It's something that's gone through all of our minds at some point -- will my fibromyalgia get worse? We can't answer that question with a "yes" or "no," in spite of what you may read on sites that want to sell you an expensive "cure" or proprietary (and unproven) treatment. I had a frantic email recently from a man who'd contacted one of those sites and was told, "Everyone knows fibromyalgia is always progressive."
Quite frankly, that's a flat out lie. All you have to do is visit my forum to find people who have improved over the years. As for me, my worst days now are about on par with my best days a year ago, and I no longer have days or weeks when all I can do is lay on the couch and suffer.
On the other hand, it would also be a lie to say that we'll all make improvements. What is the prognosis? According to studies and (legitimate) doctors who treat fibromyalgia extensively:
- About 1/3 of us will make significant improvements
- About 1/3 of us will get worse
- About 1/3 of us will stay about the same
- A very small percentage will have a complete remission
Don't think of exercise as aerobics and treadmills. I'm talking about some mild stretching or a short walk, for a few minutes a day. Getting started is the hardest part, but this article can help:
How have things changed for you over time? Have you gotten better? Worse? Stayed the same? What do you think has made the difference? I'd love to hear your stories, either here or in our Fibromyalgia & Chronic Fatigue Syndrome community forum (under Newsletter & Blog Topics).