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Fibromyalgia & CFS Blog

By Adrienne Dellwo, About.com Guide to Fibromyalgia & CFS

Invisible Illness Awareness - What is An Invisible Illness?

Sunday September 7, 2008

When you first meet someone with fibromyalgia (FMS) or chronic fatigue syndrome (CFS or ME/CFS) you likely have no idea that person is sick. Same goes for people with arthritis, multiple sclerosis, diabetes, heart disease, cancer, eating disorders, depression, endometriosis, diverticulitis ... the list goes on and on.

When someone has the flu, or a cold, or an injury, it's generally pretty obvious by looking at them. We can also see when someone is in a wheelchair or uses a cane, or if they're hauling around an oxygen tank. Those are the images that come to most people's minds when they think of "chronic illness" or "disability." Here are some staggering facts:

  • According to the U.S Census Bureau, 96% of chronic illness is invisible.
  • Nearly half of Americans are living with some sort of chronic illness.
  • 70% of people who commit suicide have uncontrolled pain.

Pain, along with fatigue and brain fog, are invisible symptoms of our invisible illnesses, but that doesn't make them any less debilitating than visible symptoms. National Invisible Chronic Illness Awareness Week (Sept. 8-14) aims to get people to understand that concept, and you can do your part. How?

Do you have ideas for how we can make the general public more aware of invisible illness? Share your ideas here or in About.com's Fibromyalgia & Chronic Fatigue Syndrome forum (under Newsletter & Blog Topics.)

Comments

September 12, 2008 at 5:27 pm
(1) VaBreeze says:

Adrienne – I looked for the instructions, but it seems to be a bad link or in my fogginess I can’t locate it. Could you check that for me? Thanks so much.

It tears at my heart to hear the statistics for those in chronic pain…70% who have committed suicide had uncontrolled pain I’m not surprised though. Why is it, in this day and age, that anyone should have to suffer from pain? I just don’t get it. I would much rather take my risks on becoming addicted and having several good days, than to never have a day without pain. The doctors don’t understand this concept. It’s so sad…very disheartening.

We can make the public more aware by having programs in school (this also helps our children who have an invisible illness that others can’t understand). We all know how cruel they can be in school. We need to make it a requirement for all businesses to hold seminars and training (just like Human Resources does for Sexual Harassment) for their employees. I hear many stories in my group of how supervisors and staff think those who suffer from this are malingering or just plain lazy. Until this happens, it will remain the same as it is now…a closed subject.

September 12, 2008 at 6:27 pm
(2) Adrienne - Your Guide to FMS/CFS says:

VaBreeze,

The link is now working! Thanks!

September 13, 2008 at 8:47 am
(3) Vabreeze says:

Thanks so much Adrienne. Have a great day.

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