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Adrienne Dellwo

Fibromyalgia Pain: New Guidelines for Opiates

By February 18, 2009

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In most cases, fibromyalgia pain isn't relieved much by opiates such as Vicodin (hydrocodone acetaminophen) or OxyContin (oxycodone). For some of us, however, opiates do work. Like many, I take Vicodin now and then for breakthrough pain. Unlike many, I don't have to beg my doctor for refills, sign a contract, provide urine samples, or jump through other hoops to prove I'm not abusing them.

With prescription drug addiction having become a serious problem in our country, a lot of negative attention has been focused on those of us who take opiates for chronic pain, even though studies show only a 3% addiction rate in pain patients without a history of drug abuse or addiction. Many doctors refuse to prescribe them at all, and too many of us have been accused of being drug seekers.

Now, in The Journal of Pain, the American Pain Society has published recommendations for how doctors should use opiates for treating non-cancer pain. (If your doctor balks at the mention of opiates, click here for the report and print it out for your next appointment.)

Basically, the report suggests that doctors:

  • Determine whether other drugs may work.
  • If not, assess the patients risk of abuse, misuse or addiction, based on personal and family history of drug problems.
  • Give written rules for those at high risk, requiring them to use one pharmacy only, take random drug tests, and make regular doctor visits.
  • Conduct regular monitoring - for low-risk patients, once every 3-6 months. For high-risk patients, weekly. (Can include pill count, urine screening, family interviews and prescription monitoring.)
  • Discontinue opioid therapy in patients who abuse the drugs or give/sell them to others.

What I really like about this is that it doesn't lump us all into one boat. Those of us who are low risk don't have to endure being treated like criminals, while measures are put in place to identify and monitor those who are at high risk. I hope doctors will adopt these recommendations so that we can have appropriate pain treatment along with safeguards to prevent abuse and addiction.

What do you think about these recommendations? Are you excited to show them to your doctor? Do you think they do enough to protect both low and high-risk people? What hoops do you have to jump through to get pain medication? Share your opinions and experiences by leaving a comment below!

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Comments
February 19, 2009 at 11:24 am
(1) typingterror says:

I think doctors give opiates more freely when patients have other proven illnesses that warrant these. I just saw my doctor and only had 4 Percocet left from 100 count bottle given in 2007 (from another physician). I stated I did not want to take pain meds on a regular basis as this is why Ultram and Tylenol #3 no longer worked on me. Usually I only need to take meds when humidity is 80 +. He had misconception that winter was in safe zone which is totally incorrect as with all the snow/sleet/rain humidity can soar and I fold. He therefore wrote a prescription for 50 Vicodin with directions 1/2 to 1 tablet three times daily if needed and to let him know if they worked. This made me smile as he finally remembered that I am so sensitive to meds that if they are going to work for me it takes a minimum amount. I had my little 3×5 card with all new info to tell him since last visit. When I mentioned coenzyme difference in our blood work he took off on an indepth discussion on this and I was totally lost but very impressed!

February 19, 2009 at 1:23 pm
(2) Glen says:

Why should the doctor have to assume the role of Big Brother?

Test this, record that, investigate something else and spend lab time on drug tests?

If your doctor is treating you for fibro, s/he should know your medical history. Investigating your family for addiction history is outside what I think a doctor is supposed to do.

Then again, I live in a rural area in Canada. We don’t have the same problems that inner city ghettos do.

February 20, 2009 at 3:55 pm
(3) Father Daniel Beegan says:

I also am one who is helped by opiates, in my case OxyContin SR. I have degenerative disc disease as well as FMS. My doctor did have me sign a narcotics contract, but to the best of my knowledge has never run a drug urine test. I, on the other hand, have never asked for an early refill, claimed my huge dog swallowed my drugs or that they fell in the toilet. So I feel I am treated fairly, and not because I am a clergyman.

February 20, 2009 at 4:26 pm
(4) Lynn says:

I don’t know the answer, but I do know I do not like being treated like I am drug seeking. When I was in the accident that caused my fibro the next night I had to return to ER due to urinating blood. I had tried to go without any pain medication from the ER trip the night before but found this night I could hardly move and was in extreme pain. Hence the Dr in charge accused me of drug seeking. I wasn’t. I came in due to urinating blood but also mentioned my pain. I guess that was a wrong move, but let me tell you that Dr was the rudiest Dr I have ever come across. I understand they probably have people coming in doing this a lot, but I have never been to or in this hospital, which is across the street from where I live. I have to say I was upset and insulted by this. Here is the biggest kicker of all. I am a recovering drug addict and had 18 years of recovery at that time, which is why I did not take anything the night before. Little did I know how much pain I would be in or what treatment I would receive the next night. And Glen, BTW….I live in No VA about 20 miles from the nations capital, DC in a very nice area, not the ghetto. And lived here my whole life, not the ghetto. Addicts do not just come from the ghetto. :-) So I don’t take any opiate drugs right now. Would I? Yes, if I really needed to. There are days that I hurt so badly that I wish I had something to take to make it go away, but really, what is there to take to make it go away?

February 20, 2009 at 6:50 pm
(5) Heather Jacoby says:

I’m excited for others, but not for myself. I thank God I am able to get by with mobic, tylenol and the muscle relaxants (they are the biggest help for me, really!)

I am fortunate to be able to work full-time for now. I hope i can continue this, but it also means that I have to be careful not to take medication that has side-effects that make it impossible to work.

I realize this can be potentially enormous for folks who do need opiates and have trouble getting them, and for that I’m glad.

February 20, 2009 at 9:13 pm
(6) WeeRoo says:

I tried a lot of pain meds, Ultram, Mobic, can’t remember what else. All have odd side effects I can’t tolerate. I asked to be put on Codenine because there are fewer side effects. So for years I have been taking Vicodin with great effect. I take a low dose and have kept it there for years. I take extra during weather fronts, hurricanes and weekend warrior gardening. I was however treated for years as a drug addict whenever there was a problem with my scrip, like if my mail order did not come through on time. I always felt it was my doctor who was pushing drugs at me all the time, how dare he treat me like the druggie! We finally had a divorce when he had me take a urine test. I got a cerified letter a few weeks later saying he could no longer accept me as a patient. When I called he refused to even talk to me. The problem was the test came back with hydromorphone so he accused me of taking a drup he wasn’t perscribing, and not taking the one he was. I was outraged because I had an 8 year relationship with this provider and now he won’t even talk to me. Come to find out Hydrocodone can metabolises in the blood as hydromorphone so he did not even know how to read the lab results. The good news is I found other doctors and am being treated like a human being again. In fact like a human being who deserves help!! Thank you, I can’t say enough what a difference it has made not being under suspect all the time. These doctors are concerned and want to make me feel and function better, and listen and realise patients can be somewhat aware of medical facts and research. Anyone who feels they are not being treated respectfully should start shopping for a better health provider immediatley!

February 20, 2009 at 9:13 pm
(7) Barb says:

I have had CFIDS/FM for 30+ years. The pain has increased steadily over the years. I also have heart failure and chronic low back pain. My MD prescribes opiates and does random urine checks and had me sign a narcotics contract. I think that he is feeling some heat about prescribing opiates because recently he told me that narcotics are not supposed to be prescribed to patients with FMS (per the medical board), but he does continue to prescribe them for me. I only take my pain meds when I am in pain and am trying to get some pain relief. I live with some degree of pain every day of my life and it is miserable! I do NOT take it to get “high”, only to relieve my pain, but at times it does make me feel uncomfortable when other doctors comment about the narcotics that I take. Why can they not understand that not all patients are drug seekers and need some pain control to function at a half-way normal life. If I had no narcotics I would probably be bedridden because my pain is very bad. Other friends of mine with CFIDS/FM are experiencing the same situations. Why must we be persecuted for drug addicts out in the world? We should have the right to have relief from pain without having to deal with suspicion, criticism and downright rudeness by medical professionals. Dr.Paul Cheney has stated that the pain of CFIDS is like the pain felt by bone cancer patients! This is a very touchy subject for me. I cannot take Lyrica due to my heart failure and Cymbalta did not help my pain at all. I wish something else would work! I take plain oxycodone and add aspirin to it and also a muscle relaxant. I get huge, hard knots in my muscles all over my body that is extremely painful. I just take one day at a time and do the best that I can. If they take my narcotics away from me I hate to even think what would happen to me…..I would be suffering something awful, that I do know. Good luck to all of you out there and wishing you pain-free days.

February 20, 2009 at 9:31 pm
(8) Barb says:

WeeRoo, I appreciated reading your comments. I failed to mention that I have also tried ibuprofen, naproxen sodium, tylenol,mobic and ultram and none of these even touched my pain. And now with my heart failure I am afraid to take NSAIDS for the heart attack and stroke warnings attached to them. I have other health conditions and take a lot of RXs and I always worry about drug interactions. My MD did prescribe oxycontin for me one time and it controlled my pain much better because it kept the drug level in my system even, but it was outrageously expensive and so I only took it for that one time. So now I take oxycodone every 4-6 hours which means my blood level of the drug fluctuates up and down during the day. It is all so frustrating! I am so glad that you have found some good, caring doctors, because they are not easy to find.

February 21, 2009 at 1:05 am
(9) ladydae says:

I find the entire subject insulting. For me, I have a doctor who recognizes the need to relieve my Fibro pain, and handle the problem of tolerance by switching meds if I start to need more. I still have to go through life embarrassed however. friends, family,new doctors etc. treat me as though the fact that I need opiates to help control my chronic pain suggest some sort of defect in me. I am either an addict or I suffer from depression according to these people who have absoloutly no medical knowledge. The worst characters I encounter though are MD’s who think CFIDS and FMS are such unimportant diseases that they do not have to keep up with the research. I am sick of educating the professionals and the paying them for it.

February 21, 2009 at 12:29 pm
(10) lynn says:

It really is unfortunate for those of us who suffer so much to have to be treated the way we do at times by Dr’s. Unfortunately drug addicts and Dr’s who have had no problems writing any kind of script are where the problem lies. Then we, those who truly need the help from the pain do have to go through hoops at times to try to get the relief we need. And I do understand that Dr’s are trying to save their license and pratice, which is their job. In life there is always someone or something that can spoil something that works that is good. And unfortunately for us drug seekers and the Dr’s who don’t care have ruined that for us and the Dr’s who do care. I have Fibro and Chronic fatigue and suffer from it every day. I only take Lyrica and that does not seem to be doing much good during these cold months. How I beg spring to come. I am so sick and tired of being in pain and hurting each day, but I am the type or person who keeps making lemonade out of the lemons any way. I once was the type of person who was always on the go, very active, exercised all the time, totally enjoyed life and looked so forward to each day. Now it is a miracle if I can get a few things done during the day. I was laid off from my job in September and found a fibro support group in October and they encouraged me to file for SS disability. It took me 2 months to decide to so it but I did. Once again the reason it was so hard was because I am a doer and a go girl and in the group I am learning I have pushed myself way too much which has caused much of my own pain and I need to slow down and take care of myself and find out how to do so. I am learning I have lots of limitations and to pace myself. What concepts!!!! And they have helped me so much and I do need a huge like time out for a while to take care of my body because it needs it. And if I need help with any medication I will do what I have to to help myself there. I now go to a clinic as I have no health insurance and just to see the Dr there and get a regular prescription is at least a 4 hour wait. I am learning all about patience and it isn’t easy when your body is screaming at you. The long of this is, don’t forget that while we are having a hard time with this so are the Dr’s. It cannot be easy for them either. Although I would like to see them change shoes with us for even just one week some time so they could see and perhaps that would make a huge differnce.

February 26, 2009 at 2:27 pm
(11) jersey_emt says:

WeeRoo,

I’m sorry you had to go through what you described. I’m appalled that your doctor refused to treat you because you had a metabolite of the medication he prescribed in your urine screen. One thing that I noticed though is how you mentioned that Vicodin (hydrocodone) worked extremely well for you. Hydrocodone indeed does metabolize partly into hydromorphone (Dilaudid), which is a much more potent opioid. In the average population, about 10% of the dose of hydrocodone gets metabolized into hydromorphone, but this number can vary greatly from person to person. It sounds like you are part of the group in which significantly more than 10% of the hydrocodone you take is being converted into hydromorphone. This might explain why Vicodin works so well for you. It might also explain why the doctor thought you were using Dilaudid on top of the Vicodin he prescribed — because you had more hydromorphone in your system than a ‘normal’ person. It doesn’t justify what he did in response, but I thought it would be helpful for you to know this information.

February 28, 2009 at 8:01 am
(12) Lisa says:

And the researchers wonder why suicide often seems the only answer for chronic pain suffers, especially those with CFS or Fibromyalgia. A little understanding & compassion would go a long way.

June 12, 2009 at 9:12 pm
(13) ildratherbe says:

I had an awful experience with my doctor of 8 years. I was taking Hydrocodone for about 5 years as the only pain med I could tolerate. (It also worked better for pain.) I had regulated it myself, always taking the lowest dosage, upping it if needed and then returning to my low dosage. One day he akded for a blood test which I thought resaonable. Then a few weeks later I got a certified letter saying he could not see me anymore! I called the office immediately to see if I owed money. That was not the problem, the lab test showed I had Hydromorphone in my system so the conclusion was I was not taking what the doctor perscribed (selling it)and was taking an opiate the doctor did not perscribe. I was adamant that this could not be so I gathered everything I take including vitamins and rushed to his office. He refused to see me! The nurse just said there was no way to negate the test results. After an 8 year relationship. I was so ‘excitable’ that security had to follow me out of the building. Later a friend knew of a toxicologinst and asked about it. He said it was common for some people to metabolise hudrocode into hydormorphone and my doctor should have known that. An unfortunte experience for all! But it forced me to seek out another physician and I lucked into one of the best most caring groups of doctors in my life. And no questions asked about drup shopping, they just picked up my treatment from where it left of and then started introducing/diagnosing new treatments from there. How lucky after such an awful experience!

March 13, 2010 at 1:48 am
(14) 2muchpain says:

Knock on wood, my regular Dr is great.My big problems have come from pharmacists. When trying to get a valid script filled, they have refused and said ” I didn’t need pain medication”, then refused to fill it or return it. This was on a Friday night. I argued that he had nor treated me, nor knew my symptoms and he said pharmacists have power over doctors. I had to suffer all weekend. I believe fibro fog caused me to go thru this a couple more times before changing pharmacys. I also wanted the convenience of a 24 hour one. I found out thru much suffering and stress that it’s better to shop between 9 – 8 and be treated like a human being, than to be put thru misery for the 24 hour availability. Has any one else have problems with power hungry pharmacists?

March 16, 2010 at 5:02 pm
(15) Maria says:

I think this is wonderful, I know it is over a year old, but this should be don with every drug, from adderall to morphine! It will help save lives and prevent addiction. I pray in the name of Jesus, that is come to pass, we need it in this country! If we start now, we can help curve a bad spiral down for our kids, and that’s what it’s about!

March 16, 2010 at 11:31 pm
(16) gracie says:

Lady… youve lost your mind if you think that pharmacists being able to over rule Dr’s is a good thing. Lets just let anyone with a few years of education control our meds. This wont stop addiction… it will simply increase the amount of people dead that refuse to live with severe chronic pain on a daily basis.

From Adrienne: Two things — first, the above comment wasn’t addressing the one before it about the pharmacist. It was referring to the guidelines themselves. Second, pharmacists often have more education than doctors and know a lot more about medications. That certainly doesn’t mean they’re qualified to assess who needs pain medications, however! They should stick to watching for dangerous dosages and interactions, and leave the doctoring to the doctors. ~Adrienne

April 28, 2010 at 1:31 am
(17) Doctor of Pharmacy says:

Dear 2muchpain,

I am so sorry that you had a bad experience with a pharmacist but we aren’t all power hungry. We just want to do our jobs and follow the law. Can’t imagine why you would be told you jusy don’t need pain meds UNLESS your insurance was rejecting the claim because refill too soon or maybe the Pharm.D. Wanted to verify the script and the office was closed. I just have to tell you that as a Pharm.D. I know what that is like. You have a script that you aren’t sure about or have a ? About but it is 1am on a Saturday and I have no way if contacting the MD. That is what it has cone down to. I verify C-2 scripts ALL the time because you just never know and that is my job! FYI a Pharm.D. has no right to keep your script UNLESS they thought it was fraudulent or altered. Yes, as a pharmacist I have the right and the law behind me not to fill ANY RX I don’t want to… that may be what you are referring to with pharmacists having power over MDs. An MD can right scripts all day EVERYDAY but I don’t have to fill it. My license is on that wall and my 8 years of education and $150,000 of student loans put
it there. I have kept scripts before and guess what? The person never cane back for it. If I’m holding an RX for a pain med you need hostage…seems you’d be coming back or having your MD call me ASAP Monday morning. Point proven. Fraudulent or altered RX that could have came back on ME if I had filled it. Peole don’t realize that just because an MD rights it doesn’t make it right. I fill it and you die…they cone to me and say Dr X why didn’t you question this script? Why did you fill it? The MD wrote it but YOU handed it over to the patient. Again, sorry for you inconvenience but it sounds like the pharmacist was suspicious and just doing their job!

April 28, 2010 at 2:06 am
(18) Doctor of Pharmacy says:

Dear Gracie,
FYI…I have a BS in Biomedical Science and a Doctorate of Pharmacy. I wouldn’t call that a “few” years if I were you. At the absolute least… A pharmacist has 2 years of undergraduate courses and 4 years of grad school. Pharm.D. Stands for pharmacy doctor like MD stands for medical doctor. ALL colleges of pharmacy are extremely competetive and difficult to be accepted to without a BS. In my opinion, more applicants accepted will have a BS than just 2 years of undergrad courses. It isn’t like it used to be when you went for 4 years and had a BS in pharmacy and titled RPh or registered pharmacist. Since the late 90′s it has been a requirement to have a doctorate because the RPh program is obsolete. So, the next time you are in your pharmacy,,, more than likely that Pharm.D. has 8 years of education and maybe even completed a residency or 2 (as I did) upon completion of pharmacy school for a grand total of anywhere from 8 to 10 years of higher education. I think being to ” over rule ” an MD and not fill an RX is a GREAT thing because if it was YOUR child that had a penicillin allergy (but the doc or nurse didn’t take time to look at the chart) and I chose not to fill the RX and have it changed…you would be one happy camper Lady. If I just said to myself…well…a DOCTOR wrote this RX and I am a mere pharmacist with no brain or ability to do but what they say….you’d be in a heap of trouble and guess what? So would I!!! I would think that you would have more respect and faith in the person able to “control our meds”. That is what we are there for. Sad to think that you actually think that my career is so contrite. I save lives EVERYDAY by dispensing the correct meds and catching interactions (no the computer doesn’t always do that for me) and flat out MISTAKES that MDs make. Catching forged RXs as I have many times over the years has stopped addiction at least while that person was in jail for forgery and theft of a RX pad being shared among friends…maybe with your child, niece or mom! What WILL increase the amount of people dying is turning the other cheek and letting that forged RX for #120 oxycontin, morphine or methadone walk out of my pharmacy because that person went home
and took too many or sold them to a teenager who wanted to be cool. I take my career very seriously and it sounds like you need to put more faith in the person who “puts a few pills in a bottle” because the next pharmacist might not be so careful and not notice it is the wrong pill or miss an allergy on your 1 year old baby.

April 28, 2010 at 2:23 am
(19) Doctor of Pharmacy says:

2 things- First, I WAS addressing the comment about a pharmacist having the power to over rule a MD. Not sure what post you were reading….
Second, yes, I do have years of education focused on MEDICATION and their uses so that makes me the PERFECT person to question the opinion of an MD. Oh, and by the way, I am leaving the doctoring to the dr’s since I am one. What do you all do?

April 28, 2010 at 2:44 am
(20) Doctor of Pharmacy says:

Adrienne,
I am a pharmacist suffering with fibro for 14 years now. I was on your site because it is pretty darn good and VERY educational. I have read and printed several articles and have actually spent the better part of my day and night reading and evaluating (yellow highliter and all) 3 entire articles found in The Journal of Pain about the Clinical Guidelines for the Use of Chronic Opioid Therapy in Chronic Noncancer Pain. Another unappreciated talent we pharmacists have is the ability to read and assess an article with our drug literature skills. Hated those classes in college but use the skills all the time now. I was excited to see the links on your site and took full advantage of them as a professional with this disability. Many a MD needs this info in my community. Just because they are doctors doesn’t mean they know what they are doing all the time. Everyone can use a little help even if from a lowly pharmacist with 14 years of personal experience and almost as many years of education dedicated to helping myself and others find the answers we need. Why do you think I was even on this site? Doing research for myself and the many patients of mine that are suffering along with me. I meant no disrespect but the pharmacist comment just ticked me off. I feel better now. Thanks and great site.

June 8, 2010 at 10:19 am
(21) Dutchman says:

I think you pharmacy guys are power hungry if you want to override what a MD says. Your job as a pharmacist is to catch mistakes, including fraudulent RXs, and drug interactions. You have no scope to treat or diagnose a patient. Any concerns should be addressed to the doctor and perhaps the MD can make a more informed decision. The doctoring is done by MDs. Pharmacists may have a doctorate, but that doesn’t mean they are “doctors” in the classical sense that the majority of the public assumes that a doctor is a medical doctor. Just as a PhD doesn’t assume that he is a doctor in the classical sense, going around telling people he is a doctor. Pharmacists do go to school for more than a few years, but it is does not compare to the length or rigor of a medical doctor. At the minimum a doctor would go to school for 11 years. That is the minimum for a FP. Any other doctor is looking at 14-16 years. Residency does count as schooling due to the fact that you are learning in a classroom setting about 20 hours a week. Knowledge about drugs and interactions is one thing. Knowing how to apply that knowledge to the pathology of human beings is another thing. Pharmacists definitely have more experience dispensing narcotics, but their knowledge is limited when it comes to why a drug is prescribed. The MD spends more time with a patient than any pharmacist does. It is not in the nature of the business for a pharmacist to spend lots of time with the patient. Especially when you are required to fill 400-700 RXs a day. It is your responsibility to make sure there are no mistakes in the writing of the RXs, not deciding what the treatment should be. If you want to be justified in making decisions about the diagnosis and treatment of a patient then you should work in a hospital setting where it is warranted. PharmDs were not designed to be retail pharmacists. The curriculum and scope of the degree seems to be geared towards research and hospital workings. If you really want to be helpful then do what your degree was designed for. It is a shame to waste your education in retail pharmacy. Why? To make more money? Many pharmacists feel that they need to make lots of money to pay for school loans, but being true to what your trained to do is more important.

January 4, 2012 at 5:20 pm
(22) NLainus says:

Hi all, my wife has fibro and has severe & chronic pain. So much so that it has affected her job, our love life, her parenting, etc. She is being treated as a drug seeker whenever she asks for any sort of pain relief.

Here’s how doctor’s consistently treat her. Example: She went into urgent care for severe pain and the first words out of the physicians mouth was “you’re not getting any pain meds”. We’ve never seen this doctor before. My wife had told me this happens often with doctors, so I went with her to witness it firsthand. I was in shock, and blew up at the doctor. It sounds to me like there is something in her record at Park Nicolette that says she’s a drug seeker or something. Doctor’s seem too quick to assume that’s the case with patients I guess. My wife is just trying to minimize the pain and have some sort of normalcy back into her (our) life.

She and I do not want her to have to take pain meds for the rest of her life. She’s tried lyrica, muscle relaxers, anti-depressants, and other meds that just didn’t work. So my thought is that until they figure out a way to cure the pain, they need to treat it but the problem is most doctors won’t. I also found out that approximately 50% of doctors don’t really believe in fibromyalgia. That is really disheartening. Seems like because a few non-chronic pain drug addicts have ruined it for everyone. That’s to me is like stop issuing drivers licenses because of a few bad drivers out there.

We printed this out and will present it at her next appointment. Wish us luck!

May 17, 2012 at 10:38 am
(23) Cricket says:

I was one who would have argued for the right to take pain meds. Now many years down the road, I see that my body just keeps upping the pain. Seems to be what these few braver docs are finding. So why do so many pain docs prescribe it? They’ll lose lots of monthly visitors. Some people go a very long time thinking the meds are helping–like me. Then you face it. That old misery is back.

May 28, 2012 at 10:21 pm
(24) abc says:

I have suffered through this pain for years it has effected my moods, although I suffer from adhd I find that amphetimes work tremendously for my constant ” just tough it out” attitude. Although in the past I had experimented with drugs when I got older I realized opiates were not easy to overtake as they are very helpful for pain I have to be very careful in taking them because they are not to be abused when it just number your feelings your not dealing with the problem like putting a bandaid on cancer. The humiliation of the meds is enough to keep me from overusing. Perhaps at a younger age I think it is important to acess the ability of mind and tolerance to other methods. Overall its the shame of feeling a need to take anything that I deal with on a daily basis. This article is honest because of all the avenues of treatment it should be a last resort along with therapy to combat depression.

May 28, 2012 at 10:40 pm
(25) abc says:

I have fibromyalgia as well as adhd. The therapy for adhd as well as the meds have helped my sleep. The adhd meds work wonders for my REM the hydrocodone as I’ve had self on and off with the medication thinking it helped but overall I should just be able to tough it out is still effected because of the pure humiliation and second guessing of pharmacists. The pharmacist once second guessed my doctor and I just said f it for a couple years I lost communication with the outside world due to the thoughts of her. Although I was stubbornly stuck on this I don’t want to…I realized I need to take this medication for myself the pharmacy wasnt dealing with my pain and visits to my doc the doctor was and looking back it caused a great deal of stress to this day I still get angry.

June 4, 2012 at 5:56 pm
(26) Alice Howe says:

Well Maria
I pray to Jesus that you will develop fibromyalgia at its worst and then find that a controlled drug is the only one that lessens your pain.
Then reconsider your comment.
Oh thank you Baby Jesus.

February 24, 2013 at 3:55 pm
(27) shannon says:

the link did not work please please please could you send it to my email i have fibro and the only thing that helps me over the really bad times is vicodin and i haven’t had anything in years since my doctor left i really need help getting the new doctors to listen thank you

February 26, 2013 at 9:46 am
(28) Mar says:

Wishing disabling fibro on anyone, especially if you have it, is such a DISGUSTING thing to say. I wouldn’t wish this on my worst enemy. I’m sure everyone else with fibromyalgia would agree with me. I call it “The Death Sentence Without Death” and it just gets worse every year, and I’m only 31. Was finally diagnosed at 26 after suffering started around age 14. I’m on opiate medications (after trying everything else) and they work to help my quality of life, and I had to sign agreements etc. but in most offices it’s just mandatory procedure. Also on ADD meds and muscle relaxers, the combination seems to be the best I’ve had so far. The only time my meds don’t work as well is if I’m having a bad flare.. but I’m always in pain even if I’m not flared up, along with all the other horrible fibro symptoms. I’m on disability and my life would be over if my doctor ever took away my pain meds, etc.. Also, if you’re in disabling pain all the time, it’s pretty much impossible to get high off these meds. And other doctors opinions or even looks when I list my meds is annoying, they know nothing about me on a first visit.
I was a pharmacy tech for 6 years, and the pharmacist has the right to not fill any prescription they don’t feel comfortable filling, etc. Anyway, since this article was written a lot has changed, pretty sure almost everyone has to sign a contract, at least in my state you do. I want to move somewhere warmer but I know it would be next to impossible to find a new doctor willing to prescribe me my meds, even though I’ve been on them for years. It really sucks.

March 11, 2013 at 7:18 pm
(29) DeeDee says:

Ran across this website while researching opiates and their effectiveness in treating Fibro. I hurt all the time. My doctor prescribed 120 mg of Cymbalta a day. I can’t really tell if it works or not. My husband takes hydrocodone for a degenerative back condition and at times I will take one of his at night and it is sweet relief! The one time I asked my doc for Hydro she reacted as if I pleaded for Heroin. I actually felt guilty and ashamed and then mad for feeling that way! I am going to look for another doctor because most of the above comments have convinced me it would make a difference.

July 5, 2013 at 5:59 pm
(30) Qukiatmedotcom says:

I have been in pain mangt for 5 years. I was about 34 when all these symptoms became unmanageable. I have lower back pain, left leg cramping, shin splints, muscle burn, left leg & foot numbness, joint swelling w/pain, sciatica, degenerative disk disease, SI joint pain, arthritic shoulder, carpel tunnel and “fat tissue” around my cervical spine w/swelling & pain. horrible ocular migraines. Nausea, I don’t eat but stay fat. I’m non stop thirsty. I was on norco, fentanyl, Topomax, opana, Mobil,methadone, flexeril, lyrica..more I cannot remember. I had 2 MRI’s (non brain) showing degenerative disk disease and arthritis. 1st & 2nd PM Drs “moved”. i was abandoned The meds did not work consistently or side effects were bad.Dr kept changing opiate meds & non opiates (which i thought was norm) 3rd dr came in- rolled her eyes at me, Said chronic pain is not treatable with opiates. My MRI & diagnoses do not Warrant the pain “I have”. Puts a stop on all opiates and RX’s Topomax, ibuprofen 800and tells me i can take 14,000 mgs of ibu a day! refuses to answer Q’s. quickly I begin w/panic & pain &withdrawals from cold turkey quitting (duh)

July 5, 2013 at 6:04 pm
(31) Qukiatmedotcom says:

I email dr #3 emerald huang at kaiser Baldwinp many times. No reply. She deletes my emails from server!! I call. I’m told that PM Drs would discuss with management what to do. Few days later I get a referral to addiction medicine and a sub maint therapy contract. my charts says OPIATE DEPENDENT all over them
I’m taking suboxone for “off label use” as a chronic pain med. but kaiser will not allow me to use unless my charts say opiate abuser. I take ibu 800, lidocaine,zanaflex, valium, suboxone. Few days i feel fantastic, Some days are okay, Some days I feel like I’m dying and everyone thinks I’m a bi polar drama queen. Every day i nap. i recently had my 1st mamo & it was a call back and biopsy because of a benign Fibrocystic lump. I see a psychologist for panic I’ve had since 11, ADHD, OCD& depression. I’ve gained 40+ lbs in 4 years. I’m on Prozac, Valium and Provigil. she had originally put me on Wellbutrin & Stratera. But side effects were awful. i could not stay awake. id sleep at night for hours & id wake up exhausted. I saw a neuro in argentina. Dr cut out stratera and welbutrin and added Provigil. My psych said she’d try it. My psych will not put me on adderal because I’m a labeled Opiate Dept. I wonder if my ADHD is fibro fog & hyperactivity (brain craze,not physical hyper) my mind goes on hyperoverload and then just shut down. I am not a dr – but doesn’t this all sound like fibromyalgia to you?How do I find a sympathetic dr at kaiser who will help me?? I want my life I had 10years ago back!! I could garden all day. Paint my entire house. I’m afraid ill lose my husband. He doesn’t understand what’s wrong with me. I don’t know where to start.

August 1, 2013 at 9:37 am
(32) Teacher says:

I am 52 year old man. 27 year as a school teacher. Thanks for the comments. I played 5 years college football, coached, very active. My pain was limited at first. I remember messing working on the muffler under my car as a teen and trying to lift my head to study the problem. Within a few moments my neck and shoulders would catch on fire (not literally of course). I just remember thinking how strong the automotive repairmen must be in order to work under a car. I went to back doctors for low back pain, traveled 200 miles to go to a back (hardly any back then) specialist. Fast forward 30 years… i can no longer coach – my pain became to severe. My mood swings worsened – diagnosed bi-polar. Went off and on Geodon, Topomax, Wellbutrin, blah, blah, blah. – All are pretty much evil drugs. Three years into this crap I had gained 50 pounds. Weighed 310+. Took a year to cycle off those evil pills. Dizzy for months. Whew doggies!

August 1, 2013 at 9:38 am
(33) Teacher says:

After a shoulder surgery (another story) I discovered how much better I felt on Hydrocodone. I eventually went to a neurologist. I am presently on Gabapentin for sleep – I take up to 2400 mg day for nerve pain. I am allotted 3 Narco’s daily – but now that I sleep better I usually don’t have to take all three…all though some days I may take 3 1/2 if I’m trying to do any type of physical labor. I also take Vyvanse…allotted 60 mg daily – but again may not take the full dossage. I ususally popped the capsule and put the powder on my tongue. As a teacher in a huge school district I have to be on my game or I WILL get eatin’ alive. (I work with troubled kids…in a discipline situation – see myself in a lot of them – some of them on the same meds I take – at 16 and 17. Shoot – I didn’t start taking medication until I was 45… I truly empathize with all of you who struggle with chronic pain. And yes – some doc are idiots when it comes to treating you like a druggie. I just drop them like a lead weight and go to the next doc. I have found that neurologist – although won’t give you some meds – if your honest with them they will put you on a regiment that works. REMEMBER – YOU are your own best doctor. You know what helps you and what doesn’t. Just because they have a piece of paper on their wall with MD beside it doesn’t mean a heap of poop. Have they ever taken Geodon, or Wellbutrin… I seriously doubt it. But hey – it may work for them. Well…here’s hopin’ for a breakthrough for chronic pain someday. Serenity Prayer – Accept the things I cannot change, and the courage to change the things I can… Now… let’s get out in the 105 degree heat @ 56% humidity and fight this chronic pain like a rabbit fights an anaconda… (Just kidding – accept the things I cannot change…accept the things I cannot change. – Dadgumit.. I HATE THIS FRICKIN’ PAIN! Where’s my hydro..?

September 29, 2013 at 9:05 pm
(34) Joanne says:

I have very severe fibro and i wish i could find a dr that wojld prescribe something to help me. The first words out of my dr was “non narcotic” i take tramadol lyrica & doxepin with absolutely no relief. I have tried cymbalta and after only 4 days i was so sick i thought i was going to die. Sometimes i really wish that i had. On the last visit to my rhumy he told me that he is doing all he can & maybe i should look into mental health. Btw i do see a mental health dr & also attend her support group when i can. For the most part i am bedridden becauae the drs refuse to prescribe a narcotic that would help me. I know this would help me because when i had to have a tooth pulled i was given percoset & it helped with my fibro. It was so nice to have my pain relieved enough for those few days that i could actually get out of bed & do something. It is such a shame that people that really need help cant get it because of the people who abuse it. I now understand why there is such a high suicide rate among fibro patients. If i dont get help soon i dont know how much more of this i can take.

September 29, 2013 at 9:20 pm
(35) Joanne says:

I wish i could find a dr that was willing to prescribe in my area. I would be more than happy to sign aomething. I have what my dr called one of the worst cases of fibro that he has ever seen as well as severe arthritis. The next words out of his mouth were “non narcotic” he then put me on tramadol lyrica & doxepin none of which do anything to relieve the pain. Tryed cymbalta but after only 4 days i got so sick i thought i was going to die. Sometimes i wish i had. Other drs including my rhumy have tried to say mental health was the way to go. I do see a mental health professional as well as group sessions when i can. I am basically bed ridden now & am about at the end of my rope.

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