neck from the herniated disk I had…..

February 18, 2013 at 6:08 pm
(136) Kristi says:

Wow this is amazing. I never knew this was real, I always thought it was just me. I never knew what it was or that it was affiliated with my Fibro and sciatica. Mine usually runs from my rear end all the way down the back of my legs to my toes. Nothing I do helps, I just have to let it run its course until the next flare up. I hate having to try to describe to how my skin hurts, it is the hardest thing to explain. I’m glad to know that I’m not alone in this. I wish each and every one of you suffering with this the very best of luck. Thank you for sharing your stories.

February 22, 2013 at 1:48 am
(137) Kymberlee says:

I have had Fibro for almost 2 yrs now, having developed it at age 40 after a minor back injury obtained at work. The pain in my back oddly “traveled” to my legs (thighs) and since then the list of symptoms is endless. The strange thing is that some symptoms present for just a few weeks and disappear as abruptly as they developed. The pain was so bad I could not move, not even get out of bed. I have been given a combination of meds that has worked miracles with my wide spread pain and the pain in my joints. And another med for the “fog” that has helped some. But nothing has help my allodynia. I have it everywhere from my scalp to my feet. Taking a shower is like going into a boxing ring and getting beat up. I wear loose cotton pants and shirts and resemble a “slob” because I just can bare to have “fitted” clothe, I don’t usually wear a bra unless I am going out and that is rare and when I put one (I only fasten one of the snaps at the loosest fitting) and then its just a matter of “biting the bullet” till I get home. I can no longer treat myself to mani/pedicures as before. I just can’t tolerate the touching, filing or massaging. Can’t wear jewelry either. I have a similar condition with my hearing, I can no longer tolerate hearing multiple conversations going on at once and so forth, (that’s called Hyperacusis) I went from a 117 lb active, employed, attractive, fun woman who exercised 4x a week to a 150 lbs (some of it is swelling) inactive, isolated, unemployed, morbid “slob” that can’t wait for this journey called life to end! No not suicidal just “done” . Most doctors don’t have a clue about this condition, some believe its due to stress, some to dietary habits, some to over active pain receptors and the list goes on. But the one thing that is certain is that the consistency among patient’s symptoms and occurrences are few.

February 23, 2013 at 4:13 pm
(138) Colleen says:

I have had this for years off and on, it usually is on my waist, thighs,and now on the inside of my arm. My brother has fibro and I’m sure I do as well. And also was told by a dr that I maybe suffering from it too. I’ve have arthrits flare ups for the last 5 years (62yrs old now) I had my left knee replaced 2 years ago,and have had alot of aches and pains, but nothing like the aches I now have deep in my muscles. My Dr put me on arithect and it seems to have helped.It has’nt stopped the burning skin though. I’m now on disability as I’m unable to work, I would not to beable to stand for more than1 hour at a time.I’m glad I found this site as it has answered alot of questions I’ve had lately.

February 24, 2013 at 11:35 pm
(139) Heather says:

I randomly have skin pain. Like some have said feels like a sunburn. Right now it’s on the left side of my face. Hurts to touch. Shower water hurts even. I’m 31 and my mother has fibro. My brother gets the same skin irritation. His wife thinks we are crazy. Mine is usually on my face. Just one side. On the tops of my legs and thighs usually both. Sometimes on the inside of my arms. But only last 1-3 days. I’m not really sure what causes it. I figured some kind of nerve disorder. It’s good to know other people have the same thing and I’m not crazy. Lol.

March 20, 2013 at 11:56 pm
(140) Me at Home in bed says:

Just to add my few pennies worth

Blood pressure cuff causes pain
Scratching an itch causes pain like pressing on a bruise.

Only areas affected seems to be upper arms, shoulders and bum area.

March 20, 2013 at 11:56 pm
(141) Me at Home in bed says:

Just to add my few pennies worth

Blood pressure cuff causes pain
Scratching an itch causes pain like pressing on a bruise.

Only areas affected seems to be upper arms, shoulders and bum area.

March 29, 2013 at 3:09 pm
(142) judy says:

HI just came across this site. I have had chronic Si and hip problems for years. I have also had this skin feeling for so many years I have lost count. I never really told me doctor as my other issues were much worse. I was trying to describe it to my husband – I had said it was like a razor being pulled across your skin but the sunburn analogy makes more sense. That is what I feel. It is there but manageable just bother some. If you push hard an spot it does not seem to hurt , it is the lighter pressure or sometimes no pressure that hurts. I thought I was weird, I told my doctor once about it but he ignored the comment. I can ignore sometimes if doing other things but at times the pain is there. NO one has found out why we get this. I am sure I do not have fibro as I do not have the multiple trigger points ( although some back pain was fixed by trigger point injections – my Si still hurts). There must be a reason and a cure. I have taken every supplement I could find, maybe they keep it low. I do take lots of Vitd3 and fish oil and hydralonic acid. Thanks for all the posts. Nice to know you are not alone. Best of luck to all of you – we will find a cure.

April 9, 2013 at 12:13 pm
(143) Shirley says:

Wow, I finally decided to try to look up how my skin hurts & found this site……….
I truly understand how many of you feel for it is simply comfortable & very painful.
My occurrences aren’t as often as most fortunately but sure make you aware of having clothes & shoes on when it is full blown. Mine is always my left side, starting at my butt working down into my foot where wearing a shoes, sandal or anything is painful.
Never know how long it will last either, last few nights in bed just move to find a cool spot for my foot to give it some comfort.
I have never had it on both sides at any given time either!
Certainly hoping for the best for all of you suffering, thanks for sharing your ideas & thoughts about this too…….
Would be nice I think if a Doctor would truly listen to figure this out for all of us to get relief soon!

April 21, 2013 at 1:18 am
(144) Doris says:

About 5 months ago I started to have a burning pain on my legs and butt area. I then developed a rash an was put on steroid cream and steroids. The rash went away. The skin sensitivity would come and go. For the last 2 months I cannot stand my clothes touching my legs, at times it is unbearable. My Internal Med Doctor ruled out other disease’s and last week diagnosed me with fibromyalgia. Just like others has said, it feels like razor burn or sunburn. I have Chronic Myeloid Leukemia and take oral chemo daily and will have to the rest of my life. It limits me from the other medicines I can take so this may be an interesting jourmey.

May 4, 2013 at 6:41 pm
(145) affillia8 says:

No 79
Alister, yes I hear you, I also get most of the above however at the back of my neck and around the hair line region a lot.
PS
Does anyone experience this pain along the back of their arm where it burns, tingles and aches?

May 15, 2013 at 12:05 am
(146) Love Jones says:

I am 37 yrs old. Diagnosed with fibromyalgia about 20yrs.ago. I quit smoking a big agitator! Pop,sugar makes symptoms My worst pain is in my scalp,upper body,and left side of body. When sitting on toilet legs go numb. Pain after sex mainly after orgasm causes bad leg pains. I get a lot of swelling in face,feet,ankles,legs. Painful shins,rain and cold really bring on the pain! Ibs is a big problem. A lot of times you feel as though you have the flu…weak,fever. I have to go through emergency sometimes the pain is so severe they have to administer pain meds through I.V if you have a doctor who doesn’t take you serious find.another one! Your well being is more important than what they believe in. This.disease is real as we can all clearly see. Though painful at first massage helps it manipulates the tissue relieving pain and toxins in,the body the causes us to,have more pain and really helps with IBS symptoms. Its worth the few minutes of.discomfort. Especially if the therapist use biofreeze or emu oil. I am,a victim,according to my drs,one of the most severe cases. I’m telling what I know! It takes a combination if things,breathing techniques,eating right,exercise,massage,physical therapy,mental therapy,meds for depression,,pain meds,no tobacco,no alcohol,warm water therapy,supportive people in your life,and a will to fight!! This is our survival kit. Most importantly sites like these so that we know we’re not alone. Be blessed..be healed!!

May 15, 2013 at 12:21 am
(147) Love Jones says:

Wow @ Kymberley I totally understand what it’s like to be working,active…to being a loner! No one understands your pain unless they have it themselves. Otherwise,people think you’re lazy or want attention.No worse feeling!! Sometimes the pain in my hips is so bad you can’t get out of bed,and the chest pains mimic a heartattack. Who wouldn’t want their life back!! :-(

May 19, 2013 at 5:32 pm
(148) MONTYJOY says:

I have suffered from fibromyalgia for a long time now but recently getting worse. I’m on 200 amitriptyline, dihydrocodeine, 1200ibroprofen every eight hours. Recently it has been very painful to touch my skin as though I have a trapped nerve right under my skin the pain is searing, I get this on my elbow, forearm, thumb and upper leg. Also suffer from severe body pains. Thinking about seeing a doctor again as its the worst it’s been I normally can just sit there in agony and no one will notice now I’m actually moaning not screaming just moans when the electric shocks come on. I got that thing with my waist I honestly thought it was something else went for scans and such like the doc thought it might be my gall bladder but it was actually my waist band touching my skin it felt like someone twisting the inside of my stomach and the docs found nothing so this explains a lot thank goodness for that at least I know now, off to docs to see why they didn’t pick this up……

May 20, 2013 at 1:57 am
(149) Sophia says:

I’m 12 years old and I just developed this pain in my left thigh around 5 hours ago. It hurt so bad when anything touched it, or even brushed against it. I couldn’t figure out what it was, because I didn’t have any marks or anything and I hadn’t bumped into it anytime during the day. I’ve had this around 3 times before on my forearms, but not as bad. So I looked it up and I found this article and was very relieved to see that it happens to everybody. It really helped to know what was happening and to know that I wasn’t the only one.

I took some acetamin (i think its codine) and it really helped. :D

May 21, 2013 at 8:03 pm
(150) Michael says:

Fantastic to read all these comments and fortunately my wife found your site as she and the family thought I was going nuts trying to describe the feeling. I occasionally suffer trigeminal neuralgia so for Deano comment 96, check that this is not what you have with the headaches. These baby’s are bad enough to make you consider alternatives to life…thus the term to describe this condition is suicide headaches.
The tactile allodynia case with me is generally on one side only but can vary on sides and positions. Currently I can’t bear a touch on my right chest, under arm and shoulder blade. I put up with the pain as it usually goes away after 2-3 days and may not reoccur for weeks or months as with the neuralgia. Nudity is one answer but I don’t think my work buddies will agree with this treatment.
And I don’t have a bra to take off so that’s out as well.
Good to hear that Lyrica is effective for some as that’s the medication I take for neuralgia when required.
Great comments everyone and thanks for your help to this pain of a problem.

May 21, 2013 at 8:38 pm
(151) Michael Burton says:

Great comments and even better to know that I like the rest of you are not going insane. My family can’t understand what I am complaining about with this problem…now they get it!
I currently have the same issue as described on one side through my chest, under arm and shoulder but it can be anywhere, at anytime and may not reoccur for weeks or even months. Any shiver is like a hot knife going through me.
One solution is to ‘go naked’ but I’m not sure my work buddies will agree with the treatment. And I don’t wear a bra so that’s out as well!
To Deano (comment 96) I suffer from odd bouts Trigeminal Neuralga which is a massive headache issue so read up on this as my symptoms as it sounds similar to your issues. I take Lyricia for this which from reading the articles above, could be a medication for Tactile Allodynia
Thanks for your comments. The support is sensational.

May 22, 2013 at 8:54 pm
(152) Joy says:

I have been experiencing my skin hurting for years! We thought it was a family thing since many of the women in my famiy experience it as well. It’ll hurt on my sides/hips, legs. Arms, hands and scalp. At one point I too thought it was shingles. That freaked me out just a bit! My dr just diagnosed me with fibro 2 months ago. To be honest, I’m still iffy about it. The reason is I was also just diagnosed with a colloid cyst last week. I’m wondering if that has anything to do with it. I have to have a craniotomy next month to remove it. It’ll be interesting to see if the fibro symphony’s ease up or if this is really 2 separate issues.

June 3, 2013 at 3:06 pm
(153) Mike says:

My circumstance involves Ultra sensitivity to lying on anything that is not Cool or PERFECTLY smooth.If a bed sheet has a wrinkle in it, i will feel it uncomfortably on my back.The pain mgmt. is giving me epidurals for this but they do not help too much.It is like the nerves are on the outside of my body. I’ve had this condition for years.I wish i knew what this was.!!
.

June 6, 2013 at 10:44 pm
(154) Charlene says:

So glad I found this site. I’ve been experiencing skin pain off and on for years. This pain comes and goes, but I have found over the years that poor diet seems to also attribute to it. I wore some new high waisted jeans today and my skin all the way up my sides , even under my bra, hurts now. The jeans were snug, but not too tight. I never thought the clothing would set this off, but after reading these comments, I think I’ll stay way from higher waisted and snug things. At least I know now that I’m not crazy!!!

June 7, 2013 at 3:17 pm
(155) henderson says:

I am so glad to have found this site. I am having so extreme pain to touch on arms back and mu feet are unbearable. My hair is so tender as well. The Dr I went to for this doesn’t believe in fibrous either. Ian appealing my disability rift now but it is taking so long. I cant go to a Dr until I get insurance so I am in limbo with such pain.

June 9, 2013 at 6:28 am
(156) Sandy Wynne says:

So grateful to find this site! I started w/a “patch” of skin on the lower left side of my back a few days ago…it has since spread around to the front of my stomach and is extremely sensitive to the touch and painful. I have experienced “sensitive patches” on/off for years but they never lasted like this or were this obvious. I am also experiencing pain this time and not just sensitivity to touch. That concerned me but then I read several posts here w/others who have “electric shots” of pain. Over the years I have been diagnosed with many possible autoimmune issues and no solutions or help….chronic epstein barr syndrome, burning mouth syndrome, skin itching flare-ups, neuropathy in my bottom of my feet (altho’ I am not diabetic) twitching/cramping issues in my calves, etc..
I am very discouraged but it has been helpful reading the posts of others suffering w/similar issues. I do wonder if diet and stress are not part of the problem….I am going thro’ another very stressful time in my life due to family issues (all part of life’s journey!) and have not been careful w/my diet; especially after returning from two weeks in the Philippines visiting our son in the Peace Corps (!) :) I have an appt. to see my neurologist next month for a follow-up brain MRI due to the leg/feet issues that surfaced last summer. He wonders if I don’t have MS altho’ I am 66. I was also diagnosed with periacarditis 11 years ago and at that time the rheumatolgoist said I was only 5% of her cases; in other words, they did not know what was causing the extra fluid around my heart…it was not bacterial related. At that time she said it might take 10 years for something like Lupus or some other autoimmune disease to surface….I have had blood work every six months to follow-up since then. Right now, as I write, I am experiencing an uncomfortable pain radiating thro’ the sensitive areas of my skin/body….which concerns me.

June 12, 2013 at 11:15 pm
(157) Sharon Laakko says:

Anyone have metal in body causing these symptoms? How about Essure Birth Control Coils? Those mess up the immune system.

June 15, 2013 at 6:36 pm
(158) Trish says:

I have skin pain on my right side (only), neck, shoulder, entire outside of my arm. It’s been happening only for a few days, but it’s quite painful. Like others, I can feel it with no touch, a slight touch hurts badly, but firm grasp does not. The firm grasp actually takes the pain away. I have Grave’s Disease which is an autoimmune disorder, but no other thing going except a little arthritis. I’m 67.

I’m not anywhere near an expert, but it seems to me that we have several different things going here. We probably all have similar symptoms, but I’m guessing there is more than one cause.

July 5, 2013 at 10:25 am
(159) Susan says:

Gosh, I am not alone! I can’t sleep tonight; my legs and feet are driving me crazy. I was diagnosed with Fibromyalgia years ago and tried a gluten free diet which made a difference almost straight away but I ate bread today (I usually don’t) at lunch because I was out with other people and limited for choice and I am thinking that may have contributed.

July 17, 2013 at 1:12 pm
(160) Mandi says:

Hi there,

I have been suffering with allodynia since April of this year. I have seen a rhummi but he ruled out fibro because of my age, I’m on 25 (I think this is bad as you can’t judge it on age) I had a host of blood tests done too to rule out any immune issues / diseases which all came back negative. I then saw a neurologist who ruled out actual nerve damage due to reflexes been very good. She then diagnosed me with allodynia gave me gabapentin and sent me on my way. No information about this condition and no reason to why I have it. I also suffer with vestibular migraines which I know you can get allodynia but that is usually when your having an attack and usually located on the face / scalp.

So what I have done so far is

I get cool showers instead of warm / hot ones
I use ice packs on a night on my feet and near my head to keep me cool. I seem to have a broken thermostat as I always feel over heated even if I am cold if that makes sense.
I try to wear loose clothing although I prefer leggings as its tight and stops anything from rubbing. (I have all over body allodynia by the way every area is affected.)
menthol aqueous cream which helps when I am burning inside.
I take an anti histamine daily which seems to help with the nettle feeling
Ive been getting acupuncture which has helped a little with my skin as I wasn’t able to wear socks as it felt like sandpaper on my skin but now I can and also my lower arms. however the tenderness is still everywhere. I will be starting vit d again too seen as a couple of people have mentioned this. I also take tramadol for the pain too.
I have also read about desensitization aswell which I am going to try as thing can reduce the tender / sore skin too
That’s everything I think right now
Hoping to speak to a few people to get other ideas and to just have a general conversation as I don’t really know anyone with this type of issue. X

August 30, 2013 at 12:34 am
(161) Belinda says:

Husband has been suffering with this condition for 4 years now. Started out as sporadic, intense itching, then sporadic pain and now constant pain only present in his upper torso. More than a sunburn pain as described by many others. He describes his pain more like hot coals or his nerve endings being scraped by a hard bristled brush. Has been unable to wear any kind of a shirt whatsoever and is housebound because even the wind will bring him to his knees. Been to neurologists, allergists, dermatologists and there is no explanation for this. Had to quit his job. Went through all kinds of nerve testing and all was normal. Tested for 19 different illnesses and tested negative. Meds currently are Vicodin, Methodone and Lyrica and they only take the pain level from a 10 down to a 5 or 6. Only light touches bother but nothing firm. Does not feel muscular. Some doctors say over reactive nerve endings but have never seen anything so widespread or severe and don’t know how to treat. Note to all – U of M pain center has indicated there is a neurostimulator being used in Europe right now that focus on nerve ending pain which could be our answer. His current neurostimulator for general pain hasn’t really helped. Should be coming to the US in about 6 months. We have tried almost everything to no avail but will not stop searching for answers.

September 7, 2013 at 3:09 pm
(162) sophia says:

I blend plain outmeal till in a powder form … take about 3-4 tablespoons and add a table spoon of castor oil … and mix into a smooth loose cream by adding water … I apply like a lotion to my whole body . for about 10 mins before either laying in a luke warm bath or rinsing off with a mild shower … pat dry … it is very soothing to me .. and I hope will help any one else …. carefull because the oatmeal makes the bath slippery… xx

September 11, 2013 at 9:02 pm
(163) Becky says:

The soles of my feet feel as tho they are embedded in hot embers constantly. I am wondering if anyone has tried the Emu Oil for this?

September 23, 2013 at 2:38 pm
(164) Ian says:

I have found this thread whilst surfing the internet. I have had an unexplainable pain on both the front and back of my chest (left hand side of my body only) for a week now. I hope this is not a permenant thing.

It feels like I have just had a tattoo done, the sore feeling in the days immediately after being inked (I have numerous tattoos, so know what that feels like)

Does this sound familiar to anyone else who has tattoos and suffers from this condition?

October 18, 2013 at 6:08 pm
(165) Philip McCloskey says:

I was diagnosed with Rheumatoid Arthritis 20 years ago (At age 24), and then with FMS four years ago. I’ve had this super sensitivity all of that time, particularly with clothing in recent years. In hindsight my father has mentioned recalling me suffering what appeared to be over the top excessive qty’s of pain as a younger kid following simple falls etc.

The comments are really great to read and thank you all for them. However being a 6’1″, 275lb MAN – I’m a little worried about trying some of the advice on bra wearing !!

I jest, but there is a very clearly larger percentage of ladies than men with FMS – could anyone tell me the percentages?

Great site, I get great solace from many of the comments – Thanks

November 7, 2013 at 10:21 pm
(166) Bobby says:

odd but the areas which are sensitve to touch may change. left forearm was so sensitive for months and then went away but area below my right knee was the same and later went away. or maybe I just stay so busy or so used to it I just mentally ignore it. Not sure. has anyone else had this experience where the sensitive areas change and are not always the same?

Thanks for your comments.

bp

December 2, 2013 at 6:22 pm
(167) Sophie says:

I’m only 16 and have just recently been feeling extreme sensitivity on my back. The teeniest touch makes me what to jump 200 feet into the air. Even when I’m just sitting, it’s uncomfortable. Both myself and my family have no idea what to to about it, as no one I’ve met has ever experienced it before!

December 26, 2013 at 4:09 pm
(168) Pam says:

The pain I experience is on my right hand. top of the hand between the thumb and index finger and around the joints. The only way I can describe the sensation is if you can imagine yourself going to the dentist for a filling and the dentist touches a nerve. It occurs off and on, usually every few weeks and lasts anywhere from three to seven days. The rheumatologist said it could be a pinched nerve but is really unsure. If anyone has experienced this, I would love to hear from you.

January 3, 2014 at 2:57 am
(169) Sandra says:

I live with the pain of Fibromyalgia, skin burning, muscle pain. My Nurologist prescribed Lyrica, the side affects is weight gain, no way will I take the medication among other side affects. I do believe this illness comes from some sort of trauma, either physical or mental, emotional leaving the body shocked to repair on it’s own and the process is painful in which we are all going through. They have not found a pain management in how to deal with this illness and until they have we have to on our own try and figure out by diet, or othe means to help ourselves with this pain. The holidays are over and I ate sweets like crazy and wondering if that had a bearing on my intense pain I am dealing with at this time. I feel for all of you and will continue in prayer and reading to find a way that will help us all.

God Bless All!

January 12, 2014 at 3:40 pm
(170) Pamela says:

Hi everyone,
My name is Pamela I have had fibromyalgia for four years now and have had it somewhat under control. I still have bad days with the cold weather such as acheiness and pain, and stiffness as well as zapping electric shock pain all over in different places you never no we’re you are going to be zapped. But I have been taking Lyrica to try and control the symptoms to a minimum and live a normal life as possible. I recently started feeling a burning aching extremely painful feeling in both of my calves in my legs. I have a vericous vien so I thought it was that but as I am reading through this it makes me question it I am going to the get a ultrasound on Monday not looking forward to that. I have also experienced severely itching skin. I hope this all gets better soon I am grateful I have a very understanding family and husband for this is very hard to deal with. Some days is just want to cry but I know it won’t help me. I also suffer from Chrohns disease I must remain strong for my family god help me with my strength and pain. May you all find strength and relief from your pain I understand what your going through I live and breath it every day. Pamela!

January 24, 2014 at 12:01 am
(171) Alaine says:

I too have had about 5 years of useless drugs and unknowing doctors. I stopped eating all fast food. And the migraines slowed way down along with the pain. If I drink soda or eat stuff like bacon or pre made food I just about die. The extreme cold winter this year has done me no favors. I would like to know how to keep up with it all I work and have 6 kids. Would hormone replacement work????

January 25, 2014 at 11:51 pm
(172) Ann says:

I have just starting experiencing this with a spot on my arm. No bruising, redness or swelling. Just pain when something brushes the skin on my arm. I have Multiple Sclerosis, which affects your nerves. I wonder if my MS could have something to do with it?

January 27, 2014 at 2:12 am
(173) Jacquie says:

I had fibromyalgia for 15 yrs now from car accident and recently that sensitive pain on legs from wearing pants I thought was dry skin. I also have Tension headaches my neurologist prescribes me Topamaxx so I can’t take any painkillers b/c of my chronic Depression/Borderline Personality Disorder (many attempted suicides before) I’m not allowed any pain pills. My family isn’t supportive of my sickness in fact they thought they told me I’m a waste to society I should go kill myself. I have bad allergies year round and take 20mg Reactine and has Asthma, and have Insomnia for 15 yrs; IBS I changed my diet and followed the Celiac diet to gluten free no sugar, caffeine, no alcohol, red meat, pork. Eat lots of organic veggies and berries has antioxidants, turkey, luv sashimi, mushrooms, tofu, I’m also Lactose intolerant I take probiotics from my natural path, I get Viatmin B6 B12 shots 2x per month it helps with Chronic Fatigue a lot with energy. I’m allergic to Ibruprofen I end up using my epipen so when I am in lots of pain I go for a pressure point massage to release toxins, Infared Sauna for 30 min daily helps a lot. Or buy a OSIM U Cozy on OSIM.com saves money. Something very healing in Japanese Onsen I visited Japan for a week I soaked 3 times daily my body never hurt at all and the air was clean. You can buy that powder try amazon.com. Most important 30 min exercise daily helps a lot, before I had a trainer I never felt any pain now ever since many more car accidents and recent TMJ back pain knee pain, I’m having anxiety attacks and 5’11 underweight 105lbs For IBS ppl try colon hydrotherapy it helps lots and massage your colon from bottom right leg upwards direction helps pain and movement, squeeze fresh lemon juice drink warm water, don’t drink cold water adds water retention. Suralose is in Diet Coke and Starbucks light syrup=Splenda gets stuck to colon replace w/Honey/Stevia

January 28, 2014 at 3:56 pm
(174) Tony (Wales) says:

Blimey, i have been suffering from burning skin pain in upper rear legs and outer upper back for years! I do have stretch marks there too.

It is horrible pain. Burning is the best way to describe it. Trying Vit E cream at the moment. Pain killers dont work much.

It does flare up with me as on occasions its not too bad.

It does make me depressed and very uncomfortable and anxious. Where it is with me it can be very painfull to sit down.

Pity there is no cure for this pain.

God bless you all

February 4, 2014 at 5:37 am
(175) Charles says:

I contracted genital herpes about 25 years ago. Every 5 to 7 I get an eruption around the pubic area that lasts for about three days. I can predict when the blisters are about to appear about 3to 5 days earlier. I get a sensation of pain to touch, especially when anything runs over the skin. This will last for about one week and then disappear. This time round however, the sensation has lasted for more than two weeks and am getting concerned. I’am 50.

February 23, 2014 at 5:38 pm
(176) Jean says:

Yeah, I have tactile allodynia. I’ve had Fibromyalgia for 10 years.

Clothes are uncomfortable, particularly underwear and bras. The heat from the sun also irritates it, or any contact, like stepping on a power cord or such.

I wear loose stretchy clothing. I’ve stopped wearing underwear. I avoid wearing a bra when I can (I only really wear one when I’m out in public).

I take tepid baths. Hot and cold temperature both hurt my skin, so the tepid baths helped.

I do yoga. It helps relax my body. It sort of helps with the clothing issue.

And tip: I’ve lost a considerable amount of weight. With Fibro, it’s hard to control my weight. I find that my body hurts less when I lost weight. Less pressure on my joints and such, so the pain decreased considerably. And the yoga really helped too. Just food for thought.

February 25, 2014 at 6:43 am
(177) Jane Doe says:

Hi I’ve been through the whole thing. I was diagnosed with Fibro when i was 15. The Stages i reached was that of a 40 year old. My legs would not work…i couldn’t get up for school. My normal GP told me it was simple fibro. Then when i was 19 my mothers friend told us to “Check your blood” and we did. I checked my blood and found it infected with a “bioware”. After Treatment through Rife treatments and a naturalpath I am almost Fibro free (or at least its dormant). I hope this can help someone else. I still have Pain in my right arm but I its a huge step from being confined to crutches to keep my legs walking…I know this wont help everyone but It saved my life

March 12, 2014 at 4:47 pm
(178) Dd79 says:

The sore skin for me is on the right side of my face and neck, also a little on my right arm. I also have a inflamed glad on that side of my neck which has been there for about 3 months (blood test all clear for anything untoward). Does anyone else have this presentation?

March 17, 2014 at 3:20 am
(179) jayne rhodes says:

I have sensitivity in my legs if the cat walks over my kness it is excruisiatingly painfull .I have always bruised really easily just a poke with a finger and here comes another bruise and yes stubbing a toe or standing on something minor hurts like hell It is good to know that Im not ‘imagining’ this and that other people out there also suffer thank you for an informative article

April 4, 2014 at 10:24 pm
(180) Dino says:

This site certainly has all of the info I needed about this subject and
didn’t know who to ask.

April 5, 2014 at 8:21 pm
(181) Linda says:

I am so glad I have found all of you wonderful people! I am just nodding my head in agreement with your comments about clothing hurting our skin and a wrinkle in the sheet causing pain. When I tell people it’s like a sunburn that goes clear to the bone, they look at me like I’m crazy.
Fortunately, I wear scrubs to work so I can wear very loose undergarments. All winter I have been wearing very soft long underwear. I cannot stand anything tight around the top of my leg or with seams pressing on my hip. I keep wearing the same old stretched-out bras because they are the only ones that don’t hurt.
Thank you for sharing your stories. I pray we all find relief.

April 20, 2014 at 6:29 pm
(182) Bambi says:

I was diagnosed with fibromyalgia 22 years ago and have really not had as much pain over the last couple of years. I have found accupuncture to be helpful, but haven’t been going as consistently lately.
In January, my husband and I were in Las Vegas and went to a show our first night. I realized I had this very strange sensation-my hair and scalp hurt intensely on my right side. This was strange but not too annoying. By the next day, however, I started having what I thought was chafing from my pants-pants I’ve worn comfortably for a while. There was no rash or anything…well, long story short, I have had this very irritating pain in my upper right inner thigh ever since and it is driving me crazy! I feel like such a slouch wearing the same ratty little knit shorts or pjs. Today, I wore a pair of denim capris as it is a nice day and we had company for Easter. I was so annoyed and worried by this pain all day! I am hoping something will just take it away! I’ll try the Vit D and I think I’m going to start sewing super soft cloth over the inner seams of my pants. I wish I was more of a seamstress!!

April 24, 2014 at 8:07 am
(183) Aly says:

Wow – I’m relieved to know that there’s actually a name for that. I’ve always described them as “pangs”. They come and go – usually when I’m extremely fatigued. But it occurs all over my body. Mostly my arms and legs, my flank, back, etc. I usually pop my Percoset (what I take for breakthrough pain). My overall pain is managed by a fentanyl duragesic patch. It works well for me. Otherwise an extremely hot bath or shower helps. I usually have to sit down in the shower, lol. A bath with boiled water added to it helps a lot.

May 9, 2014 at 7:13 pm
(184) brett says:

I just had my first episode at37.started on outside of hands burning up to my elbows to my upper back then around to my chest and moved down my torso to my inner knees.i had cold sweats for 4 days and numerous attacks of panic and head pressure creating noises in my brain it seemed to be located at the center of my head,i had lost 10pounds in three days and was suffering from vertigo like symptoms for 3days but i seem fine now,but can fibromyalgia be the link to all these symptoms or has it have to do something with the brain?i went to the doctor and he prescribed me xanax,doctors are a joke.i expressed my concerns with fear in my voice and it ended in a drug deal and a see ya!???

May 19, 2014 at 5:49 am
(185) diana says:

Does any one experience pain when touching? Like in your finger tips?

May 21, 2014 at 1:09 pm
(186) Luisa says:

Very interesting discussion post! For the last week or so, I have been experiencing tender skin in the inner knees area. It started with what looked like hives and was incredibly itchy. There is some redness and feels like a “phantom sunburn”, but the redness goes away when I massage the area. When I bend at the knees the skin feels quite tight. I’ve tried various lotions but they don’t seem to help at all. I’ve made an appointment with the naturopath to see what the problem is. I believe it could be Fibromyalgia – but that’s just a self -diagnosis. It’s a very weird sensation and difficult to explain, so thank you all for your posts!

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